Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Debbi, Cellcept comes in hard elongated tablets which are odorless. Neoral (cyclosporin) capsules come in blister packs which release a faintly skunky odor when they are opened. Their large size, odor and blister packs make them much less convient to take than Prograf (tacrolimus) their primary alternative in immunosuppression therapy. Tim R, ltx 1998, relisted Feb 2005, MELD 20 Initially on Neoral & Cellcept, now on 3mg Prograf bid & 1000mg Cellcept bid. > How many miligrams are s Prograf, I have 1 mg and 5 mg capsuls > and am currently taking 1 5mg cap. 2x a day. I started out at 3 > mg,went to 4,then to 5 then to 6, now I'm holding steady at the 5 > mg mark. I was transplanted this past July and as of this past > Tues. started back to work. It's only 3hr. two days a week but it's > a start. > Is Celcept the one thay smells bad or I'm I thinking of another anti- > rejection drug? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Thanks Tim for the explanation between the two. I always get them mixed up. Debbi -- In , " Tim Romlein " <tromlein@y...> wrote: > > Debbi, > Cellcept comes in hard elongated tablets which are odorless. Neoral > (cyclosporin) capsules come in blister packs which release a faintly > skunky odor when they are opened. Their large size, odor and blister > packs make them much less convient to take than Prograf (tacrolimus) > their primary alternative in immunosuppression therapy. > > Tim R, ltx 1998, relisted Feb 2005, MELD 20 > Initially on Neoral & Cellcept, now on 3mg Prograf bid & 1000mg > Cellcept bid. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Tim/Debbie, That's weird. I guess it is where you get your drugs what they look like. I was never on Neoral, but I was on Cellcept. My Cellcept were big capsules in a regular jar and I don't recall an odor or a taste to them. Immediately after tx, I was on Cellcept, Prograf and Prednisone. I'm now on 2 mg Prograf in the morning and 1 mg at night. I also take 5 mg of Prednisone once per day. They discontinued the Cellcept this summer when I was having all the infections in my bile ducts and everywhere else. HTH, Deb in VA PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005, Partial Portal Vein Thrombosis 7/20/2005, 5 PTCs with drain Placements/ replacements since 9/2005, fevers all week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 My wife Lori received her transplant in February '04. Initially, she was on Cellcept and Prograf. The Cellcept was replaced by Rapamune after the first month or so, then the Rapamune was discontinued after a few weeks. Lori currently takes 3mg of Prograf daily and 2 1/2 mg of Prednisone. We still get promotional mailings from Cellcept, they have pretty good freebies if you get on their mailing list.:-) Naperville, IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Dear Deb, I'm so sorry to hear that you are having fevers this week. I want you to know that I always read your tag line for the latest update and I will send good vibes your way that you feel better today. Lee > > HTH, > Deb in VA > PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005, Partial Portal > Vein Thrombosis 7/20/2005, 5 PTCs with drain Placements/ replacements > since 9/2005, fevers all week. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Deb, dag gone it, between you and my husband...it's one step forward, THREE back...but please hang in there...we have you all with us and we'll get through this together!! Bobby & Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Lee, Thanks for the encouragement. My fever last night had me worried. After 500 mg of Tylenol, it continued to rise for an hour - all the way up to 101.7. I was patient, though, and when I saw it coming back down, I decided it wasn't worth a trip to the ER. I'm having my CT scan of my sinuses tomorrow. They think that's the source of my fevers and depending on the results, I may be having sinus surgery to fix it...Wish me luck. How's ? Take care, Deb in VA PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005, Partial Portal Vein Thrombosis 7/20/2005, 5 PTCs with drain Placements/ replacements since 9/2005, fevers all week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Dear Deb, Good luck with the sinus infection and xray. Maybe they can get to the bottom of all this for you. How are the drains doing? Take care, Ali Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Glad to hear they are checking your sinuses. Unfortunately we have had our share of sinus infections in this house but with my younger son! I hope they clear this up for you soon. Bill is doing well, we dropped his cirpo to 250mg on Saturday and we are waiting to see how it goes. He finished shooting his movie this past weekend and they had the wrap party on Friday night. We are not sure what is next but he is looking! Lee > > and depending on the results, I may be having sinus surgery to fix > it...Wish me luck. > > How's ? > Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Deb in Va. Do you know what you are allergic to as in doing the allergy testing? I found that I am not allergic to much of anything except dust mites. Environmental solutions , a decongestant, powerful antibiotic for 30 days and script antihistamines did the trick after months of what you describe occurred. I got this type of workup only by going to an allergist. I had seen GP's, ENTs had scans, potions etc. As the allergist put it, your sinus must first flow because if the drain is plugged, the pool will eventually become infected and inflamed. I thought for sure I was headed to surgery, but what I needed was someone who knew not just what to do but in what order to do it in. Best jd, 45 UC 1973, Jpouch 2000, Chronic Pouchitis 2001, PSC 2004, Stage 3 Southern, IL krmpotich@... Quote Link to comment Share on other sites More sharing options...
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