Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Yeah, that's what I thought to, but it comes in diarrhea form with lots of mucus - that was the part that worried me. Thanks for the links! I have some research to do Alese _____ From: Sheila Trenholm Sent: Thursday, September 02, 2004 11:28 AM To: pecanbread Subject: Re: Introduction Welcome to the list Alese, > I hope to get a lot of good info > off this list Some great places to start reading are http://www.breakingtheviciouscycle.info/ http://www.pecanbread.com/ http://www.pecanbread.com/foodprep.html#homemade http://www.pecanbread.com/foodprep.html#transition http://www.pecanbread.com/foodprep.html#intro > because in some of the testimonies, I feel like I'm reading > about my own kids. My heart dropped when I read of kids that had food going > through their systems and coming out looking like it had not been digested > at all. This is not usually a cause for alarm. Most children and (some adults) don't chew their food well enough. Sheila 42 mos SCD, 20 yrs UC mom of SCD 27 mos For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Thanks! I will definitely check into that. Alese _____ From: Marjan Hammink Sent: Thursday, September 02, 2004 10:00 AM To: pecanbread Subject: Re: Introduction " I'm also very hesitant about adding casein back into their diets " Please check out www.pecanbread.com and find out that most parents start out dairy free. The FAQ's will be most helpful. The recipe section is a jewel box filled with tried and tested little scd-gems. As healing takes place, you'll see that more and more food is tolerated, including dairy (well fermented though). Marjan Netherlands Mom to Nick, asd, 7, SCD since jan 18 2003 , 9 Finn, 4 http://specificfoodsforspecificminds.blogspot.com/ For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Hi Alese, > looking at the legal/illegal list, this diet seems a little daunting (and I > thought the GFCF diet was tough to get used to ). Yes, the diet is tough to follow *at first* to varying degrees, depending on how much cooking you were used to doing before. And virtually all of us make mistakes in the beginning; I certainly did. In fact, after almost a decade on the diet I used a commercial product I thought was legal (some coconut cream) but which had trace amounts of guar gum in it. But once you've been on it for a while, it becomes second nature, and really a piece of cake (almond flour cake, naturally - baaaaad pun intended). > I'm also very hesitant about adding casein back into their diets, but > think it would be ok as infractions involving casein have gone almost > unnoticed in our kids, but gluten infractions have been disastrous. If I were you, I'd skip the legal dairy at first, except perhaps for ghee (rather than regular butter with its trace amounts of protein and lactose). Once progress has been made, you can cautiously try goat milk yogurt - very very small aounts at first. We're all so glad you found the diet! Love and BouKisses, Deborah and Max, SCD Poster Dog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 I was at the same place with casein as you, i.e., no reaction to infractions on GFCF diet. We have slowly allowed SCD legal cheeses in for almost 2 months and have seen no problems. We have also started goat yougurt (2-3 wks now) very slowly. He's up to about 3T/day now with no neg. reaction. Each child is different so you have to decide, just thought I'd let you know that abandoning CF can be done depending on the child. Greta, Bram 4.5yo,ASD, SCD 3+ wks > Hi! I'm Alese. I have two boys: Liam, 4 in October, with PDD-NOS, CAPD, > and SID and Aidan, 16 months, with pancreatic enzyme deficiency, reflux and > multiple food intolerances. We are currently on the GFCF diet, but I read > something about the SCD diet and decided to check it out. I have order > Elaine Gotschall's book and can't wait to read it. I must say though, after > looking at the legal/illegal list, this diet seems a little daunting (and I > thought the GFCF diet was tough to get used to ). I'm also very hesitant > about adding casein back into their diets, but think it would be ok as > infractions involving casein have gone almost unnoticed in our kids, but > gluten infractions have been disastrous. I hope to get a lot of good info > off this list because in some of the testimonies, I feel like I'm reading > about my own kids. My heart dropped when I read of kids that had food going > through their systems and coming out looking like it had not been digested > at all. My youngest son's body does that ALL the time - I thought it was > just more food intolerances. > > > > Thanks! > > > > Alese > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Ok, one question here, but it seems like such a huge issue in my mind. (Maybe I should wait to read the book though) In a nutshell, here is what I learned through my research of the internet and books. In many kids with autism, gluten and casein cannot be broken down properly and