hot flashes

[Guest guest]

My 10 year old daughter Mackenzie has been on the diet now since

October 27-we seemed to gain some initial control then lost it and

could not regain when we dropped pheno from 60 to 45mg and zonegran

from 500 to 400mg at the same time. Well we first went back up on

zonegran then still no control 2 weeks later and upped the pheno to

60mg. 8 days ago. Control again. As you may remember we had lots of

problems with nauseau and vomiting so dropped to 3:5-1 and better-

still sick about once a week. We have decided to not change anything

for now and see how we are this month with no changes because our

first month on keto ended up with about 80 seizures which was about

what we had the previous month. Well now for my question this

weekend Kenzie was very tired and was having what seemed like hot

flashes-facial flushing, would get very hot and dizzy, weak, would

have to sit or lay down and would say her head hurt. Did this over 2

days about 5 times. At first thought might be excessive ketosis-

hadn't vomited since Tuesday but very nauseous Sunday morning. So

Sunday gave her some sips of orange juice-seemed to do better but by

yesterday evening did it again. She always has dark ketones-we have

never been out of ketosis since starting diet and always dark purple-

no matter day or night. So now thinking side effect of meds possibly

or could we still just be too ketotic? If side effect of med could

we just be seeing. Has been on both of these meds as well as

trileptal since June. I thought possible her phenabarb level going

back up could be causing and needed to adjust to it again-that's why

so tired all of the weekend. I know this is long-sorry-just trying

to figure out the latest symptoms.

Thanks, Melinda

[Guest guest]

Probably too deep ketosis. Maybe you should drop to 3:1.

Bill

melindaclark2000 wrote:

> My 10 year old daughter Mackenzie has been on the diet now since

> October 27-we seemed to gain some initial control then lost it and

> could not regain when we dropped pheno from 60 to 45mg and zonegran

> from 500 to 400mg at the same time. Well we first went back up on

> zonegran then still no control 2 weeks later and upped the pheno to

> 60mg. 8 days ago. Control again. As you may remember we had lots of

> problems with nauseau and vomiting so dropped to 3:5-1 and better-

> still sick about once a week. We have decided to not change anything

> for now and see how we are this month with no changes because our

> first month on keto ended up with about 80 seizures which was about

> what we had the previous month. Well now for my question this

> weekend Kenzie was very tired and was having what seemed like hot

> flashes-facial flushing, would get very hot and dizzy, weak, would

> have to sit or lay down and would say her head hurt. Did this over 2

> days about 5 times. At first thought might be excessive ketosis-

> hadn't vomited since Tuesday but very nauseous Sunday morning. So

> Sunday gave her some sips of orange juice-seemed to do better but by

> yesterday evening did it again. She always has dark ketones-we have

> never been out of ketosis since starting diet and always dark purple-

> no matter day or night. So now thinking side effect of meds possibly

> or could we still just be too ketotic? If side effect of med could

> we just be seeing. Has been on both of these meds as well as

> trileptal since June. I thought possible her phenabarb level going

> back up could be causing and needed to adjust to it again-that's why

> so tired all of the weekend. I know this is long-sorry-just trying

> to figure out the latest symptoms.

>

> Thanks, Melinda

>

>

>

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