Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 Hi Andi,Glad to read of your good neuro visit. I hate MRIs also, though if they give you headphones with music, it isn't quite as bad. Sometimes I've even drifted off to sleep! That, I suppose, shows my level of fatigue! lol!Steroids are a blessing in disguise. They can be very helpful, but then there are the drawbacks, what with increased appetite and weight gain. The upside is that you get plenty of energy!Let us know the results of the MRI when you find out.blessings and hugs,Kate in NY Good Day, Morning, Evening!> > > > > > Hello to all, hoping this reaches u in good spirits . For > this moment, I can say I am doing ok. Now, in an hour, I might > start sobbing uncontrollably or throw my hands up, but I have > little mantras I repeat to myself: "I am not built to break!" > "One day at a time, one hour at a time, five minutes at a time." > My mom stopped by yesterday, which is rare, and we had a good > talk on my porch where I broke down and admitted to my mother, > who has Lupus, that I was scared and not telling her about my > problems b/c I didn't want to worry her. My family comes from a > VERY small town, (about 300 ppl!) with my younger brother and my > older sister living there, I feel like I don't need to burden > her w/ my problems too. She was married to my alcoholic abusive > father for 25 yrs and now has a wonderful relationship w/ a man > who is going thru galbladder surgery, and dealing w/ my sister > is a full-time job, her being the definition of an enabler. > Earlier this yr, my> > brother and I tried to do an intervention w/ my sis and b/c > of that and my sister's choice in her relationship (HE lives > with another girl, sleeps w/ who knows how many others and has > been playing this outlandish game for over 7 yrs.) MY main > concern was my neice and Goddaughter, but he and her addictions > convinced her that I am out to get her, having nothing better to > do since "all I do is cause drama". She banned my from my > neice, which still angers me, b/c she allows the child's father > in her life, who is nothing short of everything defining abuse, > addiction, manipulation, etc.! They (Wonderboy-b/ f- and my > sis) have brought our friends, family into this, even my friends > that they don't personally know and run into they have trashed > me. My sister says I think I am better than everyone...my reply > to her was, "all the things I've done, how CAN I be?? We are > ALL no better than anyone." Her reply? "YEAH" UH, yeah. When I > suggest finding her faith,> > seeking help, she says she doesn't need it and I am dead to > her. > > > > You want to know the kicker? This "boyfriend" of hers? Is my > husband's brother, my brother-in-law. My husband doesnt talk to > him very much and I know this drives him to the brink as well. > He has also been cut off from some of his "friends" b/c of this, > but it's like we say, we cannot allow ourselves to be drug down > with that. Its sad to see people you know who could have a much > better life if they would realize their worth, see a better way. > Her addictions have turned me away from meds, I don't want to > take anything that is going to put me down for days, but I know > w/ my MS I NEED to slow down. OH, yeah, according to my sis, I > have no idea what pain or suffering is, her Fibro is worse than > Mom's Lupus or MS period, so she has to pop pills and drink > herself into oblivion...hmmmm.> > > > But, that is the tip of the iceberg of my glacier of issues! I > do take Effexor, 300 mg a day, which I think is alot and I hate > that I'm dependant on it and my other meds, to the point that my > husband and I myself battle w/ taking them regularly. I feel > lately, that I have been at war w/ myself, between wanting to > fight and do what I can to survive and LIVE with this disease, > and other times just take the easy road and do what my sis does. > But I can't even be an alcoholic cuz that makes my symptoms > worse! UGH. So, I pray, do my little household things, and try > to be the best person I can be...and I try to laugh everyday, > even w/tears. I sometimes think, would they realize when I'm > gone that all I want is our family to love one another and be at > peace w/ themselves? MS is a humbling disease, I'm reminded > every day that I'm not perfect, my body isn't going to last > forever and neither am I, I do not take for granted any happy > moment I do have.> > > > That being said, If I figure out how to post pics on here I > will do so soon! Much Love to you all!> > -Andi Jo> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 Hi AndiI can just imagine you're sitting between two fires. Not knowing which one you prefer. To have more lesions is a problem, but to have "oh, just grin and bear it", that sounds even worse. I hate it when the doctors say, oh there's nothing we can do about the chronic pain and we can't do anything about the creepy crawly ants, you just have to handle it. Good luck, I hope you get the steroids. I drink Prednisone (steroids) now for 8 years non-stop. There are times that a week will pass, if I'm lucky, without the pills. It helps in the way that it makes my breathing easier. I got it for my severe asthma, but it helps for the MS as well. Hey, I like to take one pill and fix 2 problems at once. LOL I try to keep my dosage as low as possible, but it's great to know that I have it when I need it. I found that my breathing/asthma is worse when I have a flare-up. Not sure if it's caused by MS or if the pain behind my back (part where the lungs are) caused me to have difficulty breathing, but anyways, it helps for both. So who cares what the reason is, just as long as it helps me to breath. Hey, I will still need a last breath to blow out before I drop dead, right? LOLAbout the H1N1 flu? Well, stay clear of pigs. LOL Wish it was so simple. I wonder why they drag the poor animals into it? It's bird flu, pig flu and my personal favorite mad cow. Okay, trying to be serious this side, I'm glad that you have the shots available. I'm so needle phobic, I'd rather take my chances. LOL No needles, please.LoveTo: MSersLife Sent: Wed, October 7, 2009 3:45:18 PMSubject: Re: Good Day, Morning, Evening! - UPDATE Thank you for your words of encouragement! My visit w/ my neuro went fairly well, I had my journal and my list of questions/complaint s and we covered everything.. ..thanks to you, we switched my pain meds to neurontin and blaclofen and ordered a full MRI to be done on Monday (I hate MRIs) and pending the results he may put me on steriods. One side of the coin, I hope the MRI shows SOMETHING in that what I'm going thru is validated, but the other side I don't want proof that my MS is producing more lesions. And if the MRIs show nothing I fear he won't order steriods and these worsening symptoms will be another thing I have to just "grin and bear" A bit of good news tho, Grand Island NE finally got H1N1 flu shots so if I get that at least our area has the shot available! Andi > > Hi Andi > I'm so glad to hear from you again. Keep it up sweetie. Even if you just want to cry all over the place, just as long as you don't shut down. I know, when I'm depressed, which is always, I want to shut the whole world out. It's not good for me, but at that time, I don't care about anything. So I'm glad to hear that you're still hanging on. Good luck to you and all the problems. It's so difficult to handle even the smallest problem and tension with MS, but to handle the big stuff like you, well, that takes a lot of courage. So you hang in there. > Your silly friend > > > > > > ____________ _________ _________ __ > From: Andi Jo <boononymous@ ...