Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Flo, Oh you made me smile. I can so remember when Patty began " the fight " with her surgeries. There were a few times she even ripped out her IV. She too would spit out her meds. Gosh that was frustrating. The only way she would take them was I finally told her I wouldn't take her home till she had taken her medications like the doctors and nurses want. After we got home though that was another story. She'd spit it out even when we'd plug her nose, hold her lips shut, lay her down on the table with her head hanging down a bit and gently rub her neck to swallow. It would take both and I to get her meds in. Then just when we thought she swallowed it down we'd step back and out it would come and that could be after fifteen minutes of battle. Oh how sweet it was when she learned how to swallow pills! Sadly the " fight " changes with surgeries. It then turns to anxiety and fear. They earn their battle scars. Still though, they do better than many others would ever dream of. I'm glad to hear did so well and that she has that fight in her. But now you know you are going to have to do the mother nurse stuff now. Good luck with everything. Get rest, you'll need it. A tonsillectomy doesn't sound difficult but when it is with our children who have swallowing and oral sensory issues it can get pretty complicated. Just forget about thick liquids for a bit. Love her up and then give her a kiss or two from us. Hope she heals quickly. Let us know how the sleep thing goes too. Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Flo- As I read about 's foul mood after surgery, I remembered that Aubrie has had a terrible time coming out after being given Versed. So we always make a note that she is not to have that. It may be something others with younger children haven't come across yet. From what I gather, it's not uncommon for people to have a beligerant reaction to Versed. There are other sedatives that can be used in its place. Just a thought to share while I had it. Guess the grey fluff is doing something today after all... Although it wasn't without it's bothers, I'm glad your surgery day is over. I surely hope to hear that the T & A (which I think we should offiicially change to A & T because the other always makes me take a second look)removal was a good decision and is reflected in better sleep for all of you. Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Hi Flo, Glad things went well (well sort of!! aside from the drama's) for 's Operation and hope is bad to her usual self as soon as possible. Love is Mum to > > Hi all, > Must say I feel very self-indulgent writing this. I still have lots of > catching up with posts since the Xmas break so feel a little strange about > keeping updating on news this end without knowing what is going on with > others who are probably going through way worse. Ah well, here goes. > > We are obviously home today minus tonsils and adenoids. The Xmas day fit > obviously did not stop the op going ahead. The anaethetist was actually > more concerned about her cough and cold last week than the fit. Of > course, > yesterday was not without its dramas but I kept my cool. It was the first > time Simon and I have not been at the hospital together for one of > 's > procedures (Elly developed a stomach flu type thing the day before so we > could not both go) so no-one to vent to but played it cool. Set of notes > got lost and there was threat of no surgery as cardiology notes important > in > view of risk of bleed etc. HOW FAR COULD THEY BE??? She only had an out > patient appointment on 22nd Dec so they could not be too far from > cardiology, could they??? Felt like offering to go and look for them > myself. For crying out loud not only had we been in negotiations about > this > surgery for ages, but I had left a sick child who in sickness thinks mummy > is best behind! For the record, today she is OK and back to talking for > England. Says she missed me and . I really do believe she loves > her > sister to bits, but I digress. > > Anyway, all is well that ends well. did go into surgery, and boy, > did she come back in a MAD mood. I got to understand exactly what Michele > W > means when she says that now that Aubrie is more aware of procedures, it > is > horrible to have to participate in holding her down etc for the various > things to be done to her. has become such a fighter it is hard to > believe she is the same frail child we watched over 5-1/2 years ago. > Despite 3 of us holding her down, she still managed to spit out her > premed. > She was also obviously in a great deal of pain after surgery but managed > to > spit quite a bit of her morphine (which took such an age to make an > appearance I thought the ward staff were manufacturing it > themselves!)....anyway it got spat all over me so grouchy pain-driven mood > took ages to settle. Felt really awful for the poor girl but what can you > do? Helpless is not the word. Anyway, she eventually settled and didn't > sleep too badly despite an IV fluids thing as she refused to drink > anything > and had had no fluid or nutrition for more than 12 hours by the time she > slept. I was supposed to go to parent's accomodation but I could not > leave > her so distressed with the possibility of her waking up equally so with no > language to let staff know what the problem was so I slept (or not) in a > chair by her bed. Glad of this. She did wake up in a foul mood a couple > of > times but settled without too much trouble. Each time she was ready to > fight any procedures (thermometers, rectal pain relief etc) so she was > fully > alert as soon as anyone touched her and this highlighted how aware she has > become. > > Anyway, all is well today. She was discharged less than 24 hours from her > op. WE will wait to see how the removal affects her sleep in a few weeks. > She has had a cranial session this afternoon to try to balance things out. > She is totally off her food but is peacefully sleeping now despite my > having > put ear drops in (oh yes, fogot to say she had gromet/tube put in one ear > but they found a skin growth in the other one which they cut off to test > but > now she has a hole in her ear drum so gromet not needed. Typically, this > is > her proposed implant side. May or may not heal itself. More to watch out > for. > > So, that is the long answer to a short question. Gees, can't wait till > end > of March for CI!!! Same hosp, same ward, lot longer procedure. It had > better be worth it! Lesley, do I recall you describing yourself as > " selfish " last week? With all you are going through, I am surprised you > actually remembered 's procedure that was to last no more than one > hour. Selfish, you certainly are not, but even if you were right now, who > the hell would blame you? Amelie is totally