RE: Introduction and Question

[Guest guest]

Todd wrote:

> I take a total of 18 units, 9 at 6AM and 9 at 6PM. I generally use about 20

> units of Humalog total each day depending on what I am eating (I am a

> hardcore carb counter). Most days I eat a total of around 13 carb units for

> those 20 insulin units (about 1 unit for each 10g of carb).

Dear Todd,

I'm missing something here - I use Novolog in similar amounts to

your humalog and count carbs strictly too - but if you use 1 unit for

10g of carbs you are lucky!! I need 1 unit for 3 grams of carbs so I

stick to 6g carbs for breakfast and same for lunch and 12 at " supper "

split into two meals. So total 24g carbs for the day and 8 units of

insulin. some days I need more insulin.

What is a carb unit? I can see you do not mean grams when you say

units but am not familiar with the term?

> The lisinopril is for your

> kidneys (that is what my endocrinologist said) to keep the small blood

> vessels from being damaged, it’s a blood thinner of sorts.

I use fish oil instead - it dilates the kidney vessels so that blood

flow is easier. It's what I use in cats with damaged kidneys, to restore

function. It's helped me restore my own kidney function - that and a

properly HIGH protein diet. (This is contrary to propaganda to eat low

protein for kidney damage which is left over from lousy 1991 research

with mistaken conclusions on protein instead of calories. High calories

are bad for kidney damage, but high protein is good is animal protein

and not soy protein. The research has been updated many times since but

it seems word has not got around the medical profession too well yet.

The research is clear and available to read. It's in Bernstein's

excellent book - nowhere else in a diabetes book yet as far as I know.)

Anyway - on the high meat/fish/egg protein and fish oil regime - My

kidneys are no longer showing damage on lab tests as they did in July

2004 - and I have all tests in normal range again. Foxes my

endocrinologist - but I am smiling :-)

Namaste,

Irene

--

Irene de Villiers, B.Sc AASCA MCSSA D.I.Hom. Box 4703 Spokane WA 99220.

www.angelfire.com/fl/furryboots/clickhere.html (Veterinary Homeopath.)

Proverb:Man who say it cannot be done should not interrupt one doing it.

[Guest guest]

A carb unit is equivalent to 15g of carbs. The number that works for me is

about 1 unit of Humalog for each 10g of carbs. I think that this is fairly

normal for a type 1, my endo had me start at 1 unit for every 15g and I have

adjusted it down to 10 over the last 6 months. After having read many of Old

Al's posts here, I think my Lantus/Humalog ratio of 18/20 daily is also

fairly normal (45% of insulin being Lantus and 55% being Humalog). I guess

that it is an individual thing, if you have any other questions, let me

know.....

Todd

Re: Introduction and Question

Todd wrote:

> I take a total of 18 units, 9 at 6AM and 9 at 6PM. I generally use about

20

> units of Humalog total each day depending on what I am eating (I am a

> hardcore carb counter). Most days I eat a total of around 13 carb units

for

> those 20 insulin units (about 1 unit for each 10g of carb).

Dear Todd,

I'm missing something here - I use Novolog in similar amounts to

your humalog and count carbs strictly too - but if you use 1 unit for

10g of carbs you are lucky!! I need 1 unit for 3 grams of carbs so I

stick to 6g carbs for breakfast and same for lunch and 12 at " supper "

split into two meals. So total 24g carbs for the day and 8 units of

insulin. some days I need more insulin.

What is a carb unit? I can see you do not mean grams when you say

units but am not familiar with the term?

> The lisinopril is for your

> kidneys (that is what my endocrinologist said) to keep the small blood

> vessels from being damaged, it's a blood thinner of sorts.

I use fish oil instead - it dilates the kidney vessels so that blood

flow is easier. It's what I use in cats with damaged kidneys, to restore

function. It's helped me restore my own kidney function - that and a

properly HIGH protein diet. (This is contrary to propaganda to eat low

protein for kidney damage which is left over from lousy 1991 research

with mistaken conclusions on protein instead of calories. High calories

are bad for kidney damage, but high protein is good is animal protein

and not soy protein. The research has been updated many times since but

it seems word has not got around the medical profession too well yet.

The research is clear and available to read. It's in Bernstein's

excellent book - nowhere else in a diabetes book yet as far as I know.)

Anyway - on the high meat/fish/egg protein and fish oil regime - My

kidneys are no longer showing damage on lab tests as they did in July

2004 - and I have all tests in normal range again. Foxes my

endocrinologist - but I am smiling :-)

Namaste,

Irene

--

Irene de Villiers, B.Sc AASCA MCSSA D.I.Hom. Box 4703 Spokane WA 99220.

www.angelfire.com/fl/furryboots/clickhere.html (Veterinary Homeopath.)

Proverb:Man who say it cannot be done should not interrupt one doing it.

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[Guest guest]

Hi

Let me start with with a paraphrase of my first response here. "Welcome and I am Sorry you found us because that means your sick too but this is the best place to be."