> > To: MSersLife@yahoogrou ps.com > Sent: Thu, October 1, 2009 9:31:15 PM > Subject: Good Day, Morning, Evening! > > > Hello to all, hoping this reaches u in good spirits . For this moment, I can say I am doing ok. Now, in an hour, I might start sobbing uncontrollably or throw my hands up, but I have little mantras I repeat to myself: "I am not built to break!" "One day at a time, one hour at a time, five minutes at a time." My mom stopped by yesterday, which is rare, and we had a good talk on my porch where I broke down and admitted to my mother, who has Lupus, that I was scared and not telling her about my problems b/c I didn't want to worry her. My family comes from a VERY small town, (about 300 ppl!) with my younger brother and my older sister living there, I feel like I don't need to burden her w/ my problems too. She was married to my alcoholic abusive father for 25 yrs and now has a wonderful relationship w/ a man who is going thru galbladder surgery, and dealing w/ my sister is a full-time job, her being the definition of an enabler. Earlier this yr, my > brother and I tried to do an intervention w/ my sis and b/c of that and my sister's choice in her relationship (HE lives with another girl, sleeps w/ who knows how many others and has been playing this outlandish game for over 7 yrs.) MY main concern was my neice and Goddaughter, but he and her addictions convinced her that I am out to get her, having nothing better to do since "all I do is cause drama". She banned my from my neice, which still angers me, b/c she allows the child's father in her life, who is nothing short of everything defining abuse, addiction, manipulation, etc.! They (Wonderboy-b/ f- and my sis) have brought our friends, family into this, even my friends that they don't personally know and run into they have trashed me. My sister says I think I am better than everyone...my reply to her was, "all the things I've done, how CAN I be?? We are ALL no better than anyone." Her reply? "YEAH" UH, yeah. When I suggest finding her faith, > seeking help, she says she doesn't need it and I am dead to her. > > You want to know the kicker? This "boyfriend" of hers? Is my husband's brother, my brother-in-law. My husband doesnt talk to him very much and I know this drives him to the brink as well. He has also been cut off from some of his "friends" b/c of this, but it's like we say, we cannot allow ourselves to be drug down with that. Its sad to see people you know who could have a much better life if they would realize their worth, see a better way. Her addictions have turned me away from meds, I don't want to take anything that is going to put me down for days, but I know w/ my MS I NEED to slow down. OH, yeah, according to my sis, I have no idea what pain or suffering is, her Fibro is worse than Mom's Lupus or MS period, so she has to pop pills and drink herself into oblivion...hmmmm. > > But, that is the tip of the iceberg of my glacier of issues! I do take Effexor, 300 mg a day, which I think is alot and I hate that I'm dependant on it and my other meds, to the point that my husband and I myself battle w/ taking them regularly. I feel lately, that I have been at war w/ myself, between wanting to fight and do what I can to survive and LIVE with this disease, and other times just take the easy road and do what my sis does. But I can't even be an alcoholic cuz that makes my symptoms worse! UGH. So, I pray, do my little household things, and try to be the best person I can be...and I try to laugh everyday, even w/tears. I sometimes think, would they realize when I'm gone that all I want is our family to love one another and be at peace w/ themselves? MS is a humbling disease, I'm reminded every day that I'm not perfect, my body isn't going to last forever and neither am I, I do not take for granted any happy moment I do have. > > That being said, If I figure out how to post pics on here I will do so soon! Much Love to you all! > -Andi Jo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 Oh, yeah, don't mention the appetite. I sometimes feel I can eat the paint of the walls. LOL But that usually happens after 21 days, I try not to take them that long in a row. Unfortunately, I don't get too much energy anymore. Maybe I'm too over the hill, or maybe the dosage is a little low. But my mom, ooh, if she takes 2 (10mg Prednisone) for her severe arthritis, well, you better watch out. That 74 year old lady can run you down. She's busy like mad, running all over the place. Boy, I get tired just watching her. LOLTo: MSersLife Sent: Wed, October 7, 2009 3:54:33 PMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE Hi Andi,Glad to read of your good neuro visit. I hate MRIs also, though if they give you headphones with music, it isn't quite as bad. Sometimes I've even drifted off to sleep! That, I suppose, shows my level of fatigue! lol!Steroids are a blessing in disguise. They can be very helpful, but then there are the drawbacks, what with increased appetite and weight gain. The upside is that you get plenty of energy!Let us know the results of the MRI when you find out.blessings and hugs,Kate in NY Good Day, Morning, Evening!> > > > > > Hello to all, hoping this reaches u in good spirits . For > this moment, I can say I am doing ok. Now, in an hour, I might > start sobbing uncontrollably or throw my hands up, but I have > little mantras I repeat to myself: "I am not built to break!" > "One day at a time, one hour at a time, five minutes at a time." > My mom stopped by yesterday, which is rare, and we had a good > talk on my porch where I broke down and admitted to my mother, > who has Lupus, that I was scared and not telling her about my > problems b/c I didn't want to worry her. My family comes from a > VERY small town, (about 300 ppl!) with my younger brother and my > older sister living there, I feel like I don't need to burden > her w/ my problems too. She was married to my alcoholic abusive > father for 25 yrs and now has a wonderful relationship w/ a man > who is going thru galbladder surgery, and dealing w/ my sister > is a full-time job, her being the definition of an enabler. > Earlier this yr, my> > brother and I tried to do an intervention w/ my sis and b/c > of that and my sister's choice in her relationship (HE lives > with another girl, sleeps w/ who knows how many others and has > been playing this outlandish game for over 7 yrs.) MY main > concern was my neice and Goddaughter, but he and her addictions > convinced her that I am out to get her, having nothing better to > do since "all I do is cause drama". She banned my from my > neice, which still angers me, b/c she allows the child's father > in her life, who is nothing short of everything defining abuse, > addiction, manipulation, etc.! They (Wonderboy-b/ f- and my > sis) have brought our friends, family into this, even my friends > that they don't personally know and run into they have trashed > me. My sister says I think I am better than everyone...my reply > to her was, "all the things I've done, how CAN I be?? We are > ALL no better than anyone." Her reply? "YEAH" UH, yeah. When I > suggest finding her faith,> > seeking help, she says she doesn't need it and I am dead to > her. > > > > You want to know the kicker? This "boyfriend" of hers? Is my > husband's brother, my brother-in-law. My husband doesnt talk to > him very much and I know this drives him to the brink as well. > He has also been cut off from some of his "friends" b/c of this, > but it's like we say, we cannot allow ourselves to be drug down > with that. Its sad to see people you know who could have a much > better life if they would realize their worth, see a better way. > Her addictions have turned me away from meds, I don't want to > take anything that is going to put me down for days, but I know > w/ my MS I NEED to slow down. OH, yeah, according to my sis, I > have no idea what pain or suffering is, her Fibro is worse than > Mom's Lupus or MS period, so she has to pop pills and drink > herself into oblivion...hmmmm.> > > > But, that is the tip of the iceberg of my glacier of issues! I > do take Effexor, 300 mg a day, which I think is alot and I hate > that I'm dependant on it and my other meds, to the point that my > husband and I myself battle w/ taking them regularly. I feel > lately, that I have been at war w/ myself, between wanting to > fight and do what I can to survive and LIVE with this disease, > and other times just take the easy road and do what my sis does. > But I can't even be an alcoholic cuz that makes my symptoms > worse! UGH. So, I pray, do my little household things, and try > to be the best person I can be...and I try to laugh everyday, > even w/tears. I sometimes think, would they realize when I'm > gone that all I want is our family to love one another and be at > peace w/ themselves? MS is a humbling disease, I'm reminded > every day that I'm not perfect, my body isn't going to last > forever and neither am I, I do not take for granted any happy > moment I do have.> > > > That being said, If I figure out how to post pics on here I > will do so soon! Much Love to you all!