Guest guest Posted October 11, 2009 Report Share Posted October 11, 2009 We shall miss you while you are gone! Have a nice visit with your mom and crew. > Dear Andi > Sorry, sweetie, I'm not on any MS drugs. The only meds I take for it is > Prednisone. The only reason I was put on Prednisone is because of my severe > asthma. So I'm lucky to take the pills. It works for both, so it just have > to do. You're talking about shots. I'm out of here. No needles. So sorry, I > can't give you any advice on those things. Just glad I don't do shots. I'm > probably the only woman who runs like mad when I see a needle. So, big > problem there. Good luck with the meds. I'm sure someone else on the group > will be able to help you with that. > We will definitely miss you when you're at your mom's. Hey, I'm only in the > internet over a year, so I used to play freecell and solitaire. The freecell > really works my poor brain. LOL > Love to you > > > > > > ________________________________ > > To: MSersLife > Sent: Sun, October 11, 2009 6:43:32 PM > Subject: Re: Good Day, Morning, Evening! - UPDATE > > > , > > Are you on any MS therapy drug? Like Avonex, Rebif, etc.? I'm supposed to > be switching from Rebif to Avonex b/c I couldn't get myself to take my shots > on a regular basis. Now I can't get myself to order the Avonex. They stress > it, I've heard some of you all stress it... I hate it, I also smoke, (my > addiction) and I hate that too, but the patch and this Chantx I've heard > good things about are too expensive for me. Oh I HAD medicaid, which was > GREAT, but they cut it this year b/c of Mike's income (?) so, which just his > insur. some things are too expensive. I believe, off the top of my head, (I > don't have my date/address book-LIFE) I pay no more than 100 a month in > Rx's, which isn't bad compared to alot of ppl, but enough for us, > considering we own our home, are trying to repair our credit from our young > and dumb years, my medical bills, etc.! > > A note to those in case you may notice, when I'm at my mom's, I'm off the > grid. She has a computer, but it's a relic and I'm lucky if I get to play > freecell! I love that aspect of bein home, even tho this will be a first > for me, since she has moved in w/ her b/f (an awesome guy!) it won't be > " home " , but I'm sure I'll be fine . > > Much love to all! > > Andi > > >> > >> > Hi Andi >> > I'm so glad to hear from you again. Keep it up sweetie. Even if you just >> > want to cry all over the place, just as long as you don't shut down. I >> > know, when I'm depressed, which is always, I want to shut the whole >> > world out. It's not good for me, but at that time, I don't care about >> > anything. So I'm glad to hear that you're still hanging on. Good luck to >> > you and all the problems. It's so difficult to handle even the smallest >> > problem and tension with MS, but to handle the big stuff like you, well, >> > that takes a lot of courage. So you hang in there. >> > Your silly friend >> > >> > >> > >> > >> > >> > ____________ _________ _________ __ >> > From: Andi Jo <boononymous@ ...> >> > To: MSersLife@yahoogrou ps.com >> > Sent: Thu, October 1, 2009 9:31:15 PM >> > Subject: Good Day, Morning, Evening! >> > >> > >> > Hello to all, hoping this reaches u in good spirits . For this >> > moment, I can say I am doing ok. Now, in an hour, I might start sobbing >> > uncontrollably or throw my hands up, but I have little mantras I repeat >> > to myself: " I am not built to break! " " One day at a time, one hour at a >> > time, five minutes at a time. " My mom stopped by yesterday, which is >> > rare, and we had a good talk on my porch where I broke down and admitted >> > to my mother, who has Lupus, that I was scared and not telling her about >> > my problems b/c I didn't want to worry her. My family comes from a VERY >> > small town, (about 300 ppl!) with my younger brother and my older sister >> > living there, I feel like I don't need to burden her w/ my problems too. >> > She was married to my alcoholic abusive father for 25 yrs and now has a >> > wonderful relationship w/ a man who is going thru galbladder surgery, >> > and dealing w/ my sister is a full-time job, her being the definition of >> > an enabler. Earlier this yr, > my >> > brother and I tried to do an intervention w/ my sis and b/c of that and >> > my sister's choice in her relationship (HE lives with another girl, >> > sleeps w/ who knows how many others and has been playing this outlandish >> > game for over 7 yrs.) MY main concern was my neice and Goddaughter, but >> > he and her addictions convinced her that I am out to get her, having >> > nothing better to do since " all I do is cause drama " . She banned my >> > from my neice, which still angers me, b/c she allows the child's father >> > in her life, who is nothing short of everything defining abuse, >> > addiction, manipulation, etc.! They (Wonderboy-b/ f- and my sis) have >> > brought our friends, family into this, even my friends that they don't >> > personally know and run into they have trashed me. My sister says I >> > think I am better than everyone...my reply to her was, " all the things >> > I've done, how CAN I be?? We are ALL no better than anyone. " Her reply? >> > " YEAH " UH, yeah. When I suggest finding her > faith, >> > seeking help, she says she doesn't need it and I am dead to her. >> > >> > You want to know the kicker? This " boyfriend " of hers? Is my husband's >> > brother, my brother-in-law. My husband doesnt talk to him very much and >> > I know this drives him to the brink as well. He has also been cut off >> > from some of his " friends " b/c of this, but it's like we say, we cannot >> > allow ourselves to be drug down with that. Its sad to see people you >> > know who could have a much better life if they would realize their >> > worth, see a better way. Her addictions have turned me away from meds, >> > I don't want to take anything that is going to put me down for days, but >> > I know w/ my MS I NEED to slow down. OH, yeah, according to my sis, I >> > have no idea what pain or suffering is, her Fibro is worse than Mom's >> > Lupus or MS period, so she has to pop pills and drink herself into >> > oblivion...hmmmm. >> > >> > But, that is the tip of the iceberg of my glacier of issues! I do take >> > Effexor, 300 mg a day, which I think is alot and I hate that I'm >> > dependant on it and my other meds, to the point that my husband and I >> > myself battle w/ taking them regularly. I feel lately, that I have been >> > at war w/ myself, between wanting to fight and do what I can to survive >> > and LIVE with this disease, and other times just take the easy road and >> > do what my sis does. But I can't even be an alcoholic cuz that makes my >> > symptoms worse! UGH. So, I pray, do my little household things, and try >> > to be the best person I can be...and I try to laugh everyday, even >> > w/tears. I sometimes think, would they realize when I'm gone that all I >> > want is our family to love one another and be at peace w/ themselves? >> > MS is a humbling disease, I'm reminded every day that I'm not perfect, >> > my body isn't going to last forever and neither am I, I do not take for >> > granted any happy moment I do have. >> > >> > That being said, If I figure out how to post pics on here I will do so >> > soon! Much Love to you all! >> > -Andi Jo >> > >> > > > > > > -- Jolie And we pray X 4 Everyday X 4 Haters can keep on hating... Quote Link to comment Share on other sites More sharing options...
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