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Mojo, Sometimes, it takes the news of something REAL to bring people like your sister around. I'll

pray that this is so in her case, and that she wakes up and becomes more proactive in her own life,

and not just reactive. You have my prayers. Loving hugs, MM

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I *did* send this, it was in my Sent folder, but it never went through... nor was it on the board...

Mojo,

How are you doing?

Could your sister apply for disability through SS now that she has the MS dx? I know it's a long and tiresome process with a lot of rejection, but when you finally get approved, it's so worth it! If she does it now, and has the insurance through the study, that will help her out. It took me just over two years to get mine, I got it in September, and I'll have the Medicare in April. (I applied in May of 2001, they figured I could have worked until Oct 2001, so I didn't even have it started until April 2002 as my date of disability since they have that five month "waiting period") But every little bit helps. I suggest if she is going to apply, not to waste any time, especially since there is that five month "waiting period" that isn't covered.

On the bad side, it would hurt her to get a job in the meantime :(

Maybe it is something she could look into?Take care!

My sister

Hi all,

Just wanted to share some news with you all. My sister has always been pretty healthy, but recently she hasn't been doing too well. One of her legs kept going numb on her, and being a very athletic person she found herself very weak and not able to do the things she normally did. I blamed it on her life style. She's the only provider for herself and a 19 year old son. She was in financial trouble 9 years ago when she decided to buy a house. Her monthly payments between mortgage, bills and pay offs for previous debts was $3,500 a month. That's not considering food. Well two years ago she lost her job. She got a nice package which disappeared real quick. She was on unemployment for 18 months as at the same time she decided to requalify and go back to school. They hardly eat anything because there is never any money for food, when they do it is junk food. She started leading a very unhealthy life style. Staying up at night on the computer or watching TV. So, when she started complaining about being tired, not having energy, her legs going numb I blamed it on her lifestyle.

She was diagnosed with MS yesterday. They are considering her for a study that will provide health care for a year, but at the same time she needs to find a job. She was just working as a personal assistant for a guy for the last 5 months and she lost that job. Her salary expectations are extremely high, considering the fact that there are so many people without a job, companies are cutting and she did not get her degree yet. We have helped her a lot throughout the last year. We gave her about 5 thousand dollars, money we really do need ourselves considering we have 3 kids. We paid for my nephews college the previous semester. My husband is afraid to help her financially more first of all because she's been doing this for years and our mom constantly pays her debts off for her and has taken out about $20,000 out of her retirement plan to help her. Secondly, my hubby is afraid that she will go down financially, as a few thousands dollars doesn't really make a difference in her situation. With that everything we give her is a "waste" anyway. She still has a cocky attitude about all this claiming "she managed all this time and she'll still manage", and refuses to admit she would have lost it all if it wasn't for our mother. Her house if a pig style, I'm not talking about mess, I'm talking about filth. It's a very posh area in Northern NJ, her house is an eye sore. She won't fix anything because she has no money, my hubby does everything in that house, but parts are needed and she won't buy them. It was a decent house, nicely kept by an old couple but in need of updates. He says everything is going to crumble one of these days because it is so unkept.

We tried speaking with her, but her priorities are completely messed up. She has this attitude that everyone "owns" her something. Gets pissed off at organizations who do not want to approve paying mortgage for her because they say if she can't afford the house she should sell it.

There's nothing we can do. My mom refuses to see the fact that Barbara needs to start standing up for her decisions. All she sees is Barbara who is managing so well, but need some help now and then. I get pissed, because I know there are so many people that are sick and have to stop working, have no insurance and cannot afford to get medical help. In the meantime she was just bumming around these last two years.

Sorry, just needed to get this off my chest. I'm just so afraid she is going down and there is so little we can do for her. She just refuses to help herself. She buys stupid things when she has some money but won't get a decent meal, or pay a bill off. And it has never been because she couldn't work. Now she'll have an excuse.

Mojo

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Mojo

I am really sorry to hear that your sister has MS. However, the rest

of the story is heartbreaking to say the least. She is in need of

counseling or something. As far as the house goes, with the filth and

all is there some kind of agency that you can make an annonomous tip

to so that they can visit the place and hopefully she will see the

importance of cleaning up the place. Not only that it just might be a

fire hazard. I would hate to see her have a serious tragedy as a

result of her lifestyle.

Hope all works out for everyone involved in the long run.

