Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 I just had a question about the rash that everyone gets with the DM. I have had no sign of a rash anywhere, but lately I notice that my cheeks get quite red and blotchy looking at times....especially in the evenings. Could this be a sign of the start of DM and does it necessarily have to spread to my hands and back and chest (I believe those are the most common places for the rash). Thanks again. Dawn anzavic@... wrote: > Hi Lou > > Is Steve's cough dry or does he bring up stuff? > > Was the BOOP diagnosis the only thing they found in Steve's lungs? If > you don't know you might get a copy of the lung biopsy report. It's > good to have for your records. > > Once I got down lower on my prednisone I had to get on an inhaler with > steroids in it. Steve might find that helpful as well. Is he seeing a > Pulmonary doctor for his lungs or is his Rheumy taking care of it? > > I've include a little article I found that might help. But, I would > take a look at his lung biopsy records to see what else was found. > Does Steve have a rash for DM? > > He is very young to be going through all of this and it also has to be > so hard on you. > I do hope he has a good Pulmonary doctor to treat his condition. > > Take care, > Vicki > ************* > What if corticosteroid therapy does not work? > > There are several reasons why steroid therapy may not be effective. > > First, the BOOP may not be typical and it may be an unusual form that > does not respond to treatment. > > Second, the BOOP may be associated with scarring or fibrosis. In these > situations, the scarring may stabilize or in unusual situations, the > scarring progresses. > > Third, the BOOP is secondary to an > underlying process referred to as idiopathic pulmonary fibrosis (IPF). > In these situations, the steroid treatment is effective for the BOOP, > but not for the pulmonary fibrosis. > > Finally, the diagnosis may not be BOOP at all. It may be IPF or one of > the interstitial pneumonias, or even an unusual tumor or infection. > > Because of these possibilities, it may be helpful to confirm the > diagnosis by a lung pathologist. > > Regarding other treatments, there have been anecdotal reports. > > In 1993, six patients in Japan were given erythromycin every day. After > two months one patient responded and after three months of treatment, > all six patients responded. > > In 1995, one patient was treated with inhaled corticosteroid inhaler for > 8 months with a successful response. > > In 1997, a patient received Cytoxan, an anti-cancer medication, with a > successful outcome. > > Studies of a large number of patients are needed to confirm the success > of these treatments. > > In very rare situations, lung transplantation may be necessary for > patients who do not respond to treatment or have an unusual or hybrid > form of BOOP. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 So far, I've only gotten the rash on both eyelids, on my right cheek, on my knuckles and some discoloration under both eyes ( I look like a raccoon. I've have a bad case of pimples on my back, but no rash. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Hi, When I first started getting the rash it started on my face too my forehead and it looked blotchy... then it started spreading and fast. Everyone is different so hopefully it wont happen to u. lani ps. Has anyone tried that cream u can order in the mail calledPsorelief Ive tried many steroid creams and nothing works like this stuff, was just wondering if anybody else had a good outcome with it as well. -- Re: Question about rash I just had a question about the rash that everyone gets with the DM. I havehad no sign of a rash anywhere, but lately I notice that my cheeks get quitered and blotchy looking at times....especially in the evenings. Could thisbe a sign of the start of DM and does it necessarily have to spread to myhands and back and chest (I believe those are the most common places for therash). Thanks again.Dawnanzavic@... wrote:> Hi Lou>> Is Steve's cough dry or does he bring up stuff?>> Was the BOOP diagnosis the only thing they found in Steve's lungs? If> you don't know you might get a copy of the lung biopsy report. It's> good to have for your records.>> Once I got down lower on my prednisone I had to get on an inhaler with> steroids in it. Steve might find that helpful as well. Is he seeing a> Pulmonary doctor for his lungs or is his Rheumy taking care of it?>> I've include a little article I found that might help. But, I would> take a look at his lung biopsy records to see what else was found.> Does Steve have a rash for DM?>> He is very young to be going through all of this and it also has to be> so hard on you.> I do hope he has a good Pulmonary doctor to treat his condition.>> Take care,> Vicki> *************> What if corticosteroid therapy does not work?>> There are several reasons why steroid therapy may not be effective.>> First, the BOOP may not be typical and it may be an unusual form that> does not respond to treatment.>> Second, the BOOP may be associated with scarring or fibrosis. In these> situations, the scarring may stabilize or in unusual situations, the> scarring progresses.>> Third, the BOOP is secondary to an> underlying process referred to as idiopathic pulmonary fibrosis (IPF).> In these situations, the steroid treatment is effective for the BOOP,> but not for the pulmonary fibrosis.>> Finally, the diagnosis may not be BOOP at all. It may be IPF or one of> the interstitial pneumonias, or even an unusual tumor or infection.