Guest guest Posted May 11, 2003 Report Share Posted May 11, 2003 Hello Jeanie > Without an official dx, I'm 99% sure she > has mild spastic CP. I had her in PT for a while cause her range of motion > is so poor, etc. etc. Just don't hear of this problem much in connection > with these issue and wondered if any of you have the same problems or see a > connection. I did have some problems with delivery where her heart rate > went down so its possible she was injured that way - but will never know for > sure. I don't know the answer to what you've asked, but I want to suggest that you also put " HBOT " on the list of therapies to consider. It is used (although " non conventional " ) for CP. The list HBOTFORCP is about this. There is also a group called MUMS network that has good info on use of HBOT for CP. http://www.netnet.net/mums/ The issue with her heart rate going down (if in fact it is an issue) might also respond to HBOT. Caveat: there may be some mercury toxic people for whom HBOT is counterindicated. Andy is aware of some who have done HBOT with negative results. I'm working to understand this better, as I ALSO do want to suggest people look into HBOT. It is used for lots of kinds of brain injury with good results. The biggest " bad points " are that it is VERY VERY expensive, and it takes a long time (many treatments). Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 I wish I could remember the name of it, but there was a group for an alternative treatment for cerebral palsy and I think it was using homeopathic cell salts or something! It was pioneered by a guy in India and so because of the travel it was not cheap and not many families had done it, but the ones who had were on the board and were positive about it. If I think of the name I'll post it. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 I remembered the name-- G-therapy... here is a website http://www.g-therapy.org/ Here are a couple of other interesting links on alternative treatments, of which HBOT is mentioned, and also amino acid therapy.. http://arizona_cpinfoshare.tripod.com/Therapies.html http://www.angelfire.com/fl2/ziggyiggy/ W > I wish I could remember the name of it, but there was a group > for an alternative treatment for cerebral palsy and I think it was > using homeopathic cell salts or something! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 >> The oldest, we > think, has a very mild case of cerebral palsy, however. I still homeschool > her because she has to pace herself although does well - just slower paced. > She is also wearing braces. She had such a bad overbite I felt I had no > choice. I am wondering if any of you have seen a connection with CP and > mercury/heavy metal issues. There is something called gluten ataxia, which is often diagnosed as mild CP. And many times, people with gluten issues have those issues because of metals. I have a study abstract I can send you, if you want. You can also consider removing gluten and see if that helps. http://www.gfcfdiet.com/ I am not sure whether enzymes will address this particular gluten issue, altho they do address many other issues. But you can consider that as well. http://www.houstonni.com/ Here is my info page on chelation http://www.danasview.net/chelate.htm Good luck. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 If you look on the poisoning chart, you'll notice that cerebral palsy is listed as one of the symptoms of mercury poisoning. My son has autism and cerebral palsy, and I believe they are both the result of mercury in his shots. Barb [ ] CP connection?? > I have pretty severe mercury poisoning myself and have 2 daughters. They > both have eye problems. My youngest has obsessive compulsive tendencies, > but is highly intelligent. I homeschooled her till this past year in 6th > grade and she gets straight A's and is a high achiever. The oldest, we > think, has a very mild case of cerebral palsy, however. I still homeschool > her because she has to pace herself although does well - just slower paced. > She is also wearing braces. She had such a bad overbite I felt I had no > choice. I am wondering if any of you have seen a connection with CP and > mercury/heavy metal issues. The CP was there before braces. With my many > amalgam fillings while pregnant (got rid of them, but have chronic illness > myself - autoimmune thyroid issues, FMS, etc.) I am assuming I passed it on. > They got their shots as well. They are 12 and 15 so it was a while back. > I refuse the new Hep A & B shots however. The oldest has problems with > sleeping as she doesn't relax and her muscles frequently bother her. This > is beyond FMS. She is spastic. Without an official dx, I'm 99% sure she > has mild spastic CP. I had her in PT for a while cause her range of motion > is so poor, etc. etc. Just don't hear of this problem much in connection > with these issue and wondered if any of you have the same problems or see a > connection. I did have some problems with delivery where her heart rate > went down so its possible she was injured that way - but will never know for > sure. At any rate - have no doubt I will have to chelate her after the > metal from her braces is taken out for nickel at least. Have done no > testing yet. I've been focusing on my own failing health. Thankfully both > girls have strong healthy teeth at this point. Just want to give them a > shot at a healthy adult hood. I am in the midst of moving from Alaska to > Atlanta in the next couple of weeks (month) and am not currently chelating > myself, but am taking Modifilan to help " mop up " whatever may be > circulating. Am thinking of, at least, starting my daughters on that in > temporary place of chelation. (Very strong seaweed). www.modifilan.com if > any of you haven't heard of it. Not saying its a replacement for chelation, > but it can help adjunct it and, for now, its all I can handle. Jeanie > > _________________________________________________________________ > Help STOP SPAM with the new MSN 8 and get 2 months FREE* > http://join.msn.com/?page=features/junkmail > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Thanks Barb, but where can I find that chart? New at navigating this site. Jeanie --- In , " romkemas " <jromkema@f...