Re: question for Illinois CHARGE moms

[Guest guest]

Guys, I would drive hours just to hear and see Meg and . They're

great and well worth it.

Plus there is that networking thing that's vital to everyone too.

Go if you can!

Bonnie, mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

,

Oh sad that Meg's not going to be there but how cool is it that you will be

presenting. People who are parents will get tons of hope and joy from you.

But you also keep it real. That's worth everything.

Bonnie, mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Crystal-

Our presentation will be sort of a CHARGE 101. It will be very informative

if you've never been to any other CHARGE event. The am will be Meg's

presentation of basic CHARGE information presented by a Rock person.

The pm will be my story of our journey with CHARGE to bring some reality to

the overview info.

I'm not sure if we will be presenting in a location closer to you sometime

soon. If you can get away overnight, you can stay with me. I am about 45

minutes west of ville.

You would not want to bring Eva. This is a time for you to soak it all in

without distractions. Of course, it'd be fun to show her off and introduce

her if the location was close enough to you that a friend or family member

could bring her by for a visit. Last time, in Lombard, a family that lived

there was able to bring their little guy in for us all to meet. And several

other parents were able to share their stories as well so the professionals

got the overview, my story, and many others. It was wonderful!

Remember to pass the training flyer along to all of Eva's professionals too.

They need professional development hours and may as well get them in

something that will benefit Eva!

I realize the distance is a burden so you may not make it. If you can, I

think you'll find it worthwhile. If not, watch for the next opportunity

closer to you.

Michele W

question for Illinois CHARGE moms

>I was thinking about going to the CHARGE confernece threw project

> reach (Michele is a speaker there)but its about a 5 hour drive from my

> house and I would have to leave at 4 in the morning to get there on

> time. Is it something you think I should attend? I really want to get

> all the info I can but I dont know. Also do people bring thier little

> CHARGERS to something like this??

> Thanks for your help!!

>

> Crystal and Eva (8 month charger)

>

>

>

>

>

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or

> email info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

In addition to all that Michele had to offer, it may be a great chance to

meet other parents who know what you are going through and what a great

chance to meet Michele and spend time with her, as well as hear her

presentation. Kim L

> Crystal-

> Our presentation will be sort of a CHARGE 101. It will be very informative

> if you've never been to any other CHARGE event. The am will be Meg's

> presentation of basic CHARGE information presented by a Rock person.

> The pm will be my story of our journey with CHARGE to bring some reality to

> the overview info.

>

> I'm not sure if we will be presenting in a location closer to you sometime

> soon. If you can get away overnight, you can stay with me. I am about 45

> minutes west of ville.

>

> You would not want to bring Eva. This is a time for you to soak it all in

> without distractions. Of course, it'd be fun to show her off and introduce

> her if the location was close enough to you that a friend or family member

> could bring her by for a visit. Last time, in Lombard, a family that lived

> there was able to bring their little guy in for us all to meet. And several

> other parents were able to share their stories as well so the professionals

> got the overview, my story, and many others. It was wonderful!

>

> Remember to pass the training flyer along to all of Eva's professionals too.

> They need professional development hours and may as well get them in

> something that will benefit Eva!

>

> I realize the distance is a burden so you may not make it. If you can, I

> think you'll find it worthwhile. If not, watch for the next opportunity

> closer to you.

>

> Michele W

> question for Illinois CHARGE moms

>

>

>> I was thinking about going to the CHARGE confernece threw project

>> reach (Michele is a speaker there)but its about a 5 hour drive from my

>> house and I would have to leave at 4 in the morning to get there on

>> time. Is it something you think I should attend? I really want to get

>> all the info I can but I dont know. Also do people bring thier little

>> CHARGERS to something like this??

>> Thanks for your help!!

>>

>> Crystal and Eva (8 month charger)

>>

>>

>>

>>

>>

>>

>>

>> Membership of this email support groups does not constitute membership in

>> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

>> For information about the CHARGE Syndrome

>> Foundation or to become a member (and get the newsletter),

>> please contact marion@... or visit

>> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

>> information and membership, please visit http://www.chargesyndrome.ca or

>> email info@... .

>> 8th International

>> CHARGE Syndrome Conference, July, 2007. Information will be available at

>> www.chargesyndrome.org or by calling 1-.

>>

[Guest guest]

To clarify -- this will not be the " Meg and Michele " show. It's an IL DB

professional presenting CHARGE using Meg's Powerpoint presentation followed

by me doing my family story. It's Meg's info -- but not Meg. Not exactly

the same thing.

Michele

Re: question for Illinois CHARGE moms

> Guys, I would drive hours just to hear and see Meg and . They're

> great and well worth it.

>

> Plus there is that networking thing that's vital to everyone too.

>

> Go if you can!

>

>

> Bonnie, mom to a 23, Patty CHARGE 21, and wife to

>

>

>

[Guest guest]

Bonnie-

Yes, it's an incredibly rewarding experience. I think it's helpful to both

the families and the professionals in attendance to hear a " real " story.

Our kids are so variable that there can't be any one CHARGE story, but

putting a face and emotions to the basic CHARGE 101 info is very powerful.