>> Because of these possibilities, it may be helpful to confirm the> diagnosis by a lung pathologist.>> Regarding other treatments, there have been anecdotal reports.>> In 1993, six patients in Japan were given erythromycin every day. After> two months one patient responded and after three months of treatment,> all six patients responded.>> In 1995, one patient was treated with inhaled corticosteroid inhaler for> 8 months with a successful response.>> In 1997, a patient received Cytoxan, an anti-cancer medication, with a> successful outcome.>> Studies of a large number of patients are needed to confirm the success> of these treatments.>> In very rare situations, lung transplantation may be necessary for> patients who do not respond to treatment or have an unusual or hybrid> form of BOOP.>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Dawn, I get red cheeks too. My doctor always looks at my cheeks and my hands. I do have pm though. I can't explain the red cheeks. I wonder if it is because of my blood pressure being high? Anyone have any thoughts on that? Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Dawn I don't recall having much of a rash when I was dx with DM. Now (after 6 yrs) have the rosy cheeks.......mainly when I overdo or get overly tired. The backs of hands and on one leg where I had cellulitis there is some discoloration. Upper chest area get a little pink but not bad. Do get itching (it comes & goes) on my stomach and thighs. I had this really bad before I got on pred. Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Boy, aren't we something! Look like a raccoon and waddle like a duck.......sure glad we got the glamorous disease....LOL Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Zanna I get the same, especially if I'm out in the yard. I believe it's because we're sun sensitive. I also get red if I heat up... you know, like a hot flash.... lol Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 Dawn... I have DM rashes and my cheeks (especially under my eyes) get patchy red spots and general redness. I also have rashes on my ankle, lower stomach, inner wrists, etc. It comes and goes, but leaves a dull purplish stain even when it goes. Annette Re: Question about rash I just had a question about the rash that everyone gets with the DM. I have had no sign of a rash anywhere, but lately I notice that my cheeks get quite red and blotchy looking at times....especially in the evenings. Could this be a sign of the start of DM and does it necessarily have to spread to my hands and back and chest (I believe those are the most common places for the rash). Thanks again. Dawn anzavic@... wrote: > Hi Lou > > Is Steve's cough dry or does he bring up stuff? > > Was the BOOP diagnosis the only thing they found in Steve's lungs? If > you don't know you might get a copy of the lung biopsy report. It's > good to have for your records. > > Once I got down lower on my prednisone I had to get on an inhaler with > steroids in it. Steve might find that helpful as well. Is he seeing a > Pulmonary doctor for his lungs or is his Rheumy taking care of it? > > I've include a little article I found that might help. But, I would > take a look at his lung biopsy records to see what else was found. > Does Steve have a rash for DM? > > He is very young to be going through all of this and it also has to be > so hard on you. > I do hope he has a good Pulmonary doctor to treat his condition. > > Take care, > Vicki > ************* > What if corticosteroid therapy does not work? > > There are several reasons why steroid therapy may not be effective. > > First, the BOOP may not be typical and it may be an unusual form that > does not respond to treatment. > > Second, the BOOP may be associated with scarring or fibrosis. In these > situations, the scarring may stabilize or in unusual situations, the > scarring progresses. > > Third, the BOOP is secondary to an > underlying process referred to as idiopathic pulmonary fibrosis (IPF). > In these situations, the steroid treatment is effective for the BOOP, > but not for the pulmonary fibrosis. > > Finally, the diagnosis may not be BOOP at all. It may be IPF or one of > the interstitial pneumonias, or even an unusual tumor or infection. > > Because of these possibilities, it may be helpful to confirm the > diagnosis by a lung pathologist. > > Regarding other treatments, there have been anecdotal reports. > > In 1993, six patients in Japan were given erythromycin every day. After > two months one patient responded and after three months of treatment, > all six patients responded. > > In 1995, one patient was treated with inhaled corticosteroid inhaler for > 8 months with a successful response. > > In 1997, a patient received Cytoxan, an anti-cancer medication, with a > successful outcome. > > Studies of a large number of patients are needed to confirm the success > of these treatments. > > In very rare situations, lung transplantation may be necessary for > patients who do not respond to treatment or have an unusual or hybrid > form of BOOP. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 I have hot flashes all the time!!! I have the fan going all the time especially at night. My poor hubby has 10 blankets on him and I am under a sheet with the fan on me!!! I am afraid of what menapause will be like!!!! Zanna Quote Link to comment Share on other sites More sharing options...
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