Guest guest Posted September 22, 2004 Report Share Posted September 22, 2004 Pam, Sorry to hear that you're not doing well. It's very hard without meds.. I don't take any pain meds due to an allergy. I don't know of any Drs. in upstate NY. I used to treat in NYC, if you want the name of my Dr. there, please let me know. Blocks work for some, don't work for some others... depends on where the RSD is, who does the block, etc. They were not successful for me. Finding a way to cope is the most important things.. biofeedback, relaxation, or something that helps you take your mind of the pain for a part of the time. No one could cope with the pain that we have if that is all we think of.. I find lots of ways to divert my attention... it is hard, but it can happen. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2004 Report Share Posted September 22, 2004 Pam, I cannot talk that much now, but live in upstate New York. A town called Saugerties. All my doctors are in Poughkeepsi because of my MS, so I also use the doctors there for WC. I have a GREAT pain management doctor and an incredible neurologist. I also think that I have one of the best OBGYN's in the state of New York. He already performed two major surgeries on me! Please write me later if you are interested in the doctors that I can suggest to you. I will be back around 8pm. Take Care and LOL Dawn patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Pam, I don't know about blocks for whole body but I don't know why not. The doc just has to locate the point(s) of origin. I am so sorry that you are so ill. Hang in there, even if it does seem that way now, it will get better over time. Get the doc to amend your meds not represcribe that's what mine did to help me when I supposingly had had my limit for the month. Good Luck, my friend. I will say a special prayer this morning for you. Love ya, DebDog (Debbie) patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Dawn,Thank you for the advise and yes I would like the name of your doctors that would help a lot. I have rsd in so many places it is scary. I worked in healthcare in the medical surgical wing for over 23 years and now it is hard to be a patient because I know how doctors are. all my rsd came from an abusive marriage that I was in for23 years. I have been away for 6 years and now my rsd is so bad I get very angry and sad. I will admit that I not a good patient. I tend to procrastinate when I know what I should do. thanks for the information. yes I do know how hard it is to type thats why I 'm getting a voice activated program does any one have one???? my hot water treatment seemed to help so far today .. hugs to you all Pamdawn lorenz wrote: Pam, I cannot talk that much now, but live in upstate New York. A town called Saugerties. All my doctors are in Poughkeepsi because of my MS, so I also use the doctors there for WC. I have a GREAT pain management doctor and an incredible neurologist. I also think that I have one of the best OBGYN's in the state of New York. He already performed two major surgeries on me! Please write me later if you are interested in the doctors that I can suggest to you. I will be back around 8pm. Take Care and LOL Dawn patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Debbie,Thanks for the advice and I will see what I can do. My pain is down a little I was in hot water for a while and did some biofeed back. Sometimes it helps some time it dose'nt. Everyone with this condition has quite a struggle. I really glad that I found you all. I will tell you that after working in healthcare for 23 years I'm not a good patient. isnt that always the case. but do you think that it is normal to be mad at the dease and the person that caused it???? just a thought. I'm looking into voice activated programs do you know about them???? thanks again and I pray for you all too hugs Pam geborah Ducote wrote: Pam, I don't know about blocks for whole body but I don't know why not. The doc just has to locate the point(s) of origin. I am so sorry that you are so ill. Hang in there, even if it does seem that way now, it will get better over time. Get the doc to amend your meds not represcribe that's what mine did to help me when I supposingly had had my limit for the month. Good Luck, my friend. I will say a special prayer this morning for you. Love ya, DebDog (Debbie) patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Pam, I just wanted to comment on the voice activated programs. I am from Texas and have a very prominent southern accent. I purchased a voice activated program and was so excited about it taking some stress off of me back when I was still able to work. During the set up program you have to read things for the program so that it can identify words in the way in which you