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,

I am pretty darn sure that your banker should be able to set up your bank

account just the right way for donations, tax breaks, and all else. We have a

few people locally who oversee fundraising and distribution of funds. My friends

that have had these fund raisers and open ended accounts can't just take the

money out to pay bills. One friend that had a kidney transplant didn't use all

the money, so it was kept in a trust fund and when he has new expenses--say he

has to travel for doctor's appointment or something, the trustee issues the the

money or reimburses him. I would talk to your banker first before spending the

money on an attorney. You have been in my thoughts and prayers. Take care. I

think it is wonderful that a fund is beginning for you. Cheryl in Id, 47, PSC,

UC, etc, etc.

-----Original message-----

I know we need to start making some

> decisions and get this done, but for now I'll collect info. and we'll

> make a decision accordingly.

>

> Thanks again!

>

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  • 3 weeks later...

-----Original Message----- Hi, newbie here with a

dilemma, If the PSC is back should I get on the list

again or is it time to go?

Hi ,

IMHO there is no dilemma…..Never, Never give

up!! You’ve been there, done that,

you know what to expect and know how wonderful life can be on the other side of

transplant. You had 6 good years, next

time who knows, you might have 26!

Things are changing all the time, new procedures, new medicines, new

doctors, who knows how long any of us will live? We just have to keep trying and working at

it. There must be a lot of people who

love you and would want you to keep living, I know I do and I just met you.

Besides that, your past transplants you walked alone,

now that you found us, you have at your very finger tips a load of good folks

who will be at your beck (or hunt & peck) and call.

We’ll keep you informed, work for more organ

donors and eventually a cure. And

we’ll do it with a sense of humor, through good times and bad with

honesty and caring, you’ll never be alone again. We have others who are going for a 3rd

organ or have already had their 3rd.

You’re in good company.

Now , repeat our Motto after me…Together in

the Fight, Whatever it Takes! Welcome to the group.

Barb in

Texas - Together in the Fight, Whatever it Takes!

Son (Ken) 31 -

UC 91 & PSC 99

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