Re: Anyone ever take Lupron???

[Guest guest]

I was reading a posting on the maa board that made me think of this again. It has always been in the back of my head, but I started researching it again. I was on Lupron therapy to treat endometriosis in 1996 for 6 months. That was right before I remember getting extreme fatigue and joint pains. I was dx. with PM two years later. Shortly after dx., I saw a thing on TV about Lupron therapy causing all sorts of ailments. I researched it and remember it saying that it could even cause high cpks. I had asked my doctor about it and he said he doubted it. I was reminded of it again today and went to the lupron site and some of the symptoms (there were hundreds) were: myositis, muscle aches, joint pain (including elbows) elevated spks, sed rates, heart palpitations, angina, etc.......all the things I experience and a lot of other myositis patients experience. I am taking it back to my doctor again. Just seems too coincidental for me. This may not apply to the men. I think that Lupron was used mainly for endometriosis. Again, I could be wrong. Funny thing was, I was complaining of abdominal pain, but he put down that he was treating me for endometriosis. This drug was not approved to treat abdominal pain. No wonder he was so adament on the endometriosis..............ARGGGGGGH.

Zanna

Click here for info on Lupron

THE NATIONAL LUPRON VICTIMS NETWORK

This article was posted on the BB today. I found it very interesting.

Autoimmune Diseases--What Went Wrong

[Guest guest]

Yes, Zanna, I took Lupron Aug. 00, one 3 month shot to stop my periods and hopefully convince my bod that meno should start and deal with an endometrial stripe. One year later, Aug 01 when all the garbage with my muscles started, my period came back.

I'm in full blown meno now...with hotflashes, cold flashes, interrupted sleep...and the Prednisone taper...irritable, sometimes full of anxiety. It's been a real trip!

And now my rash is getting active again. I look real sunburned on my chest and my hands are different almost hourly, going from bright red to heliotrope. Looks like Gottron's are trying to come back, hard to tell. Not sure what to do.

Gonna check out the links you sent...thanks!!!

Lynn

Re: Anyone ever take Lupron???

I was reading a posting on the maa board that made me think of this again. It has always been in the back of my head, but I started researching it again. I was on Lupron therapy to treat endometriosis in 1996 for 6 months. That was right before I remember getting extreme fatigue and joint pains. I was dx. with PM two years later. Shortly after dx., I saw a thing on TV about Lupron therapy causing all sorts of ailments. I researched it and remember it saying that it could even cause high cpks. I had asked my doctor about it and he said he doubted it. I was reminded of it again today and went to the lupron site and some of the symptoms (there were hundreds) were: myositis, muscle aches, joint pain (including elbows) elevated spks, sed rates, heart palpitations, angina, etc.......all the things I experience and a lot of other myositis patients experience. I am taking it back to my doctor again. Just seems ZannaClick here for info on LupronTHE NATIONAL LUPRON VICTIMS NETWORK This article was posted on the BB today. I found it very interesting. Autoimmune Diseases--What Went Wrong

[Guest guest]

HI LYNN,

I WAS READING YOUR POST, AND IM CURIOUS WHY WOULD U WANT TO STOP YOUR PERIODS, WHAT WAS THE REASON. ? IS IT SOMETHING YOUR DOC. THOUGHT WOULD HELP?

JUST CURIOUS

THANKYOU LANI

-- Re: Anyone ever take Lupron???

Yes, Zanna, I took Lupron Aug. 00, one 3 month shot to stop my periods and hopefully convince my bod that meno should start and deal with an endometrial stripe. One year later, Aug 01 when all the garbage with my muscles started, my period came back.

I'm in full blown meno now...with hotflashes, cold flashes, interrupted sleep...and the Prednisone taper...irritable, sometimes full of anxiety. It's been a real trip!

And now my rash is getting active again. I look real sunburned on my chest and my hands are different almost hourly, going from bright red to heliotrope. Looks like Gottron's are trying to come back, hard to tell. Not sure what to do.

Gonna check out the links you sent...thanks!!!

Lynn

Re: Anyone ever take Lupron???

