introduction

[Guest guest]

Yeah, that's what I thought to, but it comes in diarrhea form with lots of

mucus - that was the part that worried me.

Thanks for the links! I have some research to do

Alese

_____

From: Sheila Trenholm

Sent: Thursday, September 02, 2004 11:28 AM

To: pecanbread

Subject: Re: Introduction

Welcome to the list Alese,

> I hope to get a lot of good info

> off this list

Some great places to start reading are

http://www.breakingtheviciouscycle.info/

http://www.pecanbread.com/

http://www.pecanbread.com/foodprep.html#homemade

http://www.pecanbread.com/foodprep.html#transition

http://www.pecanbread.com/foodprep.html#intro

> because in some of the testimonies, I feel like I'm reading

> about my own kids. My heart dropped when I read of kids that had

food going

> through their systems and coming out looking like it had not been

digested

> at all.

This is not usually a cause for alarm. Most children and (some

adults) don't chew their food well enough.

Sheila 42 mos SCD, 20 yrs UC

mom of SCD 27 mos

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Thanks! I will definitely check into that.

Alese

_____

From: Marjan Hammink

Sent: Thursday, September 02, 2004 10:00 AM

To: pecanbread

Subject: Re: Introduction

" I'm also very hesitant about adding casein back into their diets "

Please check out www.pecanbread.com and find out that most parents

start out dairy free. The FAQ's will be most helpful. The recipe

section is a jewel box filled with tried and tested little scd-gems.

As healing takes place, you'll see that more and more food is

tolerated, including dairy (well fermented though).

Marjan

Netherlands

Mom to Nick, asd, 7, SCD since jan 18 2003

, 9

Finn, 4

http://specificfoodsforspecificminds.blogspot.com/

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Hi Alese,

> looking at the legal/illegal list, this diet seems a little daunting (and I

> thought the GFCF diet was tough to get used to ).

Yes, the diet is tough to follow *at first* to varying degrees, depending

on how much cooking you were used to doing before. And virtually all of

us make mistakes in the beginning; I certainly did. In fact, after almost

a decade on the diet I used a commercial product I thought was legal (some

coconut cream) but which had trace amounts of guar gum in it. But once

you've been on it for a while, it becomes second nature, and really a

piece of cake (almond flour cake, naturally - baaaaad pun intended).

> I'm also very hesitant about adding casein back into their diets, but

> think it would be ok as infractions involving casein have gone almost

> unnoticed in our kids, but gluten infractions have been disastrous.

If I were you, I'd skip the legal dairy at first, except perhaps for ghee

(rather than regular butter with its trace amounts of protein and

lactose). Once progress has been made, you can cautiously try goat milk

yogurt - very very small aounts at first.

We're all so glad you found the diet!

Love and BouKisses,

Deborah and Max, SCD Poster Dog

[Guest guest]

I was at the same place with casein as you, i.e., no reaction to

infractions on GFCF diet. We have slowly allowed SCD legal cheeses

in for almost 2 months and have seen no problems. We have also

started goat yougurt (2-3 wks now) very slowly. He's up to about

3T/day now with no neg. reaction. Each child is different so you

have to decide, just thought I'd let you know that abandoning CF can

be done depending on the child.

Greta, Bram 4.5yo,ASD, SCD 3+ wks

> Hi! I'm Alese. I have two boys: Liam, 4 in October, with PDD-NOS,

CAPD,

> and SID and Aidan, 16 months, with pancreatic enzyme deficiency,

reflux and

> multiple food intolerances. We are currently on the GFCF diet, but

I read

> something about the SCD diet and decided to check it out. I have

order

> Elaine Gotschall's book and can't wait to read it. I must say

though, after

> looking at the legal/illegal list, this diet seems a little

daunting (and I

> thought the GFCF diet was tough to get used to ). I'm also very

hesitant

> about adding casein back into their diets, but think it would be ok

as

> infractions involving casein have gone almost unnoticed in our

kids, but

> gluten infractions have been disastrous. I hope to get a lot of

good info

> off this list because in some of the testimonies, I feel like I'm

reading

> about my own kids. My heart dropped when I read of kids that had

food going

> through their systems and coming out looking like it had not been

digested

> at all. My youngest son's body does that ALL the time - I thought

it was

> just more food intolerances.

>

>

>

> Thanks!

