Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Does anybody have any opinion on Dr. Bock The DAN doctor in new york??? thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 I have a few friends who did not like him. They paid several thousands and feel it was not worth it. I saw him at a conference and feel he is knowledgeable about the vaccine/autism link. I did not get the impression he knew what to do about it though. He also said that most of his knowledge comes from parents who do trial and error. So basically, IMO he is a middle man. But there are some on this list who are very satisfied with him. Tina B > Does anybody have any opinion on Dr. Bock The DAN doctor in new > york??? thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 > I have a few friends who did not like him. They paid several > thousands and feel it was not worth it. I saw him at a conference and > feel he is knowledgeable about the vaccine/autism link. I did not get > the impression he knew what to do about it though. He also said that > most of his knowledge comes from parents who do trial and error. So > basically, IMO he is a middle man. He's a middleman between parents who don't talk to each other. With the internet you can all talk to each other easily and cut out the middleman. :-) . . . . .. . . . . . . . >But there are some on this list > who are very satisfied with him. Ti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2008 Report Share Posted June 29, 2008 > > > Has anyone in this group taken their child to Dr. Bock for treatment? I'm planning to call his office soon to schedule an appointment. Since he is several hours away from us, I wonder how this will work out in terms of followup visits, testing, etc. But I will do anything to try and help my son. I'll be happy to hear of your experiences. Thank you. > [ ] Re: DAN doctors > > Dr.Bock's initial visit is very expensive also. If I remember correctly about $800. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 A fellow employee from work took his son to his partner - there is at least an 8 month wait to see Dr. Bock. > > Dr.Bock's initial visit is very expensive also. If I remember correctly about $800. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2008 Report Share Posted July 1, 2008 I took my son to see his partner (Dr. Compain) two weeks ago. The fee for his initial visit was $650. I think Dr. Bock is $750. We are just getting started so I can't comment on whether any of the treatments will help or not, but we do like Dr. Compain. > > A fellow employee from work took his son to his partner - there is > at least an 8 month wait to see Dr. Bock. > > > > > Dr.Bock's initial visit is very expensive also. If I remember > correctly about $800. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 Why are they so expensive? What do you get for your $650? D > > > > A fellow employee from work took his son to his partner - there is > > at least an 8 month wait to see Dr. Bock. > > > > > > > > Dr.Bock's initial visit is very expensive also. If I remember > > correctly about $800. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 I think some of why they are expensive is expertise, the fact that they order bloodtests that cause reimbursement penalties from insurance, they likely pay highrer insurance premiums. Still, while not cheap, the fees mentioned are similar to ones charged by mainstreamers I sought out to help my son. With complex neuro things it is not simple to get the right help. I went to a regular neuro who was at a prominent facility (CHOP) and said she knew nothing of speech disorders (hello, they originate in the brain). I am currently on a waiting list for a neurodevelopmental pediatrician who knows apraxia but not much about what to do with it. I am comfortable having her follow us to monitor the apraxia's path or whatever we have's path only because we are also already seeing a metabolic neurologist who knows the diet and supplements needed to address my son's gut issues which seem to affect his neuro stuff greatly and, should we need to return to speech therapy we have access to an awesome Prompt Therapist. We are also doing NACD. For us it gives me peace and allows me to enjoy my kids and monitor progress and regress to give info to the docs. > > > > > > A fellow employee from work took his son to his partner - there is > > > at least an 8 month wait to see Dr. Bock. > > > > > > > > > > > Dr.Bock's initial visit is very expensive also. If I remember > > > correctly about $800. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 For our first visit I completed 27 pages of medical history and questionnaires (here is the link to the " new patient " forms http://www.rhinebeckhealth.com/rhc/forms/Autism%20new%20patient% 20form.pdf). I also had to provide copies of all tests we have already done. The doctor spent about an hour and a half with us, reviewing the records, we told him about our son, he asked questions, did a brief medical exam of our son, then went over his recommendations. He ordered the blood, urine and stool tests. He recommended we begin the GF/CF diet along with a calcium/magnesium supplement. He recommended we begin methyl-B12 shots. He also recommended melatonin to help our son sleep. We are already giving him fish oil, probiotics and liquid zeolite. We go back in about 6 weeks to review the lab results and get more specific recommendations - possibly chelation and other supplements. He also said he may consider HBOT in the future. Our DAN is an MD, did take a complete medical history and perform an exam (although brief). He told us that " these kids " labs look very similar, but their symptoms are very different, so he really didn't need to do much of an exam of our son. We pretty much told him everything he needed to know. And we educated ourselves before the appointment so we already knew that our son fit the profile, he just confirmed it for us. He did not make any promises to " cure " our son and I knew this going into the appointment. Is $650 expensive? I guess that depends on how you define expensive. Thankfully we have been blessed to be able to afford it. I will turn this in to our insurance and hopefully they will cover some of it. We have good insurance, but even if they don't cover any of it, I do not have any regrets paying it. If I could not afford the visit, I would have tried some of these things on my own (GF/CF diet and melatonin). As I have said before, we have just started so I cannot comment on whether this protocol is helping. I can say however, that the melatonin is WONDERFUL! Our son goes to sleep within 10 to 20 minutes of taking it! Much better than chasing him around the house until midnight! He doesn't always sleep through the night, but if he wakes up, he usually goes right back to sleep when I put him back in bed. This stuff works so fast it seems like I am giving him a drug, but it is a NATURAL supplement! Hope this is helpful. > > Why are they so expensive? What do you get for your $650? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 Why do you want a DAN doctor? Does your child have autism? What does that mean that ' " these kids " labs look the same'? Did the medical exam include assessment of speech production and oral-motor function? D -- In , " amieestrella " <mestrell@...> wrote: > > For our first visit I completed 27 pages of medical history and > questionnaires Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 Thank you for all the details. Yes it is helpful to see that our pediatrician who is an MD and homeopath uses a similar DAN protocol and we've been through similar tests and supplements. This is a new emerging field. The tests are getting perfected all the time, the protocols change and adapt to each child's needs. My daughter had no sleeping issues, she has skin issues and that's what took us to alternative health care to begin with. it was only later that we discovered that it may very well be the best thing we've ever done for her as she is gluten/casein/soy/corn intolerant and had severe absorption issues we would have never suspected since she has no digestive signs. So we do indeed feel very blessed to have discovered biomedical approaches to address her metabolic disorders and everything else that comes with it. Biomedical approaches are catered to the individual's specific health needs and that does take more time, more knowledge and it is more of a trial and error, but let's not kid ourselves, so is every drug on the market and the doctors know it. As far as clinical trials, those too are more difficult and I don't really know about anybody else, but at this point, not only are such things impossible to carry out due to each child's unique metabolic profile, but I would not allow my child to take part in a clinical trial for say fish oil or B12 for example, when I know these are things she absolutely needs and I do not want the possibility of her being in the " control " group and receiving a placebo. So by definition, these very individualized approaches will never have the same type of data as the one drug cures all Big Pharma approaches. Now they can critique it all they want, but surely parents and all those who understand biomedicine know why this is an invalid critique. Anyway, thank you for the info. It helps to see that the protocols are very similar and we are not overlooking anything. Elena, mom to Ziana age 3.10, severely apraxic but otherwise a happy healthy child and progressing well since appropriate speech therapy/diet/supplements have been implemented amieestrella <mestrell@...> wrote: For our first visit I completed 27 pages of medical history and questionnaires (here is the link to the " new patient " forms http://www.rhinebeckhealth.com/rhc/forms/Autism%20new%20patient% 20form.pdf). I also had to provide copies of all tests we have already done. The doctor spent about an hour and a half with us, reviewing the records, we told him about our son, he asked questions, did a brief medical exam of our son, then went over his recommendations. He ordered the blood, urine and stool tests. He recommended we begin the GF/CF diet along with a calcium/magnesium supplement. He recommended we begin methyl-B12 shots. He also recommended melatonin to help our son sleep. We are already giving him fish oil, probiotics and liquid zeolite. We go back in about 6 weeks to review the lab results and get more specific recommendations - possibly chelation and other supplements. He also said he may consider HBOT in the future. Our DAN is an MD, did take a complete medical history and perform an exam (although brief). He told us that " these kids " labs look very similar, but their symptoms are very different, so he really didn't need to do much of an exam of our son. We pretty much told him everything he needed to know. And we educated ourselves before the appointment so we already knew that our son fit the profile, he just confirmed it for us. He did not make any promises to " cure " our son and I knew this going into the appointment. Is $650 expensive? I guess that depends on how you define expensive. Thankfully we have been blessed to be able to afford it. I will turn this in to our insurance and hopefully they will cover some of it. We have good insurance, but even if they don't cover any of it, I do not have any regrets paying it. If I could not afford the visit, I would have tried some of these things on my own (GF/CF diet and melatonin). As I have said before, we have just started so I cannot comment on whether this protocol is helping. I can say however, that the melatonin is WONDERFUL! Our son goes to sleep within 10 to 20 minutes of taking it! Much better than chasing him around the house until midnight! He doesn't always sleep through the night, but if he wakes up, he usually goes right back to sleep when I put him back in bed. This stuff works so fast it seems like I am giving him a drug, but it is a NATURAL supplement! Hope this is helpful. > > Why are they so expensive? What do you get for your $650? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 The reason I sought out a DAN doctor is because my son is borderline autistic (not officially diagnosed, but our ped. neuro. is considering it a possibility). We have had an MRI, EEG, CT scan and genetic testing done. All of these tests came back normal. My son inhaled meconium (toxic) at birth, had acid reflux from age 2 months to 1 year, used a nebulizer from age 5 months to 2 years, said " ma ma " at 8 months and can no longer say it, he had numerous ear infections and thus many rounds of antibiotics, his nose is often congested and runny, his stools have always been odd (strained to pass them as an infant, has undigested food in them, somtimes loose, sometimes dry and hard). He has self stimulating movements. He grinds his teeth and puts a lot of things in his mouth. He has difficulty sleeping. He is very hyper - can't sit still. He has had speech therapy, OT and PT for 4 years (began at age 1, he is now 5). He has made nice gains in PT, some gains in OT, but very little gains in speech. He cannot blow bubbles or blow out candles. He cannot make sounds upon request. His SLP from school told me she can get him to make 20 sounds (not specific sounds, just any sound) on request, but I have not seen him do this. Based on my son's symptoms and what I have read about the biomedical approach, I thought my son possibly fit the profile so I decided to pursue it. By ' " these kids " labs look the same' the doctor meant that they usually have the same deficiencies. I provided the doctor wth the latest assessment of speech production and oral-motor function performed by my son's SLP (completed in 2/08). Quote Link to comment Share on other sites More sharing options...
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