Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 > hi. that really stinks no doc approved it, can you be seen on > monday? maybe your case mgr. can push it thru for you?? hi Amy After I got off the phone very tearful with my casemanager, I got a call about 20 min later from the pain clinic..she booked 3 appt for my injections even though they hadnt been approved yet...so I give my case manager credit that she steps up for me... do you > have a lawyer? No I dont have one, but Im thinking I may need to secure one, though I dont really know how much good it will do..without sounding too naive..what will the lawyer do for me at this time? I'm not sueing anyone, I just want medical treatment. when i was having a hard time getting my K approved, > i told her that either she gets it approved or i'll sick my " attack > dog " on her company, with monetary compensation of course! next > thing ya know, i was approved!! LOL..awesome..best I can sick on them is my husbands pet snake Lex maybe it's worth a shot. i'll keep > ya in my thoughts wishing you can get relief ASAP!! > Thank you amy, I need all the prayers I can get! Love donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 >Hi Amy Im in Massachusetts, about 45 min north of boston. Im in hopes that the succession of 3 injections will put me back on my feet and *maybe* get me back to work... Love Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 > I have the same problem when I take my Gabitril. My doc gave me a > prescription for Reglan to take when I get up in the morning to settle my > nausea. You might want to see if this would work for you. > Teri, thank you I never thought of that! Thank you! Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 > > I hope when you say that you haven't seen a GYN in some time that you aren't > telling me that you don't have a yearly exam done..... > > Please tell me that you are! These are so important for every woman! > Teri I'm guilty of not having been to one in a little over a yr...my dr died of breat cancer..how ironic huh? Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 Donna, that is so sad. How old was she? It is said that doctors make worse patients and guess maybe that is true. When you know all the bad things think you would check often then perhaps knowing so much leads one to deny more. Heck if I know just think it is so sad. Take care and hope you get to doctor soon just to get things figured out. Take care my friend s Momma JoAnn Re: Donna > > > > > I hope when you say that you haven't seen a GYN in some time that > you aren't > > telling me that you don't have a yearly exam done..... > > > > Please tell me that you are! These are so important for every > woman! > > > Teri > I'm guilty of not having been to one in a little over a yr...my dr > died of breat cancer..how ironic huh? > > Hugs > Donna > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Hi Donna, It's good to hear you got out to do something enjoyable. I believe there is nothing more important than friends and family, good times together sharing in each other's lives. That, to me, is the essence of life. It is hard to pace yourself and I've been dealing with RSD for nearly 15 years now, still don't have the hang of it! LOL When you throw in pain pills, it's easy not to know how you feel too so..... just be aware of what your body tells you. Also, I don't believe God gives us pain. I think it is simply a part of life that we all deal with. We with RSD have physical pain while others have psychological pain or emotional pain or have a hard time just making ends meet or any combination of the above. Not to mention family struggles and trials, kids, pets, accidents, etc. I do have a strong faith that whatever comes my way, I will have the strength to survive with help. I just have a difficult time with the concept that God 'gives' us pain. Anyway, I come from a very religious family who has told me on more than one occasion that if I would go back to church and live a 'godly' life my pain would go away. I think not!! This is not punishment either for going through a divorce or anything else. It is simply a part of life, a struggle to deal with and be brought under control. It is no different than dealing with any other major health issue such as diabetes or arthritis or cancer. Didn't mean to go off on a tangent, that's just my personal belief. I think we have a difficult enough time dealing with RSD without the belief that God 'gives' us pain. Hope I haven't offended anyone, I have gone to Bible College (3.8 GPA) and have 5 uncles who are preachers, a grandfather who was a preacher, other grandfather was a deacon, etc. All Independent Baptists and am very familiar with the sin/punishment scenario of belief. I hope you all have a pleasant day! Take care, Debbie/DJ ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Hi Deb Im still paying today, dont have the energy I have to muster to get things done that NEED to be done, let alone things that I want to do. I have a list in my head of what I've got to accomplish and all I want to do is go back to bed! I've been up 2 hrs and Ive managed to make breakfast, do the dishes, start laundry, make my bed and take shower..thats it, Im done for the day...and that list there is just the begining LOL! I too have strong faith. I believe that there is a reason Im dealing with this, that it was handed to me but Ive yet to figure out why. I believe in lifes lessons and everyone having a purpose in life. Im sure it will be shown to me eventually. anyway, gonna finish reading up on the posts and do my thing Have a great day! Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Anyway, I come from a very religious family who hastold me on more than one occasion that if I would go back to church andlive a 'godly' life my pain would go away. I think not!! I have a faithful relationship with Christ,attend church weekly, and strive to do His will--and my pain hasn't gone away--so what is their answer to that? I agree fully that God does not "give" us pain--that is all Satan's work. God takes the pain and brings good out of it for those who love Him. Love, N. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 > Well shit....I guess I should have read through all the posts before > responding...cause of course now I see that your injections was really not > all that much better than last! > >LOL, its ok Teri, I do that all the time. On the brighter side, its not a tortuerous pain, it just didnt provide the " promised " relief that the injections strive towards. The burning is pretty lowlevel but if I focus on it I can feel it from neck to back both sides eh oh well...see what he has to say this time around. