New here need advice...please

December 16, 2003

Hi all,

I am new here and need some help. I have a daughter that is 10

years old. She has every seizure there is. She had a stroke at 15

months old, which left her with severe mental retardation, and

non-verbal, non-walker. She lost the right side of her brain from the

stroke as well as parts of the left. She has been all the medicines

kids can be on as well as some that are just for adults. Some of the

medicines made her so mean. She has the VNS as well. She is still

having seizures with not much to no control. The dr. said that we

could try the diet and see how that works for her. I have read some

of the foods that the kids eat and I know my daughter would not eat

them. I gave her some cream one-day and she would not drink it. She

will not understand why we are making her eat the food on the diet and

why she can't eat when she wants to eat. She is a great eater. My

question is: How do you do the diet when the child does not

understand why they have to be on it? How well will the diet work if

you have tried all the medicines as well as the VNS? She also has

heart issues, can the diet effect her heart?

Thanks for you help and letting me vent.

(mom to Kimmie)

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