> > -Andi Jo> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 Anyone considering getting the H1N1 please do further research on it! I took my daughter to the doctor for her check up, her doctor actually discouraged getting not only the H1N1 but the regular flu vaccine. My neurologist also told me not to get either. I'm not saying don't get it, I'm just saying to research it first. It has a high potential of Guillain-Barre Syndrome. I'm told this risk is higher for people with neurological diseases or immune systm disorders. Ask you doctors and their opinions...and if they know the risks. Just saying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 Thank you for mentioning this, Jolie. As it happened,I have already had H1N1 (they found that when I hadpneumonia--am all better), and I had my seasonal influenza injection yesterday--so far, so good.Love,nTo: MSersLife Sent: Wed, October 7, 2009 9:22:36 PMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE Anyone considering getting the H1N1 please do further research on it! I took my daughter to the doctor for her check up, her doctor actually discouraged getting not only the H1N1 but the regular flu vaccine. My neurologist also told me not to get either. I'm not saying don't get it, I'm just saying to research it first. It has a high potential of Guillain-Barre Syndrome. I'm told this risk is higher for people with neurological diseases or immune systm disorders. Ask you doctors and their opinions...and if they know the risks. Just saying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 I am re-sending this as my mail program did not show itas sent. nTo: MSersLife Sent: Wed, October 7, 2009 9:33:39 PMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE Thank you for mentioning this, Jolie. As it happened,I have already had H1N1 (they found that when I hadpneumonia--am all better), and I had my seasonal influenza injection yesterday--so far, so good.Love,nFrom: Jolie Riojas <osa503gmail (DOT) com>To: MSersLife@yahoogrou ps.comSent: Wed, October 7, 2009 9:22:36 PMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE Anyone considering getting the H1N1 please do further research on it! I took my daughter to the doctor for her check up, her doctor actually discouraged getting not only the H1N1 but the regular flu vaccine. My neurologist also told me not to get either. I'm not saying don't get it, I'm just saying to research it first. It has a high potential of Guillain-Barre Syndrome. I'm told this risk is higher for people with neurological diseases or immune systm disorders. Ask you doctors and their opinions...and if they know the risks. Just saying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 I did not have the 1976 seasonal influenza vaccine,as there was almost no flu worldwide that year. Thatvaccine (33 years ago) was a very bad one, and I knowof none that bad before or since. I realize that one isinoculated to pieces in the military, as one of my ownchildren served in the First Gulf War. If I did not haveCystic Fibrosis, which affects my lungs from time totime, I might not bother either. The real fun for me waswhen they made a variety of vaccines from protein foundin hamster eggs--you guessed it; I am allergic to hamsters.My kid who served in the military was one of my daughters.She regaled me with accounts of men passing out at the mere sight of a syringe, whereas, according to her, not a woman fell. Do what seems best to you; my internist and my neurologistsay that if one has the seasonal influenza vaccine, that oneis much less likely to become very ill with the H1N1 flu.Good luck to you, , and to all of you in our group,nTo: MSersLife Sent: Wed, October 7, 2009 10:44:19 PMSubject: RE: Re: Good Day, Morning, Evening! - UPDATE I've had 2 flu shots in my life, and both put me in the hospital - the first was the 1976 Swine Flu Vaccine, courtesy of Uncle Sam whether we wanted it or not (out of a squadron of 52 women, 47 ended up with at least 6 hours in sickbay) and the other a "regular" flu shot, again enforced by Uncle Sam, which put me out of action for almost 3 weeks... (Military health care logic applied here - patient has almost continuous vomiting. Treatment? ORAL antiemetics. ...) I've heard both ways about the current vaccs - I guess we all have to weigh whether the flu is more dangerous to us than the shot... I'm a hermit, and I'm not getting a shot. Himself is in constant contact with the public and a first responder, so he is at least getting the "regular" flu shot... in WY "You get a wonderful view from the point of no return..." http://www.flickr. com/photos/ liadains_ fancies http://practical- blackwork. blogspot. com NEW!!! - website in progress!- http://practicalblackwork.com Re: Re: Good Day, Morning, Evening! - UPDATE Anyone considering getting the H1N1 please do further research on it! I took my daughter to the doctor for her check up, her doctor actually discouraged getting not only the H1N1 but the regular flu vaccine. My neurologist also told me not to get either. I'm not saying don't get it, I'm just saying to research it first. It has a high potential of Guillain-Barre Syndrome. I'm told this risk is higher for people with neurological diseases or immune systm disorders. Ask you doctors and their opinions...and if they know the risks. Just saying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 I've had 2 flu shots in my life, and both put me in the hospital - the first was the 1976 Swine Flu Vaccine, courtesy of Uncle Sam whether we wanted it or not (out of a squadron of 52 women, 47 ended up with at least 6 hours in sickbay) and the other a " regular " flu shot, again enforced by Uncle Sam, which put me out of action for almost 3 weeks... (Military health care logic applied here - patient has almost continuous vomiting. Treatment? ORAL antiemetics....) I've heard both ways about the current vaccs - I guess we all have to weigh whether the flu is more dangerous to us than the shot... I'm a hermit, and I'm not getting a shot. Himself is in constant contact with the public and a first responder, so he is at least getting the " regular " flu shot... in WY " You get a wonderful view from the point of no return... "    http://www.flickr.com/photos/liadains_fancies http://practical-blackwork.blogspot.com     NEW!!! - website in progress!- http://practicalblackwork.com Re: Re: Good Day, Morning, Evening! - UPDATE  Anyone considering getting the H1N1 please do further research on it! I took my daughter to the doctor for her check up, her doctor actually discouraged getting not only the H1N1 but the regular flu vaccine. My neurologist also told me not to get either. I'm not saying don't get it, I'm just saying to research it first. It has a high potential of Guillain-Barre Syndrome. I'm told this risk is higher for people with neurological diseases or immune systm disorders. Ask you doctors and their opinions...and if they know the risks. Just saying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Its funny how divided even neurologists are on the flu shot issue. My neurologist encourages the seasonal flu shot. I have gotten it for the past few years and have had no issues. My teacher’s aide has been out with the H1N1 for the past 10 days as have several of my students. I have been blessed to only have a cold so far. I am sticking ( no pun intended) to the flu shot since I teach and am in a giant germ pool!! Have a great day, Connie From: MSersLife [mailto:MSersLife ] On Behalf Of Jolie Riojas Sent: Wednesday, October 07, 2009 11:23 PM To: MSersLife Subject: Re: Re: Good Day, Morning, Evening! - UPDATE Anyone considering getting the H1N1 please do further research on it! I took my daughter to the doctor for her check up, her doctor actually discouraged getting not only the H1N1 but the regular flu vaccine. My neurologist also told me not to get either. I'm not saying don't get it, I'm just saying to research it first. It has a high potential of Guillain-Barre Syndrome. I'm told this risk is higher for people with neurological diseases or immune systm disorders. Ask you doctors and their opinions...and if they know the risks. Just saying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 The regular flu shot is what triggered Transverse Myelitis for me. My neuro told me NEVER to get another flu shot.Thanks for passing the info from your doc, Jolie. SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, October 7, 2009 9:22:36 PMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE Anyone considering getting the H1N1 please do further research on it!I took my daughter to the doctor for her check up, her doctor actuallydiscouraged getting not only the H1N1 but the regular flu vaccine. Myneurologist also told me not to get either. I'm not saying don't getit, I'm just saying to research it first. It has a high potential ofGuillain-Barre Syndrome. I'm told this risk is higher for people withneurological diseases or immune systm disorders. Ask you doctors andtheir opinions...and if they know the risks. Just saying.