Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Amy - There certainly must be some connection to the two of them....perhaps at least one of them predisposes you to the other. A lot of folks here report having them both. I've never heard, however, that they were one and the same. Hope you have a nice night. BarbaraAmy wrote: hi barbara. i know my doctor (dr. getson) and dr. shwartzman both see the relationship between the two. maybe it's just a 'northeast' thang!! loved how ya said you're gonna kick your feet up....made me smile :)love,amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 Thanks, Jo. It's been a long haul and I really didn't think that I could pull it off given the pain issues, the cath, and the one-handed typing. An accomplishment that I'm very proud of and very grateful to you for sharing the moment. Barbarajomal1@... wrote: Barbara, I just had to jump in and say congrats on completing your rough draft! I am very impressed! Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 Barbara- With our minds being so clouded by the many years of taking meds ,it's a grand 'fete' to see that yu were putting a book together. I'm very proud of you for not only attempting it but following through to it's completion. My hat goes off to you! Congratulations!!......Hugs... BARBARA TORREY wrote: Thanks, Jo. It's been a long haul and I really didn't think that I could pull it off given the pain issues, the cath, and the one-handed typing. An accomplishment that I'm very proud of and very grateful to you for sharing the moment. Barbarajomal1@... wrote: Barbara, I just had to jump in and say congrats on completing your rough draft! I am very impressed! Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 Thanks so much, . I really appreciate your congrats. Having dealt with RSD for so long (13 years), I think the major feat was the actual process of maintaining the mindset of not allowing anything stop me from doing something that I really wanted to do. I'll be damned if let this thing whoop me.....or anything that I want to accomplish. It reminds me of a story that my sister told me about a time when I was five years old. She says that she took me for a walk to a store that was a very long way from our childhood home. At one point, I apparently paused my step, clearly fatigued and overwhelmed by the distance that we had travelled. She asked me if I want to sit for a bit and rest. My response? "To stop is to die." .....Now that's a pretty melodramatic thing for a little kid to say, but maybe it's that kind of attitude that has carried me through this. In any event, I'm grateful for the stamina. I just hope from the bottom of my being that it holds out. Some days it sure looks questionable. I worry that I will have to leave work prior to the time that I had originally planned to retire. Not unlike some of you, I'm single, live alone, and rely fully on myself for financial (meager) and day-to-day support. The prospect of not being able to independently get through the upcoming years is incredibly distressing and scary to me. One day at a time, right? Let's try and have a good one today. Barbara Echols wrote: Barbara- With our minds being so clouded by the many years of taking meds ,it's a grand 'fete' to see that yu were putting a book together. I'm very proud of you for not only attempting it but following through to it's completion. My hat goes off to you! Congratulations!!......Hugs... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 Barbara-Keep me in your prayers today because I'm facing a huge challenge right now...my doc is unsure whats going on with my chemistries right now. He has checked me for MS,Lupus and a number of other diseases. He's kinda in a query right now and I'm doing everything I can to keep 'cool'' about it. All I can do is trust that he will find the answers.....Can't go crazY!!..BARBARA TORREY wrote: Thanks so much, . I really appreciate your congrats. Having dealt with RSD for so long (13 years), I think the major feat was the actual process of maintaining the mindset of not allowing anything stop me from doing something that I really wanted to do. I'll be damned if let this thing whoop me.....or anything that I want to accomplish. It reminds me of a story that my sister told me about a time when I was five years old. She says that she took me for a walk to a store that was a very long way from our childhood home. At one point, I apparently paused my step, clearly fatigued and overwhelmed by the distance that we had travelled. She asked me if I want to sit for a bit and rest. My response? "To stop is to die." .....Now that's a pretty melodramatic thing for a little kid to say, but maybe it's that kind of attitude that has carried me through this. In any event, I'm grateful for the stamina. I just hope from the bottom of my being that it holds out. Some days it sure looks questionable. I worry that I will have to leave work prior to the time that I had originally planned to retire. Not unlike some of you, I'm single, live alone, and rely fully on myself for financial (meager) and day-to-day support. The prospect of not being able to independently get through the upcoming years is incredibly distressing and scary to me. One day at a time, right? Let's try and have a good one today. Barbara Echols wrote: Barbara- With our minds being so clouded by the many years of taking meds ,it's a grand 'fete' to see that yu were putting a book together. I'm very proud of you for not only attempting it but following through to it's completion. My hat goes off to you! Congratulations!!......Hugs... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 Oh jees, . It sure is hard to keep your chin up when they keep slamming you with new tidbits of info, isn't it? Let's hope that he's just being incredibly careful and ruling things out. I'll definitely keep you in my prayers. If I was there with you I'd do my level best to try to help you keep your mind off of things. If wishes were horses.... Barbara Echols wrote: Barbara-Keep me in your prayers today because I'm facing a huge challenge right now...my doc is unsure whats going on with my chemistries right now. He has checked me for MS,Lupus and a number of other diseases. He's kinda in a query right now and I'm doing everything I can to keep 'cool'' about it. All I can do is trust that he will find the answers.....Can't go crazY!!.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Thanks Barbara fro your words of encouragement. I guess it's a little overwhelming to hear a doc sound a bit unsure about whats going on...Usually he hits the problem right on the head....BARBARA TORREY wrote: Oh jees, . It sure is hard to keep your chin up when they keep slamming you with new tidbits of info, isn't it? Let's hope that he's just being incredibly careful and ruling things out. I'll definitely keep you in my prayers. If I was there with you I'd do my level best to try to help you keep your mind off of things. If wishes were horses.... Barbara Echols wrote: Barbara-Keep me in your prayers today because I'm facing a huge challenge right now...my doc is unsure whats going on with my chemistries right now. He has checked me for MS,Lupus and a number of other diseases. He's kinda in a query right now and I'm doing everything I can to keep 'cool'' about it. All I can do is trust that he will find the answers.....Can't go crazY!!.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 Jai - I would be hard-pressed to recommend a sympathectomy to anyone. When I had the chemical sympathectomy, they injected phenol into many places along the sympathetic chain/ganglion. It was extremely nasty to go through....very painful...and while I had partial relief for several months it certainly didn't take away the symptoms that I had that were unrelated to the RSD since with the CRPS II there's also the actual nerve damage. The whole thing was hardly worth what the procdeure entailed...especially since the RSD cam back a hundred fold in just a matter of months. Now, some things do help some folks, but..... Barbarajaismonkey@... wrote: In a message dated 8/28/04 7:57:12 AM Pacific Daylight Time, RSD-CRPSofAmerica writes: Barbara,thanks for clarifying that. I am so sorry to hear what you went through with the synpathectomy. I am very happy to hear that the other procedures helped you. Hopefully things are much better for you now. Take care, Love Jaitorreyb@... wrote: Cauterizing the sympathetic chain is a very different thing, and with a very different outcome, than the surgery that they do to deal with a neuroma. With a neuroma, cauterizing the nerve or removing a portion of it and then burying the nerve endings into the bone or muscle, is a very acceptable procedure. I too have had that done in my arm in several places and had good results. A different breed of beast than doing either a chemical or radio frequency sympathectomy. BarbaraBarbara,thanks for clarifying that. I am so sorry to hear what you went through with the synpathectomy. I am very happy to hear that the other procedures helped you. Hopefully things are much better for you now. Take care, Love Jai Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 In a message dated 11/15/2005 9:19:59 A.M. Eastern Standard Time, oaks_ward@... writes: Barb, T2 in MI, who is off to the hospital for a knee replacement THIS VERY MORNING! Hi Barb, You're in my thoughts and prayers. hugs Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 Best of luck and a speedy recovery with your surgery! My mom just had the very same surgery yesterday and is doing well. Peg -- Re: Phil Barb, T2 in MI, who is off to the hospital for a knee replacement THIS VERY MORNING! Barbara Ward Macomb County, Michigan Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.