>

>

>

> Alese

>

>

>

>

[Guest guest]

Ok, one question here, but it seems like such a huge issue in my mind.

(Maybe I should wait to read the book though)

In a nutshell, here is what I learned through my research of the internet

and books. In many kids with autism, gluten and casein cannot be broken

down properly and fully by the GI tract. Due to damage to the gut (leaky

gut syndrome) these improperly broken down proteins seep out into the blood

stream and are metabolized into morphine-like substances. That's still the

current theory, yes? It's these substances that contribute to the

" spaciness " and behaviors typical of autism.

Now, I come across the SCD diet and gluten is not a part of the diet, but

casein is in the form of some legal cheeses. From what I understand, this

diet is working better for some kids with autism than the GFCF diet is. How

can this be? Is the theory about an autistic child's digestive track

changing and casein is now ok? Or in the majority of cases, autistic kids

are casein free on the SCD diet. I would LOVE to add back in cheese, but

we've been GFCF for about 5 months now. It's not as if we've seen huge

improvement when on the diet either, it's that we see huge regressions with

an infraction - although most of our infractions so far have been with

gluten. We still have issues with echolalia and hand flapping on the diet,

but I understood that biomedical interventions are multi-faceted, which is

why we also do mega doses of B6 therapy.

Why does the SCD diet seem to work better than the GFCF diet if autistic

kids are, indeed, consuming the legal cheese of the diet? Are there any

studies or articles I could read? I'm interested in this not only for my

own kids, but I'm also in school to be a holistic nutritionist and would

love to have the treatment of autistic kids a major part of my practice.

Any information anyone could provide would be greatly appreciated.

Thanks in advance.

Alese

[Guest guest]

Hi Alese,

It's because SCD actually heals the leaky gut, for one thing. GF/CF really does

not do that...... it just withholds the offending foods. The second you put a

trace of them back, you get a reaction because the holes in the gut are still

there..... none of the damage has been undone. Most SCD/ASD kids are starting

with goat cheese and yogurt if they've previously been CF or had cow milk

issues...... and even then, not until they've been fully SCD for a while. Some

kids seem to do okay with SCD cow dairy, because maybe it was more the lactose

that was really the crux of the matter for them...... and not the casein. Others

find they can tolerate cow casein after some time...... maybe many months or

years..... on SCD, without the previous reactions, probably due to the healing

that's taken place. Each kid is different.

Patti, mom to Katera, SCD 15 months

RE: Introduction

Ok, one question here, but it seems like such a huge issue in my mind.

(Maybe I should wait to read the book though)

In a nutshell, here is what I learned through my research of the internet

and books. In many kids with autism, gluten and casein cannot be broken

down properly and fully by the GI tract. Due to damage to the gut (leaky

gut syndrome) these improperly broken down proteins seep out into the blood

stream and are metabolized into morphine-like substances. That's still the

current theory, yes? It's these substances that contribute to the

" spaciness " and behaviors typical of autism.

Now, I come across the SCD diet and gluten is not a part of the diet, but

casein is in the form of some legal cheeses. From what I understand, this

diet is working better for some kids with autism than the GFCF diet is. How

can this be? Is the theory about an autistic child's digestive track

changing and casein is now ok? Or in the majority of cases, autistic kids

are casein free on the SCD diet. I would LOVE to add back in cheese, but

we've been GFCF for about 5 months now. It's not as if we've seen huge

improvement when on the diet either, it's that we see huge regressions with

an infraction - although most of our infractions so far have been with

gluten. We still have issues with echolalia and hand flapping on the diet,

but I understood that biomedical interventions are multi-faceted, which is

why we also do mega doses of B6 therapy.

Why does the SCD diet seem to work better than the GFCF diet if autistic

kids are, indeed, consuming the legal cheese of the diet? Are there any

studies or articles I could read? I'm interested in this not only for my

own kids, but I'm also in school to be a holistic nutritionist and would

love to have the treatment of autistic kids a major part of my practice.

Any information anyone could provide would be greatly appreciated.

Thanks in advance.

Alese

[Guest guest]

Ok, that makes some more sense - I definitely need to do more research on

this as I have a lot of questions swimming around in my head that I don't

think I could put down coherently. It's one of those " A-Ha " moments that

I'm looking for.

Thanks for the info!