number one priority. Thank > you > for asking anyway. > > Despite the high drama description I give, I really could not find too may > holes to pick with the brief admission. All in all, the care of > was > quite good, but I do know exactly what Lesley is getting at about some of > the joys of the NHS from past experiences. > > Better stop and get some sleep after last night. > > Flo > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Flo, Thanks for updating us on ; I'd been wondering about her. Give her a hug from Kennedy & I! Weir Home: lisaweir@... Work: lisa.weir@... Phone: Web: http://ca.geocities.com/weirfamilyrogers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 great things went well fo you > > Flo, > Thanks for updating us on ; I'd been wondering about her. > Give her a hug from Kennedy & I! > > > > Weir > Home: lisaweir@... > Work: lisa.weir@... > Phone: > Web: http://ca.geocities.com/weirfamilyrogers > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 bonnie how funny patty didnt take her meds lol hugs ellen > > great things went well fo you > > > > > > Flo, > > Thanks for updating us on ; I'd been wondering about her. > > Give her a hug from Kennedy & I! > > > > > > > > Weir > > Home: lisaweir@... > > Work: lisa.weir@... > > Phone: > > Web: http://ca.geocities.com/weirfamilyrogers > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 glad it went " well " maria at Lesley's request > Hi all, > Must say I feel very self-indulgent writing this. I still have lots of > catching up with posts since the Xmas break so feel a little strange about > keeping updating on news this end without knowing what is going on with > others who are probably going through way worse. Ah well, here goes. > > We are obviously home today minus tonsils and adenoids. The Xmas day fit > obviously did not stop the op going ahead. The anaethetist was actually > more concerned about her cough and cold last week than the fit. Of > course, > yesterday was not without its dramas but I kept my cool. It was the first > time Simon and I have not been at the hospital together for one of > 's > procedures (Elly developed a stomach flu type thing the day before so we > could not both go) so no-one to vent to but played it cool. Set of notes > got lost and there was threat of no surgery as cardiology notes important > in > view of risk of bleed etc. HOW FAR COULD THEY BE??? She only had an out > patient appointment on 22nd Dec so they could not be too far from > cardiology, could they??? Felt like offering to go and look for them > myself. For crying out loud not only had we been in negotiations about > this > surgery for ages, but I had left a sick child who in sickness thinks mummy > is best behind! For the record, today she is OK and back to talking for > England. Says she missed me and . I really do believe she loves > her > sister to bits, but I digress. > > Anyway, all is well that ends well. did go into surgery, and boy, > did she come back in a MAD mood. I got to understand exactly what Michele > W > means when she says that now that Aubrie is more aware of procedures, it > is > horrible to have to participate in holding her down etc for the various > things to be done to her. has become such a fighter it is hard to > believe she is the same frail child we watched over 5-1/2 years ago. > Despite 3 of us holding her down, she still managed to spit out her > premed. > She was also obviously in a great deal of pain after surgery but managed > to > spit quite a bit of her morphine (which took such an age to make an > appearance I thought the ward staff were manufacturing it > themselves!)....anyway it got spat all over me so grouchy pain-driven mood > took ages to settle. Felt really awful for the poor girl but what can you > do? Helpless is not the word. Anyway, she eventually settled and didn't > sleep too badly despite an IV fluids thing as she refused to drink > anything > and had had no fluid or nutrition for more than 12 hours by the time she > slept. I was supposed to go to parent's accomodation but I could not > leave > her so distressed with the possibility of her waking up equally so with no > language to let staff know what the problem was so I slept (or not) in a > chair by her bed. Glad of this. She did wake up in a foul mood a couple > of > times but settled without too much trouble. Each time she was ready to > fight any procedures (thermometers, rectal pain relief etc) so she was > fully > alert as soon as anyone touched her and this highlighted how aware she has > become. > > Anyway, all is well today. She was discharged less than 24 hours from her > op. WE will wait to see how the removal affects her sleep in a few weeks. > She has had a cranial session this afternoon to try to balance things out. > She is totally off her food but is peacefully sleeping now despite my > having > put ear drops in (oh yes, fogot to say she had gromet/tube put in one ear > but they found a skin growth in the other one which they cut off to test > but > now she has a hole in her ear drum so gromet not needed. Typically, this > is > her proposed implant side. May or may not heal itself. More to watch out > for. > > So, that is the long answer to a short question. Gees, can't wait till > end > of March for CI!!! Same hosp, same ward, lot longer procedure. It had > better be worth it! Lesley, do I recall you describing yourself as > " selfish " last week? With all you are going through, I am surprised you > actually remembered 's procedure that was to last no more than one > hour. Selfish, you certainly are not, but even if you were right now, who > the hell would blame you? Amelie is totally number one priority. Thank > you > for asking anyway. > > Despite the high drama description I give, I really could not find too may > holes to pick with the brief admission. All in all, the care of > was > quite good, but I do know exactly what Lesley is getting at about some of > the joys of the NHS from past experiences. > > Better stop and get some sleep after last night. > > Flo > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Flo, Glad the surgery is over and that is home now and resting. Sounds like you had a rough day!! It's horrible to have to watch them in pain and not be able to help in any way--and I know exactly what you mean about them becoming more aware of procedures, doctors, etc. as they become older. That makes it even harder. I hope you get good results on the sleep once everything has healed. Keep us posted. I'm curious to hear, as we've been told that 's tonsils and adenoids are large too--and Lord knows, she has terrible sleep patterns! Give little a hug for me! , mom to (almost 4) --------------------------------- Yahoo! DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
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