Re: HBOT for autism/CP

[Guest guest]

Hi Barb

http://miraclemountain.homestead.com/COVER.html

In the UK we do MS, osteomylitis and carbon monoxide poisoning!

Mandi in UK

> Does anyone know HBOT clinics that cater to this?

>

> I checked around us and the local hospital-based HBOT clinics won't do

> autism or CP! OR car accidents or brain trauma patients???? Go figure!

>

>

[Guest guest]

What does HBOT and CP stand for?

--- In , " romkemas " <jromkema@f...>

wrote:

> Hey all,

> This is for you longtimers on the list. We're moving into year

three of chelation and looking toward some HBOT (along with

finishing chelation) to wrap up his treatment. Our son is a good

candidate for this, I believe, since he also has the CP. Several

years ago some lady with two autie kids kept posting about her

amazing experience at this HBOT clinic in Florida (where she now

works, I believe?.) Does anyone know HBOT clinics that cater to

this?

>

> I checked around us and the local hospital-based HBOT clinics won't

do autism or CP! OR car accidents or brain trauma patients???? Go

figure!

>

> Thanks!

> Barb

>

>

[Guest guest]

Hello Barb,

> This is for you longtimers on the list. We're moving into year

three of chelation and looking toward some HBOT (along with finishing

chelation) to wrap up his treatment. Our son is a good candidate for

this, I believe, since he also has the CP.

Makes sense to me.

> Several years ago some lady with two autie kids kept posting about

her amazing experience at this HBOT clinic in Florida (where she now

works, I believe?.) Does anyone know HBOT clinics that cater to this?

Yes, here is a great list of clinics:

[mum's network homepage: http://www.netnet.net/mums/index.htm ]

mum's list of HBOT providers:

http://www.netnet.net/mums/hbolistAL-FL.htm [Alabama to Florida]

http://www.netnet.net/mums/hbolistGA-WI.htm [Georgia to Wisconsin]

http://www.netnet.net/mums/hbolistNon-US.htm [elsewhere in the world]

From the main page of the Mum's Parent to Parent network, you

can also find other info on HBOT, and other HBOT resources.

In addition, MUMS has an HBOT packet they will send by mail for

something like $25 mailing and copying fee.

>

> I checked around us and the local hospital-based HBOT clinics won't

do autism or CP! OR car accidents or brain trauma patients???? Go

figure!

Yep, that sounds par for the course. There are --um-- a handful

of " recognized " uses of HBOT. This means recognized by the

mainstream. This does ***not*** include stroke, brain injury,

or any of MANY other conditions which HBOT is very useful

for. There are many freestanding (non hospital) clinics which

will be more receptive. You may wish to note, however, that they

will still need an Rx to provide this service to you. Many (or

most? or all?) of them have a doctor on staff. The ones near

my home that I've spoken to (2 of them) seem very receptive and

helpful. Call around.

Here is an email list you can join:

hbotforcp/

Offhand I know of a mom w/an ASD child on the list,

and also an adult w/CP, both using HBOT. I'm sure you'll find

lots of help and support. There has been some fairly recent

discussion/controversy there

about the use of " mild " pressure HBOT chambers. (This can be

***relatively**** less expensive than the hard-shell chambers,

if you are doing many treatments. Still NOT NOT NOT cheap.)

You'll find several posts from me on the topic, if you are

interested, as well as a post with comments on my use of

a mild chamber (just once, considering whether to buy one).

If you are interested in this, I can also provide you leads

and information on pricing and various other considerations

of that sort.

Please let me know if there are other aspects that you are

interested in. I may or may not be able to help, but I've

been accumulating quite an assortment of information.

The 3 therapies that I know of that I consider to be clearly

useful for (some cases of) brain injuries are:

1. heavy metal detox

2. HBOT

3. cranial manipulation

Medical ozone **may** also qualify.

best,

Moria

[Guest guest]

Here is another place you can look for HBOT clinics.

http://hbomedtoday.com/dbsearch.html

Enter a location (e.g. I used " california " to see how

it works.) This database appears to list both hospitals

and clinics--- and also some HBOT chambers that are used

for research. I'm not sure if this is useful or not---

you'd have to sort through the results.

Moria

> > Several years ago some lady with two autie kids kept posting about

> her amazing experience at this HBOT clinic in Florida (where she now

> works, I believe?.) Does anyone know HBOT clinics that cater to this?

>

[Guest guest]

> I've never heard of this before. Can someone explain what this does for

> autistic children? Thanks!