I am fairly new here as well. Not sure about anything but the joint pain and have had it for some time and TIRED when I get up and Get home I have learned from the wonderful people here that I need to have my O2 sats checked that it might be a problem. This is a good place I have family support but they just get it here I asked what I thought was dumb questions and was met with answers and compassion. The thing I did learn was the expertize here is from waking up everyday with it and not reading about it. Good luck and hope this helps.

Walt

Our care should not be to have lived long as to have lived enough.

Subject: Introduction and QuestionTo: pulmonaryfibrosisinfo@..., Breathe-Support Date: Monday, August 4, 2008, 7:15 PM

Hi, My name is and I have been tentatively diagnosed with IPF or NSIP (with a "touch" of IPF), depending on where the dart lands. Still trying to figure things out, actually, do we ever figure things out? So, I have a couple questions. Not sure of the correct procedure. So here goes; I have recently begun to experience skin splitting on my fingertips and was wondering if this is another side effect of IPF. Does anyone have loss of strength in their arms, hands more specifically? Do your joints hurt? Do you cough so much that you gag and start to throw up? Do you frequently sound like a squeak toy? (That's what my oldest daughter jokingly calls me, to get me to smile)Thank You,

[Guest guest]

Welcome and sorry you have to be here. Yes, confusion reigns eternal but

we all learn a little more each day. Your diagnosis and other symptoms

sounds a bit incomplete. Might I ask who diagnosed you? Depending on who

did I would probably suggest a good second opinion from an IPF Center of

Excellence or other top teaching hospital.

Terms like IPF are used in many ways by different people but using it in

a diagnostic sense people can have both IPF and NSIP but I didn't get

the feeling they were very certain in your case. What was the diagnosis

based on?

Now the other symptoms you mention:

-The strength issue and joints hurting sure sounds suspicious for an

autoimmune disease which be with PF or even the cause of it. It sounds

like a need for a complete evaluation by a good rheumatologist.

-Are you on oxygen? What are your saturation levels like? While many

have coughs to experience as bad as you describe early in the disease

sure seems suspicious of too little oxygen. Now the gagging can also be

associated with an autoimmune disease.

One lesson I want to share early. YOU....not the doctor or anyone

else...YOU must manage your own medical treatment from this point

forward. Ask all the questions you want. Go to the doctors with a list.

Get copies of all tests. Learn all you can. Have you had PFT's? How were

they? CT's I assume? Echocardiogram? I hope so as precaution. Complete

blood battery for autoimmune diseases? I know I'm throwing so much at

you and don't try to figure it all out in one moment. Just understand

you can be in charge, you will face many medical choices and you can

enjoy life with PF, even if never as you hoped life would be.

>

> Hi,

>

> My name is and I have been tentatively diagnosed with IPF or

NSIP (with a " touch " of IPF), depending on where the dart lands. Still

trying to figure things out, actually, do we ever figure things out? So,

I have a couple questions. Not sure of the correct procedure. So here

goes; I have recently begun to experience skin splitting on my

fingertips and was wondering if this is another side effect of IPF. Does

anyone have loss of strength in their arms, hands more specifically? Do

your joints hurt? Do you cough so much that you gag and start to throw

up? Do you frequently sound like a squeak toy? (That's what my oldest

daughter jokingly calls me, to get me to smile)

>

> Thank You,

>

>

[Guest guest]

Hi ,

Welcome to our corner of the internet, but I'm sorry you had to find us.

I am 39 and I have Dermatomyositis, jo1 syndrome (a connective tissue disease) since I was 24 which is why I have PF. The dermatomyositis manifested itself with very bad joint pain and stiffness, I would be so stiff that if I had stood or sat in one position for more than a few mins the joints would get stuck in that position it would be very painful to try to move them again. Also I had a scaley rash on the inside of my thumb, my index and my middle finger. The skin would split and bleed and also was very painful. I found that soaking my hands in anything that didn't have perfume, olive oil, petroleum jelly, would help, but the rash disappeared when I was put on prednisolone. I know many people don't want to go on pred, but it worked for me. I also coughed til I threw up. This was because I also have antiphospho-lipid syndrome which is a problem with the clotting factor and I had developed pulmonary embolisms. A ct scan will eliminate this possibility for you. I think you need a full immunology screen done on your bloods if you haven't had one already.

I often have a squeaky wheeze, in fact my lungs are quite musical from time to time.

I hope I haven't scared you. The thing is that we all have different symptoms even if we have similar diagnosises. But it is important that you get checked out. The only thing that's typical about this disease is that no one is typical!

Love Ze xx>> Hi, > > My name is and I have been tentatively diagnosed with IPF or NSIP (with a "touch" of IPF), depending on where the dart lands. Still trying to figure things out, actually, do we ever figure things out? So, I have a couple questions. Not sure of the correct procedure. So here goes; I have recently begun to experience skin splitting on my fingertips and was wondering if this is another side effect of IPF. Does anyone have loss of strength in their arms, hands more specifically? Do your joints hurt? Do you cough so much that you gag and start to throw up? Do you frequently sound like a squeak toy? (That's what my oldest daughter jokingly calls me, to get me to smile)> > Thank You,> >