Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 I was reading a lot about lupus the other day, and there are a lot of similar symptoms, and symptoms that I have that belong to both illnesses. I think I was tested once for the lupus antibodies, and was negative, but now I'm wondering if I should be tested again. There are so many similar illnesses, I worry if my fibromyalgia is really MS, and so on. Does anyone here have lupus as well as EDS? Or has paranoia set in? Tori HEDS, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 Hi Tori, I suspect my niece, who has Lupus, also has EDS; but since there are so many similar symptoms, her doctors don't pay much attention to the EDS. She's very hypermobile and has Lupus very badly. I don't know how one would ever get this idea across to a doctor?!? Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 Hi Tori, I was actually diagnosed with Lupus before ESD, though my ortho knew knew something was up with my joints, just not what. " You've got some kind of connective tissue problem " , he said, after the third failed shoulder reconstruction in 2 years, same arm. I think that may have been what caused some of the confusion in the beginning. I'd had joint problems and surgeries beginning as a kid..and was diagnosed with arthritis, then Lupus by several positive ANA titers and other symptoms amd blood tests after the birth of my last child. The interesting thing has been that as my EDS has seem to have gotten 'worse', or more troublesome..the Lupus had gone into remission. My last ANA was normal! 'Course as I say that I just got home from another marathon MRI session. Seems this arm that hasn't healed since December now has a bone and/or joint infection, and is once again swollen about double from shoulder to hand. It's hard to tell which causes what sometimes, ut they think this is all EDS related so far. If you suspect you have Lupus, you should discuss ot with your doctor. If he doesn't see the skin signs, but you still want to rule it out, ask for the ANA titer. He may or may not refer you to a Rheumy, may wait for a positive result before doing so. It'll also rule out rheumatoid arthritis, If I recall corecly at 2.30am. LOL! It is trus that just because we have one thisn doesn't mean somethinf else can't go wrong, too. So we need to take care of ourselves. This from someone who last saw an ob/gyn 16yrs ago. I know, I know..time just flies, and my baby grew up. I keep meaning to make that 6-week check up appointment.. Best Wishes, Jean > I was reading a lot about lupus the other day, and there are a lot of > similar symptoms, and symptoms that I have that belong to both > illnesses. I think I was tested once for the lupus antibodies, and > was negative, but now I'm wondering if I should be tested again. > There are so many similar illnesses, I worry if my fibromyalgia is > really MS, and so on. Does anyone here have lupus as well as EDS? Or > has paranoia set in? > > Tori > HEDS, NY Quote Link to comment Share on other sites More sharing options...
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