speak. The program I got never could identify the words from me because of my accent LOL It was so funny as I was reading things because when I'd finish everytime it would say the same thing to me. I also have a sprint cell phone and if you've ever called sprint you will know that they also have a voice activated system. You tell the computerized voice what it is you are wanting. The dang female voice never can understand me and always has to transfer me to a " person " LOL Oh the horrors of speaking " southern " LOL If you can get the program to work for you I'm sure it will help you bunches. I wish you luck! Carla Texarkana, TX Re: hard day To: rsd-crpsofamerica Debbie, Thanks for the advice and I will see what I can do. My pain is down a little I was in hot water for a while and did some biofeed back. Sometimes it helps some time it dose'nt. Everyone with this condition has quite a struggle. I really glad that I found you all. I will tell you that after working in healthcare for 23 years I'm not a good patient. isnt that always the case. but do you think that it is normal to be mad at the dease and the person that caused it???? just a thought. I'm looking into voice activated programs do you know about them???? thanks again and I pray for you all too hugs Pam geborah Ducote wrote: Pam, I don't know about blocks for whole body but I don't know why not. The doc just has to locate the point(s) of origin. I am so sorry that you are so ill. Hang in there, even if it does seem that way now, it will get better over time. Get the doc to amend your meds not represcribe that's what mine did to help me when I supposingly had had my limit for the month. Good Luck, my friend. I will say a special prayer this morning for you. Love ya, DebDog (Debbie) patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 I suppose its only human to not only hate the disease but have some negative feelings for who or what caused it. I despise this and while I know the accident was never intentional I resent that which caused it. I wont go so far as to say I hate who caused it but the actions behind it could have been avoided. Donna, I know that it is normal to hate this disease, but don't let that consume you, at first I was so angry and would constantly say that this is so unfair etc, etc, etc. Finally one day I decided I was not going to become bitter and mad at the world, so I finally accepted that this is what I have, and I just have to adjust to my limitations and do the best I can. Of course mine wasn't caused by an accident or any injuries. I am one of the rare ones that it just happened, one day I walked a 7 mile course with my sister, at 13 minute miles no less, the next day I couldn't bear weight on my left knee and onward it went :-). I hope you are having a good pain day, Lin -- Re: hard day Hi PamI've been working in and out of the healthcare field for close to 20 yrs myself and I am also the worst patient when it comes to doing what Im supposed to be doing rather than what I've been told to do. Most of the time it works to my advantage but not so with this evil thing.I suppose its only human to not only hate the disease but have some negative feelings for who or what caused it. I despise this and while I know the accident was never intentional I resent that which caused it. I wont go so far as to say I hate who caused it but the actions behind it could have been avoided.I worked in an alzheimers unit as a certified aide. My job on that particular morning was to give a bath to one of the residents. Mind you they dont like water very much and she was no exception lol. Being that she has this illness she had no concept of pain or hurting another person and grabbed my wrist and twisted it violently. I knew this womans temper but had to bathe her alone as we were "short staffed", nothing unusual there. anyway to make a long story short I should have been buddied up with someone but wasnt due to budget cuts and now here we sit 11 almost 12 months later still paying for their shortcuts.Anyway, lol..just my .02 on the subject. Have a great day Pam and I look forward to hearing more from you!HugsDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Carla - I'm sitting here laughing about your experience with voice-recognition programs. Dang, they'd have one heck of a time with JoAnn's voice !!! I'm sure that Tricia, Donna, and I would have no difficulty given that we have the pure, crystal clear, melodious and proper English of New England. Barbara ( who is willing to offer articulation and accent management tutoring for a small fee)Survivor NOV2000 wrote: Pam,I just wanted to comment on the voice activated programs. I am fromTexas and have a very prominent southern accent. I purchased a voiceactivated program and was so excited