Update on Jake- thank you.

[Guest guest]

Greetings Listmates-

First off, thank you to all who have responded to my questions.

I joined this list a few weeks ago when my 28 month old son was not

progressing in his speech therapy. Per the advice of a

client/friend/mentor who visits and posts to this site regularly, I

ran a hair analysis on my son, which I did not expect to return with

anything interesting. Per the counting rules, my son was mercury

toxic as well as high in many other heavy metals, including lead.

My son at this point is speech delayed only. He also drooled alot.

His receptive abilities are at age level, and he showed no overt

signs of autism. He has never been vaccintated.

I started the Andy Cutler protocol 3 weeks ago, starting with the

supplements, being the B-12, E, C, Taurine, Selenium, Zinc, Flax Seed

Oil, and Cod Liver Oil. I chelated him w/ 10 mg DMSA every 4 hours

for 4 days last week. (OK by day 2 I was exhausted)

He now only drinks bottled water, and his sugar intake has been

reduced.

Jake has made progress- very substantial progress in the 3 weeks we

have been using the supplements, along with the chelation. The

supplements seemed to make him more alert- the chelation seemed to

help him to make more connections between sounds and how they come

out of his mouth. My son made virtually no progress for 2 months in

therapy- in the 3 weeks, he has gone from his only words being mama,

yeah and sounds of a few animals and trains, to saying Bye Bye, All

Done, Pop, Da, and eee for Cheese, please and me. Much of the

progress came during and after chelation. Many sounds were worked on

in therapy- but he never replicated them. It was so awesome at a

birthday party over the weekend when he SPONTANEOUSLY said Bye Bye as

we were leaving. Now, he spontaneously says All Done (in his own way-

it sounds more like All D). He still is far behind other children his

age, but it is fantastic to be making progress.

Interestingly enough, last week I attended a workshop sponsored

through the Regional Center, which is the gov. organization that

helps funds therapy for children with needs in my California. The

speaker was a sp ed prof at a Cal State school in the area. He has

spent his life working with autistic kids. I repeatedly asked him

about nutritional issues (GFCF), along with chelation therapy, and he

absolutely unequivicably stated that there was no connection between

any of the therapies I mentioned, and improvement in functioning.

Further, he scoffed at the idea of metal toxicity and autism.

I will be chelating him again in a few days with the DMSA. I am

debating about when to add in the ALA. Any comments from the gallery?

I think I have eliminated sources, but am not sure where the initial

primary source was, other than a water supply.

I will keep the list updated with Jake's progress.

Thank You,

Robles

[Guest guest]

Hi ,

I got a little guy, 23 months (and a 10 yr old autistic son) who

is also on target receptively but delayed expressively. He is

unvaccinated, no antibiotics, and a negative mercury transport

problem from DDI hair analysis. I am debating whether to chelate or

not at this point. Did you start the supplements first and wait a

little while before doing chelation? Do you think the supplements

helped or was the change due to the chelation? Are you giving

liquid supplements and if so, which ones are you giving?

I need to share with you and anyone else who is interested. I

just returned on Sunday from Dr. Carbone's Introduction to Verbal

Behavior and I must say that I think he is right on the money on how

to teach language to autistic kids. I have been going to private

speech therapy and doing Son-rise at home and I believe that the

ABA/VB really will make more of a difference in my kids' (both the

10 year old and almost 2 year old)acquisition of language. If you

get a chance, GO to his presentation, which is excellent. The

method he suggests really makes sense for our kids and I think will

develop the most language in our kids, whether it is sign language

for the severely involved or outright conversational skills for the

more high functioning individual. I was so impressed and

encouraged. Take care, Becky in Chesapeake, VA

\

> Greetings Listmates-

>

> First off, thank you to all who have responded to my questions.

>

> I joined this list a few weeks ago when my 28 month old son was

not

> progressing in his speech therapy. Per the advice of a

> client/friend/mentor who visits and posts to this site regularly,

I

> ran a hair analysis on my son, which I did not expect to return

with

> anything interesting. Per the counting rules, my son was mercury

> toxic as well as high in many other heavy metals, including lead.

>

> My son at this point is speech delayed only. He also drooled

alot.

> His receptive abilities are at age level, and he showed no overt

> signs of autism. He has never been vaccintated.

