Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 Cecilia, I don't really know what to say, other than don't worry about offending us...none of us wanted to be here...and we all want our kids to be " okay " ...autistic or not. We may define " okay " differently, depending on our perspectives, but we all want our child to fit in, to succeed, to be happy. It just hits you right in the gut from time to time, even when you think you are coping....even when you think you have no right to feel that way...even when you see others struggling more. It's a cycle of grief that just runs through our lives, and we have to just go there once in a while; I honestly think that if we don't feel like this here and there, we aren't really dealing in reality. Autism (or anything resembling it) is hard. Communication disorders are hard. Watching your child working so hard to do what comes naturally to so many kids is hard. Take care, Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 >>She is very warm and loveable. She has a beautiful smile. I am even sadder because I feel I don't have the right to be sad, but I can't help it. You have every right to be sad, Cecilia! You're not sad because is who she is, you're sad over your own lost dreams -- and that is OKAY. We've all felt it. It doesn't mean we don't love our kids more than anything on earth. Don't feel guilty saying to the list that you hope she's not autistic. WE hope she's not, too! When will you finally have an answer? Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 We went to USA and she was evaluated by a chilean psychiatrist, OT and SP this is floortime teem. You know she told us she has communication disorder and regulatory disorder (it has to do with problems with sensory integration), but she doesn't think she qualifies for autism. She explain that some underlying issues sometime present lake autistic traits and she thinks this is the case. Cecilia, from Peru (mom to Dessiree 3y 5m, no dx yet some autistic traits) Lovely husband -----Mensaje original----- De: The Hunny Family Enviado el: Lunes, 16 de Diciembre de 2002 02:56 p.m. Para: parenting_autism Asunto: Re: I am sad >>She is very warm and loveable. She has a beautiful smile. I am even sadder because I feel I don't have the right to be sad, but I can't help it. You have every right to be sad, Cecilia! You're not sad because is who she is, you're sad over your own lost dreams -- and that is OKAY. We've all felt it. It doesn't mean we don't love our kids more than anything on earth. Don't feel guilty saying to the list that you hope she's not autistic. WE hope she's not, too! When will you finally have an answer? Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 Thanks a lot Reane. I really am happy I found this group. Cecilia, from Peru (mom to Dessiree 3y 5m, no dx yet some autistic traits) Lovely husband -----Mensaje original----- De: rgr4us Enviado el: Lunes, 16 de Diciembre de 2002 01:00 p.m. Para: parenting_autism Asunto: Re: I am sad Cecilia, I don't really know what to say, other than don't worry about offending us...none of us wanted to be here...and we all want our kids to be " okay " ...autistic or not. We may define " okay " differently, depending on our perspectives, but we all want our child to fit in, to succeed, to be happy. It just hits you right in the gut from time to time, even when you think you are coping....even when you think you have no right to feel that way...even when you see others struggling more. It's a cycle of grief that just runs through our lives, and we have to just go there once in a while; I honestly think that if we don't feel like this here and there, we aren't really dealing in reality. Autism (or anything resembling it) is hard. Communication disorders are hard. Watching your child working so hard to do what comes naturally to so many kids is hard. Take care, Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 Hi Cecilia, No one wanted to be a parent of autism. I'm sure none of us were offended. It was so hard for me when we first suspected something was up with . He was my beautiful boy and I just couldn't stand thinking that anything was wrong. There are days when I'm completely happy and days when I just don't want to do it anymore. But I carry on and I work through my grief and sadness because, in the end, my kids are worth it. I don't know if my rambling has helped any, I just wanted you to know you weren't alone. Take care Tuna **** ===== I like living. I have sometimes been wildly, despairingly, acutely miserable, racked with sorrow, but through it all I still know quite certainly that just to be alive is a grand thing. - Agatha Christie ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 I know i am not alone that is why I feel that I can came to you when I feel this way eventhough I just lurk. Cecilia, from Peru (mom to Dessiree 3y 5m, no dx yet some autistic traits) Lovely husband -----Mensaje original----- De: Moretuna Enviado el: Lunes, 16 de Diciembre de 2002 04:54 p.m. Para: parenting_autism Asunto: Re: Re: I am sad Hi Cecilia, No one wanted to be a parent of autism. I'm sure none of us were offended. It was so hard for me when we first suspected something was up with . He was my beautiful boy and I just couldn't stand thinking that anything was wrong. There are days when I'm completely happy and days when I just don't want to do it anymore. But I carry on and I work through my grief and sadness because, in the end, my kids are worth it. I don't know if my rambling has helped any, I just wanted you to know you weren't alone. Take care Tuna **** ===== I like living. I have sometimes been wildly, despairingly, acutely miserable, racked with sorrow, but through it all I still know quite certainly that just to be alive is a grand thing. - Agatha Christie ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 ~hugs~ I dont think anyone ever wants this for their child. I think you do have the right to feel sad. I think we all do. Feel it and move forward. If you don't let yourself feel you will only become numb for awhile. Jacquie H I am sad I don't want to think that is something wrong with my baby. Nobody has even told me that she has autism, but I am scared about that. I want to get rid of this thought, but I can't do it. I don't want to be part of this great group. No offense, please. OK. What worries me? She is verbal. I know I should be happy for that she has some echolalic but she communicates herself with intention and here it goes she's 3 and still have trouble with pronouns. It could be just a severe language issue I pray god for that. She can answer questions and in a way you can talk to her. She doesn't say good bye Dessirée, she says good bye mama or whoever. She has a lot of symbolic play she's always had. She has came so far, but still I fell scared. She is very warm and loveable. She has a beautiful smile. I am even sadder because I feel I don't have the right to be sad, but I can't help it. I just needed to let this out. Cecilia, from Peru (mom to Dessiree 3y 5m, no dx yet some autistic traits) Lovely husband Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 Cecilia, It's ok to feel sad especially when you don't have any answers. And it's ok not to want to be 'one of us'. I don't think anyone 'wants' their child to have autism. The important thing is, we are here for you when ever you need to let something out, or talk about your concerns or your fears for her. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2002 Report Share Posted December 20, 2002 Me too. I hope you're feeling better. Cecilia, from Peru (mom to Dessiree 3y 5m) Lovely husband -----Mensaje original----- De: The Hunny Family Enviado el: Viernes, 20 de Diciembre de 2002 09:45 p.m. Para: parenting_autism Asunto: Re: I am sad > We went to USA and she was evaluated by a chilean psychiatrist, OT and > SP this is floortime teem. You know she told us she has communication > disorder and regulatory disorder (it has to do with problems with > sensory integration), but she doesn't think she qualifies for autism. > She explain that some underlying issues sometime present lake autistic > traits and she thinks this is the case. In all the reading I've done, it seems that kids with sensory integration problems often present exactly as autistic until the sensory issues can be managed or resolved, and then those same kids can present as awfully 'normal'. I hope such is the case for you! Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2002 Report Share Posted December 20, 2002 > We went to USA and she was evaluated by a chilean psychiatrist, OT and > SP this is floortime teem. You know she told us she has communication > disorder and regulatory disorder (it has to do with problems with > sensory integration), but she doesn't think she qualifies for autism. > She explain that some underlying issues sometime present lake autistic > traits and she thinks this is the case. In all the reading I've done, it seems that kids with sensory integration problems often present exactly as autistic until the sensory issues can be managed or resolved, and then those same kids can present as awfully 'normal'. I hope such is the case for you! Jacquie Quote Link to comment Share on other sites More sharing options...
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