Charlie ...Re: My wife was just diagnosed, and we are moving.

[Guest guest]

Hi Charlie ... I am a brand new member and haven't even posted to the

group yet and I hope I will be forgiven for just jumping right in

without an introduction but I wanted to pass on a suggestion that

might help your sweet wife, " Babs " . It may not work because different

things work for different people but if there's even a small chance

that it might work I would feel bad if I did not share it with you.

Restorative sleep is almost impossible for people with FMS which is

so sad because good sleep is one of the best things we can do. I have

had FMS for over ten years and not being able to sleep was huge

problem. It takes forever to get to sleep and then you wake up a

dozen times a night.

My solution happened quite by accident. My daughter gave me one of

those little machines that makes different sounds ...ocean, rain,

summer night, waterfall, etc. because she knows I love the sound of

rain. The first night I turned it on when I went to bed and fell

asleep listening to the sound of rain. It took a couple of nights to

get used to it but now I usually fall asleep within 5-10 minutes. I

don't know how I could ever live without it. I have had it for almost

a year and it has improved the quality of my sleep. It runs on

electric (not batteries) so it runs all night and I sleep through the

night without waking up. It was a true blessing and I wish that it

would work for everyone like it does for me.

I would also like to say that it is so caring of you to seek help for

your wife from the group. There are so many of us that do not have a

caring partner that will even try to understand how we feel. It is

refreshing to see that you are so dedicated to your wife and her well

being.

I have been doing a bit of reading to understand the " feel " of how

things work here and it didn't take very long to find out that there

are many caring people here to give comfort to you and your wife.

They are very knowledgeable about medications, therapy and many

others things that they very willing to share.

The world mourns over the loss of such a lovely and special person

such as Benazir Bhutto but it is more personal for your wife ...

please tell her she is not alone in her grief. Please give her a big

soft hug and let her know that we care.

Hugs, Luny :]

My personal websites - not commercial

http://twistedkneads.com

http://lunytuner.wordpress.com/

Charlie wrote >>>What I know about Fibro: the best things to do are

to get regular exercise and to get help to get restorative sleep. It

sounds like people use all kinds of different methods and substances

to control their pain. When there is time, I will read through all

the posts and find out about all of this for my wife <<<

[Guest guest]

Do you know where your daughter bought it? I have a fountain, which I love,

it's made to dispense aromatherapy oils into the air as well as look and sound

beautiful, HOWEVER....I can't sleep with it on. It makes me get up and pee about

a half dozen times at night. I know it's a subconcious thing, it doesn't do that

to me during the day, but nonetheless, I don't usually wake up even once during

the night when it's not running. I would love something that made ocean sounds,

and don't think it would cause the same problems. I've been looking for a CD of

ocean sounds that I really like, but haven't found one yet. What I have in mind

is the sound of the surf with the ocean birds in the background, something that

really sounds like when I really DID live on the seashore. During the summers I

would sleep outside just so I could enjoy the sounds all night long. Made for

THE sweetest dreams. And yes, many ocean birds are nocturnal, so I did hear them

most of the night. I would love to live on a houseboat, but know it's too much

work for me now even if I could afford to do so. At least with the machine or a

good CD I could dream about it most nights.

Peace and Love

Caroline

> Hi Charlie ... I am a brand new member and haven't even posted to the

> group yet and I hope I will be forgiven for just jumping right in

> without an introduction but I wanted to pass on a suggestion that

> might help your sweet wife, " Babs " . It may not work because different

> things work for different people but if there's even a small chance

> that it might work I would feel bad if I did not share it with you.

>

> Restorative sleep is almost impossible for people with FMS which is

> so sad because good sleep is one of the best things we can do. I have

> had FMS for over ten years and not being able to sleep was huge

> problem. It takes forever to get to sleep and then you wake up a

> dozen times a night.

>

> My solution happened quite by accident. My daughter gave me one of

> those little machines that makes different sounds ...ocean, rain,

> summer night, waterfall, etc. because she knows I love the sound of

> rain. The first night I turned it on when I went to bed and fell

> asleep listening to the sound of rain. It took a couple of nights to

> get used to it but now I usually fall asleep within 5-10 minutes. I

> don't know how I could ever live without it. I have had it for almost

> a year and it has improved the quality of my sleep. It runs on

> electric (not batteries) so it runs all night and I sleep through the

> night without waking up. It was a true blessing and I wish that it

> would work for everyone like it does for me.

>

> I would also like to say that it is so caring of you to seek help for

> your wife from the group. There are so many of us that do not have a

> caring partner that will even try to understand how we feel. It is

> refreshing to see that you are so dedicated to your wife and her well

> being.

>

> I have been doing a bit of reading to understand the " feel " of how

> things work here and it didn't take very long to find out that there

> are many caring people here to give comfort to you and your wife.

> They are very knowledgeable about medications, therapy and many

> others things that they very willing to share.

>

> The world mourns over the loss of such a lovely and special person

> such as Benazir Bhutto but it is more personal for your wife ...

> please tell her she is not alone in her grief. Please give her a big

> soft hug and let her know that we care.

>

> Hugs, Luny :]

> My personal websites - not commercial

> http://twistedkneads.com

> http://lunytuner.wordpress.com/

>

> Charlie wrote >>>What I know about Fibro: the best things to do are

> to get regular exercise and to get help to get restorative sleep. It

> sounds like people use all kinds of different methods and substances

> to control their pain. When there is time, I will read through all

> the posts and find out about all of this for my wife <<<

>

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> 1. While it is wonderful to share our experiences with everyone on the

> list as to what treatments do and don't work for us, pls always check

> with your dr. Some treatments are dangerous when given along with other

> meds as well as to certain health conditions or just dangerous in

> general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls

> don't be afraid to ask for help. It is the first step to trying to make

> that situation better.

>

> 3. To unsubscribe the e-mail is:

> Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling bad at

> the same time when it comes to flares and b/c of that potentially take

> something another member says the wrong way. And that includes the

> things that one member may find funny (even if it's laughing at fibro

> itself) even though we who deal with illness whether one such as fibro or

> multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad day

> pls let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>

>