Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 > Andy, my son is going to start DMPS soon. We are using it because of his > continuous low neutrophil count. I have 2 questions. The doctor wants to > do it IV and tells me he has done it for 30 years with no adverse side > effects. Besides the DMPS backfire site is there anywhere else you can > point me for information on why DMPS iv is dangerous. Also, my son is very > close to anemia. His ferritin is 2 and his other counts have been dropping > for about 6 months. We are having a really difficult time getting the iron > in him because he is 3 and can't swallow pills. He eats meat but I think > his celiacs is causing inflammation that blocks absorption. The hospital > here is pushing an IV iron infusion that sounds difficult and painful. Do > you have any advice and another route to take? > Thanks in advance, > Here is the web site for the manufacturer of DMPS: http://www.dmps.cc/ Poke around on there and you will find that the manufacturer itself doesn't recommend that DMPS be used IV. Furthermore, there are immediate problems with the compound oxidizing when in solution. (I surmise this leads to infusing some compound that has become ineffective, plus who know what effect the oxidized compound(s) have) Might be nice to find out just when DMPS was developed and allowed in this country.....would put the lie to that 30 year boast. The audacity of some doctors is just breathtaking. Sorry I can't help you with the iron thing. Regards, Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 > > Andy, my son is going to start DMPS soon. We are using it because > of his > > continuous low neutrophil count. I have 2 questions. The doctor > wants to > > do it IV It should never be done by IV. >and tells me he has done it for 30 years with no adverse side > > effects. Then he is so delusional he isn't capable of practicing medicine competently. >Besides the DMPS backfire site is there anywhere else you > can > > point me for information on why DMPS iv is dangerous. My book. Lots of people not listed on the site who had similar or worse problems. If you ask around, you will be able to find people the doc shot up who had problems. These problems are common. No doc does it for long and doesn't have a patient experience them. Some realize it, some don't. >Also, my son > is very > > close to anemia. His ferritin is 2 and his other counts have been > dropping > > for about 6 months. We are having a really difficult time getting > the iron > > in him because he is 3 and can't swallow pills. He eats meat but I > think > > his celiacs is causing inflammation that blocks absorption. The > hospital > > here is pushing an IV iron infusion that sounds difficult and > painful. Do > > you have any advice and another route to take? Vitamin C 4 times a day, vitamin E daily. Just drip some ferrous sulfate intended as an iron supplement into regular food. > > Thanks in advance, > > > > > Here is the web site for the manufacturer of DMPS: > > http://www.dmps.cc/ > > Poke around on there and you will find that the manufacturer itself > doesn't recommend that DMPS be used IV. Furthermore, there are > immediate problems with the compound oxidizing when in solution. (I > surmise this leads to infusing some compound that has become > ineffective, plus who know what effect the oxidized compound(s) have) > > Might be nice to find out just when DMPS was developed and allowed in > this country.....would put the lie to that 30 year boast. > > The audacity of some doctors is just breathtaking. > > Sorry I can't help you with the iron thing. > > Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Andy, Our pharmacist contacted the Heyl U. S. representative and he said he wasn't going to order the DMPS because they wanted him to buy so much of it. He also said that it wasn't the same as DMSA (he sounded rather dubious) and that two types available are not FDA-approved (meaning what exactly?) So what's the simplest way of getting this stuff. And how exorbitant is it? Barb [ ] Re: DMPS IV / IV iron infusion > > > > Andy, my son is going to start DMPS soon. We are using it because > > of his > > > continuous low neutrophil count. I have 2 questions. The doctor > > wants to > > > do it IV > > It should never be done by IV. > > >and tells me he has done it for 30 years with no adverse side > > > effects. > > Then he is so delusional he isn't capable of practicing medicine > competently. > > >Besides the DMPS backfire site is there anywhere else you > > can > > > point me for information on why DMPS iv is dangerous. > > My book. > > Lots of people not listed on the site who had similar or worse > problems. > > If you ask around, you will be able to find people the doc shot up who > had problems. These problems are common. No doc does it for