fully by the GI tract. Due to damage to the gut (leaky gut syndrome) these improperly broken down proteins seep out into the blood stream and are metabolized into morphine-like substances. That's still the current theory, yes? It's these substances that contribute to the " spaciness " and behaviors typical of autism. Now, I come across the SCD diet and gluten is not a part of the diet, but casein is in the form of some legal cheeses. From what I understand, this diet is working better for some kids with autism than the GFCF diet is. How can this be? Is the theory about an autistic child's digestive track changing and casein is now ok? Or in the majority of cases, autistic kids are casein free on the SCD diet. I would LOVE to add back in cheese, but we've been GFCF for about 5 months now. It's not as if we've seen huge improvement when on the diet either, it's that we see huge regressions with an infraction - although most of our infractions so far have been with gluten. We still have issues with echolalia and hand flapping on the diet, but I understood that biomedical interventions are multi-faceted, which is why we also do mega doses of B6 therapy. Why does the SCD diet seem to work better than the GFCF diet if autistic kids are, indeed, consuming the legal cheese of the diet? Are there any studies or articles I could read? I'm interested in this not only for my own kids, but I'm also in school to be a holistic nutritionist and would love to have the treatment of autistic kids a major part of my practice. Any information anyone could provide would be greatly appreciated. Thanks in advance. Alese Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Hi Alese, It's because SCD actually heals the leaky gut, for one thing. GF/CF really does not do that...... it just withholds the offending foods. The second you put a trace of them back, you get a reaction because the holes in the gut are still there..... none of the damage has been undone. Most SCD/ASD kids are starting with goat cheese and yogurt if they've previously been CF or had cow milk issues...... and even then, not until they've been fully SCD for a while. Some kids seem to do okay with SCD cow dairy, because maybe it was more the lactose that was really the crux of the matter for them...... and not the casein. Others find they can tolerate cow casein after some time...... maybe many months or years..... on SCD, without the previous reactions, probably due to the healing that's taken place. Each kid is different. Patti, mom to Katera, SCD 15 months RE: Introduction Ok, one question here, but it seems like such a huge issue in my mind. (Maybe I should wait to read the book though) In a nutshell, here is what I learned through my research of the internet and books. In many kids with autism, gluten and casein cannot be broken down properly and fully by the GI tract. Due to damage to the gut (leaky gut syndrome) these improperly broken down proteins seep out into the blood stream and are metabolized into morphine-like substances. That's still the current theory, yes? It's these substances that contribute to the " spaciness " and behaviors typical of autism. Now, I come across the SCD diet and gluten is not a part of the diet, but casein is in the form of some legal cheeses. From what I understand, this diet is working better for some kids with autism than the GFCF diet is. How can this be? Is the theory about an autistic child's digestive track changing and casein is now ok? Or in the majority of cases, autistic kids are casein free on the SCD diet. I would LOVE to add back in cheese, but we've been GFCF for about 5 months now. It's not as if we've seen huge improvement when on the diet either, it's that we see huge regressions with an infraction - although most of our infractions so far have been with gluten. We still have issues with echolalia and hand flapping on the diet, but I understood that biomedical interventions are multi-faceted, which is why we also do mega doses of B6 therapy. Why does the SCD diet seem to work better than the GFCF diet if autistic kids are, indeed, consuming the legal cheese of the diet? Are there any studies or articles I could read? I'm interested in this not only for my own kids, but I'm also in school to be a holistic nutritionist and would love to have the treatment of autistic kids a major part of my practice. Any information anyone could provide would be greatly appreciated. Thanks in advance. Alese Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Ok, that makes some more sense - I definitely need to do more research on this as I have a lot of questions swimming around in my head that I don't think I could put down coherently. It's one of those " A-Ha " moments that I'm looking for. Thanks for the info! Alese _____ From: Patti Sent: Friday, September 03, 2004 3:41 PM To: pecanbread Subject: Re: Introduction Hi Alese, It's because SCD actually heals the leaky gut, for one thing. GF/CF really does not do that...... it just