Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Dear ,It is never too late for a miracle and I am still praying for one.Personally this just strengthens my resolve to work harder for the foundation. I know that I have to give it my all so that we can find a better treatment for PSC than a liver transplant. I am so glad that you are there and that you are being well taken care of.God bless you for your caring and generous spirit.Peace to and her family.Lee Thank you, Joanne, Omaha Tim, Lee, , Kate for the kindness you've shown during this heartbreaking time for , her family and I! All of you have a special place in our lives. I will pass on all of your thoughts and prayers while I am here. Deb in VA, a very special thanks to you for allowing me to cry and rant when I learned of M2's condition, but more for understanding the emotions and thoughts that go along with it! I adore you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Sweet Jesus will make a way where there is no way. This is my prayer. Best jd, 45 UC 1973, Jpouch 2000, Chronic Pouchitis 2001, PSC 2004, Stage 3 Southern, IL krmpotich@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 I'm with , I was very sad to hear this news and I have been praying all day. After it sunk in then I got mad - mad and this #@*! disease and what it is doing to us. Even though I am in knee rehab - I had to go for a fast bike ride to work out my aggression against this PSC!! One thing I don't understand or if anyone does - are these complications CCA related or just PSC progression? -- (no subject) Mike Z, 34, PSC 99, Severna Park, MD wrote: Dear All, I have not said anything on the M2 situation until now. It really has me very upset. I am angry that they allow people needing transplants to get this close to the end before transplanting. It really worries me. You almost have to plan for a living donor is what I am taking away from this. I know that is not possible for everyone, so where does that leave us? I am very sad, mad, and ready to find the cure. Generally speaking, I am put to the best use when I am mad like this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 When one of our PSC family is in distress it is felt all around the world. I am sure we are linked from time immemorial by our genetic disposition My thoughts are with 2 her family and companions. From at the bottom of the world in New Zealand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 CrazrNever04@... wrote: > She has told and that she has seen heaven already and they are > all as prepared as they can be for her final resting place. As the song > goes, " Our God is an awesome God! " That kind of peace and acceptance is > hard, if not impossible, to find otherwise! AMEN!!! I've told so many people that having that incredible sense of peace is as mighty a miracle as any I've ever known or heard of, because it's not a one-time thing; it is constantly being renewed ... every day .... every hour ... every minute! It's one of those things you can't really explain to someone else (kind of like falling in love). But anyone who has ever felt it KNOWS exactly what you're talking about. Yes indeed .... our God IS an awesome God. Hugs to both s and their families, Carolyn B. in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 1, I am just now reading all the news on M2. I am glad that you were able to go and see her. It is good to have such a friend. I am sorry to hear all that is happening and very distressing. I wish you, Jay and M2, her family and friends God's blessings and peace at this difficult time Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Mike, My understanding from M1 is that these complications are from what they have tried to do to for M2 following opening her up for liver tx and then finding the cancer. She has an infection that has spread to her blood stream and her organs are shutting down. I share the feelings of everyone here - I'm angry and so upset by the news that we're about to lose another of our PSC warriors. I pray that we'll be able to find a way to knock off this disease - SOON! Hang in there everybody! Deb in VA PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005, Partial Portal Vein Thrombosis 7/19/2005, 5 PTCs with drain placements/ replacements since 9/2005. > > One thing I don't understand or if anyone does - are these complications > CCA related or just PSC progression? > > -- > Mike Z, 34, PSC 99, Severna Park, MD > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 that having that incredible sense of peace is as mighty a miracle as any I've ever known or heard of Carolyn B. in SC Carolyn,You are absolutely correct - it is priceless...and has attained it, as has her family and anyone watching her pass with such dignity...believing in God's almighty love more than ever! Thank you for your prayers and your obvious understanding! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 When one of our PSC family is in distress it is felt all around the world. I am sure we are linked from time immemorial by our genetic disposition My thoughts are with 2 her family and companions. From at the bottom of the world in New Zealand. ,I printed your email out to share with the family, this was done for two reasons. One, they were asking if there are people on the group from other countries, and two, I want them to know that what you said is true...when one of our PSC family is in distress, it is felt all around the world! Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Dear , Your update on 2 brings up such a wealth of emotions: sadness, anger, and dismay about 2 together with awe for the love that you exhibit for her. I can certainly understand why her family has embraced you immediately. May everyone involved in this dreadful chapter find peace. Ricky M2 update Thank you, Joanne, Omaha Tim, Lee, , Kate for the kindness you've shown during this heartbreaking time for , her family and I! All of you have a special place in our lives. I will pass on all of your thoughts and prayers while I am here. Deb in VA, a very special thanks to you for allowing me to cry and rant when I learned of M2's condition, but more for understanding the emotions and thoughts that go along with it! I adore you! Now, to M2...she was the best she's been, since I've been here, when I arrived last night. We got in around 9:00 p.m. and she was very aware of my presence and talked as much as she could, until she needed to rest. (She even thanked me for coming. I assured her thanks was not necessary, I wouldn't have had it any other way!) There were so many people in her room at the time we arrived - 15-20 is my guess. , her husband, greeted me at the door with a huge hug and then the room began to murmur, "Is that her? Is she here?" and a path to her bed was opened. Apparently, and had told M2 I was coming and she asked, "ST. Louis?," and then told them she needed details. was laughing when she told me the story. I didn't have any doubt that coming to Dallas was the thing to do, but it helped to know it made her so happy. Her family has adopted Jay and I, and 's mother is mothering me now, too -- they are amazing people! In fact, M2's brother and sister-in-law paid for a hotel room for us inside the hospital, so I could spend as much time with M2 as possible, AND be here should M2 get worse, or if my health worsened. I understand more and more every minute how turned out to be such a wonderful, loving individual! I arrived in 's room around 9:00 a.m. this morning and she is noteably weaker. Some friends brought in some old pictures and she was able to enjoy them and even managed to say a few words -- which she had not been able to do today. Her goal, I am told, is to hang on long enough to see her step-daughter Chrissy (who she helped raise). Chrissy will be arriving at DFW at 5:00 a.m. tomorrow. I know that if CAN she certainly will hang on! Again, she is amazing! She has told and that she has seen heaven already and they are all as prepared as they can be for her final resting place. As the song goes, "Our God is an awesome God!" That kind of peace and acceptance is hard, if not impossible, to find otherwise! Thank you all again for your kindness and prayers! Much love and blessings to all of you!!!! 1 (but only in age!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 My heart is heavy, and like everyone else, I think we want to forget that this outcome is a possibility of the serious disease that we, or our loved ones, face every day. My prayers are with 's family there and her family here on this site. , wife of PSC Tennessee Quote Link to comment Share on other sites More sharing options...
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