I was reading a posting on the maa board that made me think of this again. It has always been in the back of my head, but I started researching it again. I was on Lupron therapy to treat endometriosis in 1996 for 6 months. That was right before I remember getting extreme fatigue and joint pains. I was dx. with PM two years later. Shortly after dx., I saw a thing on TV about Lupron therapy causing all sorts of ailments. I researched it and remember it saying that it could even cause high cpks. I had asked my doctor about it and he said he doubted it. I was reminded of it again today and went to the lupron site and some of the symptoms (there were hundreds) were: myositis, muscle aches, joint pain (including elbows) elevated spks, sed rates, heart palpitations, angina, etc.......all the things I experience and a lot of other myositis patients experience. I am taking it back to my doctor again. Just seems ZannaClick here for info on LupronTHE NATIONAL LUPRON VICTIMS NETWORK This article was posted on the BB today. I found it very interesting. Autoimmune Diseases--What Went Wrong

[Guest guest]

No, it wasn't to stop my periods. In fact it never did do that. I had had

surgery the year before for endometriosis and was still having the

abdominal/pelvic pain. My doctor said it must have come back. I told him

that the pain never left!! He said that lupron would make my body immitate

menapause and stop my periods therefore, stopping the growth of the

endometriosis. My estrogen levels never changed so after two months he

doubled it. I had my period every month. This went on for 6 months. The

lupron was horrible. I cried the whole six months. It never did what he

said it was supposed to either. Anyway, I never read anything about lupron

because I was getting injections in his office. I never saw the 'package

inserts' that come with drugs. I just trusted my doctor. That was also the

doctor that removed my ovary, and it wasn't necessary.

Zanna

[Guest guest]

Lynn,

this is amazing. It says that with only one month of Lupron, you can

experience these side effects. I can't wait to see what you think after you

read that.....

Zanna

[Guest guest]

I have told my rhuemy a long time ago about it. At the time he kinda

shrugged it off. I don't think he realized all of this. I am going to print

it up and bring it to him. EVERY symtom, EVERY side effect I have is listed

there. But there are a lot of side effects though so there could be a number

of diseases that could fall under there.....still something to think about.

Zanna

[Guest guest]

Yes, Lani...because I'm doing menopause and was bleeding so heavily (1 pkg. of Always Overnights in one day) and other uncomfortable things, and an endometrial stripe that she could never see cause she could never dilate my cervix to get that little camera inside....I have a very badly scarred cervix...anyway, I elected to stop my periods to build my blood back up. It worked....gave me terrific hot flashes, but no other problems. Maybe....

Lynn

Re: Anyone ever take Lupron???

I was reading a posting on the maa board that made me think of this again. It has always been in the back of my head, but I started researching it again. I was on Lupron therapy to treat endometriosis in 1996 for 6 months. That was right before I remember getting extreme fatigue and joint pains. I was dx. with PM two years later. Shortly after dx., I saw a thing on TV about Lupron therapy causing all sorts of ailments. I researched it and remember it saying that it could even cause high cpks. I had asked my doctor about it and he said he doubted it. I was reminded of it again today and went to the lupron site and some of the symptoms (there were hundreds) were: myositis, muscle aches, joint pain (including elbows) elevated spks, sed rates, heart palpitations, angina, etc.......all the things I experience and a lot of other myositis patients experience. I am taking it back to my doctor again. Just seems ZannaClick here for info on LupronTHE NATIONAL LUPRON VICTIMS NETWORK This article was posted on the BB today. I found it very interesting. Autoimmune Diseases--What Went Wrong

[Guest guest]

Oh yeah...well, gee whiz....Lupron isn't good stuff, is it? Did I tell the rheumy I took it?

Lynn

Re: Anyone ever take Lupron???

Lynn,this is amazing. It says that with only one month of Lupron, you can experience these side effects. I can't wait to see what you think after you read that.....Zanna

[Guest guest]

The one thing that bothers me about the site is all the things listed there...I just wonder...

Lynn

Re: Anyone ever take Lupron???

I have told my rhuemy a long time ago about it. At the time he kinda shrugged it off. I don't think he realized all of this. I am going to print it up and bring it to him. EVERY symtom, EVERY side effect I have is listed there. But there are a lot of side effects though so there could be a number of diseases that could fall under there.....still something to think about.Zanna