withholds the offending foods. The second you put a trace of them back, you get a reaction because the holes in the gut are still there..... none of the damage has been undone. Most SCD/ASD kids are starting with goat cheese and yogurt if they've previously been CF or had cow milk issues...... and even then, not until they've been fully SCD for a while. Some kids seem to do okay with SCD cow dairy, because maybe it was more the lactose that was really the crux of the matter for them...... and not the casein. Others find they can tolerate cow casein after some time...... maybe many months or years..... on SCD, without the previous reactions, probably due to the healing that's taken place. Each kid is different. Patti, mom to Katera, SCD 15 months RE: Introduction Ok, one question here, but it seems like such a huge issue in my mind. (Maybe I should wait to read the book though) In a nutshell, here is what I learned through my research of the internet and books. In many kids with autism, gluten and casein cannot be broken down properly and fully by the GI tract. Due to damage to the gut (leaky gut syndrome) these improperly broken down proteins seep out into the blood stream and are metabolized into morphine-like substances. That's still the current theory, yes? It's these substances that contribute to the " spaciness " and behaviors typical of autism. Now, I come across the SCD diet and gluten is not a part of the diet, but casein is in the form of some legal cheeses. From what I understand, this diet is working better for some kids with autism than the GFCF diet is. How can this be? Is the theory about an autistic child's digestive track changing and casein is now ok? Or in the majority of cases, autistic kids are casein free on the SCD diet. I would LOVE to add back in cheese, but we've been GFCF for about 5 months now. It's not as if we've seen huge improvement when on the diet either, it's that we see huge regressions with an infraction - although most of our infractions so far have been with gluten. We still have issues with echolalia and hand flapping on the diet, but I understood that biomedical interventions are multi-faceted, which is why we also do mega doses of B6 therapy. Why does the SCD diet seem to work better than the GFCF diet if autistic kids are, indeed, consuming the legal cheese of the diet? Are there any studies or articles I could read? I'm interested in this not only for my own kids, but I'm also in school to be a holistic nutritionist and would love to have the treatment of autistic kids a major part of my practice. Any information anyone could provide would be greatly appreciated. Thanks in advance. Alese Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 As you know Austism is a spectrum disorder i.e., there is a hugh wide range of how autism has effected each child. e.g., some kids hate loud noises others don't, some have better language skills than others, some like cuddling others don't, etc. Just as there is a wide range of these behaviors there is a wide range of the bio issues with each child, e.g., some children have every allergy under the sun while others don't, for some GFCF works for others not, for some B6 is great others have no reaction. Knowing that these differences exist there is every reason to think that while many children have problems with casein and gluten there will be some that don't. (My DAN Dr. says about 20% don't have problems, where he got that statistic I don't know.) Hence, many on SCD remain CF and use nut yougurt and other substitutions. Unfortunately, this wide range of how autism affects children is also what makes dealing with autism interventions so frustrating. (The amount of tears of anger, worry and frustration I have shed in the past 2 1/2 years would make a great river.) This is why knowing and watching your own children's reaction(s)is so important. For example, my child's spaciness and stimming is definately a result of yeast and bacterial overgrowth and general gut health for another's child gluten and/or casein seems to bring these behaviors on. All this is to say, that YOU have to decide what is best and what works for your child/children. Thank goodness for the internet where you can find others willing to share their experiences and offer support. Hoping for a cure soon but doing what I can now, Greta, Bram 4.5yo, ASD, SCD 3+wks > Ok, one question here, but it seems like such a huge issue in my mind. > (Maybe I should wait to read the book though) > > > > In a nutshell, here is what I learned through my research of the internet > and books. In many kids with autism, gluten and casein cannot be broken > down properly and fully by the GI tract. Due to damage to the gut (leaky > gut syndrome) these improperly broken down proteins seep out into the blood > stream and are metabolized into morphine-like substances. That's still the > current theory, yes? It's these substances that contribute to the > " spaciness " and behaviors typical of