about it taking some stress offof me back when I was still able to work. During the set up programyou have to read things for the program so that it can identify wordsin the way in which you speak. The program I got never could identifythe words from me because of my accent LOL It was so funny as I wasreading things because when I'd finish everytime it would say the samething to me.I also have a sprint cell phone and if you've ever called sprint youwill know that they also have a voice activated system. You tell thecomputerized voice what it is you are wanting. The dang female voicenever can understand me and always has to transfer me to a "person"LOL Oh the horrors of speaking "southern" LOLIf you can get the program to work for you I'm sure it will help youbunches. I wish you luck!CarlaTexarkana, TX Re: hard dayTo: rsd-crpsofamerica Debbie,Thanks for the advice and I will see what I can do. My pain is down alittle I was in hot water for a while and did some biofeed back.Sometimes it helps some time it dose'nt. Everyone with this conditionhas quite a struggle. I really glad that I found you all. I will tellyou that after working in healthcare for 23 years I'm not a goodpatient. isnt that always the case. but do you think that it is normalto be mad at the dease and the person that caused it???? just athought. I'm looking into voice activated programs do you know aboutthem???? thanks again and I pray for you all too hugs Pam geborah Ducote wrote:Pam, I don't know about blocks for whole body but I don't know whynot. The doc just has to locate the point(s) of origin. I am so sorrythat you are so ill. Hang in there, even if it does seem that way now,it will get better over time. Get the doc to amend your meds notreprescribe that's what mine did to help me when I supposingly had hadmy limit for the month. Good Luck, my friend. I will say a specialprayer this morning for you.Love ya,DebDog (Debbie)patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 > I'm sure that Tricia, Donna, and I would have no difficulty given that we have the pure, crystal clear, melodious and proper English of New England. ROFL! Youre too too funny Barbara..who exactly DID they create those voice activated programs for? Certainly not the North and Certainly not the south. Unless you have been taught by Professor Higgins than forget it LOL! Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 The rain in Spain falls mainly in the Plains. By , she's got it !!!Donna wrote: > I'm sure that Tricia, Donna, and I would have no difficulty given that we have the pure, crystal clear, melodious and proper English of New England. ROFL! Youre too too funny Barbara..who exactly DID they create those voice activated programs for? Certainly not the North and Certainly not the south. Unless you have been taught by Professor Higgins than forget it LOL!HugsDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 > The rain in Spain falls mainly in the Plains. By , she's got it !!! > By shes got, I didnt think she would, but she got it LOL Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Okay Barbara who has this really BIG Yankee accent as sorry Ginny, but so do you and Barbara you want to talk about me, I have no accent and Carla does not either.......it is just all Yankees which we know is anyone outside state of Tx just never learned to speak correctly......come on Carla, support me on this one as this is an on going subject. Yankee thinking you can speak well when you say "car" like cccccccccccccaaaaaaaaaaaaaaar with emphasis on c and a and then finally comes the r. Takes 10 minutes to get that word out of your sweet Yankee voice my friend. Now please, lets rethink who has the accent and know when you get past the shock of the pump and kink in tube you will recant such a horrible miswording about me having somesort of accent. Right?!, Barbara, Right?!......I can't hear you Barb.....speak up woman.......Okay I heard you, and your forgiven friend. Carla she said she is sorry, did not mean we have accents and they speak perfect was a drug induced, shock thing, got her off balance.......so all is fine now. Whew, glad that is all taken care of. hugs JoAnn Re: hard dayTo: rsd-crpsofamerica Debbie,Thanks for the advice and I will see what I can do. My pain is down alittle I was in hot water for a while and did some biofeed back.Sometimes it helps some time it dose'nt. Everyone with this conditionhas quite a struggle. I really glad that I found you all. I will tellyou that after working in healthcare for 23 years I'm not a goodpatient. isnt that always the case. but do you think that it is normalto be mad at the dease and the person that caused it???? just athought. I'm looking into voice activated programs do you know aboutthem???? thanks again and I pray