Re: Re: Allergies and chemical KEN

[Guest guest]

you wrote;

I need to provide him the medical treatment which is going to open the doors.

Ken Sokolski

Dear Ken,

You seem like a most dedicated dad.

You sound like you are doing all you can and much more.

Hang in there and know you are doing your very best for

your son.

Best to you,

.

At 01:06 30/04/2003 -0400, you wrote:

>Dear Dana,

>Thanks for you reply. You certainly have accomplished " miracles " with your

>children. Unfortunately there is little direction from the medical community

>with our children. I remember my freind who did IVIG treatment with her child

>and he recovered. Then 30 parents had their kids get IVIG with little

>response followed by another child who recovered on IVIG. It's like a lottery

>with no prediction as to which child is going to improve on what treatment. I

>would be ecstatic if my son would talk like a 2 year old and he is now 12. He

>understands a lot but has a terrible time pushing out a few words here and

>there. He talked and repeated more when he was younger. Many treatments have

>helped his speech temporarily including steroids, IVIG, MST surgery, and

>secretin. High dose methylcobalamin has also been helpful. I need to find

>something which will have a lasting effect on expressive language. That is

>what is so difficult and painful. We have tried so many things without

>greatly impacting his speech although his receptive language has greatly

>improved. He used to mouth words in the mirror. I know he is trying to talk.

>I need to provide him the medical treatment which is going to open the doors.

>Ken Sokolski

>

>

>

[Guest guest]

Dear ,

I appreciate that. The only problem is that none of us know exactly what is

going on with our children or what the ideal treatment could be because there is

so little guidance. Consequently we try almost anything we can afford and follow

what others have found to work. Eventually there will be a way to diagnose and

determine optimal therapy for children but for now it is up to persistence,

luck, and resources to help us find the answers.

Ken