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Yipppppeeeee! I don't have to get a shot. No needles! LOLYou know what the worst thing is, I guess it works with any vaccines. They actually take that virus (dead, but still the virus) and inject it into you. It's actually scary. I know my mom once had the regular flu shot, because of all her health problems. Turned out she's allergic to it, even though they say the big risk is that if you're allergic to eggs, you should avoid it. Well, she's not allergic to eggs, but still had a big bump on her arm. I will stick to my point, NO NEEDLES!!!To: MSersLife Sent: Thu, October 8, 2009 6:22:36 AMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE Anyone considering getting the H1N1 please do further research on it! I took my daughter to the doctor for her check up, her doctor actually discouraged getting not only the H1N1 but the regular flu vaccine. My neurologist also told me not to get either. I'm not saying don't get it, I'm just saying to research it first. It has a high potential of Guillain-Barre Syndrome. I'm told this risk is higher for people with neurological diseases or immune systm disorders. Ask you doctors and their opinions...and if they know the risks. Just saying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Glad you're survived the pigs. Glad you're better and back on line with us. What will we do without you, sweetie?LoveTo: MSersLife Sent: Thu, October 8, 2009 6:33:39 AMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE Thank you for mentioning this, Jolie. As it happened,I have already had H1N1 (they found that when I hadpneumonia--am all better), and I had my seasonal influenza injection yesterday--so far, so good.Love,nFrom: Jolie Riojas <osa503gmail (DOT) com>To: MSersLife@yahoogrou ps.comSent: Wed, October 7, 2009 9:22:36 PMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE Anyone considering getting the H1N1 please do further research on it! I took my daughter to the doctor for her check up, her doctor actually discouraged getting not only the H1N1 but the regular flu vaccine. My neurologist also told me not to get either. I'm not saying don't get it, I'm just saying to research it first. It has a high potential of Guillain-Barre Syndrome. I'm told this risk is higher for people with neurological diseases or immune systm disorders. Ask you doctors and their opinions...and if they know the risks. Just saying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Now n, does that mean I'm actually a man? When I see a syringe I run like mad. LOLTo: MSersLife Sent: Thu, October 8, 2009 7:14:14 AMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE I did not have the 1976 seasonal influenza vaccine,as there was almost no flu worldwide that year. Thatvaccine (33 years ago) was a very bad one, and I knowof none that bad before or since. I realize that one isinoculated to pieces in the military, as one of my ownchildren served in the First Gulf War. If I did not haveCystic Fibrosis, which affects my lungs from time totime, I might not bother either. The real fun for me waswhen they made a variety of vaccines from protein foundin hamster eggs--you guessed it; I am allergic to hamsters.My kid who served in the military was one of my daughters.She regaled me with accounts of men passing out at the mere sight of a syringe, whereas, according to her, not a woman fell. Do what seems best to you; my internist and my neurologistsay that if one has the seasonal influenza vaccine, that oneis much less likely to become very ill with the H1N1 flu.Good luck to you, , and to all of you in our group,nFrom: Thallas <fathallas@collinsco m.net>To: MSersLife@yahoogrou ps.comSent: Wed, October 7, 2009 10:44:19 PMSubject: RE: Re: Good Day, Morning, Evening! - UPDATE I've had 2 flu shots in my life, and both put me in the hospital - the first was the 1976 Swine Flu Vaccine, courtesy of Uncle Sam whether we wanted it or not (out of a squadron of 52 women, 47 ended up with at least 6 hours in sickbay) and the other a "regular" flu shot, again enforced by Uncle Sam, which put me out of action for almost 3 weeks... (Military health care logic applied here - patient has almost continuous vomiting. Treatment? ORAL antiemetics. ...) I've heard both ways about the current vaccs - I guess we all have to weigh whether the flu is more dangerous to us than the shot... I'm a hermit, and I'm not getting a shot. Himself is in constant contact with the public and a first responder, so he is at least getting the "regular" flu shot... in WY "You get a wonderful view from the point of no return..." http://www.flickr. com/photos/ liadains_ fancies http://practical- blackwork. blogspot. com NEW!!! - website in progress!- http://practicalbla ckwork.com Re: Re: Good Day, Morning, Evening! - UPDATE Anyone considering getting the H1N1 please do further research on it! I took my daughter to the doctor for her check up, her doctor actually discouraged getting not only the H1N1 but the regular flu vaccine. My neurologist also told me not to get either. I'm not saying don't get it, I'm just saying to research it first. It has a high potential of Guillain-Barre Syndrome. I'm told this risk is higher for people with neurological diseases or immune systm disorders. Ask you doctors and their opinions...and if they know the risks. Just saying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Of course not. Means you are syringe0phobic like men are! Love to you, , n > > Subject: Re: Re: Good Day, Morning, Evening! - UPDATE > To: MSersLife > Date: Thursday, October 8, 2009, 2:36 PM > > > > > > > > > > > > >  > > > > > > Now n, does > that mean I'm actually a man? When I see a syringe I run > like mad. LOL > > From: > marion j rojas <marionjrojas2002@ yahoo.com> > To: > MSersLife@yahoogrou ps.com > Sent: Thu, > October 8, 2009 7:14:14 AM > Subject: Re: > Re: Good Day, Morning, Evening! - UPDATE > > > > > > > >  > > > I did not have > the 1976 seasonal influenza vaccine, > as there was almost no flu worldwide that year. That > vaccine (33 years ago) was a very bad one, and I know > of none that bad before or since. I realize that one > is > inoculated to pieces in the military, as one of my own > children served in the First Gulf War. If I did not > have > Cystic Fibrosis, which affects my lungs from time to > time, I might not bother either. The real fun for me > was > when they made a variety of vaccines from protein found > in hamster eggs--you guessed it; I am allergic to > hamsters. > My kid who served in the military was one of my daughters. > She regaled me with accounts of men passing out at the > mere sight of a syringe, whereas, according to her, not a > woman fell. > Do > what seems best to you; my internist and my neurologist > say that if one has the seasonal influenza vaccine, that > one > is much less likely to become very ill with the H1N1 flu. > Good luck to you, , and to all of you in our group, > n > > From: > Thallas <fathallas@collinsco m.net> > To: > MSersLife@yahoogrou ps.com > Sent: Wed, > October 7, 2009 10:44:19 PM > Subject: RE: > Re: Good Day, Morning, Evening! - UPDATE > > > > > > > > >  > > > I've had 2 flu shots in my life, > and both put me in the hospital - the > > first was the 1976 Swine Flu Vaccine, courtesy of Uncle Sam > whether we > > wanted it or not (out of a squadron of 52 women, 47 ended > up with at least 6 > > hours in sickbay) and the other a " regular " flu > shot, again enforced by > > Uncle Sam, which put me out of action for almost 3 weeks... > (Military health > > care logic applied here - patient has almost continuous > vomiting. > > Treatment? ORAL antiemetics. ...) > > > > I've heard both ways about the current vaccs - I guess > we all have to > > weigh whether the flu is more dangerous to us than the > shot... I'm a > > hermit, and I'm not getting a shot. Himself is in > constant contact with the > > public and a first responder, so he is at least getting the > " regular " flu > > shot... > > > > > > > > in WY > > " You get a wonderful view from the point of no > return... "    > > http://www.flickr. > com/photos/ liadains_ fancies > > http://practical- > blackwork. blogspot. com > >     NEW!!! - website in progress!- > > http://practicalbla > ckwork.com > > > > Re: Re: Good Day, Morning, Evening! - > UPDATE > > > >  > > Anyone considering getting the H1N1 please do further > research on it! > > I took my daughter to the doctor for her check up, her > doctor actually > > discouraged getting not only the H1N1 but the regular flu > vaccine. My > > neurologist also told me not to get either. I'm not > saying don't get > > it, I'm just saying to research it first. It has a high > potential of > > Guillain-Barre Syndrome. I'm told this risk is higher > for people with > > neurological diseases or immune systm disorders. Ask you > doctors and > > their opinions...and if they know the risks. Just saying. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Of course not. Means you are syringe0phobic like men are! Love to you, , n > > Subject: Re: Re: Good Day, Morning, Evening! - UPDATE > To: MSersLife > Date: Thursday, October 8, 2009, 2:36 PM > > > > > > > > > > > > >  > > > > > > Now n, does > that mean I'm actually a man? When I see a syringe I run > like mad. LOL > > From: > marion j rojas <marionjrojas2002@ yahoo.com> > To: > MSersLife@yahoogrou ps.com > Sent: Thu, > October 8, 2009 7:14:14 AM > Subject: Re: > Re: Good Day, Morning, Evening! - UPDATE > > > > > > > >  > > > I did not have > the 1976 seasonal influenza vaccine, > as there was almost no flu worldwide that year. That > vaccine (33 years ago) was a very bad one, and I know > of none that bad before or since. I realize that one > is > inoculated to pieces in the military, as one of my own > children served in the First Gulf War. If I did not > have > Cystic Fibrosis, which affects my lungs from time to > time, I might not bother either. The real fun for me > was > when they made a variety of vaccines from protein found > in hamster eggs--you guessed it; I am allergic to > hamsters. > My kid who served in the military was one of my daughters. > She regaled me with accounts of men passing out at the > mere sight of a syringe, whereas, according to her, not a > woman fell. > Do > what seems best to you; my internist and my neurologist > say that if one has the seasonal influenza vaccine, that > one > is much less likely to become very ill with the H1N1 flu. > Good luck to you, , and to all of you in our group, > n > > From: > Thallas <fathallas@collinsco m.net> > To: > MSersLife@yahoogrou ps.com > Sent: Wed, > October 7, 2009 10:44:19 PM > Subject: RE: > Re: Good Day, Morning, Evening! - UPDATE > > > > > > > > >  > > > I've had 2 flu shots in my life, > and both put me in the hospital - the > > first was the 1976 Swine Flu Vaccine, courtesy of Uncle Sam > whether we > > wanted it or not (out of a squadron of 52 women, 47 ended > up with at least 6 > > hours in sickbay) and the other a " regular " flu > shot, again enforced by > > Uncle Sam, which put me out of action for almost 3 weeks... > (Military health > > care logic applied here - patient has almost continuous > vomiting. > > Treatment? ORAL antiemetics. ...) > > > > I've heard both ways about the current vaccs - I guess > we all have to > > weigh whether the flu is more dangerous to us than the > shot... I'm a > > hermit, and I'm not getting a shot. Himself is in > constant contact with the > > public and a first responder, so he is at least getting the > " regular " flu > > shot... > > > > > > > > in WY > > " You get a wonderful view from the point of no > return... "    > > http://www.flickr. > com/photos/ liadains_ fancies > > http://practical- > blackwork. blogspot. com > >     NEW!!! - website in progress!- > > http://practicalbla > ckwork.com > > > > Re: Re: Good Day, Morning, Evening! - > UPDATE > > > >  > > Anyone considering getting the H1N1 please do further > research on it! > > I took my daughter to the doctor for her check up, her > doctor actually > > discouraged getting not only the H1N1 but the regular flu > vaccine. My > > neurologist also told me not to get either. I'm not > saying don't get > > it, I'm just saying to research it first. It has a high > potential of > > Guillain-Barre Syndrome. I'm told this risk is higher > for people with > > neurological diseases or immune systm disorders. Ask you > doctors and > > their opinions...and if they know the risks. Just saying. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Possibly you would be calmer! Thank you, , Love to you all, n > > Subject: Re: Re: Good Day, Morning, Evening! - UPDATE > To: MSersLife > Date: Thursday, October 8, 2009, 2:34 PM > > > > > > > > > > > > >  > > > > > > Glad you're > survived the pigs. Glad you're better and back on line > with us. What will we do without you, sweetie? > Love > > > From: > marion j rojas <marionjrojas2002@ yahoo.com> > To: > MSersLife@yahoogrou ps.com > Sent: Thu, > October 8, 2009 6:33:39 AM > Subject: Re: > Re: Good Day, Morning, Evening! - > UPDATE > > > > > > > >  > > > Thank you for > mentioning this, Jolie. As it happened, > I have already had H1N1 (they found that when I had > pneumonia--am all better), and I had my seasonal in > fluenza injection yesterday--so far, so good. > Love, > n > > From: > Jolie Riojas <osa503gmail (DOT) com> > To: > MSersLife@yahoogrou ps.com > Sent: Wed, > October 7, 2009 9:22:36 PM > Subject: Re: > Re: Good Day, Morning, Evening! - > UPDATE > > > > > > > > >  > > > Anyone considering getting the H1N1 > please do further research on it! > > I took my daughter to the doctor for her check up, her > doctor actually > > discouraged getting not only the H1N1 but the regular flu > vaccine. My > > neurologist also told me not to get either. I'm not > saying don't get > > it, I'm just saying to research it first. It has a > high potential of > > Guillain-Barre Syndrome. I'm told this risk is higher > for people with > > neurological diseases or immune systm disorders. Ask you > doctors and > > their opinions...and if they know the risks. Just saying. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 So I have something in common with all men. Great!!!To: MSersLife Sent: Fri, October 9, 2009 1:05:47 AMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE Of course not. Means you are syringe0phobic like men are! Love to you, , n > From: Breytenbach <lauramosselbay@ yahoo.com> > Subject: Re: Re: Good Day, Morning, Evening! - UPDATE > To: MSersLife@yahoogrou ps.com > Date: Thursday, October 8, 2009, 2:36 PM > > > > > > > > > > > > > > > > > > > Now n, does > that mean I'm actually a man? When I see a syringe I run > like mad. LOL > > From: > marion j rojas <marionjrojas2002@ yahoo.com> > To: > MSersLife@yahoogrou ps.com > Sent: Thu, > October 8, 2009 7:14:14 AM > Subject: Re: > Re: Good Day, Morning, Evening! - UPDATE > > > > > > > > > > > I did not have > the 1976 seasonal influenza vaccine, > as there was almost no flu worldwide that year. That > vaccine (33 years ago) was a very bad one, and I know > of none that bad before or since. I realize that one > is > inoculated to pieces in the military, as one of my own > children served in the First Gulf War. If I did not > have > Cystic Fibrosis, which affects my lungs from time to > time, I might not bother either. The real fun for me > was > when they made a variety of vaccines from protein found > in hamster eggs--you guessed it; I am allergic to > hamsters. > My kid who served in the military was one of my daughters. > She regaled me with accounts of men passing out at the > mere sight of a syringe, whereas, according to her, not a > woman fell. > Do > what seems best to you; my internist and my neurologist > say that if one has the seasonal influenza vaccine, that > one > is much less likely to become very ill with the H1N1 flu. > Good luck to you, , and to all of you in our group, > n > > From: > Thallas <fathallas@collinsc o m.net> > To: > MSersLife@yahoogrou ps.com > Sent: Wed, > October 7, 2009 10:44:19 PM > Subject: RE: > Re: Good Day, Morning, Evening! - UPDATE > > > > > > > > > > > > I've had 2 flu shots in my life, > and both put me in the hospital - the > > first was the 1976 Swine Flu Vaccine, courtesy of Uncle Sam > whether we > > wanted it or not (out of a squadron of 52 women, 47 ended > up with at least 6 > > hours in sickbay) and the other a "regular" flu > shot, again enforced by > > Uncle Sam, which put me out of action for almost 3 weeks... > (Military health > > care logic applied here - patient has almost continuous > vomiting. > > Treatment? ORAL antiemetics. ...) > > > > I've heard both ways about the current vaccs - I guess > we all have to > > weigh whether the flu is more dangerous to us than the > shot... I'm a > > hermit, and I'm not getting a shot. Himself is in > constant contact with the > > public and a first responder, so he is at least getting the > "regular" flu > > shot... > > > > > > > > in WY > > "You get a wonderful view from the point of no > return..." > > http://www.flickr. > com/photos/ liadains_ fancies > > http://practical- > blackwork. blogspot. com > > NEW!!! - website in progress!- > > http://practicalbla > ckwork.com > > > > Re: Re: Good Day, Morning, Evening! - > UPDATE > > > > > > Anyone considering getting the H1N1 please do further > research on it! > > I took my daughter to the doctor for her check up, her > doctor actually > > discouraged getting not only the H1N1 but the regular flu > vaccine. My > > neurologist also told me not to get either. I'm not > saying don't get > > it, I'm just saying to research it first. It has a high > potential of > > Guillain-Barre Syndrome. I'm told this risk is higher > for people with > > neurological diseases or immune systm disorders. Ask you > doctors and > > their opinions...and if they know the risks. Just saying. