Re: Anyone with VV have suCcess with lidocaine injections?

[Guest guest]

I actually had tried the lidocaine/steroid injections into areas of

pain BEFORE I had the vestibulectomy. It helped very slightly but not

even near enough to be able to attempt intercourse. Mine was just

contact pain so it is hard to say if it would work for others or not.

It was very, very painful, I will not lie, since they are doing

injections exactly where your worst pain is...ouchy! but they do have

numbing cream they can put on first before they inject and that helps

a bit. i had to hold someones hand to squeeze or I would have gone

off the table. but i was willing to try anything. i went 4 times

over an 8 month period and it didn'd help me which is why i had the

surgery. good luck! stacy

>

> My doctor said lidocaine injections were the next step. I've had the

> vestibulectomy but still have constant (albeit much less) pain. Has

> anyone had any success with lidocaine injections? Are they very

> painful? How often did you go?

>

> I've been through so many failed treatments that I can barely raise

> my hopes up enough to even bother going to the doctor. Out of a

dozen

> treatments, the vestibulectomy is the only thing that I would

> recommend to anyone with this disorder.

>

[Guest guest]

,

I've had Lidocaine given in a nerve block before as part of a

trigger point injection (where they do it thru a muscle) and I

found it very helpful.

I'm on the search right now to find out how damaged the nerves

to my vulvar area are thanks to a surgery I had 10 years ago

that caused the vulvodynia to begin with and also rule out RSD

then later check to see if I have IC, check my thyroid to make

sure it's working ok and if not treat that to see if it clears

up some of the other pieces to my health puzzle.

I did have a bit of pain during the injection but I knew to

expect that b/c that meant that the area that the pain was at

she (my Pain Management dr) had pressed on was right on.

Kristy

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[Guest guest]

I've been doing roughly weekly lidocaine injections for the last

three months. They do them intravaginally direclty into the tight

muscles. I had been doing PT for almost a year and had muscles that

were just refusing to relax. My PT thinks that the lidocaine plus

PT will help them to relax over time. I've had some success, but the

muscles are very likely to rebound back to being tight even after

they've relaxed for a period.

To be honest, the injections are very painful and as a result

emotionally difficult. They have gotten more tolerable over time,

but I am not sure whether that is because the muscles are more

relaxed (my PT says that makes them less painful) or because I am

just more able to tolerate them. There is no pain after, just while

they are doing the injections. Given the amount of pain involved, I

wouldn't do them unless you are at the end of your rope with this

stuff and out of ideas. That is where I was when I started them. I

wasn't able to work because of the sitting and I'd tried lots and

lots of other things. If you've had surgery, I'm guessing you are at

the same place.

Does anyone have any thoughts about the role of exercise? I was a

runner before I started with the vulvar pain and always relied on

exercise to keep my muscles limber and my energy up. I haven't

exercised for real in the last 2.5 years. I walk my dog every day

and try to go for long walks when the weather is nice and recently

I've been doing slow flow yoga, but that is all -- and I'm only 30.

I'm considering trying to force myself to go back to working out,

thinking that it will help with relaxing my pelvic floor muscles.

But I am really scared that I'm going to end up hurting myself. Does

anyone have any thoughts???? Has anyone found resuming exercise

helpful???

Thanks!

> >

> > My doctor said lidocaine injections were the next step. I've had

the

> > vestibulectomy but still have constant (albeit much less) pain.

Has

> > anyone had any success with lidocaine injections? Are they very

> > painful? How often did you go?

> >

> > I've been through so many failed treatments that I can barely

raise

> > my hopes up enough to even bother going to the doctor. Out of a

> dozen

> > treatments, the vestibulectomy is the only thing that I would

> > recommend to anyone with this disorder.