for you all too hugs Pam geborah Ducote wrote:Pam, I don't know about blocks for whole body but I don't know whynot. The doc just has to locate the point(s) of origin. I am so sorrythat you are so ill. Hang in there, even if it does seem that way now,it will get better over time. Get the doc to amend your meds notreprescribe that's what mine did to help me when I supposingly had hadmy limit for the month. Good Luck, my friend. I will say a specialprayer this morning for you.Love ya,DebDog (Debbie)patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 PFFFFFFFFFFFFFFFFFFFFFFFFFFTJoAnn & Russ Ford wrote: Okay Barbara who has this really BIG Yankee accent as sorry Ginny, but so do you and Barbara you want to talk about me, I have no accent and Carla does not either.......it is just all Yankees which we know is anyone outside state of Tx just never learned to speak correctly......come on Carla, support me on this one as this is an on going subject. Yankee thinking you can speak well when you say "car" like cccccccccccccaaaaaaaaaaaaaaar with emphasis on c and a and then finally comes the r. Takes 10 minutes to get that word out of your sweet Yankee voice my friend. Now please, lets rethink who has the accent and know when you get past the shock of the pump and kink in tube you will recant such a horrible miswording about me having somesort of accent. Right?!, Barbara, Right?!......I can't hear you Barb.....speak up woman.......Okay I heard you, and your forgiven friend. Carla she said she is sorry, did not mean we have accents and they speak perfect was a drug induced, shock thing, got her off balance.......so all is fine now. Whew, glad that is all taken care of. hugs JoAnn Re: hard dayTo: rsd-crpsofamerica Debbie,Thanks for the advice and I will see what I can do. My pain is down alittle I was in hot water for a while and did some biofeed back.Sometimes it helps some time it dose'nt. Everyone with this conditionhas quite a struggle. I really glad that I found you all. I will tellyou that after working in healthcare for 23 years I'm not a goodpatient. isnt that always the case. but do you think that it is normalto be mad at the dease and the person that caused it???? just athought. I'm looking into voice activated programs do you know aboutthem???? thanks again and I pray for you all too hugs Pam geborah Ducote wrote:Pam, I don't know about blocks for whole body but I don't know whynot. The doc just has to locate the point(s) of origin. I am so sorrythat you are so ill. Hang in there, even if it does seem that way now,it will get better over time. Get the doc to amend your meds notreprescribe that's what mine did to help me when I supposingly had hadmy limit for the month. Good Luck, my friend. I will say a specialprayer this morning for you.Love ya,DebDog (Debbie)patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Thank you all for making me laugh I needed that . every body knows that people from new york have no accent.....hugs to everyone PamBARBARA TORREY wrote: PFFFFFFFFFFFFFFFFFFFFFFFFFFTJoAnn & Russ Ford wrote: Okay Barbara who has this really BIG Yankee accent as sorry Ginny, but so do you and Barbara you want to talk about me, I have no accent and Carla does not either.......it is just all Yankees which we know is anyone outside state of Tx just never learned to speak correctly......come on Carla, support me on this one as this is an on going subject. Yankee thinking you can speak well when you say "car" like cccccccccccccaaaaaaaaaaaaaaar with emphasis on c and a and then finally comes the r. Takes 10 minutes to get that word out of your sweet Yankee voice my friend. Now please, lets rethink who has the accent and know when you get past the shock of the pump and kink in tube you will recant such a horrible miswording about me having somesort of accent. Right?!, Barbara, Right?!......I can't hear you Barb.....speak up woman.......Okay I heard you, and your forgiven friend. Carla she said she is sorry, did not mean we have accents and they speak perfect was a drug induced, shock thing, got her off balance.......so all is fine now. Whew, glad that is all taken care of. hugs JoAnn Re: hard dayTo: rsd-crpsofamerica Debbie,Thanks for the advice and I will see what I can do. My pain is down alittle I was in hot water for a while and did some biofeed back.Sometimes it helps some time it dose'nt. Everyone with this conditionhas quite a struggle. I really glad that I found you all. I will tellyou that after working in healthcare for 23 years I'm not a goodpatient. isnt that always the case. but do you think that it is normalto be mad at the dease and the person that caused it???? just athought. I'm looking into voice activated programs do you know aboutthem???? thanks again and I pray for you all too hugs