Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Welcome to the club .. --- Lowrance wrote: > Thanks everyone for the really warm welcome. > > in TX > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Thanks, --- wrote: > Welcome to the club .. > > --- Lowrance wrote: > > Thanks everyone for the really warm welcome. > > > > in TX > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 , I have not had a chance to monitor my tumors. I just found out February 28 I had NF2. The tumor that was removed was causing sensory seizures to my right arm and leg. Other then that I have had no other symtoms. My surgeon just wants to watch the rest of them at this time --in my head--. The an's and the one on my spine are next in line. Thanks > > > Hello all, > > > > I have 3 tumors which need to removed sooner than later. 2 of which > > are an's and one on my spine. The an's consist of a large 1 inch > > tumor and a smaller 2 millimeter tumor. The smaller tumor I have > > decided to radiate. The larger tumor I cannot decide whether to > > remove or radiate. This ear has been deaf now for 13 years. What are > > your experiences? > > > > Now to the spine. > > > > The tumor on my spine really leaves me one choice, it has to go, > > sooner than later. Currently it is causing me no trouble-------. My > > surgeon and I have talked at length and he is very confident it can > > be removed without causing any other problems. What are your > > experiences with this kind of surgery? > > > > I am a new member to this group and from the looks of it a great > > support/resource to all. > > > > Just a quick note about me > > > > I was diagnosed with NF2 on February 28 2002 and had a tennis ball > > sized tumor removed from my head on March 1, and have recovered with > > minimal side effects. Now on to the next one!!!!!! > > > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Thanks Randy. I think you sent me an email not so long ago aye!!. I think that is how you spell it. > > I had a tumour removed in upper neck and my spine reamed out as far down as > the middle of my shoulders > I had another surgery on my spine and the surgeon did something to relieve a > lot of the pressure > I have had surgery on my leg to remove tumour and on my arm to remove some > Need a few more surgeries in the future > The best advice is talk to doctor > Have MRI has often as he feels is necessary > if they are slow growing it may be only once a year > if fast may be three or four a year > keep a medical journal or sometype of journal > it is important for you to know what is happening and people, and I mean > everyone, tend to forget things sometimes > so a journal is important > Randy > (unknown) > > > > Hello all, > > > > I have 3 tumors which need to removed sooner than later. 2 of which > > are an's and one on my spine. The an's consist of a large 1 inch > > tumor and a smaller 2 millimeter tumor. The smaller tumor I have > > decided to radiate. The larger tumor I cannot decide whether to > > remove or radiate. This ear has been deaf now for 13 years. What are > > your experiences? > > > > Now to the spine. > > > > The tumor on my spine really leaves me one choice, it has to go, > > sooner than later. Currently it is causing me no trouble-------. My > > surgeon and I have talked at length and he is very confident it can > > be removed without causing any other problems. What are your > > experiences with this kind of surgery? > > > > I am a new member to this group and from the looks of it a great > > support/resource to all. > > > > Just a quick note about me > > > > I was diagnosed with NF2 on February 28 2002 and had a tennis ball > > sized tumor removed from my head on March 1, and have recovered with > > minimal side effects. Now on to the next one!!!!!! > > > > Thanks > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Thanks Kev, oh ya great name. catch you later. Minnesota > , > > If ya ever decide to get an abi (when you go total deaf) radiation can > effect the abi working for you. If the tumor in your spine is not in the > cord itself, you should do fine. > > Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 ooops...yes and thank ya marie tex kev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 I don't know if that is clear; I think what means if, if you have radiosurgery on an AN and then want to get the ABI on that same side, it may be more difficult to get correct placement. Marie Re: (unknown) >, > >If ya ever decide to get an abi (when you go total deaf) radiation can >effect the abi working for you. If the tumor in your spine is not in the >cord itself, you should do fine. > >Texas > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2003 Report Share Posted June 25, 2003 it isn't " normal " to have a flat stomach. Check out the beautiful statues of women from ancient times. I think this cosmetic surgery culture is very sad. In my business it is all looks oriented. Usually I check out the guy making the coment and he does not llo like Bradd Pitt or what ever hottie I can come up with...than I take full aim...right at the nads! ;-)! It's time to get real and love our bodies at whatevery stage they are in. gg Dawn J wrote: >Dear , > >I'm sorry your husband says stuff like that to you. That sucks. We >can't all look like Britney Spears. I don't think it's normal to >have a totally flat stomach, to tell you the truth. > >Love, > >Dawn > > > > >>To celestialstars: >> >>When I was suffering with fibroids last year, my husband started to >> >> >say to me > > >>that I was gaining weight in my stomach and I had a " pot belly " . >> >> >My clothes > > >>did get tight