> >

>

[Guest guest]

Kristy, Thanks for your response. I'm happy that it helped. I don't know what trigger point means. Did the injection go deep, or was it shallow in the skin itself? I'm sorry that you are having so many other health problems. I've come to learn from this whole experience that it takes so long to reach the end of referrals to the person that can actually help. And that delay in effective treatment leaves the door open for other problems to creep in. Everyday I wake up and feel the pain and cry because it hits me in the stomach how much I have suffered and how much I am likely to suffer for months or more likely years to come. Kristy Sokoloski wrote: ,I've had Lidocaine given in a nerve block before as part of atrigger point injection (where they do it thru a muscle) and Ifound it very helpful.I'm on the search right now to find out how damaged the nervesto my vulvar area are thanks to a surgery I had 10 years agothat caused the vulvodynia to begin with and also rule out RSDthen later check to see if I have IC, check my thyroid to makesure it's working ok and if not treat that to see if it clearsup some of the other pieces to my health puzzle.I did have a bit of pain during the injection but I knew toexpect that b/c that meant that the area that the pain was atshe (my Pain Management dr) had pressed on was right

on.Kristy __________________________________________________________Bored stiff? Loosen up... Download and play hundreds of games for free on Yahoo! Games.http://games.yahoo.com/games/front

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[Guest guest]

Hi , Thanks for your respnse. I guess I am doing things backwards, since I already had the vestibulectomy! my pain was quite intense and it was all the time, so I think that's why my doctor felt it was justified to skip ahead to the most helpful, albeit invasive, treatment. Now I am trying to piece together the other treatments to get the pain down more. Did the injection go deep, or was it just under the skin? schontis wrote: I actually had tried

the lidocaine/steroid injections into areas of pain BEFORE I had the vestibulectomy. It helped very slightly but not even near enough to be able to attempt intercourse. Mine was just contact pain so it is hard to say if it would work for others or not. It was very, very painful, I will not lie, since they are doing injections exactly where your worst pain is...ouchy! but they do have numbing cream they can put on first before they inject and that helps a bit. i had to hold someones hand to squeeze or I would have gone off the table. but i was willing to try anything. i went 4 times over an 8 month period and it didn'd help me which is why i had the surgery. good luck! stacy>> My doctor said lidocaine injections were the next step. I've had the >

vestibulectomy but still have constant (albeit much less) pain. Has > anyone had any success with lidocaine injections? Are they very > painful? How often did you go? > > I've been through so many failed treatments that I can barely raise > my hopes up enough to even bother going to the doctor. Out of a dozen > treatments, the vestibulectomy is the only thing that I would > recommend to anyone with this disorder.>

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[Guest guest]

Hi . Wow, I am sorry you are still having pain after having a vestibulectomy. I also have alot of issues down there below, I have the vulvo vestibulitis pain and burning, and itching at times. Also I have IC which is VERY painful and makes everything so much worse. The IC pain is the worst for me though. I was talking to my gyne the other day and she was telling me that years ago they were doing vestibulectomies on women who have this pain, but she also said that it really will not help the pain they have found out that women who have this done are still having pain afterwards. I hope they can come up with a good treatment for this so women wont have to suffer so much. I hope you find something that helps you. Jen Coons wrote: Hi , Thanks for your respnse. I guess I am doing things backwards, since I already had the vestibulectomy! my pain was quite intense and it was all the time, so I think that's why my doctor felt it was justified to skip ahead to the most helpful, albeit invasive, treatment. Now I am trying to piece together the other treatments to get the pain down more. Did the injection go deep, or was it just under the skin? schontis <schontismsn> wrote: I actually had tried the lidocaine/steroid injections into areas of pain BEFORE I had the vestibulectomy. It helped very slightly but not even near enough to be able to attempt intercourse. Mine was just contact pain so it is hard to say if it would work for others or not. It was very, very painful, I will not

lie, since they are doing injections exactly where your worst pain is...ouchy! but they do have numbing cream they can put on first before they inject and that helps a bit. i had to hold someones hand to squeeze or I would have gone off the table. but i was willing to try anything. i went 4 times over an 8 month period and it didn'd help me which is why i had the surgery. good luck! stacy>> My doctor said lidocaine injections were the next step. I've had the > vestibulectomy but still have constant (albeit much less) pain. Has > anyone had any success with lidocaine injections? Are they very > painful? How often did you go? > > I've been through so many failed treatments that I can barely raise > my hopes up enough to even bother

going to the doctor. Out of a dozen > treatments, the vestibulectomy is the only thing that I would > recommend to anyone with this disorder.> Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers.

