Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 Im sorry I dont have any " pros " to speak of with ritilan but I can add to your list of " cons " through my sons experience. He was 7 when the doctor prescribed it for his ADHD diagnosis. It was horrible! My son didnt eat or have any appetite on it and looked very sickly. It raced his heart and at the same time calmed him down BUT it was a spacey scary kind of calming. To me he looked " drugged " but then again he was on drugs! For us, ritilan was a cover up for other issues that needed to be addressed. Hope it helps! Lori In a message dated 8/13/2003 9:13:14 PM Eastern Daylight Time, coo_tak@... writes: > Listmates, > > Could anyone share with me your opinion about Ritalin? > > I have heard some negative comments but I'd like to hear a fuller > comparison of the pros and cons. > > I also found Andy's post about siberian ginseng as an alternative. Is > there anyone out there who's tried it? How is it? My friends are > seriously considering using it. > > I need your help. You could mail me privately if you'd prefer. > > Thanks in advance. > Kumiko > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 ---My " autistic " son's psychiatrist wanted to put him on Ritalin at age 6. (He is now 12) I refused. His pediatrician suggested a drug that was supposed to be not as harsh...Dexadrine. With encouragement from his pre-K teacher, I gave him the med. in a gummy bear. Two hours later, I got a call from his teacher...I rushed to his school, to find standing in a corner shredding paper towels into a pile on the floor...he had been doing this for 45 minutes. I tried to get him to the door to go home, but he had a complete " meltdown " and ran back to shredding the paper towels. It took 3 of us to haul him kicking and screaming to my van. His teacher had to ride with me to take him to the doc, to hold him so he would not injure himself by throwing himself around. I ended up taking him to the emergency room. He was SCREAMING at the very top of his lungs non-stop the whole time since we left the school. His teacher and I were both crying. At the emergency room the screaming continued...he was rushed into a room where he was given a shot of Valium, which took 20 minutes to calm him to a whimper. The whimper continued until it escalated back into the screaming, since this med was timed released...every 4 hours for 24 hours he escalated into the screaming...all I could do was hold him and cry...neither one of us slept. This was when I began my research into natural supplements. has not been on any meds since, he NEVER will. As someone said once... " Autism is NOT a deficiency of any kind of DRUG! " has come a LONG way on special diet ...Gf-CF,many natural supplements for his immune system, chelation, Bio-resonance, etc. Most recently The ADAM technology Lindy --------------------------------------------------------------------- In , " coo_tak " <coo_tak@y...> wrote: > Listmates, > > Could anyone share with me your opinion about Ritalin? > > I have heard some negative comments but I'd like to hear a fuller > comparison of the pros and cons. > > I also found Andy's post about siberian ginseng as an alternative. Is > there anyone out there who's tried it? How is it? My friends are > seriously considering using it. > > I need your help. You could mail me privately if you'd prefer. > > Thanks in advance. > Kumiko Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Kathy, Can you share what vitamins/supplements were helpful for attention? I am assuming that chelation actually was where you saw the bigger improvements in attention? Also, if you can say where in chelation--about what round--you began to see improvements? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 > Listmates, > > Could anyone share with me your opinion about Ritalin? I asked an AS adult to write about her experiences, here is what she wrote for me http://www.danasview.net/ritalin.htm For many kids, ADD/ADHD is a phenol intolerance issue, so you can consider that http://www.danasview.net/phenol.htm For my ADD son, I reduced phenols and chelated. He is *almost* no longer ADD, very mild attention issues now. You can also consider No-Fenol enzyme http://www.houstonni.com/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 > Listmates, > > Could anyone share with me your opinion about Ritalin? Hi Kumiko. Here is our experience: We tried Concerta (18 mg), the timed-release form of Ritalin on two of my kids (5 and 7 yo at the time). It worked very well the first day. The second day was not quite as good as the first. And it continued to decline until they needed 36 mg. to function (a large dose for a 43 lb child). But the effectiveness continued to decline, they had no appetite at all and lost weight, looked like skeletons, and couldn't sleep. They began grinding their teeth and complaining of a sensation they called " tickling teeth " . My son had horrible rebound effect (behavior worse than if he hadn't taken the med at all) as one dose wore off, before the next dose kicked in. (I read many other accounts by other moms on the internet describing the same thing). The