and I gained about 10 lbs. I wasn't able to exercise >> >> >since I > > >>was bleeding so badly so often and my appetite was horrible. I >> >> >would crave the > > >>weirdest things and a lot of times give in to the cravings. I was >> >> >also on > > >>some heavy birth control pills to control bleeding and when I >> >> >researched them > > >>recently I found out they had male hormones in them. Great! I've >> >> >had a UAE 7 > > >>mos ago and my uterus has shrunk but I am not able to lose the >> >> >weight. I'm not > > >>overweight, but have always been really thin. I was and still am >> >> >upset when > > >>my husband says negative comments to me about my weight/body. I >> >> >just try to > > >>ignore him. I know how you feel when someone told you that you >> >> >looked > > >>pregnant. Try not to let it get you down and ruin your day. You >> >> >have a medical > > >>condition and that person who said that was ignorant. That's what >> >> >I'd chalk it up > > >>to. Ignorance. Forget it and try to have a good rest of the day. >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2003 Report Share Posted October 7, 2003 i hear your frustration and love for your son. i am in the same situation as he is, time and acceptance are my godsend. you never mentioned what diagnosis your son has. i have secondary fibromyalgia and rest and trazodone have helped. calmness helps me to relax, any stress will cause pain. tell him i was asking for him and to know he is not alone, may bring some comfort. this is tragic my consultant told me; all i can do is make you comfortable.it must be difficult for you, i hope you get support for yourself. from mandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Tonia, Thats what I have had done on my scalp and left leg. It gets right to the nerve thats causing the pain. It works for me. Painfull thou. but whats worse? It's over in minutes. I have to stay for about half hour afterwards. Take care Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Great pic of the kids, Tonia! Thank you for sharing with us! Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Cute, . Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 He's cute ! I just hope that they went and took out all the parts on him that makes Ferrets stink! lol Sometimes, they can smell worse than a skunk! On the other hand, I have 4 cats that would look at him like....hmmm,,, breakfast! They've already gone after anything that moved this morning....my legs, Sami's pants, a cricket..... Tonia -------Original Message------- This is my new "granferret," Curious . He is 4 mo. old and came to live in our home yesterday, adopted from the Humane Society. Socks will just sit there and look at him--doesn't hiss like she does to Chester. He belongs to and is very cute! Love, N. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 Laurie I got both of your messages ...they came thru find ......Janie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 Tonia, You have a good reason 3 of them. Take a pajama day. Let everyone know that you are taking one so they won't expect much from you that day. Works wonders for me. Luv Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 Does your surgeon have a nutritionist you can see? Most surgeon's have a diet plan they want you to follow. Call them! W 380/302/160 CR wrote: > HELP! I had my surgery on August 16th, 2006 and still cannot figure out what I can eat. I'm so sick of broth. My main diet consists of crackers and ice chips! > Help! > > > CR > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 > > HELP! I had my surgery on August 16th, 2006 and still cannot figure out what I can eat. I'm so sick of broth. My main diet consists of crackers and ice chips! > > Help! > > > > > > CR I had my surgery on Sept 13. My surgeon had a nutritionist associated with the office and we had pre and post op classes regarding the foods we could have and when. We meet again in a month to add few more. Up to one month post op it is all high protein foods, fish, shrimp, scallops, turkey, cheese, plus 64 oz of water which includes 20 oz of Isopure protein drink. No crackers...as little as possible with carbs/sugars. Her motto is if it is white and it doesn't swim or fly, you shouldn't be eating it ( eg rice, pasta, potatoe). If you can't get any info from your surgeon, do a search online. Alot of places list what they recommend for various stages of post op. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 , Did you doctor tell you what caused your vestibulitis and what did he recommend? Are you still dealing with bv infections? CSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 , After my bout with BV, I had gotten on one of the forums you may want to check it out chronic bacterial vaginosis - Page 6 - Women's Health Support Forums chronic bacterial vaginosis that won't go away - Page 13 - WrongDiagnosis Forums CarolSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 My doctor doesn't quite know what caused the vestibulitis. I had lots of yeast treatments, BV, herpes outbreaks, and a back injury all around the same time. I'm still having the BV but trying boric acid capsules for that. I see my doctor next week. I'm also seeing a psychiatrist today to see about anti-depressants - well because I'm depressed, but maybe they will help the pain at the same time.... hoping. --- Carolyn52192@... wrote: > , > > Did you doctor tell you what caused your > vestibulitis and what did he > recommend? Are you still dealing with bv > infections? > > C > > > > ************************************** See what's > free at http://www.aol.com. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Lori, So many good things are happening to you all at once. A wedding for your daughter, a new grandchild, 5 new grandchildren already here! How much can you take all at once? I'm sure you are going to enjoy all of this even if it is a bit hectic right now. You will have to be sure and tell us about the dress for the mother of the bride! When my oldest daughter married for the second time, she had an outdoor wedding and it was perfect. The only flaw was when a bee got under the long dress of the maid of honor. (She is now my daughter- in-law and we talk about that incident a lot.) Luckily it was after the ceremony. Enjoy! Margaret B > Hi everyone, > > Just thought I would let you know in addition to becoming a > Grandmother. My youngest ,my daughter is getting married. Jonah > her beau asked my husband for her hand today while they were ice > fishing. He called me and asked me I said he had my blessing. > Along with this union comes 5 ready made grandchildren. Two of > them are autistic and very special. At Christmas time we made sure > they all got presents from us. But now it will be official they > want to be married outside on May 17th! Which is not giving us > alot of time to plan. I have the feeling I am going to be flaring > alot till Sept. Its going to be a long Spring and summer. I hope I > can handle all of this I will probably be needing a lot of group > support that is if you guys don't mind? You guys are wondering > what everyone looks like The picture I have in the group photo > album is me about 7 years ago! I am alot heavier now and older > and my Fibro has gotten alot worse since then. I just hope you > guys don't mind > if I lean on the group a little bit more while my whole world > changes. I have one more son he is the middle one am waiting to > see what he decides to surprise me with next. Have a great night > all. > > Hugs, > Lori Hammer > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Of course we don't mind, Lori. That's what the group is for. As stress is a major flare causer for us, we have to be able to vent and get support for everything, the pain, and the things that add to it. You will have a really joyful 2008, and we'll be here to help you through the flares of it all. I'm excited for you. Jeanne in WI > Hi everyone, > > Just thought I would let you know in addition to becoming a Grandmother. > My youngest ,my daughter is getting married. Jonah her beau asked my > husband for her hand today while they were ice fishing. He called me and > asked me I said he had my blessing. Along with this union comes 5 ready > made grandchildren. Two of them are autistic and very special. At > Christmas time we made sure they all got presents from us. But now it > will be official they want to be married outside on May 17th! Which is > not giving us alot of time to plan. I have the feeling I am going to be > flaring alot till Sept. Its going to be a long Spring and summer. I hope > I can handle all of this I will probably be needing a lot of group support > that is if you guys don't mind? You guys are wondering what everyone > looks like The picture I have in the group photo album is me about 7 years > ago! I am alot heavier now and older and my Fibro has gotten alot worse > since then. I just hope you guys don't mind > if I lean on the group a little bit more while my whole world changes. I > have one more son he is the middle one am waiting to see what he decides > to surprise me with next. Have a great night all. > > Hugs, > Lori Hammer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2008 Report Share Posted February 12, 2008 HI and welcome aboard! Melody Paine wrote: > Hi there, > > I'm new to the group and wanted to introduce myself quickly! I do most of my computing at work, so I may not post much, but I am definitely interested in the subject matter here from a very personal perspective. I have had chronic pain for 20 years and was officially diagnosed with FM as well as chronic fatigue, chronic myofascial pain, degenerative disk disease, etc about 10 years ago. > > I have had three major surgeries to try to alleviate pain. A breast reduction surgery, a double fusion in my lumbar spine, and a forefoot reconstruction. The breast reduction did get me smaller boobs but did nothing to alleviate my upper back and neck pain. The fusion and the foot surgeries did what they are supposed to do but did not decrease my pain significantly in any way. Each surgery tends to come with its own " baggage " and scar tissue, nerve damage, stiffness, etc. > > I still work full-time because I have no choice. I also have no insurance. I am " uninsurable " and cannot find anyone to write me a policy, no matter how much I might be willing to pay. > > I am a technical editor by trade, and I am also a professional harpist and harp teacher. So, yes, staying busy, within the bounds of what I'm able to do, does seem to help. But I also get completely exhausted with very little exertion and sometimes lose the rest of a whole day because I got too tired and hurt too much. > > I also try not to think about it too much or I find that I really get mired down in it and get very sad. But, I know that I'm not alone and will look forward to getting to know all of you a bit! > > Paine > To contribute to my book, please contact me at fibrobook@... > > > ________________________________________________________________________________\ ____ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > > Quote Link to comment Share on other sites More sharing options...
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