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[Guest guest]

,

Trigger point injections are just another way to get medication

such as a vaccine. On charts they will sometimes list as

intramuscular b/c when the injection is given it is going thru

muscle.

I'm not doing the lidocaine right now as far as injections but

if I do the kind of block I may eventually be looking at I hope

that they will do it with the lidocaine b/c it was the one that

helped the most.

I have a wonderful gyn who is helping me thru this maze,

especially with this newer pain issue I'm contending with.

Kristy

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[Guest guest]

Hi ,

I have been worried about you and glad to see you are still part of

the group. I have sent you several private emails - but maybe you

haven't gotten them. I know you were hoping that the

injections/blocks would help you, but the last I heard you were

having only blocks done once a month. Are you still seeing Dr.

Quesada at the pain clinic in NH? I am starting PT in March, and I

was so hoping that the combination of the blocks and the PT would get

you back to work, and give some of us some hope. I hope that you find

something more that will help you, and don't give up. Hoping to hear

from you.

nne

>

>

> I've been doing roughly weekly lidocaine injections for the last

> three months. They do them intravaginally direclty into the tight

> muscles. I had been doing PT for almost a year and had muscles that

> were just refusing to relax. My PT thinks that the lidocaine plus

> PT will help them to relax over time. I've had some success, but

the

> muscles are very likely to rebound back to being tight even after

> they've relaxed for a period.

>

> To be honest, the injections are very painful and as a result

> emotionally difficult. They have gotten more tolerable over time,

> but I am not sure whether that is because the muscles are more

> relaxed (my PT says that makes them less painful) or because I am

> just more able to tolerate them. There is no pain after, just

while

> they are doing the injections. Given the amount of pain involved,

I

> wouldn't do them unless you are at the end of your rope with this

> stuff and out of ideas. That is where I was when I started them.

I

> wasn't able to work because of the sitting and I'd tried lots and

> lots of other things. If you've had surgery, I'm guessing you are

at

> the same place.

>

> Does anyone have any thoughts about the role of exercise? I was a

> runner before I started with the vulvar pain and always relied on

> exercise to keep my muscles limber and my energy up. I haven't

> exercised for real in the last 2.5 years. I walk my dog every day

> and try to go for long walks when the weather is nice and recently

> I've been doing slow flow yoga, but that is all -- and I'm only

30.

> I'm considering trying to force myself to go back to working out,

> thinking that it will help with relaxing my pelvic floor muscles.

> But I am really scared that I'm going to end up hurting myself.

Does

> anyone have any thoughts???? Has anyone found resuming exercise

> helpful???

>

> Thanks!

>

>

>

> > >

> > > My doctor said lidocaine injections were the next step. I've

had

> the

> > > vestibulectomy but still have constant (albeit much less)

pain.

> Has

> > > anyone had any success with lidocaine injections? Are they very

> > > painful? How often did you go?

> > >

> > > I've been through so many failed treatments that I can barely

> raise

> > > my hopes up enough to even bother going to the doctor. Out of a

> > dozen

> > > treatments, the vestibulectomy is the only thing that I would

> > > recommend to anyone with this disorder.