Pam geborah Ducote wrote:Pam, I don't know about blocks for whole body but I don't know whynot. The doc just has to locate the point(s) of origin. I am so sorrythat you are so ill. Hang in there, even if it does seem that way now,it will get better over time. Get the doc to amend your meds notreprescribe that's what mine did to help me when I supposingly had hadmy limit for the month. Good Luck, my friend. I will say a specialprayer this morning for you.Love ya,DebDog (Debbie)patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 hi Donna It has been hard for me somedays but I have to realize that I'm not alone thank you all for making me feel like I do belong. it is hard for people to realize that I hurt because they cant see any injury. my rsd has spread a lot in the past 10 months and i have to adjust. I keep pushing thru the pain and making my self do stuff. my new husband brought me home a new kitten he is so good to me I am very lucky. her name is midnight she is a lot of company for me. my comouter dosent like to stay on line so next week we are getting high speed that is my b-day present. hugs to you PamDonna wrote: Hi PamI've been working in and out of the healthcare field for close to 20 yrs myself and I am also the worst patient when it comes to doing what Im supposed to be doing rather than what I've been told to do. Most of the time it works to my advantage but not so with this evil thing.I suppose its only human to not only hate the disease but have some negative feelings for who or what caused it. I despise this and while I know the accident was never intentional I resent that which caused it. I wont go so far as to say I hate who caused it but the actions behind it could have been avoided.I worked in an alzheimers unit as a certified aide. My job on that particular morning was to give a bath to one of the residents. Mind you they dont like water very much and she was no exception lol. Being that she has this illness she had no concept of pain or hurting another person and grabbed my wrist and twisted it violently. I knew this womans temper but had to bathe her alone as we were "short staffed", nothing unusual there. anyway to make a long story short I should have been buddied up with someone but wasnt due to budget cuts and now here we sit 11 almost 12 months later still paying for their shortcuts.Anyway, lol..just my .02 on the subject. Have a great day Pam and I look forward to hearing more from you!HugsDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Okay Barbara who has this really BIG Yankee accent as sorry Ginny, but so do you and Barbara you want to talk about me, I have no accent and Carla does not either...... OK JoAnn I must disagree with you about the accent, I just talked to you yesterday and you sound like a southern belle should. Have a nice day, Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Barbara, I'm " involved " witth a guy from Massuchesetts. I know you folks up there talk FUNNY! LOL Have a wonderful day (Spoken in the MOST PROPER southern accent, of course)! Carla, Texarkana, Texas > > > I'm sure that Tricia, Donna, and I would have no difficulty given > that we have the pure, crystal clear, melodious and proper English of > New England. > > ROFL! Youre too too funny Barbara..who exactly DID they create those > voice activated programs for? Certainly not the North and Certainly > not the south. Unless you have been taught by Professor Higgins than > forget it LOL! > > Hugs > Donna > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 LOL JoAnn they don't say carrrrrrrrrrrrrrrrrrrrrrrrr.. they say cah! They can't even pronounce the letter r ( or should I type ah instead of r)! Carla Re: hard day To: rsd-crpsofamerica Debbie, Thanks for the advice and I will see what I can do. My pain is down a little I was in hot water for a while and did some biofeed back. Sometimes it helps some time it dose'nt. Everyone with this condition has quite a struggle. I really glad that I found you all. I will tell you that after working in healthcare for 23 years I'm not a good patient. isnt that always the case. but do you think that it is normal to be mad at the dease and the person that caused it???? just a thought. I'm looking into voice activated programs do you know about them???? thanks again and I pray for you all too hugs Pam geborah Ducote wrote: Pam, I don't know about blocks for whole body but I don't know why not. The doc just has to locate the point(s) of origin. I am so sorry that you are so ill. Hang in there, even if it does seem that way now, it will get better over time. Get the doc to amend your meds not represcribe that's what mine did to help me when I supposingly had had my limit for the month. Good Luck, my friend. I will say a special prayer this morning