Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 wow keep going > > Well I got up early got the kids ready and was out the door at 9am. > I went to WIC to sign up for free food. Well I was there for > an hour and a half and getting very upset. was starting to > act up and get all weird.I was losing my mind!! By the time they > called us I just wanted to scream. Then I took to grandmas > and went to SEDOL to get Evas hearing tested. That also took an hour > and a half but she did good with her test they could tell the > hearing aid was helping her. But when they tested the vibrations in > her ear drums she didnt do so well so they thought she might have > fluid in her ears. So they wanted me to see the ENT since I was > going to Childerns. Well The theropist called the ENT and just got a > voice mail so she left a message. Then I had to go to Childerns (an > hour drive away) to make a 2 o clock appointment to see if she needs > to have the sleep study done. Well from what they saw and what I > told them they dont think she has sleep apnea but they are going to > do the sleep study just to make sure and so they can rule out what > the Cardiologist thought. I found out that she has high blood > pressure around her heart. So if she doesnt have sleep apnea they > will have to figure out why she has this problem. > I have to call tomorrow and find out when we can do this but it will > be in the next couple weeks. > Thanks for being here for us!! > > Crystal and Eva (7 month charger) > > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca or > email info@... . > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Crystal -- What a crazy day! I remember those days -- when just transporting Aubrie was a big deal -- then every appt brought something new to deal with. It was like hitting a brick wall at every turn. But... it did get better. Now most appts are truly just check ups with good news -- or nothing really " new " . We still have the ocassional brick wall with unexpected findings that we weren't ready for. But please know that these crazy days will get fewer and farther between. Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Good luck with the cardiology & ENT appointments. I don't miss those crazy appointment-laden days /weeks we went through in the early days... Weir Home: lisaweir@... Work: lisa.weir@... Phone: Web: http://ca.geocities.com/weirfamilyrogers Quote Link to comment Share on other sites More sharing options...
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