very-highly-regarded neurologist with a 6-month waiting list said that this was impossible. We dropped her after one visit. Finally, after 6 weeks, my daughter began having hallucinations, little cartoon-like clowns, popping out of her food and out of the edges of walls. When I called the pediatrician's office to report this, the MD looked up Concerta in her book, and announced that hallucinations were impossible on this drug (was she too ignorant to look up Ritalin, instead?), so of course this adverse event was never reported to the pharmaceutical company either. We stopped the med and have never looked back. We found a series of vitamins, supplements, and diet to help them through until they're completely detoxed from mercury and other heavy metals. They appear to be almost normal now, despite the fact that they are still really poisoned. We look forward to the day when chelation is done and we no longer need to buy huge amounts of nutitional supplements. In the meantime, I thank Andy Cutler and others on this list for their insight and help. Andy, via his book, has literally saved my life. And soon, my children will finally get to enjoy the childhood they should have had all along. Kathy I. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 >>>>>>>>>>>>>My son had horrible rebound effect (behavior worse than if he hadn't taken the med at all) as one dose wore off, before the next dose kicked in. (I read many other accounts by other moms on the internet describing the same thing). The very-highly-regarded neurologist with a 6-month waiting list said that this was impossible. We dropped her after one visit.>>>>>>>>> I saw the same thing with my son on Concerta, Ritalin and Adderall. >>>>>>>>>>Finally, after 6 weeks, my daughter began having hallucinations, little cartoon-like clowns, popping out of her food and out of the edges of walls. When I called the pediatrician's office to report this, the MD looked up Concerta in her book, and announced that hallucinations were impossible on this drug (was she too ignorant to look up Ritalin, instead?), so of course this adverse event was never reported to the pharmaceutical company either.<<<<<<< My son hallucinated too! He saw water on the floor and under tables. He through a bag of chips at school, and screamed, " There are bees in the bag! " He swore up and down bees were flying out of the bag. My doctor said the opposite of what your doctor did. She told me that Concerta was known to sometimes cause hallucinations. Our journey down the road of meds has been nothing but awful. I will never do it again. I wrote a few weeks back about my son's experience with Strattera. I'm happy to report that he has been off of it for over 3 weeks, and doing so much better! I added B6, Magnesium, Calcium and Zinc into his diet and I am definitely seeing what I saw a year ago - a happy, compliant and obedient little boy! The counselors at camp say he has had stellar days all week! a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 For my son it has been B6, Magnesium, Calcium and Zinc. I added them one at a time into his diet, and he's doing great on them. a --- Momlaw@... wrote: Kathy, Can you share what vitamins/supplements were helpful for attention? I am assuming that chelation actually was where you saw the bigger improvements in attention? Also, if you can say where in chelation--about what round--you began to see improvements? Thanks, [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2003 Report Share Posted September 7, 2003 Kumiko, My son almost seven and still nonverbal who has been chelating for almost 3 years has been on adderall for almost a month now and has improved beyond belief. He has gone from doing 200 pc puzzles to 300 pc puzzles, his receptive langauge seems to have increased dramatically. Jack can now participate in: give me chair, icecream,table ect with picure cards. Friday, Jack made his teacher cry when he signed the whole alphabet saying each letter. We also went away for a few days and Jack spontaneously requested potty, eat, drink, open ect several times. This has been the best I have seen him since he regressed. Jack's stools seem to be improved as well. I believe you have to try everything. I have done so may alternative treatments that the behaviorist said, " this is the longest list of alternative treatments that I have heard. " Adderall is suppose to be in and out of the system in a few hours. It did not start out great. In the beginning he was a bit weepy, may be for the first week, but I would be too if I was coming down from the high that my child is on. Jack is very hyper, bouncing off the wall hyper. Strattera was a huge mess for Jack and I was nervous about trying something else. My husband did not like Jack on the medicine at all and I said, " well let's test him and see if it helps him with langauge " I set out picture cards. Prior to adderall he could not participate with this type of lesson and to our surprise he got at leats 25 correct " give mes " compared w/ 2 correct responses previously. My husband then said, " well maybe it does work and we should move on. " Each week seems to be getting better. I can only hope it continues. These kids are all so different and my son obviously need meds to help w/ nuerotransmission in addition to diet, chelation, yeast treatment, antiviral treatment, cytokine suppression, multiple vitamins, magnesium(natural calm), culturelle, GSE, flax oil codliver oil, supra-nuthera, taurine, glycine, vitamine a, monolaurin, enzymes and verbal behavior. nne --- In , " coo_tak " <coo_tak@y...