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Actually, if you have a lawyer, W/C Case Managers are not allowed to talk to you straight thru any longer. They are supposed to talk to your lawyer and then your lawyer is supposed to relay the message to you, OR, it is supposed to be a 3-way phone call, where you and the case manager can talk, but your lawyer is on the line to make sure that the Case Manager doesn't try to get info out of you or that you don't tell them anything that they really don't need to know.

Tonia

-------Original Message-------

hi. that really stinks no doc approved it, can you be seen on monday? maybe your case mgr. can push it thru for you?? do you have a lawyer? when i was having a hard time getting my K approved, i told her that either she gets it approved or i'll sick my "attack dog" on her company, with monetary compensation of course! next thing ya know, i was approved!! maybe it's worth a shot. i'll keep ya in my thoughts wishing you can get relief ASAP!!love,amy

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hi donna. i'm glad to hear she helped you out! that is her job

afterall!! maybe what tonia says is true about w/c cases. i didn't

have one of them. and i was never gonna sue them for money...it was

a bluff that happened to work out. insurance companies don't want

to pay one more red cent than they have to! good luck on tuesday!!

love,

amy

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good luck on tuesday!!

>

Thank you Amy! This is my third one in about 6 weeks...this time

around I cant wait to do it just to get a few days relief if nothing

else.

My hands burn like crazy today and my joints are stiff from the

excessive rain.

Hugs

Donna

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hi donna. the most relief i ever got from SGBs was when they did a series of three, it can really bump it back! i know about the rain...here too. where are you? i'm in nj. i hope these blocks make you feel lots better :)

love,

amy Get ready for school! Find articles, homework help and more in the Back to School Guide!

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> Donna, that is so sad. How old was she?

Not all that old really...early 60's at the oldest

It is said that doctors make worse

> patients and guess maybe that is true.

YES, they DO make the worst patients....my PCP fell down the steps

during the winter and broke his femur and tried to SET it himself!!!!

Ended up doing far worse damage!!

I'm working on getting a new Dr but sadly most arent accepting new

patients at the moment, and those that are, their visits are 3-6

months out....Gesh!

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> We have all paid the price from time to time...we understand.

Please do

> call your doc tomorrow and suggest help with the nausea...I don't

know how I

> would manage without my Reglan!

>

I have to go there and pick up a script for a bonescan so I will ask

him then for something. I need something or Im not taking that

stuff..I was sick almost for almost 24 hrs after taking 2 doses of

it..no thanks!

Hugs

Donna

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> Glad to hear that your injection today (oops, more like yesterday

> considering the time) was better than the last. The continued

burning sucks

> but a pain level of 2 has been my goal for so long

Hi Teri

I had some pain in my neck and shoulders yesterday afternoon for

which I ended up taking some vicodan for. Its not too bad today

(about 4) but still not great considering its my 4th

injection,hopefully once Im up and moving more the achiness will

subside.

>

so I believe my current return to

> work date is November 1st. They also including in their notice to

my

> employer that this was only an estimated date. I think once they

get a

> little farther in your treatment they will be able to see a little

farther

> into the future based on results of your previous treatments. Did

that make

> sense....

Yup, it made sense to me LOL. I am hoping that when he said yesterday

we would discuss " options " he was working towards that goal. I have

no idea what those options might be and can only guess. I'd like a

return date goal as something to strive towards, Im still for the

most part physically able to do alot, it just takes me longer and I

tire more easily. My old job I highly doubt I will ever see but who

knows.

Thank you though for giving me a little glimmer of hope taht not all

is a total loss from this just yet.

Love

Donna

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Donna - Please don't go this route. When they talk about cauterizing the sympathetic nerve (there is no such nerve) they are really talking about cauterizing the sympathetic ganglion. There are a couple of ways of doing this.....one is by injecting phenol or a similar chemical into several places along the sympathetic ganglion/chain It's called a chemical sympathectomy. The other way is to use radio frequency (called a radio freuqency sympathectomy). Finally there is also the surgical sympathectomy.

I had a chemical sympathectomy done years ago (they did mine with phenol). I got a fairly good reduction in symptoms for about 4 months. I then had one of the biggest flares that I've ever had....and as they say, the RSD came back with a vengeance. The current docs that I see now were blown away when they heard that a doc had tried the chemical sympathectomy. They said that back then many things were mistakenly tried but were later found to not be good options.