autism. > > > > Now, I come across the SCD diet and gluten is not a part of the diet, but > casein is in the form of some legal cheeses. From what I understand, this > diet is working better for some kids with autism than the GFCF diet is. How > can this be? Is the theory about an autistic child's digestive track > changing and casein is now ok? Or in the majority of cases, autistic kids > are casein free on the SCD diet. I would LOVE to add back in cheese, but > we've been GFCF for about 5 months now. It's not as if we've seen huge > improvement when on the diet either, it's that we see huge regressions with > an infraction - although most of our infractions so far have been with > gluten. We still have issues with echolalia and hand flapping on the diet, > but I understood that biomedical interventions are multi-faceted, which is > why we also do mega doses of B6 therapy. > > > > Why does the SCD diet seem to work better than the GFCF diet if autistic > kids are, indeed, consuming the legal cheese of the diet? Are there any > studies or articles I could read? I'm interested in this not only for my > own kids, but I'm also in school to be a holistic nutritionist and would > love to have the treatment of autistic kids a major part of my practice. > > > > Any information anyone could provide would be greatly appreciated. > > > > Thanks in advance. > > > > Alese > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Ok, another question, sorry I always heard that yeast overgrowth was highly attributed to excessive antibiotic use. Considering that my son was only one 1 course of antibiotics in his almost 4 years of existence, I never assumed yeast to be an issue. Our naturopath also surmised that his autism was more related to mercury poisoning rather than yeast issues. Now, operating under the assumption that the mercury (or the MMR) damaged his intestine rather than the yeast, the SCD diet would still be beneficial in healing the intestinal tract. Unfortunately, I have no sure way of knowing whether yeast WAS really the primary cause or if it was the mercury or the measles virus. Argh! Yes this is definitely a frustrating condition to say the least. I, as I'm sure we all do, spend the great majority of my free brain time thinking about my son and his condition. Not to mention my other son who does not have autism, but has severe digestive issues caused by unknown factors. We can't seem to get decent diagnostics out of the doctors. Again, can't wait to read the book. Thanks again! Alese Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2004 Report Share Posted September 4, 2004 Alese wrote: Ok, another question, sorry I always heard that yeast overgrowth was highly attributed to excessive antibiotic use. Considering that my son was only one 1 course of antibiotics in his almost 4 years of existence, I never assumed yeast to be an issue. Alese, My son has never taken any antibiotic at all. Yet the OAT as well the Comprehensive Stool Analysies tests, both showed severe yeast overgrowth. So..., as it is true that antibiotic will cause yeast overgrowth, it is not the only source there are a lot of other factors that may cause the yeast overgrowth. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Hi I am new to this group, but 7 months old on scd. I just subscribed to this group, hoping to get some questions answered for a cousin, who has a boy that has Epilepsy. I believe he is 7 years old. He was having at least 4 seizures a day, when I told her about this diet. They had tried the Ketogenic diet, but found it to be so challenging to follow, especially with whole family trying to follow same diet as son. Anyways, I don't remember how many months they've been on scd, but it has dramatically improved his behavior and his seizures are decreasing. She says, basically when he has one, it's because he's put something in his mouth he shouldn't have. Her husband uses their computer primarily for his business, so she doesn't have access to the online support yet, until they get another computer. They live in Murrieta, California (in case anyone knows of a support group, etc... in that area). I did get a few names of people in the area (thank you, Gay), but anyone with kids on scd, or a child with epilepsy on scd, would be wonderful for her to have contact with. Alright, finally to her question. She was wondering if anyone with experience with epilepsy knows if there is any kind of a supplement that would help the healing process along. Kind of like, peppermint can help with inflammation, or vitamin c can help when you have a cold. She hasn't been able to do research, so does anyone know? Also, I told her that a good multivitamin would be good.anyone have a scd legal, good vitamin brand name in mind for children? Thanks so much, everyone. Blessings, IBS '97 * SCD 2/04 (C, bloating, painful gas wakes early am.) Quote Link to comment Share on other sites More sharing options...
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