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A Christmas Hope (long)

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I believe I posted last year after hoping to begin a year of pro-

biological helps and treatments for autism. We have tried a number

of things in the past year that have all helped along the way.

I'm sure there may be a lot of criticism and concern about my post,

however I am not advocating anyone try what we try/do. At the same

time, I think all information can be " informative. "

Our 4.7 year old was a heavy stimmer last year this time. Very

little eye contact, very introverted, good tempered, but little to no

social interaction with other children or adults other than dad and

I. Very little consideration for others (stepping on another's foot

or climbing on others in his way). While he enjoyed television, he

didn't seem to understand it. Only liked the colors, and changes in

scenes etc. He had little to no language and used crying and

screaming to get his way. His attention span was very short outside

of watching television. He seemed to catch on to following directions

but had little motivation to do activities other than his own

interests. He liked blue objects and picked them out of everything.

Every now and again he picked red. Shrug. I figured something

visual/color spectrum.

We did do one hair test and probably need to do another soon.

Because of hair test and observation of his behaviors/difficulties we

tried many things.

Ionic minerals/Liquid vits and minerals/Minerals in Water/WaterOZ and

a few other brands I can't think of: Selenium, Zinc, B1, B12. All of

these seemed to help in minimal ways with overall emotional stability

and bowel funcition.

High Dose Vit A therapy. Improved eye contact and reduced stimming,

helped with bowel formation...does wear off if we let up on the

continued protocol of vitamin A each day/week/month.

We have done many rounds with ala and dmsa combos, also some with

just dmsa and some ala only. Low and frequent. We ran into what

some other parents seem to: gains the first day or so of chelation

then loss of that later in the round or no maintenance of it

afterwards.

We saw slow and steady progress with eye contact, listening,

attending to tasks the first six months of the year, but no

improvement in socialization or language understanding/retention.

After reading Amalgam Illness our family decided to try things a

little differntly: Tightening up on dose schedules, with only one

parent administering if at all possible. Being very strict about 1-3

hours inbetween dosing.

Towards the middle of the year this helped us see more improvement in

socialization, attending and beginning of understanding language.

Receptive most of all. The color red began to be chosen out in his

color choices as well as blue.

Towards the end of this year we have stuck with tight scheduling of

chelation dosing (no more than 1-3 hours in between chelation). This

meant I had to quit my part time job and focus in on what was working

best for our son. I also kept him home from pre-school, where it was

more important for them to get him " used " to the class room than to

teach him/help him to learn to speak. They said, " He will speak when

he is ready. " I pulled him out. I thot that was crap. Obviously

there were things stopping him from speaking and either he needed

intensive therapy or something else (biomedical) needed to happen to

help clear his brain so he could consentrate, remember/retain, and

express.

We could continue to go with ala/dmsa low and slow for the next few

years, but I wondered how long it would take, and if anything else

could help.

We tried three other methods/things this fall: 4 chelation/metal

pulling rounds with cilantro/dmsa. We cautiously approached this. I

read Andy's big, concerned and rightfully so post regarding cilantro,

and I took it to heart. But I also took my son's level of delay and

my concern for him if anything happens to me before his protocols

show more lasting improvements. As parents we took responsibility

for our child to try this method " low and slow " , watching carefully

each hour, each day, hoovering over our son's every action and show

of how he was feeling.

I won't detail how we used cilantro, but anyone can email me if you

want to know--also if you are willing to take your own responsibility

for your child and what you are attempting. Our take on cilantro is

this: this herb/plant is legal and available at any grocery store.

Not a lot is known about it, and high, infrequent doses can be

dangerous and do PERMANENT damage. Like ALA, and like DMSA. We were

going to treat it cautiously like any chelator, metal pulling agent,

or whatever it turned out to be to help pull mercury and other heavy

metals. We won't/don't advocate that any other parent use this

method. It was just a choice we made to try it.

Immediate results of using low administration of cilantro and

consistent dmsa doses for complete " rounds " /periods of days were in

this order: index finger pointing, sibling rivalry (taking notice,

controlling toys, territory, figuring how to push around), more color

diversity (green, purple, blue, red, pink); more sibling interaction,

helpfulness around the house, following commands, more diverse play

at playgrounds, and a lot less stimming. When these rounds ended, we

saw retention of gains at least 50-70% greater of what we had seen

with ala/dmsa.

