Guest guest Posted September 5, 2004 Report Share Posted September 5, 2004 Hi, I'm posting this with the hope that someone on the list knows if the SCD is appropriate for my 11 yr autistic son. My son does not have any type of GI problems now (his stools seem very normal at least), although he does have loose stools if he has anything made from cow's milk. He did have chronic diahrrea before he began his developmental regression at the age of two and a half. I always felt like there was a connection, but the doctor thought I was an idiot. Anyways.... I was wondering if anyone knows if the SCD diet is helpful for autistic children who don't seem to be having gut symptoms. Also, my son is very high functioning. The stories I've read about kids who've been helped seemed mostly to be getting children up to being able to function at about where my son already is. I'm hesitating to try the diet because my son is extremely thin. He seems to have bouts of hypoglycemia where he really falls apart if he doesn't get enough to eat. We're starting to make progress on the weight gain (he's gaining 1 to 2 lbs. a week) but I'm concerned that the SCD will cause him to lose again and/or that he'll be very hypoglycemic on it. Any suggestions would be greatly appreciated. Thanks in advance, , mom to ASD not on SCD yet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2004 Report Share Posted September 5, 2004 Hello, My daughter didn't have any noticeable GI issues either. The BMs were normal looking. No stomach pain, nothing. She didn't eat too many of the foods on the diet so I was kind of turned off by it at first...she didn't like meats, except for chicken nuggets or pepperoni (on pizza). She didn't like nuts, she didn't like fruits or vegetables (at all!). I couldn't afford for her to lose weight because I was afraid of how it would interfere with her seizure meds if she lost weight. I worked on her for a couple of months to eat some " new " foods before I tried SCD. Some people go cold turkey. We have been SCD since June 12, 2004. I weighed her frequently at first, but not so much anymore since her weight is stable. She has made incredible changes. She is 6 years old (almost 7) and in a few short months, she went from socially being comparable to a 3 year old, to now being that of a 5 year old. And the progress isn't slowing down. I don't know if anyone else has seen this kind of progress, but Madison's advances are so incredible, that I don't think the people in first grade will recognize the kindergartner from last year. I never imagined her doing so well this quickly. Last week, she asked me the first " why " question in her life and hasn't stopped asking me the " why's " of things. She's watching movies that aren't cartoons and asking me questions related to the story. " What happened to Spiderman's father? " (though it was Spiderman's uncle) The most significant change that happened almost immediately was the space out episodes she would have. Her teachers were telling me she was increasingly spacey and hard to " bring back " . I saw this all the time at home too. She hasn't done that once since we started the diet. Again, I didn't see any obvious GI symptoms at all, but there must have been something. Mindy > Hi, > > I'm posting this with the hope that someone on the list knows if the > SCD is appropriate for my 11 yr autistic son. > > My son does not have any type of GI problems now (his stools seem > very normal at least), although he does have loose stools if he has > anything made from cow's milk. He did have chronic diahrrea before > he began his developmental regression at the age of two and a half. > I always felt like there was a connection, but the doctor thought I > was an idiot. Anyways.... I was wondering if anyone knows if the > SCD diet is helpful for autistic children who don't seem to be > having gut symptoms. > > Also, my son is very high functioning. The stories I've read about > kids who've been helped seemed mostly to be getting children up to > being able to function at about where my son already is. > > I'm hesitating to try the diet because my son is extremely thin. He > seems to have bouts of hypoglycemia where he really falls apart if > he doesn't get enough to eat. We're starting to make progress on > the weight gain (he's gaining 1 to 2 lbs. a week) but I'm concerned > that the SCD will cause him to lose again and/or that he'll be very > hypoglycemic on it. > > Any suggestions would be greatly appreciated. > > Thanks in advance, > , mom to ASD not on SCD yet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Hi my son is almost like yours, just two years junger. He has " only " Aspergers syndrome. We started two month ago with the diet an he is much calmer and can cope better with frustration feelings. (Better than it was when we tried Ritalin) Our son was extremely thin too, when we began - now he seems to be thin but