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 > In a message dated 8/27/04 4:06:17 PM Pacific Daylight Time, > RSD-CRPSofAmerica writes: > > > I had a surgery that sounds relatively similar to cauterizing the nerve. In > surgery my doc cut out the damaged part of the nerves, (damage was due to an > injury, and this damage is what started the RSD) then they drill a hole in the > bone, in my case it was the Fibula then they " bury " the nerve into the bone. > The purpose of this is to hopefully stop any growth of neuromas and to protect > the damaged nerve endings. Don't get your hopes up too high, it did not work > for me. Thank you Jai I have no idea what he has in store for me. Whether it be this or what. My biggest worry is that they are going to do this bone scan and find it normal, isnt that silly...I just want a definite ruling as I KNOW that this is whats going on however I also know my w/c questions it every step of the way. I want it to be treated and get on with things yanno..no matter what that treatment might be, I want to get it over and done with. Love Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 > I would suggest that if he is going to plan on the SCS that he goes ahead > and starts the approval now. Would hate to see you have to wait any longer > than you have to. Just my suggestion as you have had problems getting > approvals quickly in the past. Nothing wrong with making the plans now and > then doing the finalizing when the time comes. > I'm actually going to call his office today after I speak with my case manager and check to see if thats his plan, so that when I see him at the end of September all I have to do is schedule the date. Im excited about the prospect of less to no pain but nervous about the procedure itself. I told him yesterday though that I had heard nothing but positive in regards to the procedure other than the hassles associated. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 > Try opening it from this....if this doesn't work let me know, I have another > way to try to get it available to you! > Hi Teri It says item not stored. Can u send it to my private email at wiccanmom@...? I would really like to read the article as it seems to be getting rave reviews Thank you so much Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2004 Report Share Posted September 17, 2004 Donna So sorry that you're getting stomped on and walked all over. Is your pain, worker's comp related? If you get know where with the one's you are calling, how about the 'power of the press?' Our local station has one called Five on your side, and I know each place has something similar. It's a thought anyway. Regardless of all, just know I'm so sorry you're being kicked around. I know that meds make you sick routine---I live it too. I'm now taking low dose phenergan just to take some morphine for the surgical additional pain. It's all just plain Unfair. In a message dated 9/17/2004 6:54:36 AM Eastern Daylight Time, RSD-CRPSofAmerica writes: ________________________________________________________________________Message: 6 Date: Thu, 16 Sep 2004 23:41:01 -0000 Subject: Ive had it!ok...any advice?I have been waiting for this approval for the SCS..I waited for 2 WEEKS for this approval. I have begun to alter my life at home for this approval! I call my pain clinics office today to find out the progress and she calls me back to tell me that UR DENIED it..DENIED everything without reason! I tried calling UR with voice mail both times! I called my nurse case manager and shes still out on family bereavement..I'm going to call EVERY SINGLE HR tomorrow until someone answers me! THEN I want to call an attorney and nail them. Where does this leave me??? I have failed the injections, I CANT take pain meds (they make me vomit) the burning has spread to my entire upper torso and Im no further along than when I started OT 11 MONTHS Ago!!!Im so frustrated I could scream!!!!Thanks for the sounding board! I dont want to play anymore! I've been doing EVERYTHING by their rules! I totally give up! Where in this whole mess does this leave me??Im going to take my meds and try and chill out, thank you guys!HugsDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Donna, I got your message to add me to your list, but when I tried to add you, I did something wrong. So what is your IM again so I can try again Lin Refresh my brain again, which day is it you will be in our area? Im hoping its the 13th but Ginny told me its the 12th.HugsDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 > Donna, > I got your message to add me to your list, but when I tried to add you, I > did something wrong. So what is your IM again so I can try again > Lin > Lin Its Nehani1969 Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Thanks Donna got it this time Lin -- Re: Donna > Donna,> I got your message to add me to your list, but when I tried to add you, I> did something wrong. So what is your IM again so I can try again > Lin > LinIts Nehani1969Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 > Donna, Well I hope that your pain goes down and I'm very sorry to hear about how you are hurting. Try to take it easy and know that it will get better. it makes it so hard not to do some of the simpliest things. Thank you Pam, Im feeling a bit better than the last couple of days, I've been taking Ultram when I can and using theragesic as well to help loosen the muscles around the forearm and elbow area and it seems to be helping some. What I REALLY need is to have OT again and get the tissue mobile again but thats not going to hapen in the near future. Fortunately Ginny knows how to do it and shes going to teach it to my husband so he can help me at night so I can sleep. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2006 Report Share Posted September 28, 2006 Donna, I'm two weeks out today. I just got home an dthe dr moved me to the following diet. Cheerioes soaked in millk, cottage cheese (which I hate), fat free cheese, mashed potatoes no skin, oatmeal. cream fat free soup (no tomato) , over cooked veggies not corn or beans, refried beans. I'm down 21 1/2 pounds I think it was. Have a Blessed Day Joy --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2006 Report Share Posted September 28, 2006 Joy, CONGRATS on the weight loss....That is awesome for just two weeks! How do you feel? Keep it up Mike T Re:Donna Donna, I'm two weeks out today. I just got home an dthe dr moved me to the following diet. Cheerioes soaked in millk, cottage cheese (which I hate), fat free cheese, mashed potatoes no skin, oatmeal. cream fat free soup (no tomato) , over cooked veggies not corn or beans, refried beans. I'm down 21 1/2 pounds I think it was. Have a Blessed Day Joy --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
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