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Re: IEP & FM question

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Tahna-

Sorry- I didn't mean to come across that way! Sometimes it can be difficult

to relay info via emails and have it come across the right way...I didn't

mean to sound harsh :)

Colin P.

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You're right, it is hard to come across the way you mean it by email..

You have a child with hearing loss or deaf, Colin.?. How old is your child?

My daughter is 9 yrs old going on 16, if you have a daughter, you know what

I mean.

Glad you emailed back, Tahna

-- Re: IEP & FM question

Tahna-

Sorry- I didn't mean to come across that way! Sometimes it can be difficult

to relay info via emails and have it come across the right way...I didn't

mean to sound harsh :)

Colin P.

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As I work towards a degree in Audiology, I also find myself confronted with

the information revealed in school and how it pertains to my daughter

Marissa's education...and how the school district here does the absolute

MINIMUM (if that) for kids here. Our school district is very large (3 high

schools, 5 middle schools, and 14 elementary schools) and there are 1300

kids in Special Ed here...and they have no idea what to do with kids with

hearing loss. It is so dismal that 8 hearing impaired students from this

district are bussed 1 1/2 hours to another school in another district where

there is a cluster of HI kids (not to mention the people that have moved so

they would not have to work with the district here). It is so frusterating

to be in a room with these people and know what your child needs, you know

more about hearing loss, your child, and deaf ed that anyone else in the

room, but since you are the parent you get no respect. Recently I think I

finally earned that respect by handling some situations between me and the

school district professionally and respectfully, as much as I may not have

wanted to.

I had a conversation with someone the other day who said they felt that

being a Special Ed Director must be the worst job in the world...parents

yellling at you all the time, very difficult monetary constraints that must

be worked around or the district will face legal issues, and alot of kids

that truly need services that they are entitled to, legally and ethically. I

don't find it suprising at all that Special Ed directors are (from what I've

seen and heard) generally tough, assertive, and a thorn in many peoples

sides. They are, nonetheless, people we have to work with as long as our

children are in school, so the better the relationship and the more respect

you earn the easier things should be.

Sorry for the long email...I haven't written much lately...this should catch

me up!

Also- the Family Meeting for Marissa's CI candidacy is Friday...I think they

are finally going to say yes....I'll let you all know when I find out!

Colin P.

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Actually, they have a special hearing/speech/language program, as part of a

collaborative that my town participates in. For kindergarten, which my son

will be attending in September, this is a self-contained classroom within

the regular elementary school. The teachers are TODs and SLPs, there are no

more than 10 kids in the class, and the focus is on language and speech.

They are an auditory-oral program, so no manual language is allowed. They

are very familiar with FM systems; in fact, my daughter has a soundfield FM

in her 2nd grade classroom.

on 6/4/03 10:13 PM, Tahna at tahnab@... wrote:

> I agree, didn't mean to make you offensive.. I was just asking, wondering

> if they

> had any other schools involved other than the regular educational system..

>

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Colin,

I can relate to your rant on Special education. I will say that not

all places are like ours. Some of it seems to be attitude of the

community on education in general. I like that your special ed dir

gets yelled at. At least parents care enough to try.

Winfield and I met yesterday with our interim spec. ed dir. (the last

one yelled at me), school's attorney and 6 others to try to plead our

case that a total communication h-i self-contained classroom can't meet

our daughters need. Interestingly, the classroom is now referred to as

oral even though they sign. I tried to explain that I don't have a

problem with them having that classroom for those students who benefit

and that meets their needs but ... that isn't going to help meet

her oral objectives. They can't say it but in the end it all gets down

to money.

I stated during our meeting that I felt like had been a guinea

pig with the medical component and educationally in our state. We had

asked for success only to be given vague answers or " patient

confidentiality " answers or no answer. My husband asked point blank

yesterday where were their successful CI students (although we knew the

answer because I have talked with everyone and put together the evasive

facts that they have all left the state or were not " successful " as we

define success (another little trick used against us)). They had to

admit they didn't have any success. He then said that we couldn't

gamble our child's education on their word as we had gambled on the

medical facility and lost.

It helps me to keep my perspective and understand my role as parent

expert, parent advocate. (I have to make another plug for peter

wrights book wrightslaw from emotions to advocacy as it helped me keep

from yelling or crying.) We have chosen to retreat to higher ground

and move to a place that can provide what she needs. We believe

a child's education is of primary importance and are fortunate to have

family that will help support us both emotionally and financially to

make a big change.

I've talked with lots of " people in charge " and can't fix the whole

state. Our state supreme court has said that the state's education

system is unconstitutional and must change. When a state has problems

at that level getting anyone to listen, care and effect change

regarding special education is impossible. I wish like Tahna that

people had been more honest with me in the beginning about education

and my child would have been better served and not having to continue

to work so very hard to learn to talk.

I also know that fighting a legal battle would take too much time, cost

too much money and we aren't guaranteed a victory. I am choosing to

spend our time and money better. I do thank those who fight the legal

battle and hope you all win. I just don't like the odds here.

Please forgive me for ranting, I love this list serve for all of the

sharing and would prefer to share only the good but after our meeting

yesterday and our past few months of family living 2 places I guess

Colin brought up the topic at just the right time. For those of you

with cooperative schools, tell them thank you and keep posting the

successes. It was some of your posts that helped me see our problem

and know that it doesn't have to be like that.

Happy summer to all of you, I'll be packing and unpacking for the next

few months.

Mom to 10, 6 (n24 4/00) and 3

Re: IEP & FM question

> As I work towards a degree in Audiology, I also find myself

> confronted with

> the information revealed in school and how it pertains to my

> daughter

> Marissa's education...and how the school district here does the

> absolute

> MINIMUM (if that) for kids here. Our school district is very large

> (3 high

> schools, 5 middle schools, and 14 elementary schools) and there

> are 1300

> kids in Special Ed here...and they have no idea what to do with

> kids with

> hearing loss. It is so dismal that 8 hearing impaired students

> from this

> district are bussed 1 1/2 hours to another school in another

> district where

> there is a cluster of HI kids (not to mention the people that have

> moved so

> they would not have to work with the district here). It is so

> frusterating

> to be in a room with these people and know what your child needs,

> you know

> more about hearing loss, your child, and deaf ed that anyone else

> in the

> room, but since you are the parent you get no respect. Recently I

> think I

> finally earned that respect by handling some situations between me

> and the

> school district professionally and respectfully, as much as I may

> not have

> wanted to.

> I had a conversation with someone the other day who said they felt

> that

> being a Special Ed Director must be the worst job in the

> world...parents

> yellling at you all the time, very difficult monetary constraints

> that must

> be worked around or the district will face legal issues, and alot

> of kids

> that truly need services that they are entitled to, legally and

> ethically. I

> don't find it suprising at all that Special Ed directors are (from

> what I've

> seen and heard) generally tough, assertive, and a thorn in many

> peoples

> sides. They are, nonetheless, people we have to work with as long

> as our

> children are in school, so the better the relationship and the

> more respect

> you earn the easier things should be.

> Sorry for the long email...I haven't written much lately...this

> should catch

> me up!

> Also- the Family Meeting for Marissa's CI candidacy is Friday...I

> think they

> are finally going to say yes....I'll let you all know when I find out!

> Colin P.

>

> _________________________________________________________________

> Help STOP SPAM with the new MSN 8 and get 2 months FREE*

> http://join.msn.com/?page=features/junkmail

>

>

>

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