normal. He didn't loose weight. But sometimes he aprechiates the Muffins and cakes with honey-cream! Yust have a try! Eveline mom to Kilian 9 years >-- Original-Nachricht -- >To: pecanbread > >Date: Sun, 05 Sep 2004 00:59:33 -0000 >Subject: SCD and ASD with no GI problems >Reply-To: pecanbread > > > >Hi, > >I'm posting this with the hope that someone on the list knows if the >SCD is appropriate for my 11 yr autistic son. > >My son does not have any type of GI problems now (his stools seem >very normal at least), although he does have loose stools if he has >anything made from cow's milk. He did have chronic diahrrea before >he began his developmental regression at the age of two and a half. >I always felt like there was a connection, but the doctor thought I >was an idiot. Anyways.... I was wondering if anyone knows if the >SCD diet is helpful for autistic children who don't seem to be >having gut symptoms. > >Also, my son is very high functioning. The stories I've read about >kids who've been helped seemed mostly to be getting children up to >being able to function at about where my son already is. > >I'm hesitating to try the diet because my son is extremely thin. He >seems to have bouts of hypoglycemia where he really falls apart if >he doesn't get enough to eat. We're starting to make progress on >the weight gain (he's gaining 1 to 2 lbs. a week) but I'm concerned >that the SCD will cause him to lose again and/or that he'll be very >hypoglycemic on it. > >Any suggestions would be greatly appreciated. > >Thanks in advance, >, mom to ASD not on SCD yet > > > > >For information on the Specific Carbohydrate Diet, please read the book _Breaking >the Vicious Cycle_ by Elaine Gottschall and read the following websites: >http://www.breakingtheviciouscycle.info >and >http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 , You should really get your childs stomach checked out particularly if he isn't gaining weight. My son showed no signs of having stomach problems. He had regular stools and at regular times, the only problem was he wasn't gaining any weight. We went to Dr.Krigsman, and had a colonoscopy/endoscopy and it turned out he had a severe case of colitis (I forget the full name of the disease). Studies have shown that 75% of children on the spectrum have problems with their stomach, even if there are no outward signs. My son is only 3, and pretty high functioning, so he isn't the same age as your son, but I would definitely have a GI check him out. Good luck, > Hi > my son is almost like yours, just two years junger. He has " only " Aspergers > syndrome. We started two month ago with the diet an he is much calmer and > can cope better with frustration feelings. (Better than it was when we tried > Ritalin) > Our son was extremely thin too, when we began - now he seems to be thin but > normal. He didn't loose weight. But sometimes he aprechiates the Muffins > and cakes with honey-cream! > > Yust have a try! > Eveline > mom to Kilian 9 years > > >-- Original-Nachricht -- > >To: pecanbread > >From: " clzdawson " <cathydawson@c...> > >Date: Sun, 05 Sep 2004 00:59:33 -0000 > >Subject: SCD and ASD with no GI problems > >Reply-To: pecanbread > > > > > > > >Hi, > > > >I'm posting this with the hope that someone on the list knows if the > >SCD is appropriate for my 11 yr autistic son. > > > >My son does not have any type of GI problems now (his stools seem > >very normal at least), although he does have loose stools if he has > >anything made from cow's milk. He did have chronic diahrrea before > >he began his developmental regression at the age of two and a half. > >I always felt like there was a connection, but the doctor thought I > >was an idiot. Anyways.... I was wondering if anyone knows if the > >SCD diet is helpful for autistic children who don't seem to be > >having gut symptoms. > > > >Also, my son is very high functioning. The stories I've read about > >kids who've been helped seemed mostly to be getting children up to > >being able to function at about where my son already is. > > > >I'm hesitating to try the diet because my son is extremely thin. He > >seems to have bouts of hypoglycemia where he really falls apart if > >he doesn't get enough to eat. We're starting to make progress on > >the weight gain (he's gaining 1 to 2 lbs. a week) but I'm concerned > >that the SCD will cause him to lose again and/or that he'll be very > >hypoglycemic on it. > > > >Any suggestions would be greatly appreciated. > > > >Thanks in advance, > >, mom to ASD not on SCD yet > > > > > > > > > > >For information on the Specific Carbohydrate Diet, please read the book > _Breaking > >the Vicious Cycle_ by Elaine Gottschall and read the following websites: > >http://www.breakingtheviciouscycle.info > >and > >http://www.pecanbread.com > > > > Quote Link to comment Share on other sites More sharing options...
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