long and > doesn't have a patient experience them. Some realize it, some don't. > > >Also, my son > > is very > > > close to anemia. His ferritin is 2 and his other counts have been > > dropping > > > for about 6 months. We are having a really difficult time getting > > the iron > > > in him because he is 3 and can't swallow pills. He eats meat but > I > > think > > > his celiacs is causing inflammation that blocks absorption. The > > hospital > > > here is pushing an IV iron infusion that sounds difficult and > > painful. Do > > > you have any advice and another route to take? > > Vitamin C 4 times a day, vitamin E daily. > > Just drip some ferrous sulfate intended as an iron supplement into > regular food. > > > > Thanks in advance, > > > > > > > > > Here is the web site for the manufacturer of DMPS: > > > > http://www.dmps.cc/ > > > > Poke around on there and you will find that the manufacturer itself > > doesn't recommend that DMPS be used IV. Furthermore, there are > > immediate problems with the compound oxidizing when in solution. (I > > surmise this leads to infusing some compound that has become > > ineffective, plus who know what effect the oxidized compound(s) > have) > > > > Might be nice to find out just when DMPS was developed and allowed > in > > this country.....would put the lie to that 30 year boast. > > > > The audacity of some doctors is just breathtaking. > > > > Sorry I can't help you with the iron thing. > > > > Regards, > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 As far as a price... we are charged 40 dollars for 3 cc's of liquid dmps, each cc has 50 mg's I think. This is a discounted price-- because the doc was able to buy it in bulk she is passing the price on to me. When I called a local compounding pharmacy, the price they quoted was over a hundred dollars. We are using the 3 cc's per round, doing a round every 3 weeks. So it is pricey. BUT, so far, no yeast problem with it... ;-) W --- In , " jromkema " <jromkema@f...> wrote: > Andy, > Our pharmacist contacted the Heyl U. S. representative and he said he wasn't > going to order the DMPS because they wanted him to buy so much of it. He > also said that it wasn't the same as DMSA (he sounded rather dubious) and > that two types available are not FDA-approved (meaning what exactly?) > > So what's the simplest way of getting this stuff. And how exorbitant is it? > > Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 What about oral DMPS? (Not the liquid?) Barb [ ] Re: DMPS IV / IV iron infusion > As far as a price... we are charged 40 dollars for 3 cc's of liquid > dmps, each cc has 50 mg's I think. This is a discounted price-- > because the doc was able to buy it in bulk she is passing the price > on to me. When I called a local compounding pharmacy, the price they > quoted was over a hundred dollars. > > We are using the 3 cc's per round, doing a round every 3 weeks. So > it is pricey. BUT, so far, no yeast problem with it... ;-) > > W > > > > Andy, > > Our pharmacist contacted the Heyl U. S. representative and he said > he wasn't > > going to order the DMPS because they wanted him to buy so much of > it. He > > also said that it wasn't the same as DMSA (he sounded rather > dubious) and > > that two types available are not FDA-approved (meaning what > exactly?) > > > > So what's the simplest way of getting this stuff. And how > exorbitant is it? > > > > Barb > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 This is liquid dmps taken orally... she didn't have access to the powdered dmps I guess... W --- In , " jromkema " <jromkema@f...> wrote: > What about oral DMPS? (Not the liquid?) > Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Any doc can Rx oral DMPS in capsules. it doesn't have to be a liquid. Liquid DMPS has a lot of handling problems that often result in it being oxidized to ineffective form before it gets inside you. Andy . . . . . > This is liquid dmps taken orally... she didn't have access to the > powdered dmps I guess... > W > > > > What about oral DMPS? (Not the liquid?) > > Ba Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 > > As far as a price... we are charged 40 dollars for 3 cc's of liquid > > dmps, each cc has 50 mg's I think. This is extremely and unreasonably high. >This is a discounted price-- > > because the doc was able to buy it in bulk she is passing the price > > on to me. When I called a local compounding pharmacy, the price they > > quoted was over a hundred dollars. Call the Falls Pharmacy or e-mail them, getit@... . 50 mg is 5 or 10 dollars at reasonable prices, max. > > We are using the 3 cc's per round, doing a round every 3 weeks. So > > it is pricey. BUT, so far, no yeast problem with it... Quote Link to comment Share on other sites More sharing options...
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