>

> I started the Andy Cutler protocol 3 weeks ago, starting with the

> supplements, being the B-12, E, C, Taurine, Selenium, Zinc, Flax

Seed

> Oil, and Cod Liver Oil. I chelated him w/ 10 mg DMSA every 4 hours

> for 4 days last week. (OK by day 2 I was exhausted)

>

> He now only drinks bottled water, and his sugar intake has been

> reduced.

>

> Jake has made progress- very substantial progress in the 3 weeks

we

> have been using the supplements, along with the chelation. The

> supplements seemed to make him more alert- the chelation seemed to

> help him to make more connections between sounds and how they come

> out of his mouth. My son made virtually no progress for 2 months

in

> therapy- in the 3 weeks, he has gone from his only words being

mama,

> yeah and sounds of a few animals and trains, to saying Bye Bye,

All

> Done, Pop, Da, and eee for Cheese, please and me. Much of the

> progress came during and after chelation. Many sounds were worked

on

> in therapy- but he never replicated them. It was so awesome at a

> birthday party over the weekend when he SPONTANEOUSLY said Bye Bye

as

> we were leaving. Now, he spontaneously says All Done (in his own

way-

> it sounds more like All D). He still is far behind other children

his

> age, but it is fantastic to be making progress.

>

> Interestingly enough, last week I attended a workshop sponsored

> through the Regional Center, which is the gov. organization that

> helps funds therapy for children with needs in my California. The

> speaker was a sp ed prof at a Cal State school in the area. He has

> spent his life working with autistic kids. I repeatedly asked him

> about nutritional issues (GFCF), along with chelation therapy, and

he

> absolutely unequivicably stated that there was no connection

between

> any of the therapies I mentioned, and improvement in functioning.

> Further, he scoffed at the idea of metal toxicity and autism.

>

> I will be chelating him again in a few days with the DMSA. I am

> debating about when to add in the ALA. Any comments from the

gallery?

> I think I have eliminated sources, but am not sure where the

initial

> primary source was, other than a water supply.

>

> I will keep the list updated with Jake's progress.

>

> Thank You,

> Robles

[Guest guest]

,

Good to hear about your son's progress. If you have/had mercury amalgam

fillings, vaccines before at during pregnancy, or Rhogam the mercury from these

may have/would have passed the placenta and through breastmilk to your son. Th

is is not your fault because you didn't know.

S

I think I have eliminated sources, but am not sure where the initial <BR>

primary source was, other than a water supply.<BR>

<BR>

I will keep the list updated with Jake's progress.<BR>

<BR>

Thank You, <BR>

Robles<BR>

=======================================================<BR>

[Guest guest]

Hello ,

It is nice to hear that things are going so well for Jake.

Let's hope his progress continues, and you can look back

and see this part was just the beginning. With lead you'll

need to keep chelating for a long time.

> Interestingly enough, last week I attended a workshop sponsored

> through the Regional Center, which is the gov. organization that

> helps funds therapy for children with needs in my California. The

> speaker was a sp ed prof at a Cal State school in the area. He has

> spent his life working with autistic kids. I repeatedly asked him

> about nutritional issues (GFCF), along with chelation therapy, and he

> absolutely unequivicably stated that there was no connection between

> any of the therapies I mentioned, and improvement in functioning.

> Further, he scoffed at the idea of metal toxicity and autism.

very discouraging. I also live in California.

> I will be chelating him again in a few days with the DMSA. I am

> debating about when to add in the ALA. Any comments from the gallery?

> I think I have eliminated sources, but am not sure where the initial

> primary source was, other than a water supply.

Does your water have mercury in it?

I think since he has had no vaccines, and I presume no amalgam

dental fillings, that it is okay to add the ALA any time.

It does make me hesitate a bit that there is no obvious source

of exposure. By the way, have you checked your house for

lead? (Sorry, this probably repeats past discussions.)

good wishes,

Moria

[Guest guest]

<. The

speaker was a sp ed prof at a Cal State school in the area. He has

spent his life working with autistic kids. I repeatedly asked him

about nutritional issues (GFCF), along with chelation therapy, and he

absolutely unequivicably stated that there was no connection between

any of the therapies I mentioned, and improvement in functioning.

Further, he scoffed at the idea of metal toxicity and autism.>

This Sp Ed Prof at Cal State is an idiot!

