Re: Lamictal Question-

[Guest guest]

Hi ,

2 weeks is the approx time frame it took for to become toxic on his

meds after starting the diet. He had daytime control almost straight away,

then gradually lost it after about 12-14 days, seizures escalated and he got

v bad. We took a punt based on experiences here, reduced lamictal by a big

chunk, intervened with one shot of diaz 5 days after the reduction, and got

control back. Prior to the reduction, any intervening meds during that

period only made him worse - our sign that toxicity was the problem. And

yes, intially his worst seizures came as his lamictal doses peaked, then

everything got so out of hand any timing went out the window.

He was on 3 meds at the time, but we 'picked' lamical as he was showing more

side effects of this drug at the same time as seizures increased - more

extremity 'twitching', sleepnessness etc. FYI, his lead neuro wanted to

increase the med instead, which looking back would probably have meant we

would never have got control back, and given up on the diet.

Lamictal Question

> Hello all. I have been reviewing the archives and have seen so many

> posts on lamictal weaning. It is a scary proposition!!

>

> I thought we would wait a while before starting to wean, but now I

> am wondering if the lamictal is part of the problem. Langan is only

> on a small dose of lamictal (75 mg a day, at 25mg 3X). We went 16

> days seizure free when starting the diet but started having seizures

> after that and have had 4 (2 the first night, then one 3 1/2 days

> later and then one 2 1/2 days later). This made me think that we

> would wait longer for the weaning to begin until I noticed something

> very strange- each of these seizures has occurred within 1 1/2 to 2

> hours AFTER a lamictal dose. That, to me, raises some red flags.

> Am I just dreaming?

>

> We meet with our non-keto neuro today and I want to talk to him

> about this. He is the one who put Langan on lamictal and I know

> that he thinks it is the drug of the century. He did agree to lower

> her to this dose (which is close to half her " therapeutic dose " )

> several months ago after much insisting by me. We did a VEEG in

> July and Langan was off all medicines and doing so well and with no

> seizures. They couldn't get a seizure on the VEEG, unhooked her,

> gave her 50mg of lamictal that morning, and she had a seizure that

> night. At the time, I thought it was dumb luck. Now I am wondering

> if the lamictal could be part of the problem. It is the only drug

> Langan is on and we are scared to death to fly without a net but at

> the same time what happens if we never get seizure control on the

> diet b/c we stay on the lamictal waiting for seizure control?

> Should I insist on a slow wean now? Should I wait? Help!!! = )

>

> , mom to Langan