> wrote: > Listmates, > > Could anyone share with me your opinion about Ritalin? > > I have heard some negative comments but I'd like to hear a fuller > comparison of the pros and cons. > > I also found Andy's post about siberian ginseng as an alternative. Is > there anyone out there who's tried it? How is it? My friends are > seriously considering using it. > > I need your help. You could mail me privately if you'd prefer. > > Thanks in advance. > Kumiko Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2003 Report Share Posted September 7, 2003 Kumiko, My son almost seven and still nonverbal who has been chelating for almost 3 years has been on adderall for almost a month now and has improved beyond belief. He has gone from doing 200 pc puzzles to 300 pc puzzles, his receptive langauge seems to have increased dramatically. Jack can now participate in: give me chair, icecream,table ect with picure cards. Friday, Jack made his teacher cry when he signed the whole alphabet saying each letter. We also went away for a few days and Jack spontaneously requested potty, eat, drink, open ect several times. This has been the best I have seen him since he regressed. Jack's stools seem to be improved as well. I believe you have to try everything. I have done so may alternative treatments that the behaviorist said, " this is the longest list of alternative treatments that I have heard. " Adderall is suppose to be in and out of the system in a few hours. It did not start out great. In the beginning he was a bit weepy, may be for the first week, but I would be too if I was coming down from the high that my child is on. Jack is very hyper, bouncing off the wall hyper. Strattera was a huge mess for Jack and I was nervous about trying something else. My husband did not like Jack on the medicine at all and I said, " well let's test him and see if it helps him with langauge " I set out picture cards. Prior to adderall he could not participate with this type of lesson and to our surprise he got at leats 25 correct " give mes " compared w/ 2 correct responses previously. My husband then said, " well maybe it does work and we should move on. " Each week seems to be getting better. I can only hope it continues. These kids are all so different and my son obviously need meds to help w/ nuerotransmission in addition to diet, chelation, yeast treatment, antiviral treatment, cytokine suppression, multiple vitamins, magnesium(natural calm), culturelle, GSE, flax oil codliver oil, supra-nuthera, taurine, glycine, vitamine a, monolaurin, enzymes and verbal behavior. nne --- In , " coo_tak " <coo_tak@y...> wrote: > Listmates, > > Could anyone share with me your opinion about Ritalin? > > I have heard some negative comments but I'd like to hear a fuller > comparison of the pros and cons. > > I also found Andy's post about siberian ginseng as an alternative. Is > there anyone out there who's tried it? How is it? My friends are > seriously considering using it. > > I need your help. You could mail me privately if you'd prefer. > > Thanks in advance. > Kumiko Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2003 Report Share Posted September 7, 2003 nne, Good to know you are seeing good results with Addrerral. How much are you giving? I know Jack and my son Rakesh are of same age. Rakesh weighs about 48lbs. Thanks, Geeta > > Listmates, > > > > Could anyone share with me your opinion about Ritalin? > > > > I have heard some negative comments but I'd like to hear a fuller > > comparison of the pros and cons. > > > > I also found Andy's post about siberian ginseng as an alternative. > Is > > there anyone out there who's tried it? How is it? My friends are > > seriously considering using it. > > > > I need your help. You could mail me privately if you'd prefer. > > > > Thanks in advance. > > Kumiko Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2003 Report Share Posted September 7, 2003 Geeta, Adderall XR 10mg. I believe it is a pretty low dose. I am amazed at the difference in the stools. They seem perfect now and he cheats on the diet often. Jack is 49lbs. nne > > > Listmates, > > > > > > Could anyone share with me your opinion about Ritalin? > > > > > > I have heard some negative comments but I'd like to hear a fuller > > > comparison of the pros and cons. > > > > > > I also found Andy's post about siberian ginseng as an > alternative. > > Is > > > there anyone out there who's tried it? How is it? My friends are > > > seriously considering using it. > > > > > > I need your help. You could mail me privately if you'd prefer. > > > > > > Thanks in advance. > > > Kumiko Quote Link to comment Share on other sites More sharing options...
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