Re: joann/ketamine

[Guest guest]

Thank you so much Amy for the reply. I guess not recalling but you are

getting or did have a 5 day infusion now you go in for so many hours once a

week? Was wondering how many hours the infusion is and when you have it

does it bring any side affects? Does someone have to take you home?

Also, sorry to bother you like this but, do you know if I got a 2 day

infusion how well it is suppose to work and if it works for Fibro also as

that is what put me in total permanent disability. So really fight for that

as much as rsd relief. Thanks again and don't worry if busy and not feeling

well about how long takes to reply. Just have good day.

And thanks for asking about . She actually is doing badly and not sure

what will happen. So need her to get the Ketamine or the Lidocaine or both

together. How do you know which is best??????

Hugs

JoAnn

s Momma

joann/ketamine

> hi joann. how are you doing? i know it's frustrating that ketamine

> isn't available across the US yet. i spoke to my doc and he said it

> got approved by the FDA for continual infusions, but so far the FDA

> is only allowing it to be done for 2 days only. he and dr.

> shwartzman are pleading their case to the FDA, as the five-day

> infusion, they believe, is much more beneficial than the two-day the

> FDA is allowing. so keep your fingers crossed and of course, don't

> ever stop looking up. love to you and kelly X

> amy

>

>

>

[Guest guest]

>

hi joann. it's no problem about you asking! i'm happy to give info

to others about it. i think it's the best treatment (for me) that i

ever had. i had a similar procedure as the lido (bapuvacaine)

intrapleural catheter for five days, but the ketamine blows this out

of the water as far as i'm concerned.

i have fibro too. actually i said before that my doc thinks they

are the same illness, RSD and fibro. either way, my fibro is gone i

guess, if that's what made me tired. i rarely take naps anymore.

and all that muscle pain is gone too. i read one testimony where

someone that had the ketamine procedure still has fibro symptoms,

but his was done using dr. harbut's " awake method " , and as far as i

know, has not received any boosters. my boosters last 4 hours and

this is my last week at 2 per week. starting next week i will be

going for one a week for four weeks, then i will go every five

weeks, then six, and maybe get to one every six months or more! if

my pain gets worse, the frequency of the boosters will increase.

yes, you need a ride home. it's an anesthetic and has the potential

to impair your judgement and reaction time. it's just like it was

with the stellate ganglion blocks. but more so.

the side effects aren't too bad, but of course there has not been

any long term studies using ketamine this way on humans. i don't

know if the two-day infusion will have the benefits of the five-

day. i think my doc believes that the answer is no, which is why he

is pushing to make the five-day the protocol with the FDA.

i'm not sure what lori is having done. i think i read where hers is

a mixture of ketamine and lidocaine. i am only receiving ketamine

at this time. i was in the hospital for five days last month, but

the big plus here is it is administered through an IV as opposed to

a catheter that they use for lidocaine. it is very non-invasive by

comparison. also too, when i had my bapuvacaine procedure, my fibro

symptoms hadn't decreased as much as now. not even close.

i truly hope that this will be an option for everyone soon. as my

case manager says " God bless Dr. Getson " . i couldn't agree more.

tell kelly not to despair. when things are at their worst, they can

only get better. she is so lucky to have a loving caring mom like

she does. i'm hoping she feels better soon.

love,

amy