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Re: miralax vs lactulose/Dana

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In a message dated 6/27/2003 1:55:24 PM Central Daylight Time,

catherine_hasslinger@... writes:

> Does anyone have any experience good or

> bad with lactulose??? I would love to hear from you.

>

My son had constipation problems three years ago and was put on Miralax.

After 10 days, he began blinking a whole lot. The doctor insisted it couldn't be

because of the Miralax, but I stopped it anyway (after which he immediately

stopped the blinking problem), so the doctor then put him on Lactulose. For

eight

straight days, he didn't poop at all. Nothing. (He was getting plenty of

water.) I still don't know why this was. But at this point, I stopped giving him

any medications for his constipation, figuring whatever else I tried couldn't

do any worse, and lost all faith in mainstream medication and doctors. I

started giving him digestive enzymes, put him on a gfcf diet (I think lactulose

contains casein, but I'm not positive about this), and started treating him for

yeast, and it's been all uphill since that time.

Of course, all kids are different, but you asked, and that was our story.

Debbie

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Ethan's story is outlined on dana's site. He HAD been successful on

the lactulose and then a doc, who had obviously been given a free

sample from the company turned us on to the miralax. AFTER that

whole two month ordeal on the miralax, then he reacted BADLY to even

the lactulose and he could not even be on ANYTHING for the

constipation because his gut was so screwed up.

What I do not know about lactulose is whether or not it will feed

yeast/bacteria and perhaps someone else can answer that question for

you. Otherwise, my only advice about the lactulose is MAKE SURE you

give it with at least 8 ounces of water. Giving it with enough water

is VERY important for it to work properly.

Also keep in mind that this product DOES cross over the GI tract into

the bloodstream-- that's how they do intestinal permeability tests--

they use mannitol and lactulose and measure the amounts of both that

came through.

W

> Wow, I just checked out the miralax info on Dana's site describing

> terrible miralax poisoning to an autist with leaky gut. I think

> doc'c are really promoting Miralax right now - we got an Rx last

> week, but after reading the package insert I left it unopened.

>

> Question: We just started on lactulose - it sounds too good to be

> true. It is a di-saccharide that promotes beneficial bacteria by

> reducing gut pH, and reduces ammonia (a neurotoxin) and is used to

> treat hepatic encephalopathy. Does anyone have any experience good

or

> bad with lactulose??? I would love to hear from you.

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Have you tried ground Flax Seeds? My son had only trouble on the lactulose.

He was either still constipated or he had diarrhea. As soon as we stared

giving him 2 tablespoons of ground Flax Seeds per day he had no more trouble

with constipation. Robin

[ ] Re: miralax vs lactulose/Dana

Ethan's story is outlined on dana's site. He HAD been successful on

the lactulose and then a doc, who had obviously been given a free

sample from the company turned us on to the miralax. AFTER that

whole two month ordeal on the miralax, then he reacted BADLY to even

the lactulose and he could not even be on ANYTHING for the

constipation because his gut was so screwed up.

What I do not know about lactulose is whether or not it will feed

yeast/bacteria and perhaps someone else can answer that question for

you. Otherwise, my only advice about the lactulose is MAKE SURE you

give it with at least 8 ounces of water. Giving it with enough water

is VERY important for it to work properly.

Also keep in mind that this product DOES cross over the GI tract into

the bloodstream-- that's how they do intestinal permeability tests--

they use mannitol and lactulose and measure the amounts of both that

came through.

W

> Wow, I just checked out the miralax info on Dana's site describing

> terrible miralax poisoning to an autist with leaky gut. I think

> doc'c are really promoting Miralax right now - we got an Rx last

> week, but after reading the package insert I left it unopened.

>

> Question: We just started on lactulose - it sounds too good to be

> true. It is a di-saccharide that promotes beneficial bacteria by

> reducing gut pH, and reduces ammonia (a neurotoxin) and is used to

> treat hepatic encephalopathy. Does anyone have any experience good

or

> bad with lactulose??? I would love to hear from you.

=======================================================

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My child gets regular bowel movements when we give him strong pro-biotic

every day. When we skip a day I can tell.

Robin Arnold wrote:

> Have you tried ground Flax Seeds? My son had only trouble on the

> lactulose.

> He was either still constipated or he had diarrhea. As soon as we

> stared

> giving him 2 tablespoons of ground Flax Seeds per day he had no more

> trouble

> with constipation. Robin

>

> [ ] Re: miralax vs lactulose/Dana

>

> Ethan's story is outlined on dana's site. He HAD been successful on

> the lactulose and then a doc, who had obviously been given a free

> sample from the company turned us on to the miralax. AFTER that

> whole two month ordeal on the miralax, then he reacted BADLY to even

> the lactulose and he could not even be on ANYTHING for the

> constipation because his gut was so screwed up.