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Yeah, with someone wise to try to keep me in line and out of trouble. Boy, I'm glad I'm not in your shoes, you have a very tough job. LOLLoveTo: MSersLife Sent: Fri, October 9, 2009 1:06:41 AMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE Possibly you would be calmer! Thank you, , Love to you all, n > From: Breytenbach <lauramosselbay@ yahoo.com> > Subject: Re: Re: Good Day, Morning, Evening! - UPDATE > To: MSersLife@yahoogrou ps.com > Date: Thursday, October 8, 2009, 2:34 PM > > > > > > > > > > > > > > > > > > > Glad you're > survived the pigs. Glad you're better and back on line > with us. What will we do without you, sweetie? > Love > > > From: > marion j rojas <marionjrojas2002@ yahoo.com> > To: > MSersLife@yahoogrou ps.com > Sent: Thu, > October 8, 2009 6:33:39 AM > Subject: Re: > Re: Good Day, Morning, Evening! - > UPDATE > > > > > > > > > > > Thank you for > mentioning this, Jolie. As it happened, > I have already had H1N1 (they found that when I had > pneumonia--am all better), and I had my seasonal in > fluenza injection yesterday--so far, so good. > Love, > n > > From: > Jolie Riojas <osa503gmail (DOT) com> > To: > MSersLife@yahoogrou ps.com > Sent: Wed, > October 7, 2009 9:22:36 PM > Subject: Re: > Re: Good Day, Morning, Evening! - > UPDATE > > > > > > > > > > > > Anyone considering getting the H1N1 > please do further research on it! > > I took my daughter to the doctor for her check up, her > doctor actually > > discouraged getting not only the H1N1 but the regular flu > vaccine. My > > neurologist also told me not to get either. I'm not > saying don't get > > it, I'm just saying to research it first. It has a > high potential of > > Guillain-Barre Syndrome. I'm told this risk is higher > for people with > > neurological diseases or immune systm disorders. Ask you > doctors and > > their opinions...and if they know the risks. Just saying. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 I will definitely not be calmer without you sweetie, I need you to keep me calm. To: MSersLife Sent: Fri, October 9, 2009 1:06:41 AMSubject: Re: Re: Good Day, Morning, Evening! - UPDATE Possibly you would be calmer! Thank you, , Love to you all, n > From: Breytenbach <lauramosselbay@ yahoo.com> > Subject: Re: Re: Good Day, Morning, Evening! - UPDATE > To: MSersLife@yahoogrou ps.com > Date: Thursday, October 8, 2009, 2:34 PM > > > > > > > > > > > > > > > > > > > Glad you're > survived the pigs. Glad you're better and back on line > with us. What will we do without you, sweetie? > Love > > > From: > marion j rojas <marionjrojas2002@ yahoo.com> > To: > MSersLife@yahoogrou ps.com > Sent: Thu, > October 8, 2009 6:33:39 AM > Subject: Re: > Re: Good Day, Morning, Evening! - > UPDATE > > > > > > > > > > > Thank you for > mentioning this, Jolie. As it happened, > I have already had H1N1 (they found that when I had > pneumonia--am all better), and I had my seasonal in > fluenza injection yesterday--so far, so good. > Love, > n > > From: > Jolie Riojas <osa503gmail (DOT) com> > To: > MSersLife@yahoogrou ps.com > Sent: Wed, > October 7, 2009 9:22:36 PM > Subject: Re: > Re: Good Day, Morning, Evening! - > UPDATE > > > > > > > > > > > > Anyone considering getting the H1N1 > please do further research on it! > > I took my daughter to the doctor for her check up, her > doctor actually > > discouraged getting not only the H1N1 but the regular flu > vaccine. My > > neurologist also told me not to get either. I'm not > saying don't get > > it, I'm just saying to research it first. It has a > high potential of > > Guillain-Barre Syndrome. I'm told this risk is higher > for people with > > neurological diseases or immune systm disorders. Ask you > doctors and > > their opinions...and if they know the risks. Just saying. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 Thank you, Jolie, for this info. It is timelyand informative. I've been wondering about the safety of it, and didn't think with MS Ishould get it.Thank you for passing this along to us.blessings and hugs, Kate Re: Re: Good Day, Morning, Evening! - UPDATETo: MSersLife > Anyone considering getting the H1N1 please do further research > on it!> I took my daughter to the doctor for her check up, her doctor actually> discouraged getting not only the H1N1 but the regular flu > vaccine. My> neurologist also told me not to get either. I'm not saying > don't get> it, I'm just saying to research it first. It has a high > potential of> Guillain-Barre Syndrome. I'm told this risk is higher for > people with> neurological diseases or immune systm disorders. Ask you > doctors and> their opinions...and if they know the risks. Just saying.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 Hey, Reb, I'm strong. Just not with needles. LOLTo: MSersLife Sent: Fri, October 9, 2009 9:51:32 AMSubject: Re: Good Day, Morning, Evening! - UPDATE As part of her medical education , and the rest of her class, had to go to an autopsy. The coroner told them that he'd prefer if the boys/men would sit down, the women/girls could sit down or stand up as they pleased, because: "on these first-time autopsies, there is always someone passing out, and that someone is ALWAYS a man". I am not surprised, I have always suspected that women are much tougher than their reputation would admit. I grew up with a single mom, so I know what a woman's strength is all about.love/Reb>> I did not have the 1976 seasonal influenza vaccine,> as there was almost no flu worldwide that year. That> vaccine (33 years ago) was a very bad one, and I know> of none that bad before or since. I realize that one is> inoculated to pieces in the military, as one of my own> children served in the First Gulf War. If I did not have> Cystic Fibrosis, which affects my lungs from time to> time, I might not bother either. The real fun for me was> when they made a variety of vaccines from protein found> in hamster eggs--you guessed it; I am allergic to hamsters.> My kid who served in the military was one of my daughters.> She regaled me with accounts of men passing out at the > mere sight of a syringe, whereas, according to her, not a > woman fell. > Do what seems best to you; my internist and my neurologist> say that if one has the seasonal influenza vaccine, that one> is much less likely to become very ill with the H1N1 flu.> Good luck to you, , and to all of you in our group,> n> > > > > ____________ _________ _________ __> From: Thallas fathallas@.. ..> To: MSersLife@yahoogrou ps.com> Sent: Wed, October 7, 2009 10:44:19 PM> Subject: RE: Re: Good Day, Morning, Evening! - UPDATE> > > I've had 2 flu shots in my life, and both put me in the hospital - the> first was the 1976 Swine Flu Vaccine, courtesy of Uncle Sam whether we> wanted it or not (out of a squadron of 52 women, 47 ended up with at least 6> hours in sickbay) and the other a "regular" flu shot, again enforced by> Uncle Sam, which put me out of action for almost 3 weeks... (Military health> care logic applied here - patient has almost continuous vomiting.> Treatment? ORAL antiemetics. ...)> > I've heard both ways about the current vaccs - I guess we all have to> weigh whether the flu is more dangerous to us than the shot... I'm a> hermit, and I'm not getting a shot. Himself is in constant contact with the> public and a first responder, so he is at least getting the "regular" flu> shot...> > > > in WY> "You get a wonderful view from the point of no return..." > http://www.flickr. com/photos/ liadains_ fancies> http://practical- blackwork. blogspot. com> NEW!!! - website in progress!-> http://practicalbla ckwork.com> > Re: Re: Good Day, Morning, Evening! - UPDATE> > > Anyone considering getting the H1N1 please do further research on it!> I took my daughter to the doctor for her check up, her doctor actually> discouraged getting not only the H1N1 but the regular flu vaccine. My> neurologist also told me not to get either. I'm not saying don't get> it, I'm just saying to research it first. It has a high potential of> Guillain-Barre Syndrome. I'm told this risk is higher for people with> neurological diseases or immune systm disorders. Ask you doctors and> their opinions...and if they know the risks. Just saying.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2009 Report Share Posted October 9, 2009 Oh my! An autopsy! Let us knowhow fares with this...So, no Dad around for you? I hopeyou at least had a good role model.hugs to you and ,love, Kate Re: Re: Good Day, Morning, Evening! - UPDATE> >> >> > Anyone considering getting the H1N1 please do further research > on it!> > I took my daughter to the doctor for her check up, her doctor > actually> discouraged getting not only the H1N1 but the regular > flu vaccine. My> > neurologist also told me not to get either. I'm not saying > don't get> > it, I'm just saying to research it first. It has a high > potential of> > Guillain-Barre Syndrome. I'm told this risk is higher for > people with> > neurological diseases or immune systm disorders. Ask you > doctors and> > their opinions...and if they know the risks. Just saying.> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2009 Report Share Posted October 11, 2009 Well, with MS we have to handle a lot of things. Doctors and needles are the parts I skip totally. They're worse than MS for me.To: MSersLife Sent: Sun, October 11, 2009 3:12:31 PMSubject: Re: Good Day, Morning, Evening! - UPDATE I bet you are!love/Reb> >> > I did not have the 1976 seasonal influenza vaccine,> > as there was almost no flu worldwide that year. That> > vaccine (33 years ago) was a very bad one, and I know> > of none that bad before or since. I realize that one is> > inoculated to pieces in the military, as one of my own> > children served in the First Gulf War. If I did not have> > Cystic Fibrosis, which affects my lungs from time to> > time, I might not bother either. The real fun for me was> > when they made a variety of vaccines from protein found> > in hamster eggs--you guessed it; I am allergic to hamsters.> > My kid who served in the military was one of my daughters.> > She regaled me with accounts of men passing out at the > > mere sight of a syringe, whereas, according to her, not a > > woman fell. > > Do what seems best to you; my internist and my neurologist> > say that if one has the seasonal influenza vaccine, that one> > is much less likely to become very ill with the H1N1 flu.> > Good luck to you, , and to all of you in our group,> > n> > > > > > > > > > ____________ _________ _________ __> > From: Thallas fathallas@ .> > To: MSersLife@yahoogrou ps.com> > Sent: Wed, October 7, 2009 10:44:19 PM> > Subject: RE: Re: Good Day, Morning, Evening! - UPDATE> > > > > > I've had 2 flu shots in my life, and both put me in the hospital - the> > first was the 1976 Swine Flu Vaccine, courtesy of Uncle Sam whether we> > wanted it or not (out of a squadron of 52 women, 47 ended up with at least 6> > hours in sickbay) and the other a "regular" flu shot, again enforced by> > Uncle Sam, which put me out of action for almost 3 weeks... (Military health> > care logic applied here - patient has almost continuous vomiting.> > Treatment? ORAL antiemetics. ...)> > > > I've heard both ways about the current vaccs - I guess we all have to> > weigh whether the flu is more dangerous to us than the shot... I'm a> > hermit, and I'm not getting a shot. Himself is in constant contact with the> > public and a first responder, so he is at least getting the "regular" flu> > shot...> > > > > > > > in WY> > "You get a wonderful view from the point of no return..." > > http://www.flickr. com/photos/ liadains_ fancies> > http://practical- blackwork. blogspot. com> > NEW!!! - website in progress!-> > http://practicalbla ckwork.com> > > > Re: Re: Good Day, Morning, Evening! - UPDATE> > > > > > Anyone considering getting the H1N1 please do further research on it!> > I took my daughter to the doctor for her check up, her doctor actually> > discouraged getting not only the H1N1 but the regular flu vaccine. My> > neurologist also told me not to get either. I'm not saying don't get> > it, I'm just saying to research it first. It has a high potential of> > Guillain-Barre Syndrome. I'm told this risk is higher for people with> > neurological diseases or immune systm disorders. Ask you doctors and> > their opinions...and if they know the risks. Just saying.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2009 Report Share Posted October 11, 2009 Hi AndiGlad to hear from you again. I think we can have a lot of fun if we put our moms on Prednisone together and just watch them racing. LOL Shame, that sounds horrible, but I have to have something to laugh about. Any way sweetie, now why are you so busy. Stop raking the yard, it's cold, snowing, windy, my favorite saying is always, what's the use. Tomorrow it will be filled with leaves again. Besides you don't want to see our garden. The grass is high enough to hide big wild life. I'm afraid when the lions are going to jump out. LOL My brother said he'd mow the lawn, but so far the damn lawnmower is more broken than anything else. I just try to check that I don't fall over the long grass or step on one of my little chameleons. Not that I can see them, but so far they don't even walk in the grass. I think they know about the lions as well. LOLNow honey, if you don't use the rake the right way, that's a perfect reason not to use it at all. Too much work anyway. Hey, I like it that you think we're posting wizards. Nice, I always wanted to be a wizard. LOLTake care sweetie, good luck with the MRI's, ooh, doctors, I hate them. And I'm really glad that you're getting busy as well on the group. Even if it takes a little time, just as long as we hear from you, that's alright. Enjoy you're evening with mom. Have all the illegal stuff we're not suppose to eat, chocolates and everything else that's sweet. Just don't tell me about it, please. I'll only get jealous.Love To: MSersLife Sent: Sun, October 11, 2009 5:10:12 PMSubject: Re: Good Day, Morning, Evening! - UPDATE , LOL I hear you! My mom takes Prednisone for Lupus and I can't get her to sit down unless I tied her down. Plus she says if she stops she hurts . I'm preparing myself for the MRI and the upcoming results, thinking of takin my mom up on her offer and goin to her house for the night and enjoying the small town quiet. It snowed here in Nebraska! I tried to get out and rake 2 days ago, the sun was shining and it was about 68 degrees (still short and t-shirt weather in NE LOL) but I only managed to rake up the puppies area and clear out about 2/3 of my irises. Then my hands just became too numb and my balance just too bad and I got mad that my huband wasn't out there doing it, THEN realized I hadn't taken my meds....SIGH. When I was in junior high my sis used say I had PMS 3 weeks out of the month lol. I'm such a nut sometimes! When I was raking I wouldn't notice I was using the stupid rake upside down cuz I kept spacing off...kept wonderin why it was takin me forever to rake up one spot! Sorry if I'm slow keepin up on the posts, y'all are some postin' wizards!! LOL -Andi from Nebraska (yay we won Thurs.!) > > > > > > Hi Andi > > > I'm so glad to hear from you again. Keep it up sweetie. Even > > if you just want to cry all over the place, just as long as you > > don't shut down. I know, when I'm depressed, which is always, I > > want to shut the whole world out. It's not good for me, but at > > that time, I don't care about anything. So I'm glad to hear that > > you're still hanging on. Good luck to you and all the problems. > > It's so difficult to handle even the smallest problem and > > tension with MS, but to handle the big stuff like you, well, > > that takes a lot of courage. So you hang in there. > > > Your silly friend > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: Andi Jo > > > To: MSersLife@yahoogrou ps.com > > > Sent: Thu, October 1, 2009 9:31:15 PM > > > Subject: Good Day, Morning, Evening! > > > > > > > > > Hello to all, hoping this reaches u in good spirits . For > > this moment, I can say I am doing ok. Now, in an hour, I might > > start sobbing uncontrollably or throw my hands up, but I have > > little mantras I repeat to myself: "I am not built to break!" > > "One day at a time, one hour at a time, five minutes at a time." > > My mom stopped by yesterday, which is rare, and we had a good > > talk on my porch where I broke down and admitted to my mother, > > who has Lupus, that I was scared and not telling her about my > > problems b/c I didn't want to worry her. My family comes from a > > VERY small town, (about 300 ppl!) with my younger brother and my > > older sister living there, I feel like I don't need to burden > > her w/ my problems too. She was married to my alcoholic abusive > > father for 25 yrs and now has a wonderful relationship w/ a man > > who is going thru galbladder surgery, and dealing w/ my sister > > is a full-time job, her being the definition of an enabler. > > Earlier this yr, my > > > brother and I tried to do an intervention w/ my sis and b/c > > of that and my sister's choice in her relationship (HE lives > > with another girl, sleeps w/ who knows how many others and has > > been playing this outlandish game for over 7 yrs.) MY main > > concern was my neice and Goddaughter, but he and her addictions > > convinced her that I am out to get her, having nothing better to > > do since "all I do is cause drama". She banned my from my > > neice, which still angers me, b/c she allows the child's father > > in her life, who is nothing short of everything defining abuse, > > addiction, manipulation, etc.! They (Wonderboy-b/ f- and my > > sis) have brought our friends, family into this, even my friends > > that they don't personally know and run into they have trashed > > me. My sister says I think I am better than everyone...my reply > > to her was, "all the things I've done, how CAN I be?? We are > > ALL no better than anyone." Her reply? "YEAH" UH, yeah. When I > > suggest finding her faith, > > > seeking help, she says she doesn't need it and I am dead to > > her. > > > > > > You want to know the kicker? This "boyfriend" of hers? Is my > > husband's brother, my