> wrote: > If you look on the poisoning chart, you'll notice that > cerebral palsy is listed as one of the symptoms of mercury poisoning. My > son has autism and cerebral palsy, and I believe they are both the result of > mercury in his shots. > Barb > [ ] CP connection?? > > > > I have pretty severe mercury poisoning myself and have 2 daughters. They > > both have eye problems. My youngest has obsessive compulsive tendencies, > > but is highly intelligent. I homeschooled her till this past year in 6th > > grade and she gets straight A's and is a high achiever. The oldest, we > > think, has a very mild case of cerebral palsy, however. I still > homeschool > > her because she has to pace herself although does well - just slower > paced. > > She is also wearing braces. She had such a bad overbite I felt I had no > > choice. I am wondering if any of you have seen a connection with CP and > > mercury/heavy metal issues. The CP was there before braces. With my many > > amalgam fillings while pregnant (got rid of them, but have chronic illness > > myself - autoimmune thyroid issues, FMS, etc.) I am assuming I passed it > on. > > They got their shots as well. They are 12 and 15 so it was a while > back. > > I refuse the new Hep A & B shots however. The oldest has problems with > > sleeping as she doesn't relax and her muscles frequently bother her. This > > is beyond FMS. She is spastic. Without an official dx, I'm 99% sure she > > has mild spastic CP. I had her in PT for a while cause her range of > motion > > is so poor, etc. etc. Just don't hear of this problem much in connection > > with these issue and wondered if any of you have the same problems or see > a > > connection. I did have some problems with delivery where her heart rate > > went down so its possible she was injured that way - but will never know > for > > sure. At any rate - have no doubt I will have to chelate her after the > > metal from her braces is taken out for nickel at least. Have done no > > testing yet. I've been focusing on my own failing health. Thankfully > both > > girls have strong healthy teeth at this point. Just want to give them a > > shot at a healthy adult hood. I am in the midst of moving from Alaska to > > Atlanta in the next couple of weeks (month) and am not currently chelating > > myself, but am taking Modifilan to help " mop up " whatever may be > > circulating. Am thinking of, at least, starting my daughters on that in > > temporary place of chelation. (Very strong seaweed). www.modifilan.com > if > > any of you haven't heard of it. Not saying its a replacement for > chelation, > > but it can help adjunct it and, for now, its all I can handle. Jeanie > > > > _________________________________________________________________ > > Help STOP SPAM with the new MSN 8 and get 2 months FREE* > > http://join.msn.com/?page=features/junkmail > > > > > > > > > > ======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Thank you Dana! I'm going to check out the sites and would appreciate the study abstract greatly. Jeanie jeanietheverner@... She eats a lot of bread and gluten products!! Jeanie > >> The oldest, we > > think, has a very mild case of cerebral palsy, however. I still > homeschool > > her because she has to pace herself although does well - just slower > paced. > > She is also wearing braces. She had such a bad overbite I felt I > had no > > choice. I am wondering if any of you have seen a connection with CP > and > > mercury/heavy metal issues. > > > There is something called gluten ataxia, which is often diagnosed as > mild CP. And many times, people with gluten issues have those issues > because of metals. I have a study abstract I can send you, if you > want. You can also consider removing gluten and see if that helps. > > http://www.gfcfdiet.com/ > > I am not sure whether enzymes will address this particular gluten > issue, altho they do address many other issues. But you can consider > that as well. > > http://www.houstonni.com/ > > Here is my info page on chelation > > http://www.danasview.net/chelate.htm > > Good luck. > > Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Hi Moria, not sure what HBOT is, but will look into it and check out the site. Thanks much! Jeanie --- In , " moriamerri " <moriam@e...> wrote: > Hello Jeanie > > > Without an official dx, I'm 99% sure she > > has mild spastic CP. I had her in PT for a while cause her range of > motion > > is so poor, etc. etc. Just don't hear of this problem much in > connection > > with these issue and wondered if any of you have the same problems > or see a > > connection. I did have some problems with delivery where her heart > rate > > went down so its possible she was injured that way - but will never > know for > > sure. > > I don't know the answer to what you've asked, but I want to suggest > that you also put " HBOT " on the list of therapies to consider. > It is used (although " non conventional " ) for CP. The list > HBOTFORCP is about this. There is also a group called MUMS > network that has good info on use of HBOT for CP. > http://www.netnet.net/mums/ > The issue with her heart rate going down (if in fact it is an > issue) might also respond to HBOT. > > Caveat: there may be some mercury toxic people for whom > HBOT is counterindicated. Andy is aware of some who have > done HBOT with negative results. I'm working to understand > this better, as I ALSO do want to suggest people look into > HBOT. It is used for lots of kinds of brain injury with > good results. The biggest " bad points " are that it is VERY > VERY expensive, and it takes a long time (many treatments). > > Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Thank you W! Jeanie > > I wish I could remember the name of it, but there was a group > > for an alternative treatment for cerebral palsy and I think it was > > using homeopathic cell salts or something! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 www.autism.com/ari Look under mercury for the autism/mercury paper. There is a short and long version of this. I believe the long version has the chart, maybe both? Barb [ ] CP connection?? > > > > > > > I have pretty severe mercury poisoning myself and have 2 > daughters. They > > > both have eye problems. My youngest has obsessive compulsive > tendencies, > > > but is highly intelligent. I homeschooled her till this past > year in 6th > > > grade and she gets straight A's and is a high achiever. The > oldest, we > > > think, has a very mild case of cerebral palsy, however. I still > > homeschool > > > her because she has to pace herself although does well - just > slower > > paced. > > > She is also wearing braces. She had such a bad overbite I felt I > had no > > > choice. I am wondering if any of you have seen a connection with > CP and > > > mercury/heavy metal issues. The CP was there before braces. > With my many > > > amalgam fillings while pregnant (got rid of them, but have > chronic illness > > > myself - autoimmune thyroid issues, FMS, etc.) I am assuming I > passed it > > on. > > > They got their shots as well. They are 12 and 15 so it was a > while > > back. > > > I refuse the new Hep A & B shots however. The oldest has > problems with > > > sleeping as she doesn't relax and her muscles frequently bother > her. This > > > is beyond FMS. She is spastic. Without an official dx, I'm 99% > sure she > > > has mild spastic CP. I had her in PT for a while cause her range > of > > motion > > > is so poor, etc. etc. Just don't hear of this problem much in > connection > > > with these issue and wondered if any of you have the same > problems or see > > a > > > connection. I did have some problems with delivery where her > heart rate > > > went down so its possible she was injured that way - but will > never know > > for > > > sure. At any rate - have no doubt I will have to chelate her > after the > > > metal from her braces is taken out for nickel at least. Have > done no > > > testing yet. I've been focusing on my own failing health. > Thankfully > > both > > > girls have strong healthy teeth at this point. Just want to give > them a > > > shot at a healthy adult hood. I am in the midst of moving from > Alaska to > > > Atlanta in the next couple of weeks (month) and am not currently > chelating > > > myself, but am taking Modifilan to help " mop up " whatever may be > > > circulating. Am thinking of, at least, starting my daughters on > that in > > > temporary place of chelation. (Very strong seaweed). > www.modifilan.com > > if > > > any of you haven't heard of it. Not saying its a replacement for > > chelation, > > > but it can help adjunct it and, for now, its all I can handle. > Jeanie > > > > > > _________________________________________________________________ > > > Help STOP SPAM with the new MSN 8 and get 2 months FREE* > > > http://join.msn.com/?page=features/junkmail > > > > > > > > > > > > > > > ======================================================= > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 > Thank you Dana! I'm going to check out the sites and would > appreciate the study abstract greatly. Jeanie > jeanietheverner@h... She eats a lot of bread and gluten > products!! Jeanie Sensitivity To Gluten May Result in Neurological Dysfunction; Independent of Symptoms ST. PAUL, MN - You may have gluten sensitivity and not even know it, according to a study published in the April 23 issue of Neurology, the scientific journal of the American Academy of Neurology. Loss of coordination (ataxia) may result from gluten sensitivity. This disease is known as gluten ataxia. The study found that some patients might never experience the gastrointestinal symptoms that prompt them to seek treatment for the disorder. " Gluten ataxia is a common neurological manifestation of gluten sensitivity, " according to M. Hadjivassiliou, M.D., of the Royal Hallamshire Hospital, Sheffield, UK. " It remains unclear why some patients with gluten sensitivity present solely with neurological dysfunction when others present with gastrointentestinal symptoms (gluten sensitive enteropathy) or an itchy skin rash (dermatitis herpetiformis). " Although the cerebellum (the part of the brain responsible for coordination) and in particular the Purkinje cells (output neurons of the cerebellum) appear to be most susceptible to damage in patients with gluten ataxia, other areas of the brain are not spared. " We were interested to determine the mechanism by which Purkinje cells are damaged in gluten ataxia, " commented Hadjivassiliou. Study results show that patients with gluten ataxia have antibodies against Purkinje cells and also that antibodies against gluten (antigliadin antibodies) cross-react with Purkinje cells. " These results strengthen our contention that eliminating these antibodies through strict adherence to a gluten-free diet may have important therapeutic implications for patients with gluten ataxia, " concluded Hadjivassiliou. The study was supported by the Friedreich's Ataxia Group, UK, and the Telethon Foundation, Italy. © 2001 American Academy of Neurology The American Academy of Neurology, an association of 18,000 neurologists and neuroscience professionals, is dedicated to improving patient care through education and research. For more information about the American Academy of Neurology, visit its web site at www.aan.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 --- In , " romkemas " <jromkema@f...> wrote: > www.autism.com/ari Look under mercury for the autism/mercury paper. There > is a short and long version of this. I believe the long version has the > chart, maybe both? Here is the long version http://www.autism.com/ari/mercurylong.html Dana Quote Link to comment Share on other sites More sharing options...
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