Michele

Re: question for Illinois CHARGE moms

> ,

>

> Oh sad that Meg's not going to be there but how cool is it that you will

> be

> presenting. People who are parents will get tons of hope and joy from

> you.

> But you also keep it real. That's worth everything.

>

>

> Bonnie, mom to a 23, Patty CHARGE 21, and wife to

>

>

>

[Guest guest]

Thanks again, I will have to look into all my options for a

babysitter, it will be a very long day and I dont want just anyone

watching my kids. Hubby is going to take off of work but I also dont

want to go alone. We are all aboard for the 2007 confrence in

California because we are also planning our family vaction around

it. I have some time to think!!

Thanks for all the imput!!

Crystal and Eva (8 month charger)

>

> To clarify -- this will not be the " Meg and Michele " show. It's

an IL DB

> professional presenting CHARGE using Meg's Powerpoint presentation

followed

> by me doing my family story. It's Meg's info -- but not Meg. Not

exactly

> the same thing.

>

> Michele

> Re: question for Illinois CHARGE moms

>

>

> > Guys, I would drive hours just to hear and see Meg and

. They're

> > great and well worth it.

> >

> > Plus there is that networking thing that's vital to everyone too.

> >

> > Go if you can!

> >

> >

> > Bonnie, mom to a 23, Patty CHARGE 21, and wife to

> >

> >

> >

[Guest guest]

Thanks Michele!!Right now I am planning on going, I think it will be

great to meet others and also I will be getting out of the

house....lol.

Do you know where I can get a flyer or something to give to her

doctors and theropists?

Thanks again,

Crystal and Eva (8 month charger)

> >>

> >> To clarify -- this will not be the " Meg and Michele " show. It's

> > an IL DB

> >> professional presenting CHARGE using Meg's Powerpoint

presentation

> > followed

> >> by me doing my family story. It's Meg's info -- but not Meg.

Not

> > exactly

> >> the same thing.

> >>

> >> Michele

> >> Re: question for Illinois CHARGE moms

> >>

> >>

> >> > Guys, I would drive hours just to hear and see Meg and

> > . They're

> >> > great and well worth it.

> >> >

> >> > Plus there is that networking thing that's vital to everyone

too.

> >> >

> >> > Go if you can!

> >> >

> >> >

> >> > Bonnie, mom to a 23, Patty CHARGE 21, and wife to

> >> >

> >> >

> >> >

[Guest guest]

,

That would be awsome, where do you live? What town? If the driving

thing doesnt work at least having someone to sit with and talk to

will be great!!

I am new at all of this and my mind is just swimming with info.

Thanks,

Crystal and Eva (8 month charger)

> >>

> >> To clarify -- this will not be the " Meg and Michele " show. It's

> > an IL DB

> >> professional presenting CHARGE using Meg's Powerpoint

presentation

> > followed

> >> by me doing my family story. It's Meg's info -- but not Meg.

Not

> > exactly

> >> the same thing.

> >>

> >> Michele

> >> Re: question for Illinois CHARGE moms

> >>

> >>

> >> > Guys, I would drive hours just to hear and see Meg and

> > . They're

> >> > great and well worth it.

> >> >

> >> > Plus there is that networking thing that's vital to everyone

too.

> >> >

> >> > Go if you can!

> >> >

> >> >

> >> > Bonnie, mom to a 23, Patty CHARGE 21, and wife to

> >> >

> >> >

> >> >

[Guest guest]

And there will be another similar presentation in Champaign IL Feb 10

that will be Meg but not Michele - I'll be doing that one with Carla

Beck from IL. I'm hoping we can start doing some similar programs

(preferabley with Meg and Michele - we make a good team) in Missouri -

we'll see.

Meg

>

> To clarify -- this will not be the " Meg and Michele " show. It's an

IL DB

> professional presenting CHARGE using Meg's Powerpoint presentation

followed

> by me doing my family story. It's Meg's info -- but not Meg. Not

exactly

> the same thing.

>

> Michele

> Re: question for Illinois CHARGE moms

>

>

> > Guys, I would drive hours just to hear and see Meg and .

They're

> > great and well worth it.

> >

> > Plus there is that networking thing that's vital to everyone too.

> >

> > Go if you can!

> >

> >

> > Bonnie, mom to a 23, Patty CHARGE 21, and wife to

> >

> >

> >

[Guest guest]

Yeah you are getting me excited about it too!! I am starting to

think who cares about the drive its all worth it in the end!! Hey

next year I am flying to California whats a a short 4 hour drive

right!!! LOL!

Crystal

>

> and Crystal-

> Even if only the 3 of us were there, it would be a worthwhile

day!! So

> having a room full of other professionals and parents plus Project

Reach

> folks will just be icing on the cake!

>

> Crystal -- I can't tell you how powerful it will be to meet other

CHARGE

> parents. isn't too far ahead of you with so her

experience is

> still fresh. You too will have a hard time listening because

you'll want to

> be talking. Might be a good idea to both bring photos along to

share with

> each other (and participants if you're willing). At the last

training, we

> took time for all the families in attendance to share their

stories briefly.

> You may want to think in advance about that and bring

any " visuals " that

> you'd like or materials that have been helpful to you along the

way.

>

> Gosh -- Now I'm getting pretty excited about the day. Wish it

were sooner

> than March!

>

> Michele

>