Alese

_____

From: Patti

Sent: Friday, September 03, 2004 3:41 PM

To: pecanbread

Subject: Re: Introduction

Hi Alese,

It's because SCD actually heals the leaky gut, for one thing. GF/CF really

does not do that...... it just withholds the offending foods. The second

you put a trace of them back, you get a reaction because the holes in the

gut are still there..... none of the damage has been undone. Most SCD/ASD

kids are starting with goat cheese and yogurt if they've previously been CF

or had cow milk issues...... and even then, not until they've been fully

SCD for a while. Some kids seem to do okay with SCD cow dairy, because maybe

it was more the lactose that was really the crux of the matter for

them...... and not the casein. Others find they can tolerate cow casein

after some time...... maybe many months or years..... on SCD, without the

previous reactions, probably due to the healing that's taken place. Each kid

is different.

Patti, mom to Katera, SCD 15 months

RE: Introduction

Ok, one question here, but it seems like such a huge issue in my mind.

(Maybe I should wait to read the book though)

In a nutshell, here is what I learned through my research of the internet

and books. In many kids with autism, gluten and casein cannot be broken

down properly and fully by the GI tract. Due to damage to the gut (leaky

gut syndrome) these improperly broken down proteins seep out into the

blood

stream and are metabolized into morphine-like substances. That's still

the

current theory, yes? It's these substances that contribute to the

" spaciness " and behaviors typical of autism.

Now, I come across the SCD diet and gluten is not a part of the diet, but

casein is in the form of some legal cheeses. From what I understand, this

diet is working better for some kids with autism than the GFCF diet is.

How

can this be? Is the theory about an autistic child's digestive track

changing and casein is now ok? Or in the majority of cases, autistic kids

are casein free on the SCD diet. I would LOVE to add back in cheese, but

we've been GFCF for about 5 months now. It's not as if we've seen huge

improvement when on the diet either, it's that we see huge regressions

with

an infraction - although most of our infractions so far have been with

gluten. We still have issues with echolalia and hand flapping on the

diet,

but I understood that biomedical interventions are multi-faceted, which is

why we also do mega doses of B6 therapy.

Why does the SCD diet seem to work better than the GFCF diet if autistic

kids are, indeed, consuming the legal cheese of the diet? Are there any

studies or articles I could read? I'm interested in this not only for my

own kids, but I'm also in school to be a holistic nutritionist and would

love to have the treatment of autistic kids a major part of my practice.

Any information anyone could provide would be greatly appreciated.

Thanks in advance.

Alese

[Guest guest]

As you know Austism is a spectrum disorder i.e., there is a hugh wide

range of how autism has effected each child. e.g., some kids hate

loud noises others don't, some have better language skills than

others, some like cuddling others don't, etc.

Just as there is a wide range of these behaviors there is a wide

range of the bio issues with each child, e.g., some children have

every allergy under the sun while others don't, for some GFCF works

for others not, for some B6 is great others have no reaction.

Knowing that these differences exist there is every reason to think

that while many children have problems with casein and gluten there

will be some that don't. (My DAN Dr. says about 20% don't have

problems, where he got that statistic I don't know.) Hence, many on

SCD remain CF and use nut yougurt and other substitutions.

Unfortunately, this wide range of how autism affects children is also

what makes dealing with autism interventions so frustrating. (The

amount of tears of anger, worry and frustration I have shed in the

past 2 1/2 years would make a great river.) This is why knowing and

watching your own children's reaction(s)is so important. For

example, my child's spaciness and stimming is definately a result of

yeast and bacterial overgrowth and general gut health for another's

child gluten and/or casein seems to bring these behaviors on.

All this is to say, that YOU have to decide what is best and what

works for your child/children. Thank goodness for the internet where

you can find others willing to share their experiences and offer

support.

Hoping for a cure soon but doing what I can now,

Greta, Bram 4.5yo, ASD, SCD 3+wks

> Ok, one question here, but it seems like such a huge issue in my

mind.

> (Maybe I should wait to read the book though)

>

>

>

> In a nutshell, here is what I learned through my research of the

internet

> and books. In many kids with autism, gluten and casein cannot be

broken

> down properly and fully by the GI tract. Due to damage to the gut

(leaky

> gut syndrome) these improperly broken down proteins seep out into

the blood

> stream and are metabolized into morphine-like substances. That's

still the

> current theory, yes? It's these substances that contribute to the

> " spaciness " and behaviors typical of autism.