for you. Love ya, DebDog (Debbie) patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 > I keep pushing thru the pain and making my self do stuff. Pam I think we are all guilty of pushing ourselves too far sometimes. I'm terrible about doing that. Having had the week I've had one would have thought I'd have been smart and laid low for a few days but nope, not I....I've been running my tail off the last 2 days and have managed to put myself into a slight flareup but its nothing a little extra pain med and a good nights sleep wont cure lol. my new husband brought me home a new kitten he is so good to me I am very lucky. her name is midnight she is a lot of company for me. Kittens are great company, too bad they grow up to be little demonic creatures LOL..just kidding..I have always had cats in my house, I have 2 now that are my constant companions. Take care Pam and talk to you soon! Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Pam - Since I lived in Syracuse for a mjaor portion of my life, I'm solidly behind you regarding your stance that folks from NY have no accent. Guess we just have convince JoAnn (who sees aliens so it might be a trifle difficult). Keep laughing, Pam. It's an instant cure (okay so it only LASTS for an instant, but that's something). BarbaraPamela Fredette wrote: Thank you all for making me laugh I needed that . every body knows that people from new york have no accent.....hugs to everyone PamBARBARA TORREY wrote: PFFFFFFFFFFFFFFFFFFFFFFFFFFTJoAnn & Russ Ford wrote: Okay Barbara who has this really BIG Yankee accent as sorry Ginny, but so do you and Barbara you want to talk about me, I have no accent and Carla does not either.......it is just all Yankees which we know is anyone outside state of Tx just never learned to speak correctly......come on Carla, support me on this one as this is an on going subject. Yankee thinking you can speak well when you say "car" like cccccccccccccaaaaaaaaaaaaaaar with emphasis on c and a and then finally comes the r. Takes 10 minutes to get that word out of your sweet Yankee voice my friend. Now please, lets rethink who has the accent and know when you get past the shock of the pump and kink in tube you will recant such a horrible miswording about me having somesort of accent. Right?!, Barbara, Right?!......I can't hear you Barb.....speak up woman.......Okay I heard you, and your forgiven friend. Carla she said she is sorry, did! not mean we have accents and they speak perfect was a drug induced, shock thing, got her off balance.......so all is fine now. Whew, glad that is all taken care of. hugs JoAnn Re: hard dayTo: rsd-crpsofamerica Debbie,Thanks for the advice and I will see what I can do. My pain is down alittle I was in hot water for a while and did some biofeed back.Sometimes it helps some time it dose'nt. Everyone with this conditionhas quite a struggle. I really glad that I found you all. I will tellyou that after working in healthcare for 23 years I'm not a goodpatient. isnt that always the case. but do you think that it is normalto be mad at the dease and the person that caused it???? just athought. I'm looking into voice activated programs do you know aboutthem???? thanks again and I pray for you all too hugs Pam geborah Ducote wrote:Pam, I don't know about blocks for whole body but I don't know whynot. The doc just has to locate the point(s) of origin. I am so sorrythat you are so ill. Hang in there, even if it does seem that way now,it will get better over time. Get the doc to amend your meds notreprescribe that's what mine did to help me when I supposingly had hadmy limit for the month. Good Luck, my friend. I will say a specialprayer this morning for you.Love ya,DebDog (Debbie)patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here ! in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Ok Whoa! Wait a minute.. JoAnn sees Aliens???? Maybe I'm on the wrong side of this argument after all LOL! Carla, Texarkana, TX P.S. Yall still talk funny! Re: hard day To: rsd-crpsofamerica Debbie, Thanks for the advice and I will see what I can do. My pain is down a little I was in hot water for a while and did some biofeed back. Sometimes it helps some time it dose'nt. Everyone with this condition has quite a struggle. I really glad that I found you all. I will tell you that after working in healthcare for 23 years I'm not a good patient. isnt that always the case. but do you think that it is normal to be mad at the dease and the person that caused it???? just a thought. I'm looking into voice activated programs do you know about them???? thanks again and I pray for you all too hugs Pam geborah Ducote wrote: Pam, I don't know about blocks for whole body but I don't know why not. The doc just has to locate the point(s) of origin. I am