I Need Advice!

[Guest guest]

Hi,

My son has been SCD for 5 weeks now...we are running into a little

problem He starts SK in 2 days. The school has told me that they are

totally nut free due to allergies. This did not pose a problem when he

was GFCF but now Ive got a dilemma.

The school allows parents to bring in cupcakes, special sugary snacks

for children's birthdays and they have a monthly popcorn day...big

event.. On regular days I can come up with good snack foods and have

gotten lots of suggestions already from this list (thanks Moms!).

However, my son is very aware of what goes on around him and I suspect

is beginning to feel he is a little bit different. How do I handle

those days? I cannot come up with a cookie or cupcake that is nut free!

We have been fanatic about the diet to date. The only illegals hes had

were due to my learning curve (wrong brand of juice, that sort of

thing). Have other parents experienced this and how did you handle it?

Part of me wants to allow him at least a taste, so he feels part of the

group...the other part of me is afraid of how this may impact the work

to date.

Another question. Day 3 on the diet we saw regression, bad for a few

days then things seems to be on the upswing behaviourally and

cognitively. Yesterday he woke up and had the worst regression Ive seen

him have in probably a year, very little eye contact, little

communication, echolalia, etc. Seems better today..more focus but still

lots of nonsense talk ..there were no diet illegals and no changes I

could see. I have to admit it was scary and discouraging. Any

comments or ideas?

We are hanging in, in part to this great support!

e, mom of 4 yrs, 11 mos, ASD, SCD, 5 weeks

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[Guest guest]

I don't know what to say about the nut issue... Is there anybody at

the school with a documented allergy? If there is a kid who has a

documented nut allergy, find out if macadamia, or cashew or

hazelnuts are OK. Some kids are allergic to peanuts, but to other

nuts it is not so common.

Do you have a " doctor's note " regarding your own son's dietary

restrictions? My guess is that if this is a public school, or your

son has an IEP, that you bring the issue up in an IEP meeting. Bring

information on how the SCD diet works and educate them in his

dietary needs. And they will have to go by what is aggreed

and " written in the IEP " . Get the Supertintendent involved if you

have to. They may suggest a different classroom/school.

Parties are social events that our children NEED TO PARTICIPATE to

meet their social needs. If there is a " no-nut " and your son could

not have another type of cupcake, maybe there should be a " no-

cupcake " policy, and have parties with grapes, pineapple, and

applesauce!!!

As for the regression... I guess it could be die-off. If you keep a

food diary, check what he ate in the last few days!!!

Coral

[Guest guest]

Thanks Coral, those are good suggestions, I will bring this matter up

with the school and yes, our DAN doctor will support it....

Re: I Need Advice!

I don't know what to say about the nut issue... Is there anybody at

the school with a documented allergy? If there is a kid who has a

documented nut allergy, find out if macadamia, or cashew or

hazelnuts are OK. Some kids are allergic to peanuts, but to other

nuts it is not so common.

Do you have a " doctor's note " regarding your own son's dietary

restrictions? My guess is that if this is a public school, or your

son has an IEP, that you bring the issue up in an IEP meeting. Bring

information on how the SCD diet works and educate them in his

dietary needs. And they will have to go by what is aggreed

and " written in the IEP " . Get the Supertintendent involved if you

have to. They may suggest a different classroom/school.

Parties are social events that our children NEED TO PARTICIPATE to

meet their social needs. If there is a " no-nut " and your son could

not have another type of cupcake, maybe there should be a " no- cupcake "

policy, and have parties with grapes, pineapple, and

applesauce!!!

As for the regression... I guess it could be die-off. If you keep a

food diary, check what he ate in the last few days!!!

Coral

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites: http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

I cannot come up with a cookie or cupcake that is nut free!

> We have been fanatic about the diet to date. T

Try Herb's Bean Pancakes page 126 BTVC, leave out the onions and add vanilla and

cinnamon. Spread with homemade jam and make a jelly roll. Make Diva's Fudge

from the Pecanbread (leave out any nuts) website or fruit leathers. make

meringues and use a little beet juice to color them pink. Use little boxes or

foil with stickers and ribbons to make the treats look special.

Carol F.

[Guest guest]

Hi e,

> How do I handle those days?

For my kids school lunches (nut free also) I have made the

marshmallow recipe at http://www.pecanbread.com/recipes.html .

Instead of coating with nuts, I dehydrated some cooked carrot and

squash. When cooked, I mashed it and spread it thin until dry.

Allow to cool to room temperature and grind into a powder with a

coffee grinder (or blender/food processor).

> Part of me wants to allow him at least a taste, so he feels part of

the

> group...the other part of me is afraid of how this may impact the

work

> to date.

There are many kids these days with different sensitivities,

allergies so it is far less common. Having illegals this early after

starting SCD will undoubtly impact in some manner.

> Another question. Day 3 on the diet we saw regression, bad for a

few

> days then things seems to be on the upswing behaviourally and

> cognitively. Yesterday he woke up and had the worst regression Ive

seen

> him have in probably a year, very little eye contact, little

> communication, echolalia, etc. Seems better today..more focus but

still

> lots of nonsense talk ..there were no diet illegals and no changes I

> could see. I have to admit it was scary and discouraging. Any

> comments or ideas?

Swinging back and forth is not uncommon when starting SCD. Epsom

salts baths may help with this.

Sheila 43 mos SCD, 20 yrs UC

mom of SCD 28 mos