Re: Been a long time- I'm coming back out, Some of you may remember me

[Guest guest]

To Lil in Va.-You don't know me because I'm relatively new to the group. I read your letter to Nette and couldn't help but have so many mixed emotions for you. As a group we hear each others' horror stories and wonder if somehow there can be a 'light at the end of the tunnel'. (Sorry for the cliche) All in all I think we are all special people. We have a terrible disease and yet we have all survived this far. We're in pain 24 hours a day, yet we are taking care of children, husbands,handling jobs and stresses outside of the RSD. Doing all of that makes us special. Special because we ARE STRONG. It's going to be that strength (AND FAITH) that will get you through these hurdles you have described in your letter. You continue to stay positive. I will keep you in my prayers......Sincerely,buggs22561@... wrote:

Dear Nette,

I know this is probably a shocker since i haven't been Active in a long while, I haven't forgot about the monster with in, i've been doing alot of awareness in the Field. I've been sitting back reading group members fight with the Fire Monster inside and thought maybe I could Help#1 and make everyone Aware of this PAIN that takes us down.To you that don't know of me , my name is Lillian Wilde, I used to reside in Penna., now I live in Virginia. I'm 43 yrs. old married for 3 yrs . now ( 3rd marriage) We have 6 kids between us and 3 young Grandsons. Jacks kids are 25 & 12 a boy & a girl his Daughter is married and has a 4 yr. old son, I have 3 girls 27, 25 & 20 and a son 15, My 2 older girls have sons one is 5 and the other 2.I can Honestly say they have all been Supportive , it's a little hard for the to understand everything, thats why they all met my doctors, asked questions had things explained to them.I was injured at work on 6-7-94 I

destroyed my left arm on a 3lb. box.I was treated wrong from the start , unnessicary surgeries, amoung alot of other Horrid things.All I wanted was to go back to work to and support my kids , I was going thru a bitter Divorce.That 7 weeks and I'd be back to work never came. I've been thru alot and have learned alot thru the years. I attempted suicide twice in which a good friend with RSD helped me thru that, his name is Joe McCue some of you may know him and some don't like his ways, but he saved my life, he's helped my family time and again.I worked real close with him , my Husband Jack is very RSD Aware and Keeps writing those letters amoung other things to let the world know its no pleasure watching a loved one suffer and theres nothing they can do but be there, jack is my Rock, He keeps me strong and him and the kids keep me living! I have had a full body spread within the 1st 3 yrs., now even my internal organs are involved.I learned about a month ago it can go to the brain and

I'm showing all symptoms.I'm not 1 to let this get me down, i in NO way baby myself, I took the Out look yrs. ago this is my life I have to live it, fighting it causes more Pain, Things are starting to get Cruciel , I'm losing the use of both arms, the left has always been Hell, but now the right is rebelling, its carried the load long enough. I can say I am Thankful for the 11 good yrs I had ( meaning I could get up and keep going) Now that things are changing Very fast its hard to hold silverware to eat, My legs go dead and i have the burn Bad!!!I have alot to say and I'll Post again, I'd Like to leave everyone with one thought, be grateful for those Good days, and Don't fight those hard ones your body is in control. I'm a Big Tim McGraw Fan Our wedding song is " My Next 30 Years) now he has a song out that he wrote when his Dad Tug McGraw died, it makes so much sense and I think it was excellent advice his Father gave him before he passed of Brain Cancer, I find myself living by

the song " Live Like you were dying" It put a whole different outlook on my life, I tell more people I Love them, I tell my husband constantly, also our kids and I'm so Proud of the fact no matter where my family is or whos around they will tell me they love me, How many 12 & 15 yr. old boys do you know that will do that.We have a whole lot of questions to be answered In the RSD world, One thing you can't stop doing is living!!! I send my Love and Respect out to all of you and Your Families, If you ever have a question or need to chat or need anything I'm there for you all!!!!!

Gentle Hugs!!!!