so sorry that you are so ill. Hang in there, even if it does seem that way now, it will get better over time. Get the doc to amend your meds not represcribe that's what mine did to help me when I supposingly had had my limit for the month. Good Luck, my friend. I will say a special prayer this morning for you. Love ya, DebDog (Debbie) patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here ! in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Now, Cahla, don't you staht.Survivor NOV2000 wrote: LOL JoAnn they don't say carrrrrrrrrrrrrrrrrrrrrrrrr.. they say cah! They can't even pronounce the letter r ( or should I type ah insteadof r)!Carla Re: hard dayTo: rsd-crpsofamerica Debbie,Thanks for the advice and I will see what I can do. My pain is down alittle I was in hot water for a while and did some biofeed back.Sometimes it helps some time it dose'nt. Everyone with this conditionhas quite a struggle. I really glad that I found you all. I will tellyou that after working in healthcare for 23 years I'm not a goodpatient. isnt that always the case. but do you think that it is normalto be mad at the dease and the person that caused it???? just athought. I'm looking into voice activated programs do you know aboutthem???? thanks again and I pray for you all too hugs Pam geborah Ducote wrote:Pam, I don't know about blocks for whole body but I don't know whynot. The doc just has to locate the point(s) of origin. I am so sorrythat you are so ill. Hang in there, even if it does seem that way now,it will get better over time. Get the doc to amend your meds notreprescribe that's what mine did to help me when I supposingly had hadmy limit for the month. Good Luck, my friend. I will say a specialprayer this morning for you.Love ya,DebDog (Debbie)patches13033 wrote: Hello this is Pam I'm having a hard day pain is getting very bad. I'm at the limit of meds my regular doctor will give me and having a hard time finding another pain specialist. my doctor said they dont like rsd patients with no insurance. seems like a hopeless cause up here in upstate new york. Not very many doctors will deal with it does any one now of a pain spec. in upstate new york. It hurts soooo much to type but I make my self finish this. what about blocks do they work for multiple parts of the body????? thanks Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Carla, Carla, Carla...You're just too damned new here to be getting involved with this Yankee harrassment stuff. Shame on you.Survivor NOV2000 wrote: Barbara,I'm "involved" witth a guy from Massuchesetts. I know you folks upthere talk FUNNY! LOLHave a wonderful day (Spoken in the MOST PROPER southern accent, of course)!Carla,Texarkana, Texas> > > I'm sure that Tricia, Donna, and I would have no difficulty given> that we have the pure, crystal clear, melodious and proper English of> New England.> > ROFL! Youre too too funny Barbara..who exactly DID they create those> voice activated programs for? Certainly not the North and Certainly> not the south. Unless you have been taught by Professor Higgins than> forget it LOL!> > Hugs> Donna> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2004 Report Share Posted September 25, 2004 > Three votes.....Hmm make that four. The other voice in my head agrees that JoAnn has an accent. > I'll add my vote to that of the ones in your head. Joann does so have an accent and we New Englanders are getting a bad rap LOL Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2004 Report Share Posted September 25, 2004 Hi Donna and Pam, I think it is ok to push yourselves somewhat but not to where a flare up happens. I have a new kitten too, well I have had him for a month now, he and my other cat are my constant companion, if fact one is by me right now. I think he is a little jealous because my granddaughter's been here today. Lin -- Re: hard day > I keep pushing thru the pain and making my self do stuff.PamI think we are all guilty of pushing ourselves too far sometimes. I'm terrible about doing that. Having had the week I've had one would have thought I'd have been smart and laid low for a few days but nope, not I....I've been running my tail off the last 2 days and have managed to put myself into a slight flareup but its nothing a little extra pain med and a good nights sleep wont cure lol.my new husband brought me home a new kitten he is so good to me I am very lucky. her name is midnight she is a lot of company for me.Kittens are great company, too bad they grow up to be little demonic creatures LOL..just kidding..I have always had cats in my house, I have 2 now that are my constant companions.Take care Pam and talk to you soon!HugsDonna Quote Link to comment Share on other sites More sharing options...
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