>

> What I do not know about lactulose is whether or not it will feed

> yeast/bacteria and perhaps someone else can answer that question for

> you. Otherwise, my only advice about the lactulose is MAKE SURE you

> give it with at least 8 ounces of water. Giving it with enough water

> is VERY important for it to work properly.

>

> Also keep in mind that this product DOES cross over the GI tract into

> the bloodstream-- that's how they do intestinal permeability tests--

> they use mannitol and lactulose and measure the amounts of both that

> came through.

>

> W

>

>

> > Wow, I just checked out the miralax info on Dana's site describing

> > terrible miralax poisoning to an autist with leaky gut. I think

> > doc'c are really promoting Miralax right now - we got an Rx last

> > week, but after reading the package insert I left it unopened.

> >

> > Question: We just started on lactulose - it sounds too good to be

> > true. It is a di-saccharide that promotes beneficial bacteria by

> > reducing gut pH, and reduces ammonia (a neurotoxin) and is used to

> > treat hepatic encephalopathy. Does anyone have any experience good

> or

> > bad with lactulose??? I would love to hear from you.

>

>

>

> =======================================================

>

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My child gets regular bowel movements when we give him strong pro-biotic

every day. When we skip a day I can tell.

Robin Arnold wrote:

> Have you tried ground Flax Seeds? My son had only trouble on the

> lactulose.

> He was either still constipated or he had diarrhea. As soon as we

> stared

> giving him 2 tablespoons of ground Flax Seeds per day he had no more

> trouble

> with constipation. Robin

>

> [ ] Re: miralax vs lactulose/Dana

>

> Ethan's story is outlined on dana's site. He HAD been successful on

> the lactulose and then a doc, who had obviously been given a free

> sample from the company turned us on to the miralax. AFTER that

> whole two month ordeal on the miralax, then he reacted BADLY to even

> the lactulose and he could not even be on ANYTHING for the

> constipation because his gut was so screwed up.

>

> What I do not know about lactulose is whether or not it will feed

> yeast/bacteria and perhaps someone else can answer that question for

> you. Otherwise, my only advice about the lactulose is MAKE SURE you

> give it with at least 8 ounces of water. Giving it with enough water

> is VERY important for it to work properly.

>

> Also keep in mind that this product DOES cross over the GI tract into

> the bloodstream-- that's how they do intestinal permeability tests--

> they use mannitol and lactulose and measure the amounts of both that

> came through.

>

> W

>

>

> > Wow, I just checked out the miralax info on Dana's site describing

> > terrible miralax poisoning to an autist with leaky gut. I think

> > doc'c are really promoting Miralax right now - we got an Rx last

> > week, but after reading the package insert I left it unopened.

> >

> > Question: We just started on lactulose - it sounds too good to be

> > true. It is a di-saccharide that promotes beneficial bacteria by

> > reducing gut pH, and reduces ammonia (a neurotoxin) and is used to

> > treat hepatic encephalopathy. Does anyone have any experience good

> or

> > bad with lactulose??? I would love to hear from you.

>

>

>

> =======================================================

>

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In a message dated 27/6/03 7:00:49 pm, catherine_hasslinger@... writes:

> Question: We just started on lactulose - it sounds too good to be

> true. It is a di-saccharide that promotes beneficial bacteria by

> reducing gut pH, and reduces ammonia (a neurotoxin) and is used to

> treat hepatic encephalopathy. Does anyone have any experience good or

> bad with lactulose??? I would love to hear from you.

>

>

It's a great laxative, too, but not a " strong " one so you don't have to worry

too much. Babies have it. I used it some time ago and had no problems

with it.

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Dana, I am so sorry that Ethan had such a horrible experience with

Miralax.. thanks for getting the info out there. You might want to

consider changing one small detail though just for accuracy..

nephrotoxic is KIDNEY toxixity (not liver which is hepatotoxicity)

it might be important for others reading it as to what symptoms to

watch for and prior history.. sorry to be nit picky but it might be

important for people to know this.. hope Ethan is well

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> Dana, I am so sorry that Ethan had such a horrible experience with

> Miralax..

My son's name is not Ethan. That page was written for me by someone

else, whose opinion I trust. The person who wrote it, did agree with

the correction you indicated, and I have changed my page. Thanks for

pointing that out.

http://www.danasview.net/miralax.htm

Dana

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