Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Don Gallagher wrote: > We don't use KetoCal but the RCF/Microlipid/apple juice formula where > the dietary components are added separately, and it's especially nice > for tweaking around snacks. I don't think that's as easily done as > with KetoCal. On the other hand, from the smell of the RCF-based > formula, I must take my hat off to any child willing to drink it in a > bottle--I know there are some who do, and I can only think that hunger > must be a VERY strong sauce!!!! > Actually I have wondered about KetoCal in the past, knew of some other people on it who couldn't keep ketones up. I wonder if some kids do better on the RCF formula. Something to keep in mind if other fine tuning ideas don't work Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Is Ketocal still available in the US? Don Gallagher wrote: > We don't use KetoCal but the RCF/Microlipid/apple juice formula where > the dietary components are added separately, and it's especially nice > for tweaking around snacks. I don't think that's as easily done as > with KetoCal. On the other hand, from the smell of the RCF-based > formula, I must take my hat off to any child willing to drink it in a > bottle--I know there are some who do, and I can only think that hunger > must be a VERY strong sauce!!!! > Actually I have wondered about KetoCal in the past, knew of some other people on it who couldn't keep ketones up. I wonder if some kids do better on the RCF formula. Something to keep in mind if other fine tuning ideas don't work Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Yes, it is available. We tried it at initiation of the diet. At first, my daughter said she liked it but later on, no way!!! I think the hunger factor does figure in here--LOL. Our dietician gave us an extra can to take home and the website where we could order more (it's pricey!!). I looked at the website but never ordered. Let me know if you want it. I have heard from other sources that there was a problem with KetoCal recently -- manufactured incorrectly, or something like that. I keep meaning to ask our dietician but since we don't use it, I always forget about it when I talk to her. Cammie > > Is Ketocal still available in the US? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Hi Rose-Marie, thank you for your response. Kristan has been off all meds since mid-August 2003. Kristan's ketones are usually 40 mg (moderate) and sometimes in between 40mg to 80 mg (large) and a few times they are 80 mg, we've never achieved 160 mg. I will make note of the RCF and suggest that if we don't get anywhere. Thanks. Satnam > Satnam-- > > If it's any help, we are fairly close by--we live near Seattle, WA. Probably doesn't help that we're in the States, but at least the miles aren't many. :0) > > I would have to disagree with the dietician that the diet isn't working for Kristan since she's showing a >80% decrease in seizures. Like the others have encouraged you, there's time to fine tune into better control, and this sounds like that time. I don't recall you saying whether or not Kristan is still on any anti-sz meds? That could make a difference in her success. I remember you saying her ketones are the same whether you see seizures or when you don't (confusing--we get the same thing at our house!). What level of ketones is Kristan producing? > > My daughter isn't much of an oral eater (g-tube but eats orally for pleasure) and I also want her to learn to eat by mouth. I use the Stanford meal planner myself to make up snacks for her out of foods I know she likes and then tweak her formula to equal the rest of the meal prescription. This has worked well for us, particularly because she gets exhausted with more than a couple ounces by mouth and because her desire to eat fluctuates so much day by day. Also, with this system we aren't changing calories. We don't use KetoCal but the RCF/Microlipid/apple juice formula where the dietary components are added separately, and it's especially nice for tweaking around snacks. I don't think that's as easily done as with KetoCal. On the other hand, from the smell of the RCF-based formula, I must take my hat off to any child willing to drink it in a bottle--I know there are some who do, and I can only think that hunger must be a VERY strong sauce!!!! > > I don't know if that helps you at all, and must admit with our wild weather and disrupted schedules the past week I haven't kept as close an ear to the list as I try to do usually. Sorry I haven't paid closer attention! > > Hang in there, > Rose-Marie, > mom to , age 7 1/2 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 I checked with my dietician on whether there was a problem with KetoCal being recalled due to the nutrient ratio not be correct and she advised me that Health Canada usually notifies hospitals and as far as Canada goes, we are ok. Satnam > > > > Is Ketocal still available in the US? > > Quote Link to comment Share on other sites More sharing options...
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