With greater social interaction, greater memory and language attempts

we have taken long breaks in between the cilantro/dmsa " rounds. "

Breaks to see what exactly is gained/retained, and to see if there

was any damage/negative effect that can be SEEN or noted.

Unfortunately we don't have access to labs for kidney and liver

enzyme analysis like I would like. So all we can do is take long

breaks inbetween. However, gains are so marked it's like having been

on a number of rounds with ala/dmsa in that the gains are forward

moving and lasting.

As I am concerned about the brain replenishing/repairing after metal

removal in between rounds with cilantro/dmsa we use GABA, Gotu Kola,

and Bacopa. I believe these herbs affect the temporal lobe, but I

need to do more reserTo tell the truth if I had not seen the gains on

the rounds it would be harder to tell what's helping " most. " The

bacopa and gotu kola DEFINITLY helped with memory and greater ease in

language attempts. Since adding the GABA, and two herbs attention to

detail has gone up 100% and tiny things are noticed everywhere.

Another thing we just tried this month was an extended ala only round

with strict timing on doses. Every 2-3 hours of ala only. We gained

greater hand gesturing, with 7-10 days of ala only. That for sure.

He is pointing with flourish. He did seem to get sick near the end

of ten days. No fever, but after receiving zinc and other

supplements he had a day of throwing up, a little diareah. May have

been the zinc, or just too long on the round. However he had little

to no irritability, slept well, and played well.

Over all, in one year we have this summary: Lots of things tried,

lots of things long term gained. OUr son understands language and is

talking more and more. Something we didn't have last year. He

counts aloud, follows videos, tells us what candy, cookies or chips

he wants. Shares his toys with us, and on command will " share " with

younger brother (tho not happiliy! LOL), and video time.

Communicating in diverse ways. His stimming is decreased (some just

gone) by 70%. He knows the diff between smiling and crying.

Our son will try to sing more instead of screaming things out,

anticipates " discipline " when he does something he knows we don't

approve of.

It's not a perfect " healing " , but it's sooooooo much more than we had

last year this time. I felt fortunate last year, and even more this

year.

I can take my son anywhere and he only sticks out when he tries to

verbally communicate and he sounds like a baby talking. That and we

haven't made it him letting go of poo poo on the toilet. Still in

pull ups. But I'm hopeful for this year. We don't have a screamer

anymore, but a communicator. Still selfish, but he's learning not to

do unacceptable things by paying attention. He has enough attention

span to work with trainings.

We go to church and my son doesn't scream all thru service, nor cling

to me all thru. He will play in a nursery and share toys and food.

Instead of just blue toys being his favorite, he has so

many " favorite colors " that he ends up with all the toys gathered

around. Blue, red, green, pink, brown, etc.

Eye contact motivation is not " there " yet, and he still is elementary

in his sounds and word attempts, but the roots of communication are

there. He makes good sounds, repeats what we ask with a good try,

and understands more and more. He has words that he

likes, " water, " " brown " , tries to repeat phrases, etc.

I'm sure there are other supplements I've missed talking about--LIKE

another brain repairer/restorer we now use everyday, flax/borage oil

caps. Language really started forming/attempts to speak out, sing,

after beginning this. Adding Bacopa and Gotu Kola increased attempts

and seemed to keep the ball rolling.

Whew, this dealing with autism is NOT easy. Making choices on what

to try, what's working, what works best is NOT easy.

But, as a parent I can say we've made decisions and tried some

things, tried our best to be careful, and we have hope for next

year. If we can get the potty training thing down by next August

(plenty of time!), my son can surely go to kindergarten if we

choose. I really believe that's possible now. Regular kindergarten,

I hope. It's just nice to have some hope. I believe one of the

posters on this list said something like the worst thing to try is to

try nothing. I believe that. We may be on the other side. That's

just us. We actually haven't tried " everything " but a few good leads.

I'm not sure yet what we're going to do for the next year, but we

have a good enough head-start to try ala only low/frequent doses, but

perhaps on extended rounds instead of 3-4 days. Perhaps 5-10 days

unless we see stress or " negative reactions. "

Have happy holidays everyone!

Lyn

Mom to Tee, 4.7 yrs

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