Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Probiotics can trigger additional die-off. And I know some of the kids were having symptoms like this with the Custom Probiotics acidophilus..... and had to start VERY slowly, with a tiny dose. Maybe you could work up? Wow...... I just read the end of your message...... your son has really been on SCD for 3 years? Patti Kirkman's Lactobacillus problems I started giving my son 1 capsule of Kirkman's lactobacillus in the morning with breakfast about 10 days ago. I am seeing sleep problems, increased hyperactivity, huge increase in OCD symptoms and increased aggression. He had the same problems when he was taking Kirkman's Pro-Bio Inulin Free and I had to discontinue it. Does anyone have any ideas what the problem might be. Thanks, ( ASD- SCD 3yrs.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 > Probiotics can trigger additional die-off. And I know some of the kids were having symptoms like this with the Custom Probiotics acidophilus..... and had to start VERY slowly, with a tiny dose. Maybe you could work up? Wow...... I just read the end of your message...... your son has really been on SCD for 3 years? > > Patti > > > > Patti, thanks for the info. I thought it might be die-off, but it seems like such an extreme reaction. I will take your advise and start him at a smaller dose. Yes, my son has been on the diet for 3 years. I started him on it in Jan. 2001. I have had to remove honey and most fruit because of hypoglycemia and almonds because of allergy, but the diet has really been a lifesaver. I just wish I would see the type of intestinal healing that is supposed to take place. Any small deviation from the diet still results in bad physical and behavioral reactions, but my son's case has always been an exceptionally diffucult one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Hi , Have you considered trying one of the yogurts? Some people who can't tolerate the probiotics are okay if they very slowly start the yogurt. By slow I mean even as small as 1/8 tsp every second day. There's cow, goat and various nut yogurts. Sheila 44 mos SCD, 20 yrs UC mom of SCD 29 mos > > Probiotics can trigger additional die-off. And I know some of the > kids were having symptoms like this with the Custom Probiotics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Sheila, I really like the yogurt and I think it would be good for my son, unfortunately, he won't touch yogurt of any kind. What I find strange in all of this is that I have given him probiotics of various brands for the better part of 9 years and the Kirkman brand is the only one he has this kind of reaction too. I like Kirkman products and he takes other Kirkman supplements with no problem. He has a persistant problem with Klebsiella and Citrobacter in the gut. Perhaps this is a factor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Hi , You could get sneaky with the yogurt. Mix a little in with mayo. Probably a tiny amount to start with, you can even drip it first to remove some of the tartness. You can use it to make other dips and change the taste by adding some herbs and spices. Marilyn has a wonderful ranch dressing. will very rarely eat straight yogurt but he will drink it as a smoothie or eat it as a dip. Sheila 44 mos SCD, 20 yrs UC mom of SCD 29 mos > I really like the yogurt and I think it would be good for my son, > unfortunately, he won't touch yogurt of any kind. What I find > strange in all of this is that I have given him probiotics of > various brands for the better part of 9 years and the Kirkman brand > is the only one he has this kind of reaction too. I like Kirkman > products and he takes other Kirkman supplements with no problem. > He has a persistant problem with Klebsiella and Citrobacter in the > gut. Perhaps this is a factor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 > > Hi , > > You could get sneaky with the yogurt. Mix a little in with mayo. > Probably a tiny amount to start with, you can even drip it first to > remove some of the tartness. You can use it to make other dips and > change the taste by adding some herbs and spices. Marilyn has a > wonderful ranch dressing. > > will very rarely eat straight yogurt but he will drink it as > a smoothie or eat it as a dip. > > Sheila 44 mos SCD, 20 yrs UC > mom of SCD 29 mos > Sheila, Thanks so much for the suggestions for getting my son to eat yogurt. All of you on this board have such great ideas and are so knowledgable. My life has gotten a little easier since I found this group. I would really like to try Marilyn's ranch dressing. Where do I find the recipe? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 " I would really like to try Marilyn's ranch dressing. Where do I find the recipe? " There are a couple of ranch dressing recipes on pecanbread.com. http://www.pecanbread.com/recipes.html Jody mom to -5 and -8 SCD 20 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Hi , > I would really like to try Marilyn's ranch dressing. Where > do I find the recipe? Here is my version of Marilyn's recipe Ranch Dressing Base For one cup of yogurt cheese. (You can make yogurt cheese by taking plain, unflavoured yogurt and letting the liquid drip out through a dishtowel or coffee filter and small stainer. Pictorial guide at http://www.breakingtheviciouscycle.info/beginners_guide/yoghurt/drippi ng_yoghurt.htm) 1 cup of yogurt cheese 1 tablespoon dried chives 1 teaspoon dried parsley 1 teaspoon powdered onion (home-dried) 1/4 teaspoon powdered garlic (home-dried) 1/8 to 1/4 teaspoon black pepper 1/4 teaspoon salt (needed to develop the flavor of the herbs) 1/8 - 1/4 tsp paprika Blend spices into yogurt cheese. Cover and refrigerate for at least an hour, better over night if you can stand to wait. Thin with water if needed for use on a salad. To make into a dip add 1 C of ranch dressing base to 1 C homemade mayonnaise* I sliced onions and peeled garlic and dried them in my dehydrator at 145F- 200°F for around 12 hours, then powdered them in my coffee/spice grinder (or a blender). They can also be dried in a oven at about 180-200°F for a few hours until dry. *Homemade Mayonnaise 1 jumbo egg 1 tablespoon vinegar or fresh squeezed lemon juice 1/2 dijon mustard 1 - 1 1/4 cups sunflower oil salt to taste honey (to taste) I use about 1/2 tsp Blend all ingredients except oil & honey. While the machine is running pour the oil very slowly. It should take at least a minute. As the mayonaise thickens, the sound of the machine will change. *** It is very important to add the oil very slowly in a fine stream. After all oil is added add honey to taste. Ther are more yogurt recipes at http://www.scdrecipe.com/r_018_00216.html Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 > >> >> > > >> > My child is very sensitive to things too. Have you tried the Nature's > >> > Life Milk Free Acidophilus? > She did well with that one. She had a bad reaction to DMG so I may > try TMG. What does > he eat? Does he have salicylate problems? We have issues with > B's too but she's doing well > with the B12 injection........................ > Kathy > >> > >> > > >> > > >> >Kathy, I haven't tried Nature's Life because I think the ingredients list carrots as being included. My son can't tolerate vegetables with sugar in them. He has a particularly bad reaction to carrots. He also could not tolerate DMG or TMG. He has the same bad reaction that he has to B-vitamins. I think these substances are very closely related. I don't think he has a salicylate problem, but who knows for sure. The fact that your daughter is doing well with a b-vitamin injection and not b-vitamins taken orally interests me. I have seen the phenomanon with my son. In the past if he has needed to be sedated for a medical procedure, he has experienced a great deal of difficulty with oral sedation. Slow recovery, clumsiness, days of digestive and behavioral problems. If he is sedated intravenously, he recovers normally and there are no residual problems. Sure seems to provide strong evidence for a gut problem and a detox problem. > >> > > >> > > >> > > >> > > >> > > >> > > > > > > > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book > > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > > websites: > > http://www.breakingtheviciouscycle.info > > and > > http://www.pecanbread.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 I highly recommend the injections. It has been the best intervention we have tried for years. Glutathione IV works well for her also. Kathy > I haven't tried Nature's Life because I think the ingredients list > carrots as being included. My son can't tolerate vegetables with > sugar in them. He has a particularly bad reaction to carrots. > He also could not tolerate DMG or TMG. He has the same bad > reaction that he has to B-vitamins. I think these substances are > very closely related. I don't think he has a salicylate problem, > but who knows for sure. > The fact that your daughter is doing well with a b-vitamin > injection and not b-vitamins taken orally interests me. I have seen > the phenomanon with my son. In the past if he has needed to be > sedated for a medical procedure, he has experienced a great deal of > difficulty with oral sedation. Slow recovery, clumsiness, days of > digestive and behavioral problems. If he is sedated intravenously, > he recovers normally and there are no residual problems. Sure seems > to provide strong evidence for a gut problem and a detox problem. >> >> > >> >> >> >> > >> >> > >> >> > >> >> > >> > >> > >> > >> > >> > >> > >> > For information on the Specific Carbohydrate Diet, please read > the book >> > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the > following >> > websites: >> > http://www.breakingtheviciouscycle.info >> > and >> > http://www.pecanbread.com >> > >> > Quote Link to comment Share on other sites More sharing options...
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