Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Hi , These people were probably " implementing " the diet without having read Elaine's book several times to understand the science behind it. Some people think that SCD is like doing Atkins, which is not the same thing at all. Maybe their kids were having frequent infractions without their knowledge...at school, friends' relatives'? Again, just remember that some people may not take it seriously and just implement the diet loosely or according to *what they think* SCD is without having thoroughly examined how it is done correctly. Some kids may even need added help with enzymes or other SCD-approved supplements which could be tried at different stages of the diet to see if the child improves or not. Yes, the diet was not easy at first, but in my opinion, it is much easier than GFCF (certainly tastier!) I was comfortable with it by about the third month into it. My own child has been on SCD since March '03 (and implementing it 100%) and has been doing very well with major improvements, but he still requires help, not recovered yet, but on the right path to recovery or functioning to his fullest potential. Our son is one of those who is quite aware of what is going on in his surroundings, Hyperlexic and HFA, but with severe Apraxia of Speech. I wish the diet alone would solve his biggest issue (apraxia), but it has not happened, therefore, I would not change his diet but find other means to complement the great things SCD has done for him. Some kids may require other interventions in conjunction with the diet. I am one of those moms who continue to search/study other interventions to see if anything else would be of benefit to my child in overcoming ASD. I would not worry too much about a very small minority spreading rumors that SCD does not work. You easily realized that the father you spoke to either was confused about *which* diet his child was on or his family was simply mistaken about SCD's implementation. Well, it just did not work for THEM, but it may work for someone else. I think there is a nice amount of members on this list than can confirm that this diet has helped their son/daughter, even if not fully to their expectations, at least in some way. I unfortunatley don't have the time to post much these days, but I am one of those thankful for this diet (as crazy as it may seem to some of my relatives--even though they remark about how he is so different than he used to be 2 years ago...) Mari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 " i would like advice from others about how to help these people see that the diet really can help, and to stop spreading their experiences that were doomed from the beginning. what have others done? " But help these people...do they *want* help? Many times, fundamental changes in people's lives need to come from within the person. They have the knowledge, they only need to apply it in the correct manner. Convincing people is the hardest job. We are not all the same. First thing you can always do is answer their questions. Marjan Netherlands Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 human idioacy doesn't make me sad, at least in part because i have been stupid too many times not to get to upset about it bone marrow is a great and very legal fat that promotes glutathione and things like eggs can vary from counter productive to productive depending on source and condition............. no tears from me with the likelyhood that you will ignore this about bone marrow fat and it will never grace your kitchen though it does mine and lawn and feral cats though i don't like them to get it. .. we are currently a little low on fats since he is > allergic to eggs(and on stage 1), but he is eating carrots, pears, > green beans, turkey & chicken. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 I find that SCD was hard to change to initially for 2 reasons 1) on GFCF Bram was self limited to the starches and deli meats and I wondered on SCD what would he eat and 2) mentally I had to decide to see if maybe it wasn't the casien but just some of the milk products with which he has problems. You're always wondering if you're doing the right thing for your child, i.e., is it going to help or harm. Since preparing to start SCD he has opened up to more foods and thus his diet is starting to become more balanced. In the long run I think it will be easier than GFCF. Greta, Bram 4.5 yrs, ASD, scd 5 days > hi all!! > > i have to admit... SCD is HARD!!! at first... now, i know that i > have only been doing this for a little over a week, but i have found > a niche in what my son will eat, and am sticking to it. > > in the past, i have asked other ASD parents what they thought about > SCD, and their responses have been, " don't make your life more > complicated. just stick to GFCF. " this weekend i spoke to 2 families > about their SCD experiences, and one father commented, " it just > didn't work. all my son would eat was the rice & potatoes on the > diet. " i did inform him that neither potatoes, nor rice is allowed > on SCD (he seemed shocked, as if this was news). the other family > also gave information that lead me to believe that they hadn't > implemented the diet properly. > > i feel sad that they didn't have a good experience with SCD, but i > also feel that had it been implemented properly, it might have gone > well. i appreciate the fact that jake's yeast is dying and i don't > have to give him an anti-fungal. i also appreciate that for the > first time in my son's two years of life, he is eating a truely > balanced diet. we are currently a little low on fats since he is > allergic to eggs(and on stage 1), but he is eating carrots, pears, > green beans, turkey & chicken. > > another thing that makes me sad is that they are willing to openly > discuss their SCD experiences with others, and share > their " horrorible experience. " i am sad that this inevitably > frightens off those who know nothing about the diet. > > i don't want to step on anyone's toes, but i would like advice from > others about how to help these people see that the diet really can > help, and to stop spreading their experiences that were doomed from > the beginning. what have others done? > > shannon. Quote Link to comment Share on other sites More sharing options...
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