Take care

Dorothy

> Hi all,

> Just wanted to share some news with you all. My sister has always

been pretty healthy, but recently she hasn't been doing too well. One

of her legs kept going numb on her, and being a very athletic person

she found herself very weak and not able to do the things she

normally did. I blamed it on her life style. She's the only provider

for herself and a 19 year old son. She was in financial trouble 9

years ago when she decided to buy a house. Her monthly payments

between mortgage, bills and pay offs for previous debts was $3,500 a

month. That's not considering food. Well two years ago she lost her

job. She got a nice package which disappeared real quick. She was on

unemployment for 18 months as at the same time she decided to

requalify and go back to school. They hardly eat anything because

there is never any money for food, when they do it is junk food. She

started leading a very unhealthy life style. Staying up at night on

the computer or watching TV. So, when she started complaining about

being tired, not having energy, her legs going numb I blamed it on

her lifestyle.

>

> She was diagnosed with MS yesterday. They are considering her for a

study that will provide health care for a year, but at the same time

she needs to find a job. She was just working as a personal assistant

for a guy for the last 5 months and she lost that job. Her salary

expectations are extremely high, considering the fact that there are

so many people without a job, companies are cutting and she did not

get her degree yet. We have helped her a lot throughout the last

year. We gave her about 5 thousand dollars, money we really do need

ourselves considering we have 3 kids. We paid for my nephews college

the previous semester. My husband is afraid to help her financially

more first of all because she's been doing this for years and our mom

constantly pays her debts off for her and has taken out about $20,000

out of her retirement plan to help her. Secondly, my hubby is afraid

that she will go down financially, as a few thousands dollars doesn't

really make a difference in her situation. With that everything we

give her is a " waste " anyway. She still has a cocky attitude about

all this claiming " she managed all this time and she'll still

manage " , and refuses to admit she would have lost it all if it wasn't

for our mother. Her house if a pig style, I'm not talking about mess,

I'm talking about filth. It's a very posh area in Northern NJ, her

house is an eye sore. She won't fix anything because she has no

money, my hubby does everything in that house, but parts are needed

and she won't buy them. It was a decent house, nicely kept by an old

couple but in need of updates. He says everything is going to crumble

one of these days because it is so unkept.

>

> We tried speaking with her, but her priorities are completely

messed up. She has this attitude that everyone " owns " her something.

Gets pissed off at organizations who do not want to approve paying

mortgage for her because they say if she can't afford the house she

should sell it.

> There's nothing we can do. My mom refuses to see the fact that

Barbara needs to start standing up for her decisions. All she sees is

Barbara who is managing so well, but need some help now and then. I

get pissed, because I know there are so many people that are sick and

have to stop working, have no insurance and cannot afford to get

medical help. In the meantime she was just bumming around these last

two years.

>

> Sorry, just needed to get this off my chest. I'm just so afraid she

is going down and there is so little we can do for her. She just

refuses to help herself. She buys stupid things when she has some

money but won't get a decent meal, or pay a bill off. And it has

never been because she couldn't work. Now she'll have an excuse.

>

> Mojo

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  • 2 weeks later...

Well, guys my dad finally took his cell phone back from CarlaSue today. He told her a month ago that he could not keep paying her bill as she has been charging up to fifty dollars just in information calls and went over a hundred dollars over on minutes each month. She just would not get a phone and he finally took his away today and now she says she will have a regular phone and be back online by Friday. I am sure that as soon as she gets herself back online she will want to rejoin this group since she is the one who found you all first. She has been calling all of our close family and friends, who know better, and saying very bad things about her son and I just would not be able to read the nasty lies without causing problems for the group. That being said, I will keep an eye out and when I see her start to post, will probably need to call it quits rather than put everyone on the spot. I sure do think the world of all of you guys so just thought I would take the time to explain things to everyone beforehand. It will probably take her a few days to get online since my husband quit paying her account a few months ago since she wasn't using it.

a C

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a C. I NEED you as a member of this group. If she does start causing problems for you, we will just have to put our heads together and come up with something. You are not leaving the group. You left once and I missed you terribly. Of course I can't promise anything but that I will do everything I can to help you. Hugs - a BazToy2@... wrote:

Well, guys my dad finally took his cell phone back from CarlaSue today. He told her a month ago that he could not keep paying her bill as she has been charging up to fifty dollars just in information calls and went over a hundred dollars over on minutes each month. She just would not get a phone and he finally took his away today and now she says she will have a regular phone and be back online by Friday. I am sure that as soon as she gets herself back online she will want to rejoin this group since she is the one who found you all first. She has been calling all of our close family and friends, who know better, and saying very bad things about her son and I just would not be able to read the nasty lies without causing problems for the group. That being said, I will keep an eye out and

when I see her start to post, will probably need to call it quits rather than put everyone on the spot. I sure do think the world of all of you guys so just thought I would take the time to explain things to everyone beforehand. It will probably take her a few days to get online since my husband quit paying her account a few months ago since she wasn't using it.a C "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies

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