Cauterizing the sympathetic chain is a very different thing, and with a very different outcome, than the surgery that they do to deal with a neuroma. With a neuroma, cauterizing the nerve or removing a portion of it and then burying the nerve endings into the bone or muscle, is a very acceptable procedure. It too have had that done in my arm in several places and had good results. A different breed of beast than doing either a chemical or radio frequency sympathectomy. Barbara

Donna wrote::

, one thought my pain management dr discussed VERY BRIEFLY was to cauterize the sympathetic nerve, Ive read about it but I havent heard of anyone having it done on here

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> Cauterizing the sympathetic chain is a very different thing, and

with a very different outcome, than the surgery that they do to deal

with a neuroma. With a neuroma, cauterizing the nerve or removing a

portion of it and then burying the nerve endings into the bone or

muscle, is a very acceptable procedure. It too have had that done in

my arm in several places and had good results. A different breed of

beast than doing either a chemical or radio frequency sympathectomy.

He hasnt gone too deeply into details yet, said we would discuss it

later, later when I dont know. I see him Tuesday for the last

injection and then I dont see him for 2 weeks and usually thats his

nurse practioner not him. But at least Im armed with some very useful

information thanks to all of you!

Hugs

Donna

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> In a message dated 8/28/04 7:57:12 AM Pacific Daylight Time,

> RSD-CRPSofAmerica writes:

>

> Hi Donna,

> When did you get hurt?

Hi Jai, I was injured on 10/01/04

I guess it was at work as you are on w/c.

Yup.

Did you

> have a fall? Nope.

The injury was sustained if you can believe it by a " lil " old

lady..with Alzheimers! They have no concept of pain infliction and

dont know when to stop nor do they realize or remember that they hurt

you.

Have you had a dx of RSD or is

> that why they did the scan?

My pain management dr has been treating me as RSD for the last 3

months. The w/c utlization review wants the bone scan done.

I know with RSD there is really no definite test and

> sometimes it is dx'd on the symptoms.

That is what mine has been based on, symptoms shown in his office at

my first visit which was supposed to be innocent cortizone injections

and has escaleted to this.

This is why a lot of people suffer

> needlessly because w/c and insurance companies wont pay unless

there is a

> specific diagnosis.

Insurance has been great about accepting bills for this but they

definetely want a specific diagnosis.

>

> " For the outside world it is difficult to understand that such a

small matter

> can lead to such serious complaints. RSD is and illness which can

lead to

> serious handicaps. People suffering from it are not always

understood by their

> circle of acquaintances or even looked upon as affected persons.

That is

> because on the outside often little or few symptoms are visible in

spite of the

> serious pain and the problems dealing with sense and movement. "

>

Thats a very accurate statement, thank you for posting it Jai.

Thank you for your thoughts and prayers as well, they are greatly

appreciated.

Love

Donna

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  • 1 year later...

Hi Donna,

WooooHoooo Donna, congratulations on the apporval!!!! I am sorry that we did

not acknowledge your post. Sometimes you may have to repost, many posts come

through here and it could be either over looked by accident or maybe there was a

glitch and it did not post. We would love to be here for you, sorry for that.

I didn't use anything I took to the hospital with me except comfortable

clothes to come home in and CHAPSTICK!!!! you will want that!

Best Wishes,

Shauna

angels9962 wrote:

Hi everyone,

I don't know if anyone remembers me-my new member info was posted

about a week ago, but nobody acknowledged it, so maybe there was a

problem with it. Anyway, I just found out I've been approved. My

date for surgery is Aug. 21. This Monday. I started seeing all the

drs. and getting the paperwork on May 3,2006, So it took about 3 1/2

months. Not bad. I still didn't lose the 10 lbs I was supposed to

before surgery, so they put me on the liquid diet and the dr. said to

just lose as much as I can. My husband will be taking my 14 year old

and my 9 year old to Calif. to visit his family Thursday, so I'll just

be home with my 19 year old. I'm so glad because now I won't be have

to smell the good foods cooking when I get home. They're coming home

the 27th of August so I should be almost back to normal by then,

right? Does anyone have any tips on what I should bring to the

hospital with me?

Donna

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