Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 Where did you hear that the cream only needs to be on for an hour? I thought it was " the longer the better " ! I'd love to see some verification on this, because our whole whole is permeated with the nasty smell!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 I have been told that the cream only needs to be on for an hour to be absorbed so you could put it on late in the day and then give him a bath. With our son we put it on in the morning and then give him a bath (just his body) in the morning before school and then give him another bath at night and wash his hair. We have learned to live with the smell so we apply before bed and just go through the process again the next morning. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 Apply the cream-- ttfd to one ankle and top of foot, and gsh to the other. Put on the socks. Leave on for 30 minutes. Then wash off-- you do have to soap their ankles several times to get the residue off. The child might have a mild sulfury smell to them but it shouldn't be too bad once washed off. As far as you applying it-- if you have any fillings you should not be in contact with the ttfd with your bare hands, as a precaution. So use a plastic baggie over your hand and rub it in with the plastic sandwich baggie and just throw it away when you are done. W > Last night was the first time we applied the TTFD cream. I > wasn't fully prepared for that smell. The doctor said to apply > between the shoulder blades. I am not sure I can go through > another night smelling this. My son sleeps with me and I headed > out to the couch after about an hour. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 I am pretty sure that over on the CK2 board, that it was reported that it could be on for 30 minutes and then washed off. You could call the compounding pharmacy or search their archives over there. maryW > Where did you hear that the cream only needs to be on for an hour? I thought > it was " the longer the better " ! I'd love to see some verification on this, > because our whole whole is permeated with the nasty smell!! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 It is hard to say. My son makes slow but steady progress. We have been following the DAN protocol since January of this year (diet, supplaments, secretin, antifungals, TTFD= Glutathiaone creams, b12 injections, colonoscopy revealed active colitis so treatment for that, 5 rounds DMSA chelation) so it is hard to say. We started the TTFD and glutathiane creams in June and 2 weeks later began B12- seems to have made some cognitive gains- nothing miraculous but there. Overall in that time people have said he seems more aware and interactive with adults- not children. We also just got him to say " Hi " and immitate a few vowel sounds and also his receptive language seems to be improving as well (he turned 3 in April). The creams helped him to excrete some metals butr small amount and no mercury till DMSA was added. Currently we apply them 2x/day when not on DMSA. Are you guys also following the DAN protocol and if so has it helped? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 It is hard to say. My son makes slow but steady progress. We have been following the DAN protocol since January of this year (diet, supplaments, secretin, antifungals, TTFD= Glutathiaone creams, b12 injections, colonoscopy revealed active colitis so treatment for that, 5 rounds DMSA chelation) so it is hard to say. We started the TTFD and glutathiane creams in June and 2 weeks later began B12- seems to have made some cognitive gains- nothing miraculous but there. Overall in that time people have said he seems more aware and interactive with adults- not children. We also just got him to say " Hi " and immitate a few vowel sounds and also his receptive language seems to be improving as well (he turned 3 in April). The creams helped him to excrete some metals butr small amount and no mercury till DMSA was added. Currently we apply them 2x/day when not on DMSA. Are you guys also following the DAN protocol and if so has it helped? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 > Following the 4hr dosing with dmsa has helped 25 mg. > diet did help too. The dmsa/ala protocol doesnt agree > with him. Something with the dmsa. I recently got info > on another product from maxamlabs.com It is also > supposed to chelate. I don't believe it does chelate - other than money from your wallet. Andy . .. . . . . . . . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 I haven't used TTFD, but I have read that: 1. if you put it on the feet, put it on the tops of the feet where it will better absorbed 2. don't apply it with bare hands if you have amalgams Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2006 Report Share Posted September 7, 2006 In a message dated 07/09/2006 11:39:14 GMT Daylight Time, stepbystep@... writes: I am just about to start TTFD cream. Where does one rub it in ...and what can I expect..any particular reactions? >>>When it first came out folks were putting it on feet. Can be VERY smelly. Made Sam stim monster with nearly white poops despite Taurine and Milk Thistle so stopped after 10 days Mandi x PS Good to see you back - how are things going? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 Hi Mandy...Knew I could rely on you for an answer! Thanks for that. Actually I never really went away...Just following Jean's protocol quietly and practicing patience. I am on top of Biomed thanks to Jean and Cian is calmer and more managable...all stuble of course. But my big news is that I moved house. I now live in the South in a little place called Buncrana. I got sick and tired of lack of services,understanding,common sense in the North. Cian is now eight. I have never had respite. He has never had a school (other than myself and a few others rattling collection cans to keep a little room in his local school open) Speech Therapy (except10 weeks when he was 3) etc. etc. I just couldn't bare it any longer. I was also exhausted fighting and advocating and getting nowhere with no support. It was a new type of Ulster says 'No'!! Anyway Cian is now in an autism specific learning centre in a main stream school and he gets everything from one on one to reflexology. (Ssssh don't tell anyone or there will be a mass exit from mainland lol!) Mandy it is fantastic. He is being treated as a person first and for the first time in my life I am being offered help in a variety of ways. Why Buncrana? Because of some fabulous parents here who worked very hard to create awareness understanding and last but not least facilities and education specific to autism. The whole community embraces difference and I am just so happy to be now part of such a beautiful and caring community. Where would the children with Autism be with out Parent Power? I don't have a computer yet but come here to the library so I will be in touch more now.....I'll let you know how I get on with TTFD and smelly feet!!! Hope Sam is well Best Aileen > > > In a message dated 07/09/2006 11:39:14 GMT Daylight Time, > stepbystep@... writes: > > I am just about to start TTFD cream. Where does one rub it in ...and > what can I expect..any particular reactions? > > > > >>>When it first came out folks were putting it on feet. Can be VERY smelly. > Made Sam stim monster with nearly white poops despite Taurine and Milk > Thistle so stopped after 10 days > > Mandi x > PS Good to see you back - how are things going? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 Apparently, adding in biotin takes away the smell of TTFD. I haven't added it yet, am just about to, so I'll let you know if it works (2 pairs of smelly feet here!) Diane Re: TTFD cream Hi Mandy...Knew I could rely on you for an answer! Thanks for that.Actually I never really went away...Just following Jean's protocol quietly and practicing patience. I am on top of Biomed thanks to and Cian is calmer and more managable...all stuble of course. But my big news is that I moved house. I now live in the South in a little place called Buncrana. I got sick and tired of lack of services,understanding,common sense in the North. Cian is now eight. I have never had respite. He has never had a school (other than myself and a few others rattling collection cans to keep a little room in his local school open) Speech Therapy (except10 weeks when he was 3) etc. etc. I just couldn't bare it any longer. I was also exhausted fighting and advocating and getting nowhere with no support. It was a new type of Ulster says 'No'!!Anyway Cian is now in an autism specific learning centre in a main stream school and he gets everything from one on one to reflexology. (Ssssh don't tell anyone or there will be a mass exit from mainland lol!)Mandy it is fantastic. He is being treated as a person first and for the first time in my life I am being offered help in a variety of ways. Why Buncrana? Because of some fabulous parents here who worked very hard to create awareness understanding and last but not least facilities and education specific to autism. The whole community embraces difference and I am just so happy to be now part of such a beautiful and caring community. Where would the children with Autism be with out Parent Power?I don't have a computer yet but come here to the library so I will be in touch more now.....I'll let you know how I get on with TTFD and smelly feet!!!Hope Sam is wellBestAileen>> > In a message dated 07/09/2006 11:39:14 GMT Daylight Time, > stepbystep@... writes:> > I am just about to start TTFD cream. Where does one rub it in ...and > what can I expect..any particular reactions?> > > > >>>When it first came out folks were putting it on feet. Can be VERY smelly. > Made Sam stim monster with nearly white poops despite Taurine and Milk > Thistle so stopped after 10 days> > Mandi x> PS Good to see you back - how are things going?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 In a message dated 08/09/2006 14:27:34 GMT Daylight Time, m_d33@... writes: Apparently, adding in biotin takes away the smell of TTFD. I haven't added it yet, am just about to, so I'll let you know if it works (2 pairs of smelly feet here!) >>>Did it work Diane? Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 I didnt know that about biotin. Funny enough, our wee lad used to absolutely reek, and now with biotin for the last few weeks, dosent smell so bad. thanks for that. > > > In a message dated 08/09/2006 14:27:34 GMT Daylight Time, m_d33@... > writes: > > Apparently, adding in biotin takes away the smell of TTFD. I haven't added > it yet, am just about to, so I'll let you know if it works (2 pairs of smelly > feet here!) > > > > >>>Did it work Diane? > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Mandi, I'm really pleased you sent this because I'd forgot I was going to order it!! asked me to get the Biotin 8 at our last review, so I'll get that ordered and get back to you. Actually, with the stink bomb smell of TD-DMSA, the smell of TTFD almost goes un-noticed. I'm having to keep an eye on , as he's been going to the bathroom to wash off the 'stinky cream', and has been spraying him with perfume before she lets him in her room. I've given him a choice; stinky cream or stinky tablets, so he's opted, reluctantly, to put up with the stinky cream for now! Adding in the biotin to reduce the smell of the TTFD was something I read by Dr Derrick Lonsdale a while ago. I'll have to add it in because has been complaining that she can taste it, which must be awful for her. Thanks, Diane Re: Re: TTFD cream In a message dated 08/09/2006 14:27:34 GMT Daylight Time, m_d33fastmail (DOT) fm writes: Apparently, adding in biotin takes away the smell of TTFD. I haven't added it yet, am just about to, so I'll let you know if it works (2 pairs of smelly feet here!) >>>Did it work Diane? Mandi x Quote Link to comment Share on other sites More sharing options...
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