Re: ( Caroline) Intro

[Guest guest]

Hi Caroline...

Yes I was tested for lupus, results were no...It was suggested I try

ProActive, and I did, and it makes me go into a flare for some reason. Must

be all the chemicals in it, but when I did use it, it worked.

I only started taking pain meds November of last yr...so I don't know a lot

about them. My pain was so intense, it would make my blood pressure sky

rocket, the doc thought I was having a heart attack in his office and called

the ambulance....ended up, after almost a yr of tests and such, my

gallbladder was rotten and poisoning my system....I did feel a lot better

after they took it out, no more vomiting, severe chest pains, and such...

while I was there, I made the joke to cut out my fibromyalgia ... Too bad

that cant happen.

Gentle hugs,

-- Re: Intro

Have you been tested for Lupus? A facial rash can sometimes be a symptom of

that. It does not always have to be the classic 'butterfly' rash. I know I'm

not a doctor, but sometimes symptoms we don't even think of mentioning to

our doctors cos they seem so trivial can be significant. Just a thought

I also know that either the CFS or the fibro has 'broken' my body's

thermostat'. I have a very hard time being comfortable. One minute I'm

freezing, and the next I'm sweating. I really hate that. I am forever

changing the furnace or AC settings, and piling on or throwing off clothing.

None of my meds work during a flare either, or at least not well. Luckily I

have Klonopin and can use it on an 'as needed' basis, it is something I

usually save for 'emergency' situations. It will still allow me to sleep

quite well during a flare.

Peace and Love

Caroline

> Hi Debi! And thanks for the warm welcome.

>

> I understand the hair part, I recently cut mine short also, it barely

> touches my shoulders. I get the headaches too, and to me, that's one of

> the

> things about the problems I like the least. I always get so dizzy and

> spacey

> feeling.

>

> Does anyone else get red rash on their face off and on? Not bad...but its

> itchy, dry and goes away if I scrub my face with a thyme solution.

>

> My meds help...but when the flares hit really hard, they dont...like now.

> I

> cant sleep due to the pain and discomfort. I cant stay warm enough, then

> I

> cant get cool fast enough. I don't know, I may have a touch of the flu

> this

> time around.

>

> Gentle hugs...

>

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1. While it is wonderful to share our experiences with everyone on the list

as to what treatments do and don't work for us, pls always check with your

dr. Some treatments are dangerous when given along with other meds as well

as to certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't

be afraid to ask for help. It is the first step to trying to make that

situation better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at

the same time when it comes to flares and b/c of that potentially take

something another member says the wrong way. And that includes the things

that one member may find funny (even if it's laughing at fibro itself) even

though we who deal with illness whether one such as fibro or multiple

illnesses try to keep a sense of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls

let us know so that we can do our best to offer our support.

Have a nice day everyone.