>

Hello ,

I recently sent some HBOT links to a couple of people I know,

so I'll copy them here for you. I don't know that they are

the " best " links for info, but they are what I have.

I'll also comment a bit for you on what it is or how it

works==== about which I do know some---- however, I'd like

to say up front that this therapy has not been used a lot

with ASD kids ***as far as I'm aware***. There are SOME

ASD kids who have been treated with it---- but I don't

think this is common or widespread. For example, I don't

believe DAN has any reference to it. Parents of kids

with Cerebral Palsy have somewhat more use **apparently**

(this is all based on my limited impressions). In any

of these relms it is a WILDLY alternative therapy.

HBOT = hyperbaric oxygen therapy. It combines breathing

oxygen with higher-than-usual pressure. Both of these

increase the uptake of oxygen into cells. The oxygen

is what is (sometimes/often) healing. The pressure is

created by a " chamber " . This is the same sort of thing

that divers who have " the bends " use, and that mountain

climbers who have altitude sickness use. There are

some minor squabbles about how much pressure should

be called " HBOT " . To get higher pressure you need

a " hard shell " chamber.

HBOT is ***expensive***. This may be its biggest drawback.

It is also legally restricted (requires an Rx), and it

is only generally recognized for a handful of its uses.

[Aproximate cost:

treatment in a hardshell chamber in the US: $100 to $200

per treatment. People usually do 40 treatments at a time,

and often do more than one series of 40 treatments.

treatment in UK: more like $20 to $30 per treatment

(the MS society runs low cost clinics).

Purchase of a lower pressure chamber for home use:

$9000 to $20000 depending on size.]

Since there are not a lot of HBOT centers around, many

people actually travel to do this, staying in a hotel

or whatever for weeks at a time. VERY inconvenient.

There are also a few other types of healing methods which

I think of along with HBOT, because they are all

" oxygen therapies " . I have been reading about these (and

to a minor degree experimenting with them) for about 5 years.

The others are: ozone (used for healing) and hydrogen

peroxide. And, yes, it took me a while to fathom how

any of this could be healing. All of these are considered

by some (including me) to help a very wide range of

issues -- so much so that it can appear to be total

rubbish and really really weird. This also involves

various kinds of medical regulation and repression

and correlary conspiracy theories. (I'm not sure about

some of the conspiracy theories, but ozone is actually

used in Germany pretty " normally " by MDs.... ) I mention

this because I think you'll find a good deal of talk

about it in many places where any of the oxygen therapies

are discussed.

My preferred book about oxygen therapies is OXYGEN

HEALING THERAPIES by ial Altman. Not sure how

much of this is about HBOT though.

Okay--- here are links (with comments):

oxytherapy website, includes hydrogen peroxide, ozone, HBOT:

http://www.oxytherapy.com/

the FAQ there about HBOT (which I think is really not great):

http://www.oxytherapy.com/faq/hbo.html

The MUMS network info about HBOT:

http://www.netnet.net/mums/index.htm

http://www.netnet.net/mums/Whyhbo.htm

They have the best list I know of of HBOT providers. See links on the

index page (above).

Tom Harrelson's links about oxygen therapies (skip down a bit to find

the section on HBOT):

http://healingtools.tripod.com/OT_pages.html

This is probably very good, his stuff usually is.

List about HBOT for parents of children with Cerebral Palsy:

hbotforcp/

This is a VERY low volume list, but still of interest.

website of OXYHEALTH, the primary distributor of MILD

hyperbaric chambers:

http://www.oxyhealth.com/

Mild chambers can only create about 1.3 atmospheres of

pressure---- " hard shell " chambers go to higher amounts of pressure.

This is a matter of some controversy.

If you ever call oxyhealth, talk to Tom Melone, and tell him I sent

you. Retail price on mild chamber is about $9500 for smallest one,

and 2 larger sizes are 15000 and 20000 (approximate).

Many other companies also resell these chambers.

(I have looked for cheaper prices and can give you details if it

is ever relevant.)

http://www.hbot.com/frontpage.htm

(just found this, it looks good)

http://www.hbot4u.com/

This site has a collection of recovery stories.

writes on some lists I read.

One more caveat for you: Andy says that HBOT can be harmful

to people who are mercury toxic. I've discussed this with

him, and generally understand his reasons. You can ask him

to discuss it too if you want. There is a theoretical part

and a " practical observation " part (cases of actual people).

In addition HBOT chambers do impose certain limits, concerns,

and issues.

I have been in a " mild " (low pressure) HBOT chamber once,

for an hour, recently. I loved it and would love to have

one.

best wishes,

Moria