Guest guest Posted September 25, 2004 Report Share Posted September 25, 2004 I am curious Jai, does the med your talking about making your hands etc. look more normal also give you relief from the coldness you feel? Hope so, wonder if the fact that I can go outside in 100 degree weather and chill and get goose bumps is the Fibro, or rsd, or arthritis, or one of the other things....how does one know and does it matter that can chill like that, then sweat in five min. and all. Just wonder as do not talk about it really on here or to doctor. Should I mention it to doctors? hugs Jai, Donna and all JoAnn Ginny/Raynaud's In a message dated 9/23/04 6:15:05 AM Pacific Daylight Time, RSD-CRPSofAmerica writes: How are you doing? How bad is your raynaud's and has it gotten worse with the RSD? Hugs..Ginny Hi Ginny, yes it seems to be worse with the RSD. You are right, RSD and Raynaud's do affect the vessels. They contract and impede blood flow to the extremities. This is what could be causing the sores. Watch them closely because those ulcers are very hard to heal. My doc put me on Trental for it. Trental (Pentoxifylline) decreases the viscosity of blood which enhances blood flow and tissue oxygenation. With this medicine I have noticed that the color of my extremities is more normal looking.Take care, Love Jai Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2004 Report Share Posted September 25, 2004 Jai, I watch the sores i get very closely. A yr ago I had one that wouldn't go away and got to be an ulcer ...I had to get a cream from a dematologist that cost me 800 for the tube..rezamid I think was the name of it. It got really bad very quickly...so I watch them closely now. If you ever get a sore ask for this...It took them over 2 months before I got this med and it worked but took almost 2 months to heal because they waited so long to give me this. I am glad trental is helping you...Hope you are feeling better all over...Hugs..Ginnyjaismonkey@... wrote: In a message dated 9/23/04 6:15:05 AM Pacific Daylight Time, RSD-CRPSofAmerica writes: How are you doing? How bad is your raynaud's and has it gotten worse with the RSD? Hugs..Ginny Hi Ginny, yes it seems to be worse with the RSD. You are right, RSD and Raynaud's do affect the vessels. They contract and impede blood flow to the extremities. This is what could be causing the sores. Watch them closely because those ulcers are very hard to heal. My doc put me on Trental for it. Trental (Pentoxifylline) decreases the viscosity of blood which enhances blood flow and tissue oxygenation. With this medicine I have noticed that the color of my extremities is more normal looking.Take care, Love Jai Quote Link to comment Share on other sites More sharing options...
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