Re: Mega B6 may make PST problems worse?

[Guest guest]

Hi Jules:

While B6 is beneficial to many children on the autism spectrum,

too much of it can make some children hyper, which is what

happened to my son, who, we later discovered, is very phenol

sensitive. When you introduce B6, it is very important to start at a

smaller dose than the dose that directions may stipulate as the

optimium dose. Since each child is different, some may do

better on a smaller dose, while others need the full dose to see

efficacy. Still other children may not be able to tolerate it at all.

a

> Hi, can anyone shed some light on this for me. Dana brought

this to

> my attention, here on on another website, and I'm blown away

by the

> fact that I may be making things worse for my son.

>

> He has been taking 50 mgs of B6 for a year and has a terrible

time

> with phenols. He also gets 4mg in his multi.

>

> Anyone any thoughts on this?

>

> Jules

[Guest guest]

> Hi, can anyone shed some light on this for me. Dana brought this to

> my attention, here on on another website, and I'm blown away by the

> fact that I may be making things worse for my son.

Well, if he obviously got better on the B6 then it helped, if he

obviously got worse it was a problem, otherwise don't worry about it.

> He has been taking 50 mgs of B6 for a year and has a terrible time

> with phenols. He also gets 4mg in his multi.

This is not enough to be a problem.

> Anyone any thoughts on this?

To consider this something other than one of the many superstitious

beliefs shared by liberal arts majors with MD's, I would need to see

some relevant calculations showing it to occur at a meaningful rate at

physiologically relevant concentrations.

> J

[Guest guest]

I also remember somewhere (maybe Autism Research Institute web site)

that if you give B6, you must also supplement magnesium. I can't

remember why, maybe because it depletes magnesium....??? Try the

ARI website for more specific answers about B6. Take care, Becky

> > Hi, can anyone shed some light on this for me. Dana brought

> this to

> > my attention, here on on another website, and I'm blown away

> by the

> > fact that I may be making things worse for my son.

> >

> > He has been taking 50 mgs of B6 for a year and has a terrible

> time

> > with phenols. He also gets 4mg in his multi.

> >

> > Anyone any thoughts on this?

> >

> > Jules

[Guest guest]

> Hi, can anyone shed some light on this for me. Dana brought this to

> my attention, here on on another website, and I'm blown away by the

> fact that I may be making things worse for my son.

>

> He has been taking 50 mgs of B6 for a year and has a terrible time

> with phenols. He also gets 4mg in his multi.

I have a study abstract on my phenol page

http://www.danasview.net/phenol.htm

Does your child have problems that appear phenol related even tho you

have reduced phenols or use No-Fenol enzyme? If so, remove the B6 and

see if it helps. If he does not have problems, then you probably

don't need to worry about it. And if the B6 helps, then he needs it.

Dana

[Guest guest]

I found out that many of the B vitamin supplements are made from

coal-tar. This is similar to the phenolic coal-tar based artificial

colorings, flavorings, and preservatives that Feingold program

eliminates. Many on Feingolders cannot tolerate any B levels above

RDA. The B in whole foods doesn't seem to have this issue connected

to it.

Some Pfeiffer information says that the condition of pyroluria

causes deficiencies in B6 and zinc. I think they estimated about 20-

25% of people with autism may have pyroluria and those would be the

guys doing well with extra B6. (of course a really good source of B

vitamins is in whole grains, so it seems reasonable that if you had

pyroluria and were gluten-free you would really be low in B vitamins)

[Guest guest]

>>>remember why, maybe because it depletes magnesium....???

B6 and other B vitamins affect the nervous system. The really high

doses advocated by some can be neuro-toxic levels and the magnesium

is to counter all these neuro side-effects. Say thing as giving a

med which has bad side-effects so you give another med to 'fix' the

side-effects.

My neurologist suggested I try a high dose of B vitamins in the

beginning, and the dosage for 'high' was 50 mg a day for an adult.

Actually I kept the magnesium and dropped the B stuff because it was

the magnesium that ended up being the beneficial partner.

.

[Guest guest]

In a message dated 5/15/2003 1:10:36 AM Eastern Daylight Time,

rjhickey2002@... writes:

> He has been taking 50 mgs of B6 for a year and has a terrible time

> with phenols. He also gets 4mg in his multi.

>

>

they need the B6. maybe you can help with sulfation issues by adding epsom

salt baths or cream.