brother-in-law. My husband doesnt talk to > > him very much and I know this drives him to the brink as well. > > He has also been cut off from some of his "friends" b/c of this, > > but it's like we say, we cannot allow ourselves to be drug down > > with that. Its sad to see people you know who could have a much > > better life if they would realize their worth, see a better way. > > Her addictions have turned me away from meds, I don't want to > > take anything that is going to put me down for days, but I know > > w/ my MS I NEED to slow down. OH, yeah, according to my sis, I > > have no idea what pain or suffering is, her Fibro is worse than > > Mom's Lupus or MS period, so she has to pop pills and drink > > herself into oblivion...hmmmm. > > > > > > But, that is the tip of the iceberg of my glacier of issues! I > > do take Effexor, 300 mg a day, which I think is alot and I hate > > that I'm dependant on it and my other meds, to the point that my > > husband and I myself battle w/ taking them regularly. I feel > > lately, that I have been at war w/ myself, between wanting to > > fight and do what I can to survive and LIVE with this disease, > > and other times just take the easy road and do what my sis does. > > But I can't even be an alcoholic cuz that makes my symptoms > > worse! UGH. So, I pray, do my little household things, and try > > to be the best person I can be...and I try to laugh everyday, > > even w/tears. I sometimes think, would they realize when I'm > > gone that all I want is our family to love one another and be at > > peace w/ themselves? MS is a humbling disease, I'm reminded > > every day that I'm not perfect, my body isn't going to last > > forever and neither am I, I do not take for granted any happy > > moment I do have. > > > > > > That being said, If I figure out how to post pics on here I > > will do so soon! Much Love to you all! > > > -Andi Jo > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2009 Report Share Posted October 11, 2009 Dear AndiSorry, sweetie, I'm not on any MS drugs. The only meds I take for it is Prednisone. The only reason I was put on Prednisone is because of my severe asthma. So I'm lucky to take the pills. It works for both, so it just have to do. You're talking about shots. I'm out of here. No needles. So sorry, I can't give you any advice on those things. Just glad I don't do shots. I'm probably the only woman who runs like mad when I see a needle. So, big problem there. Good luck with the meds. I'm sure someone else on the group will be able to help you with that.We will definitely miss you when you're at your mom's. Hey, I'm only in the internet over a year, so I used to play freecell and solitaire. The freecell really works my poor brain. LOLLove to youTo: MSersLife Sent: Sun, October 11, 2009 6:43:32 PMSubject: Re: Good Day, Morning, Evening! - UPDATE , Are you on any MS therapy drug? Like Avonex, Rebif, etc.? I'm supposed to be switching from Rebif to Avonex b/c I couldn't get myself to take my shots on a regular basis. Now I can't get myself to order the Avonex. They stress it, I've heard some of you all stress it... I hate it, I also smoke, (my addiction) and I hate that too, but the patch and this Chantx I've heard good things about are too expensive for me. Oh I HAD medicaid, which was GREAT, but they cut it this year b/c of Mike's income (?) so, which just his insur. some things are too expensive. I believe, off the top of my head, (I don't have my date/address book-LIFE) I pay no more than 100 a month in Rx's, which isn't bad compared to alot of ppl, but enough for us, considering we own our home, are trying to repair our credit from our young and dumb years, my medical bills, etc.! A note to those in case you may notice, when I'm at my mom's, I'm off the grid. She has a computer, but it's a relic and I'm lucky if I get to play freecell! I love that aspect of bein home, even tho this will be a first for me, since she has moved in w/ her b/f (an awesome guy!) it won't be "home", but I'm sure I'll be fine . Much love to all! Andi > > > > Hi Andi > > I'm so glad to hear from you again. Keep it up sweetie. Even if you just want to cry all over the place, just as long as you don't shut down. I know, when I'm depressed, which is always, I want to shut the whole world out. It's not good for me, but at that time, I don't care about anything. So I'm glad to hear that you're still hanging on. Good luck to you and all the problems. It's so difficult to handle even the smallest problem and tension with MS, but to handle the big stuff like you, well, that takes a lot of courage. So you hang in there. > > Your silly friend > > > > > > > > > > > > ____________ _________ _________ __ > > From: Andi Jo <boononymous@ ...> > > To: MSersLife@yahoogrou ps.com > > Sent: Thu, October 1, 2009 9:31:15 PM > > Subject: Good Day, Morning, Evening! > > > > > > Hello to all, hoping this reaches u in good spirits . For this moment, I can say I am doing ok. Now, in an hour, I might start sobbing uncontrollably or throw my hands up, but I have little mantras I repeat to myself: "I am not built to break!" "One day at a time, one hour at a time, five minutes at a time." My mom stopped by yesterday, which is rare, and we had a good talk on my porch where I broke down and admitted to my mother, who has Lupus, that I was scared and not telling her about my problems b/c I didn't want to worry her. My family comes from a VERY small town, (about 300 ppl!) with my younger brother and my older sister living there, I feel like I don't need to burden her w/ my problems too. She was married to my alcoholic abusive father for 25 yrs and now has a wonderful relationship w/ a man who is going thru galbladder surgery, and dealing w/ my sister is a full-time job, her being the definition of an enabler. Earlier this yr, my > > brother and I tried to do an intervention w/ my sis and b/c of that and my sister's choice in her relationship (HE lives with another girl, sleeps w/ who knows how many others and has been playing this outlandish game for over 7 yrs.) MY main concern was my neice and Goddaughter, but he and her addictions convinced her that I am out to get her, having nothing better to do since "all I do is cause drama". She banned my from my neice, which still angers me, b/c she allows the child's father in her life, who is nothing short of everything defining abuse, addiction, manipulation, etc.! They (Wonderboy-b/ f- and my sis) have brought our friends, family into this, even my friends that they don't personally know and run into they have trashed me. My sister says I think I am better than everyone...my reply to her was, "all the things I've done, how CAN I be?? We are ALL no better than anyone." Her reply? "YEAH" UH, yeah. When I suggest finding her faith, > > seeking help, she says she doesn't need it and I am dead to her. > > > > You want to know the kicker? This "boyfriend" of hers? Is my husband's brother, my brother-in-law. My husband doesnt talk to him very much and I know this drives him to the brink as well. He has also been cut off from some of his "friends" b/c of this, but it's like we say, we cannot allow ourselves to be drug down with that. Its sad to see people you know who could have a much better life if they would realize their worth, see a better way. Her addictions have turned me away from meds, I don't want to take anything that is going to put me down for days, but I know w/ my MS I NEED to slow down. OH, yeah, according to my sis, I have no idea what pain or suffering is, her Fibro is worse than Mom's Lupus or MS period, so she has to pop pills and drink herself into oblivion...hmmmm. > > > > But, that is the tip of the iceberg of my glacier of issues! I do take Effexor, 300 mg a day, which I think is alot and I hate that I'm dependant on it and my other meds, to the point that my husband and I myself battle w/ taking them regularly. I feel lately, that I have been at war w/ myself, between wanting to fight and do what I can to survive and LIVE with this disease, and other times just take the easy road and do what my sis does. But I can't even be an alcoholic cuz that makes my symptoms worse! UGH. So, I pray, do my little household things, and try to be the best person I can be...and I try to laugh everyday, even w/tears. I sometimes think, would they realize when I'm gone that all I want is our family to love one another and be at peace w/ themselves? MS is a humbling disease, I'm reminded every day that I'm not perfect, my body isn't going to last forever and neither am I, I do not take for granted any happy moment I do have. > > > > That being said, If I figure out how to post pics on here I will do so soon! Much Love to you all! > > -Andi Jo > > > Quote Link to comment Share on other sites More sharing options...
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