[Guest guest]

<<<Hi ,

I got a little guy, 23 months (and a 10 yr old autistic son) who

is also on target receptively but delayed expressively. He is

unvaccinated, no antibiotics, and a negative mercury transport

problem from DDI hair analysis. >>

Maybe you should consider that a virus could be your child's problem.

[Guest guest]

,

It would be interesting to know your medical history. Did you have the MMR?

Have you had yourself tested for viral antibodies.

Also did you have before or during your pregnancy amalgam fillings?

in Germany

Re: [ ] Re: Update on Jake- thank you.

>

> <<<Hi ,

> I got a little guy, 23 months (and a 10 yr old autistic son) who

> is also on target receptively but delayed expressively. He is

> unvaccinated, no antibiotics, and a negative mercury transport

> problem from DDI hair analysis. >>

>

> Maybe you should consider that a virus could be your child's problem.

>

>

[Guest guest]

It would really be worthwhile to cheaply publish a book of pre and

post-chelating urine heavy metal results and have these types of people (

know-it-alls) read through them and made to comment at public conferences.

Re: [ ] Update on Jake- thank you.

>

Further, he scoffed at the idea of metal toxicity and autism.>

>

> This Sp Ed Prof at Cal State is an idiot!

[Guest guest]

--- In , " moriamerri " <moriam@e...>

wrote:

> Hello ,

>

> It is nice to hear that things are going so well for Jake.

> Let's hope his progress continues, and you can look back

> and see this part was just the beginning. With lead you'll

> need to keep chelating for a long time.

Interesting....I assumed I would be chelating until I stopped seeing

progress. Does the body hold onto lead more than other metals?

>

> > Interestingly enough, last week I attended a workshop sponsored

> > through the Regional Center, which is the gov. organization that

> > helps funds therapy for children with needs in my California. The

> > speaker was a sp ed prof at a Cal State school in the area. He

has

> > spent his life working with autistic kids. I repeatedly asked him

> > about nutritional issues (GFCF), along with chelation therapy,

and he

> > absolutely unequivicably stated that there was no connection

between

> > any of the therapies I mentioned, and improvement in functioning.

> > Further, he scoffed at the idea of metal toxicity and autism.

>

> very discouraging. I also live in California.

I feel like I spoke too harshly about this speaker- his point was

that there were no published articles/data on chelation, etc. that

showed a definitive connection between these therapies. We got into a

discussion about the need for supplements, as well as chelation,

cranial sacral, and chirpractic. He said that is something worked for

your family, to stay with it, but that he had seen too many fly by

night, expensive therapies promising a cure, when they were more

snake oil. I can see his skepticism, but chelation has been great for

my baby, and that is all I can say to that.

>

> > I will be chelating him again in a few days with the DMSA. I am

> > debating about when to add in the ALA. Any comments from the

gallery?

> > I think I have eliminated sources, but am not sure where the

initial

> > primary source was, other than a water supply.

>

> Does your water have mercury in it?

I assume that it does not- we recently moved into a newer home w/ a

water filter- I do not know the quality of it, but my son only drinks

bottled water. Do I need to be concerned about this in bath water?

> I think since he has had no vaccines, and I presume no amalgam

> dental fillings, that it is okay to add the ALA any time.

> It does make me hesitate a bit that there is no obvious source

> of exposure. By the way, have you checked your house for

> lead? (Sorry, this probably repeats past discussions.)

>

I will be chelating again as soon as I can safely do it (4 days on, 4

days off), unless anyone on the list has had a negative response to

chelating again so soon w/ a toddler.

> good wishes,

> Moria

[Guest guest]

Hello ,

> > It is nice to hear that things are going so well for Jake.

> > Let's hope his progress continues, and you can look back

> > and see this part was just the beginning. With lead you'll

> > need to keep chelating for a long time.

>

> Interesting....I assumed I would be chelating until I stopped seeing

> progress. Does the body hold onto lead more than other metals?

Yes. At least if others are this hard, we don't know it LOL.

Lead is stored in bones (and other places). The bones do release

it, but you know how bones are--- they do things slowly. As you

chelate some will get released from bones--- but there is still

lots stored in the bones--- it comes out slowly. After initial

improvements you can chelate less often -- but continue to use

DMSA (for lead) on-going, even if it is once a month.

