hospitalization for reduction

[Guest guest]

Good job Ann, get him off that stuff so you can gain benefits from the diet.

From experience, go for the hospital stay, it will ease your stress. Chances

are he will have a lot of withdrawal seizures, those doctors and nurses

follow a protocol, their heart is not involved like mom's. I think if you did

this on your own, you are compromising your emotional state, needs

you to be strong for the benefit of the days to come.

I am praying for you daily! Things will look up, trust in God!

Tracey

[Guest guest]

doctor has suggested the option of VEEG hospitalization to do a rapid

reduction of Depakote (I guess in a week). What do you all think?

Would this be necessary? If I have diastat, could I do it at home? He

is at 750 mg per day. I guess, like said, the other option is

to stop the diet. Ann - ('s had 15 seizures today already

before noon)

[Guest guest]

Ann,

I'm with Tracey, the other Tracey (I'm getting so confused!). Go for the

hospital stay and don't let it all be on you to deal with by yourself. And if

something does go wrong or it's out of control you'll have him in the best

place. I was surprised to hear your neuro suggested it. I thought they were

against the wean and the diet. So glad they are willing to get him off the

medication. And as Tracey said, trust in God, let him handle it, you just get

where he needs to be.

[Guest guest]

If your doctor is suggesting hospitalization for withdrawal of Depakote, I

would comply. Why risk this on your own? Better safe than sorry

Go for it.

Barb Swoyer, Jake's mom

hospitalization for reduction

> doctor has suggested the option of VEEG hospitalization to do a rapid

> reduction of Depakote (I guess in a week). What do you all think?

> Would this be necessary? If I have diastat, could I do it at home? He

> is at 750 mg per day. I guess, like said, the other option is

> to stop the diet. Ann - ('s had 15 seizures today already

> before noon)

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

[Guest guest]

Ann,

Was this in response to those depakote/diet articles? If so, does this mean

he suspects it may be 's problem?

In reading them while I was sending them through (had forgotten a lot of it)

I actually decided to ask my neuro the same thing at Thurs's appt.

But - he is going to say no, I'm sure of it.

If you find out how they intend to do it - could you drop me a line and let

me know? Would be good to have an actual suggestion to take along to the

appt at the same time.

My only concern is that in doing this, (or I guess ) may end

up needing heavy benzo doses or something if the withdrawl fallout gets out

of control - presume this is why a hospital admission is being recommended.

IE - more than you'd use at home, poss IV boluses or even an infusion. I'm

torn with this scenario - in case ends up on more benzo as a result.

2 or 3 days I think would be okay, but if it were to go on longer than that,

I know 's addictions etc, and I think he would need oral weaning doses

to come home on.

Mind you, if the depakote really is the culprit, I guess it would still be a

step in the right direction?

It may be that if the depakote really is doing nasty things with the diet,

that there may be little fallout, especially once the potential toxicity

issue is resolved. As someone said (, Joan?), the depakote effects

can often get worse when weaning on the diet the lower down you go, so maybe

a complete withdrawl is the only solution to avoid prolonged fallout.

> doctor has suggested the option of VEEG hospitalization to do a rapid

> reduction of Depakote (I guess in a week). What do you all think?

> Would this be necessary? If I have diastat, could I do it at home? He

> is at 750 mg per day. I guess, like said, the other option is

> to stop the diet. Ann - ('s had 15 seizures today already

> before noon)

[Guest guest]

ann -- what does VEEG mean? jane

hospitalization for reduction

doctor has suggested the option of VEEG hospitalization to do a rapid

reduction of Depakote (I guess in a week). What do you all think?

Would this be necessary? If I have diastat, could I do it at home? He

is at 750 mg per day. I guess, like said, the other option is

to stop the diet. Ann - ('s had 15 seizures today already

before noon)

[Guest guest]

I agree -- for what its worth, the keto nutritionist I consulted said

sometimes a quick weans works best in the long run. Jane

And definitely, the hospital seems like the right place to do it.

Re: hospitalization for reduction

If your doctor is suggesting hospitalization for withdrawal of Depakote, I

would comply. Why risk this on your own? Better safe than sorry

Go for it.

Barb Swoyer, Jake's mom

hospitalization for reduction

> doctor has suggested the option of VEEG hospitalization to do a rapid

> reduction of Depakote (I guess in a week). What do you all think?

> Would this be necessary? If I have diastat, could I do it at home? He

> is at 750 mg per day. I guess, like said, the other option is

> to stop the diet. Ann - ('s had 15 seizures today already

> before noon)

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

[Guest guest]

Rhonda,

When you took away the meds, how long thereafter did you see improvements? I

took away one of the Zonegrans 6 days (Zonegrans half life is ~5days) well

for the last two nights has been having increased seizures. My guess

is withdrawal. How many days do withdrawal seizures usually last?

Thanks, Tracey

[Guest guest]

Ann,

I'm sorry about going through hard times when you were getting

glimpses of improvement. I want to encourage you to hang in there.

Though Shan did not have it as nearly as bad as in regard to day

time seizures, we felt we had to see how she would do med free on the

diet. We knew this was the time to do it if we were ever going to do

it. We did it for a month and then added back a little bit of trileptal

for nights. Though she isn't completely med free, she has so much less

med in her body. Here's your chance to see how can do without

so much meds in his body. You may not ever have this ideal of an

opportunity as you have now. Then you can say to yourselves, " I tried

it and what a positive difference it made, " or " I tried it and it didn't

work, but at least I tried it. " I'm hoping so much that when the

Depakote is out is going to have great seizure control.

Rhonda

> doctor has suggested the option of VEEG hospitalization to do a rapid

> <BR>

> reduction of Depakote (I guess in a week). What do you all think? <BR>

> Would this be necessary? If I have diastat, could I do it at home? He

> <BR>

> is at 750 mg per day. I guess, like said, the other option is

> <BR>

> to stop the diet. Ann - ('s had 15 seizures today already <BR>

> before noon)<BR>

[Guest guest]

Ann,

I'm with Tracey. No need to go this alone. I'm sorry this has been so

horrible. Do they think Depakote is causing the problems and that's why the

quick wean? I've been following your posts, but obviously not closely

enough. I'm confused.

ashley

----------

From: Traceygrubbs@...

To: ketogenic

Subject: Re: hospitalization for reduction

Date: Mon, Oct 21, 2002, 9:28 AM

<<Good job Ann, get him off that stuff so you can gain benefits from the

diet.

From experience, go for the hospital stay, it will ease your stress. Chances

are he will have a lot of withdrawal seizures, those doctors and nurses

follow a protocol, their heart is not involved like mom's. I think if you

did

this on your own, you are compromising your emotional state, needs

you to be strong for the benefit of the days to come.

I am praying for you daily! Things will look up, trust in God!

Tracey>>