> > >

> >

>

[Guest guest]

Well, thanks everyone for sharing your own experiences and weighing in. I never get my hopes up anymore. It seems that I have tried everything. I saw a girl on the subway today with a beautiful engagement ring. I burst into tears right then and there, thinking I'll never have that. The true weight of what I have been robbed of is starting to hit me. solittletimeleft wrote: Hi ,I have been worried about you and glad to see you are

still part of the group. I have sent you several private emails - but maybe you haven't gotten them. I know you were hoping that the injections/blocks would help you, but the last I heard you were having only blocks done once a month. Are you still seeing Dr. Quesada at the pain clinic in NH? I am starting PT in March, and I was so hoping that the combination of the blocks and the PT would get you back to work, and give some of us some hope. I hope that you find something more that will help you, and don't give up. Hoping to hear from you.nne>> > I've been doing roughly weekly lidocaine injections for the last > three months. They do them intravaginally direclty into the tight > muscles. I had been doing PT for almost a year and had muscles that > were just refusing to relax. My PT thinks that the lidocaine plus > PT will help them to relax over time. I've had some success,

but the > muscles are very likely to rebound back to being tight even after > they've relaxed for a period. > > To be honest, the injections are very painful and as a result > emotionally difficult. They have gotten more tolerable over time, > but I am not sure whether that is because the muscles are more > relaxed (my PT says that makes them less painful) or because I am > just more able to tolerate them. There is no pain after, just while > they are doing the injections. Given the amount of pain involved, I > wouldn't do them unless you are at the end of your rope with this > stuff and out of ideas. That is where I was when I started them. I > wasn't able to work because of the sitting and I'd tried lots and > lots of other things. If you've had surgery, I'm guessing you are at > the same place. > > Does anyone have any thoughts about the

role of exercise? I was a > runner before I started with the vulvar pain and always relied on > exercise to keep my muscles limber and my energy up. I haven't > exercised for real in the last 2.5 years. I walk my dog every day > and try to go for long walks when the weather is nice and recently > I've been doing slow flow yoga, but that is all -- and I'm only 30. > I'm considering trying to force myself to go back to working out, > thinking that it will help with relaxing my pelvic floor muscles. > But I am really scared that I'm going to end up hurting myself. Does > anyone have any thoughts???? Has anyone found resuming exercise > helpful???> > Thanks! > > > > > >> > > My doctor said lidocaine injections were the next step. I've had > the > > > vestibulectomy but still have constant (albeit much less) pain. > Has > > > anyone had any success with lidocaine injections? Are they very > > > painful? How often did you go? > > > > > > I've been through so many failed treatments that I can barely > raise > > > my hopes up enough to even bother going to the doctor. Out of a > > dozen > > > treatments, the vestibulectomy is the only thing that I would > > > recommend to anyone with this disorder.> > >> >>

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[Guest guest]

i tried them three tmes and twice it relaxed my muscles so much, i pooped myself, plus it was traumatic to get shots in my vagina. did not like the numb feeling at all.

[Guest guest]

i had the injections into the areas of pain where they did it about

1/2 in deep and then they tried it into the muscle about 1 in deep to

reach most of the muscle. i also tried botox to help loosen the

muscle and that too did not work. Just a little in the beginning but

i had pain upon entry so it never allowed me past to reach the muscle.-

-- In VulvarDisorders , Coons

wrote:

>

>

> Did the injection go deep, or was it just under the skin?

>

[Guest guest]

-daily walks and regular yoga sounds like decent exercise to me. I'm 30 and I do relaxing yoga 1x per week, weight lifting 1x per week and cardio (walking, elliptical, recumbant bike) 3x per week. I think that certain exercises (abdominals, pilates, dance, etc.) can exacerbate v pain. Are you in pt at all? I have just started taking belly dancing lessons with the hope of it helping me RELAX my very tight stomach muscles. My pt said that most of her vulvadynia patients are type a personalities and also athletes and dancers-more muscle tension in the pelvic area can contribute to v pain. Lindsey

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[Guest guest]

<Trigger point injections are just another way to get medicationsuch as a vaccine> my pain management doc and pt said that trigger point injections also were used to help "break up" (I can't remember the term they used) knots of muscle, along, of course, with injecting the lidocaine. Lindsey

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