Re: Fwd: (Diane) Re: Rice Crispy Neck

[Guest guest]

yes, my gallbladder was removed about 10 years ago.

but i know what u mean .

--- LadyMoonkist wrote:

> Hi Diane...

>

> On the chest pain...did they check you for

> gallbladder problems? They

> checked me for over a YEAR and finally found out

> that most of my chest pain

> was from a rotten gallbladder...and that thing

> caused me so much pain. Even

> after I had surgery, which was back in June, it took

> months for the pain to

> stop, and the electricity feeling in my chest, neck,

> shoulders, and back

> area to go away. Every once in a while, I get that

> electrical feeling again,

> and kind of freak.

>

> Gentle hugs,

> K.

>

>

> -- Re: Fwd: Re: Rice Crispy Neck

>

> Hi Diane,

> I don't think I've ever heard it put that way

> before, but I have the same

> thing. Not all the time, but a lot of the time. I

> try to tell my doctor

> that is sounds like snaps and crackles, but I forgot

> about the pop. Never

> related it to rice crispies, but that is the perfect

> description. I have a

> pretty good range of motion at least, but it hurts

> if I go too far, like

> when I'm looking backward to back the car up.

> I've also had the bad chest pains. Mine are just

> below the breast bone

> and then continue down the side of my abdomen. I've

> been to the emergency

> room it has been so bad.

> Thankfully I don't have a sensation of walking on

> glass, but if I don't

> wear just the right shoes my hips hurt terribly. My

> left hip hurts anyway.

> My hands and particularly my feet have spasms and

> cramps that come out of

> nowhere. I do have involuntary shakes too.

> Aren't you glad to hear all of this. I guess it

> might be good to know you

> are not alone, but I guess they are symptoms of

> fibromyalgia, although who

> knows anymore.

> ttfn,

>

> [Non-text portions of this message have been

> removed]

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

far as my Gall Bladder i had several acute attacks

that gave me chest and abdominal pain so bad i would

find my self waking up on the floor. that was in 99.

shortly after the fall which was in 97. I have had so

many steroid injections in my left shoulder joint and

scapula region i have lost count, now my right

shoulder is giving me fits. my right hip has OA and

have been told i will probably end up with hip

replacement within a year.

i have not had one day in the last 10 with out pain.

so when i finally asked my primary care dr last summer

to send me to someone cause i couldn't take it any

more she put me on the lexapro and sent me to Rheum.

my hubby has epilepsy and belongs to a online goup

and told me to see if i could find one on Fibro. thank

goodness i did, i for sure don't think i am crazy

anymore.

just one question how do you educate family on this

stuff?

Diane

--- LadyMoonkist wrote:

> Diane...

> So you had the electrical shock feelings also when

> your gallbladder went

> bad? That was the scariest most painful part for me.

>

> -- Re: Fwd: Re: Rice Crispy Neck

> >

> > Hi Diane,

> > I don't think I've ever heard it put that way

> > before, but I have the same

> > thing. Not all the time, but a lot of the time.

> I

> > try to tell my doctor

> > that is sounds like snaps and crackles, but I

> forgot

> > about the pop. Never

> > related it to rice crispies, but that is the

> perfect

> > description. I have a

> > pretty good range of motion at least, but it hurts

> > if I go too far, like

> > when I'm looking backward to back the car up.

> > I've also had the bad chest pains. Mine are

> just

> > below the breast bone

> > and then continue down the side of my abdomen.

> I've

> > been to the emergency

> > room it has been so bad.

> > Thankfully I don't have a sensation of walking

> on

> > glass, but if I don't

> > wear just the right shoes my hips hurt terribly.

> My

> > left hip hurts anyway.

> > My hands and particularly my feet have spasms and

> > cramps that come out of

> > nowhere. I do have involuntary shakes too.

> > Aren't you glad to hear all of this. I guess it

> > might be good to know you

> > are not alone, but I guess they are symptoms of

> > fibromyalgia, although who

> > knows anymore.

> > ttfn,

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> > 1. While it is wonderful to share our experiences

> > with everyone on the list as to what treatments do

> > and don't work for us, pls always check with your

> > dr. Some treatments are dangerous when given

> along

> > with other meds as well as to certain health

> > conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't

> > matter what it is) pls don't be afraid to ask for

> > help. It is the first step to trying to make that

> > situation better.

> >

> > 3. To unsubscribe the e-mail is:

> >

>

Fibromyalgia_Support_Group-unsubscribe

> >

> > 4. Also, it is not uncommon for more than one

> member

> > to be feeling bad at the same time when it comes

> to

> > flares and b/c of that potentially take something

> > another member says the wrong way. And that

> > includes the things that one member may find funny

> > (even if it's laughing at fibro itself) even

> though

> > we who deal with illness whether one such as fibro

> > or multiple illnesses try to keep a sense of

> humor.

> >

> > 5. Pls let's be gentle with each other, and if you

> > are having a bad day pls let us know so that we

> can

> > do our best to offer our support.

> >

> > Have a nice day everyone.

> >

> >

[Guest guest]

In theory that would be a great idea, in reality those who need it most would

say they have better things to do than listen to a bunch of 'losers' whine. I

often think they deliberately refuse to 'get it'. They don't care. If it doesn't

affect their own lives...or sometimes, even if it does, but indirectly, they

consider us a 'waste of time', as Liz basically said straigh out to me.

Peace and Love

Caroline

> Caroline...

>

> I think what gets " normal folks " the most, is that we don't look sick..

> although I do have a lot of days, I do look sick. I'm pale, tired

> looking,

> grimace a lot. But the next day, sometimes that all can go away and I

> look

> fine.

>

> Its a wicked thing we deal with, and its wonderful to have groups like

> this.

> Maybe some of our friends should join some groups like this and just sit

> back and read what we live with.

> . K.

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[Guest guest]

Well I don't think I would want folks like that around me after all. Ya

know? A true friend sticks beside you through thick and thin.

-- Re: Fwd: (Diane) Re: Rice Crispy Neck

In theory that would be a great idea, in reality those who need it most

would say they have better things to do than listen to a bunch of 'losers'

whine. I often think they deliberately refuse to 'get it'. They don't care.

If it doesn't affect their own lives...or sometimes, even if it does, but

indirectly, they consider us a 'waste of time', as Liz basically said

straigh out to me.

Peace and Love

Caroline

> Caroline...

>

> I think what gets " normal folks " the most, is that we don't look sick..

> although I do have a lot of days, I do look sick. I'm pale, tired

> looking,

> grimace a lot. But the next day, sometimes that all can go away and I

> look

> fine.

>

> Its a wicked thing we deal with, and its wonderful to have groups like

> this.

> Maybe some of our friends should join some groups like this and just sit

> back and read what we live with.

> . K.

____________________________________________________________

GET FREE SMILEYS FOR YOUR IM & EMAIL - Learn more at http://www.crawler

com/smileys

Works with AIM®, MSN® Messenger, Yahoo!® Messenger, ICQ®, Google Talk™ and

most webmails

1. While it is wonderful to share our experiences with everyone on the list

as to what treatments do and don't work for us, pls always check with your

dr. Some treatments are dangerous when given along with other meds as well

as to certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't

be afraid to ask for help. It is the first step to trying to make that

situation better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at

the same time when it comes to flares and b/c of that potentially take

something another member says the wrong way. And that includes the things

that one member may find funny (even if it's laughing at fibro itself) even

though we who deal with illness whether one such as fibro or multiple

illnesses try to keep a sense of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls

let us know so that we can do our best to offer our support.

Have a nice day everyone.