LiL in Va

[Guest guest]

Welcome back into the fold, Lil. Barbarabuggs22561@... wrote:

Dear Nette,

I know this is probably a shocker since i haven't been Active in a long while, I haven't forgot about the monster with in, i've been doing alot of awareness in the Field. I've been sitting back reading group members fight with the Fire Monster inside and thought maybe I could Help#1 and make everyone Aware of this PAIN that takes us down.To you that don't know of me , my name is Lillian Wilde, I used to reside in Penna., now I live in Virginia. I'm 43 yrs. old married for 3 yrs . now ( 3rd marriage) We have 6 kids between us and 3 young Grandsons. Jacks kids are 25 & 12 a boy & a girl his Daughter is married and has a 4 yr. old son, I have 3 girls 27, 25 & 20 and a son 15, My 2 older girls have sons one is 5 and the other 2.I can Honestly say they have all been Supportive , it's a little hard for the to understand everything, thats why they all met my doctors, asked questions had things explained to them.I was injured at work on 6-7-94 I

destroyed my left arm on a 3lb. box.I was treated wrong from the start , unnessicary surgeries, amoung alot of other Horrid things.All I wanted was to go back to work to and support my kids , I was going thru a bitter Divorce.That 7 weeks and I'd be back to work never came. I've been thru alot and have learned alot thru the years. I attempted suicide twice in which a good friend with RSD helped me thru that, his name is Joe McCue some of you may know him and some don't like his ways, but he saved my life, he's helped my family time and again.I worked real close with him , my Husband Jack is very RSD Aware and Keeps writing those letters amoung other things to let the world know its no pleasure watching a loved one suffer and theres nothing they can do but be there, jack is my Rock, He keeps me strong and him and the kids keep me living! I have had a full body spread within the 1st 3 yrs., now even my internal organs are involved.I learned about a month ago it can go to the brain and

I'm showing all symptoms.I'm not 1 to let this get me down, i in NO way baby myself, I took the Out look yrs. ago this is my life I have to live it, fighting it causes more Pain, Things are starting to get Cruciel , I'm losing the use of both arms, the left has always been Hell, but now the right is rebelling, its carried the load long enough. I can say I am Thankful for the 11 good yrs I had ( meaning I could get up and keep going) Now that things are changing Very fast its hard to hold silverware to eat, My legs go dead and i have the burn Bad!!!I have alot to say and I'll Post again, I'd Like to leave everyone with one thought, be grateful for those Good days, and Don't fight those hard ones your body is in control. I'm a Big Tim McGraw Fan Our wedding song is " My Next 30 Years) now he has a song out that he wrote when his Dad Tug McGraw died, it makes so much sense and I think it was excellent advice his Father gave him before he passed of Brain Cancer, I find myself living by

the song " Live Like you were dying" It put a whole different outlook on my life, I tell more people I Love them, I tell my husband constantly, also our kids and I'm so Proud of the fact no matter where my family is or whos around they will tell me they love me, How many 12 & 15 yr. old boys do you know that will do that.We have a whole lot of questions to be answered In the RSD world, One thing you can't stop doing is living!!! I send my Love and Respect out to all of you and Your Families, If you ever have a question or need to chat or need anything I'm there for you all!!!!!

Gentle Hugs!!!!

LiL in Va

[Guest guest]

Hi Lil,

Welcome back to the Group!

I love that song also......my husband just doesn't get it though. Within 4 years, the RSD has gone full body, whole back and internally in my abdomen.....so, I also know what it's like to have it spread quickly....and am hoping that it will stop right where it's at before it spreads on into the rest of my organs.

Especially since I have 3 kids...2 girls ages 9 and 4, and a 18 month old son.

My kids really need their mother....a mother with arms and legs that moves easily, not a mother that screams in pain every time one of them comes for a hug.

Only my oldest remembers me the way I was.....being able to ride bikes, roller skate with her, swimming, fishing.....anything she wanted to do, we'd go and do it. now, I hate having to tell her that I can't do it.......

Well.....the baby is awake....better go get him out of bed.

Welcome back again!

Tonia

-------Original Message-------

buggs22561@... wrote:

I'm a Big Tim McGraw Fan Our wedding song is " My Next 30 Years) now he has a song out that he wrote when his Dad Tug McGraw died, it makes so much sense and I think it was excellent advice his Father gave him before he passed of Brain Cancer, I find myself l! iving by the song " Live Like you were dying" It put a whole different outlook on my life, I tell more people I Love them, I tell my husband constantly, also our kids and I'm so Proud of the fact no matter where my family is or whos around they will tell me they love me, How many 12 & 15 yr. old boys do you know that will do that.We have a whole lot of questions to be answered In the RSD world, One thing you can't stop doing is living!!! I send my Love and Respect out to all of you and Your Families, If you ever have a question or need to chat or need anything I'm there for you all!!!!!

Gentle Hugs!!!!

LiL in Va

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