>

>

>

> Now, I come across the SCD diet and gluten is not a part of the

diet, but

> casein is in the form of some legal cheeses. From what I

understand, this

> diet is working better for some kids with autism than the GFCF diet

is. How

> can this be? Is the theory about an autistic child's digestive

track

> changing and casein is now ok? Or in the majority of cases,

autistic kids

> are casein free on the SCD diet. I would LOVE to add back in

cheese, but

> we've been GFCF for about 5 months now. It's not as if we've seen

huge

> improvement when on the diet either, it's that we see huge

regressions with

> an infraction - although most of our infractions so far have been

with

> gluten. We still have issues with echolalia and hand flapping on

the diet,

> but I understood that biomedical interventions are multi-faceted,

which is

> why we also do mega doses of B6 therapy.

>

>

>

> Why does the SCD diet seem to work better than the GFCF diet if

autistic

> kids are, indeed, consuming the legal cheese of the diet? Are

there any

> studies or articles I could read? I'm interested in this not only

for my

> own kids, but I'm also in school to be a holistic nutritionist and

would

> love to have the treatment of autistic kids a major part of my

practice.

>

>

>

> Any information anyone could provide would be greatly appreciated.

>

>

>

> Thanks in advance.

>

>

>

> Alese

>

>

>

>

>

>

[Guest guest]

Ok, another question, sorry I always heard that yeast overgrowth was

highly attributed to excessive antibiotic use. Considering that my son was

only one 1 course of antibiotics in his almost 4 years of existence, I never

assumed yeast to be an issue. Our naturopath also surmised that his autism

was more related to mercury poisoning rather than yeast issues. Now,

operating under the assumption that the mercury (or the MMR) damaged his

intestine rather than the yeast, the SCD diet would still be beneficial in

healing the intestinal tract. Unfortunately, I have no sure way of knowing

whether yeast WAS really the primary cause or if it was the mercury or the

measles virus. Argh! Yes this is definitely a frustrating condition to say

the least. I, as I'm sure we all do, spend the great majority of my free

brain time thinking about my son and his condition. Not to mention my other

son who does not have autism, but has severe digestive issues caused by

unknown factors. We can't seem to get decent diagnostics out of the

doctors.

Again, can't wait to read the book. Thanks again!

Alese

[Guest guest]

Alese wrote:

Ok, another question, sorry I always heard that yeast overgrowth was

highly attributed to excessive antibiotic use. Considering that my son was

only one 1 course of antibiotics in his almost 4 years of existence, I never

assumed yeast to be an issue.

Alese,

My son has never taken any antibiotic at all. Yet the OAT as well the

Comprehensive Stool Analysies tests, both showed severe yeast overgrowth. So...,

as it is true that antibiotic will cause yeast overgrowth, it is not the only

source there are a lot of other factors that may cause the yeast overgrowth.

[Guest guest]

Hi

I am new to this group, but 7 months old on scd.

I just subscribed to this group, hoping to get some questions answered for a

cousin, who has a boy that has Epilepsy.

I believe he is 7 years old. He was having at least 4 seizures a day, when

I told her about this diet. They had tried the Ketogenic diet, but found it

to be so challenging to follow, especially with whole family trying to

follow same diet as son. Anyways, I don't remember how many months they've

been on scd, but it has dramatically improved his behavior and his seizures

are decreasing. She says, basically when he has one, it's because he's put

something in his mouth he shouldn't have. Her husband uses their computer

primarily for his business, so she doesn't have access to the online support

yet, until they get another computer. They live in Murrieta, California (in

case anyone knows of a support group, etc... in that area). I did get a few

names of people in the area (thank you, Gay), but anyone with kids on scd,

or a child with epilepsy on scd, would be wonderful for her to have contact

with.

Alright, finally to her question.

She was wondering if anyone with experience with epilepsy knows if there is

any kind of a supplement that would help the healing process along. Kind of

like, peppermint can help with inflammation, or vitamin c can help when you

have a cold. She hasn't been able to do research, so does anyone know?

Also, I told her that a good multivitamin would be good.anyone have a scd

legal, good vitamin brand name in mind for children?

Thanks so much, everyone.

Blessings,

IBS '97 * SCD 2/04

(C, bloating,

painful gas wakes early am.)