For maybe 1.5 to 2.5 years? I'm not sure exact timeframe.

I think 18 to 24 months is a good guess.

You may get lots of progress initially as you get out the

mercury, and some of the lead, and other stuff. The remaining

lead will go slower, so this means you will still likely see

continuing, slower, progress. So more good things in store.

> >

> > > Interestingly enough, last week I attended a workshop sponsored

> > > through the Regional Center, which is the gov. organization that

> > > helps funds therapy for children with needs in my California. The

> > > speaker was a sp ed prof at a Cal State school in the area. He

> has

> > > spent his life working with autistic kids. I repeatedly asked him

> > > about nutritional issues (GFCF), along with chelation therapy,

> and he

> > > absolutely unequivicably stated that there was no connection

> between

> > > any of the therapies I mentioned, and improvement in functioning.

> > > Further, he scoffed at the idea of metal toxicity and autism.

> >

> > very discouraging. I also live in California.

>

> I feel like I spoke too harshly about this speaker- his point was

> that there were no published articles/data on chelation, etc. that

> showed a definitive connection between these therapies. We got into a

> discussion about the need for supplements, as well as chelation,

> cranial sacral, and chirpractic. He said that is something worked for

> your family, to stay with it, but that he had seen too many fly by

> night, expensive therapies promising a cure, when they were more

> snake oil. I can see his skepticism, but chelation has been great for

> my baby, and that is all I can say to that.

It is nice that his comments were " mixed " -- but it would also be

nice to have some school advocates for this biomedical stuff.

> > > I think I have eliminated sources, but am not sure where the

> initial

> > > primary source was, other than a water supply.

> >

> > Does your water have mercury in it?

>

> I assume that it does not- we recently moved into a newer home w/ a

> water filter- I do not know the quality of it, but my son only drinks

> bottled water. Do I need to be concerned about this in bath water?

No, I would not be. I only asked because you said you thought

water was primary exposure.

>

> > I think since he has had no vaccines, and I presume no amalgam

> > dental fillings, that it is okay to add the ALA any time.

> > It does make me hesitate a bit that there is no obvious source

> > of exposure. By the way, have you checked your house for

> > lead? (Sorry, this probably repeats past discussions.)

> >

> I will be chelating again as soon as I can safely do it (4 days on, 4

> days off), unless anyone on the list has had a negative response to

> chelating again so soon w/ a toddler.

That should be okay. Some people find that a longer " rest " works

better for them. You can see how it feels for you. You may find

it is okay, or you may want more time in between to catch up on

sleep (or other reasons).

good wishes,

Moria

[Guest guest]

I am a fairly healthy 29 yo, 3 amalgam fillings. Nursed Jake for 1

year. Jake was hospitalized early and given vancomycin IV for 10 days

to treat a UTI at 6 days old. 1 older son, Noah who is 5, no

vaccinations, few antibiotics, no concerns about him at this time.

I did have the MMR as a child, along with all other vaccinations. I

have not been tested for viral antobodies, nor have I tested my kids

for them. What are their significance?>

,

>

> It would be interesting to know your medical history. Did you have

the MMR?

> Have you had yourself tested for viral antibodies.

>

> Also did you have before or during your pregnancy amalgam fillings?

>

> in Germany

> Re: [ ] Re: Update on Jake- thank you.

>

>

> >

> > <<<Hi ,

> > I got a little guy, 23 months (and a 10 yr old autistic son)

who

> > is also on target receptively but delayed expressively. He is

> > unvaccinated, no antibiotics, and a negative mercury transport

> > problem from DDI hair analysis. >>

> >

> > Maybe you should consider that a virus could be your child's

problem.

> >

> >

[Guest guest]

Thanks for sharing. I like a lot parent's update.

What about fish? Did you eat some before, during and after your

pregnancy?

I would wait a little bit before introducing ALA, the time to make

sure about your mercury souce. You could have yourself tested too

(hair test) to see if you are also poisoned. That might help to

determminate the source.

> I will be chelating him again in a few days with the DMSA. I am

> debating about when to add in the ALA. Any comments from the

gallery?

> I think I have eliminated sources, but am not sure where the

initial

> primary source was, other than a water supply.

>

> I will keep the list updated with Jake's progress.

>

> Thank You,

> Robles