Re: Grocery Shopping List help

December 29, 2003

I can't help with the CA hospital- sorry- but I can tell you what is on our

grocery list. My daughter, Langan, has been on the diet for one month. She is

17 months old and was eating solids when we started. She was a BIG pasta fan,

so we had to find a substitute for that QUICK. We use spaghetti squash. I had

never heard of it but I swear it looks just like pasta and Langan loves it. She

eats it either with parmesan cheese and butter or with ground meat and a little

tomato puree. Also, a staple of the diet is heavy whipping cream- 36% cream is

the recommended fat content. We use Purity but I don't know what they have in

CA. Also, oil is a big part of the diet- we use mazola corn oil and hide it in

the whipping cream. Eggs are also big for breakfast. We calculate Langan's

meals with a small amount of fruit in each one so that she gets " dessert " . It's

not the amount she was used to before the diet but she looks forward to it every

meal and knows the meal is over when the fruit is gone. We use fresh peach,

pineapple and pear, although I am sure that you can calculate just about any

fruit into the diet.

I am still very new to this and spend a lot of time getting advice from the

parents in this group. They are great! Stick around and you will learn so

much!

Good luck with the diet!

, mom to Langan, one month on keto

Grocery Shopping List help

My daughter is 8 yr old and we are going to be starting the diet in

January sometime, whenever I can get her Dr. to return my call. We

are out here in California does any one no which Hospital's do the

Ketogenic out here, mine that she goes to now does not. I was

wondering what a shopping list looks like for those of you on the

diet now, where do you shop and what kinds of things do you shop

for? We have emptied our cabinet's of the common things I know she

can't have. What kinds of things do you shop for when you go?

Help - Redonna

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

December 29, 2003

--

thank you so much, how is langan doing on the diet. It's so

fustrating to me. Haylee has been through 17 medications, she has

the VNS right now and it's not worth the pain she went through to

get it, it doesn't help at all, getting ready to take it out soon.

Thank you for the suggestions, Haylee loves spaghetti as well so

that's nice too no. I was reading through the atkins cookbook and

thinking I have never heard of half the stuff in this book.

Happy Holidays

Redonna

- In ketogenic , " Tucker " <tuckerwing@m...>

wrote:

> I can't help with the CA hospital- sorry- but I can tell you what

is on our grocery list. My daughter, Langan, has been on the diet

for one month. She is 17 months old and was eating solids when we

started. She was a BIG pasta fan, so we had to find a substitute

for that QUICK. We use spaghetti squash. I had never heard of it

but I swear it looks just like pasta and Langan loves it. She eats

it either with parmesan cheese and butter or with ground meat and a

little tomato puree. Also, a staple of the diet is heavy whipping

cream- 36% cream is the recommended fat content. We use Purity but

I don't know what they have in CA. Also, oil is a big part of the

diet- we use mazola corn oil and hide it in the whipping cream.

Eggs are also big for breakfast. We calculate Langan's meals with a

small amount of fruit in each one so that she gets " dessert " . It's

not the amount she was used to before the diet but she looks forward

to it every meal and knows the meal is over when the fruit is gone.

We use fresh peach, pineapple and pear, although I am sure that you

can calculate just about any fruit into the diet.

>

> I am still very new to this and spend a lot of time getting advice

from the parents in this group. They are great! Stick around and

you will learn so much!

>

> Good luck with the diet!

>

> , mom to Langan, one month on keto

> Grocery Shopping List help

>

> My daughter is 8 yr old and we are going to be starting the diet

in

> January sometime, whenever I can get her Dr. to return my call.

We

> are out here in California does any one no which Hospital's do

the

> Ketogenic out here, mine that she goes to now does not. I was

> wondering what a shopping list looks like for those of you on

the

> diet now, where do you shop and what kinds of things do you shop

> for? We have emptied our cabinet's of the common things I know

she

> can't have. What kinds of things do you shop for when you go?

> Help - Redonna

>

> " The Ketogenic Diet....a realistic treatment option, NOT just

a last resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-

unsubscribe

>

December 29, 2003

Our diet staples were pasta, fruit and juice- and a ton of all of them. I

seriously wondered if Langan would ever be able to adjust but she has adjusted

like a champ. I am sure Haylee will, too.

Langan had 16 seizure free days when we first started the diet. Since then, we

have had some " bumps in the road " but I am convinced that we can get this right

with fine tuning. We are in the process of weaning Langan from her AED- she is

only on a small dose of lamictal- but I have been told by the people on this

board that until we are off meds we won't know what the diet can do. We did the

first reduction last Saturday and I cannot tell you how different Langan has

been already. I am terrified to have her off of meds but the parents here have

a point when they have told me that we wouldn't be here in the first place if

the meds were working. I noticed early on that Langan was having seizures on

the diet exactly at 1 1/2 hours after her lamictal dose, when the dose should be

the highest in her system. They are no longer that regulated but that did lead

me to believe that they could be a sign that the lamictal and the diet don't

mix. At least that is my hope....

I know how frustrated you are. Langan has been on 6 different meds in her short

life and they have all seemed to work just long enough to tease us into

believing in them. But I do believe in this diet. I have heard so many miracle

stories and I just know it is the right thing for us. I hope it is the right

thing for Haylee, too!

Take care!

Grocery Shopping List help

>

> My daughter is 8 yr old and we are going to be starting the diet

in

> January sometime, whenever I can get her Dr. to return my call.

We

> are out here in California does any one no which Hospital's do

the

> Ketogenic out here, mine that she goes to now does not. I was

> wondering what a shopping list looks like for those of you on

the

> diet now, where do you shop and what kinds of things do you shop

> for? We have emptied our cabinet's of the common things I know

she

> can't have. What kinds of things do you shop for when you go?

> Help - Redonna

>

> " The Ketogenic Diet....a realistic treatment option, NOT just

a last resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-

unsubscribe

>

January 3, 2004

Hi!

We were out of town for Christmas, but we live in Santa and found

multiple hospitals in the LA area by the Stanford website. We are getting

great support from the UCLA staff, they have a specific ketogenic nurse that is

really great. She returns calls every day, is a source of great information and

just is lovely and supporting. They also have a ketogenic nurse who plans the

meals and really spoons feeds the menus to us. Also in LA Children's Hospital

and Huntington Hospitals have programs but I don't know much about them. UCLA

gave us a shopping list of what we specifically were to buy, but the book also

has good information. The dietician gave me the numbers of all the supplements

we needed. Best wishes, however we can help your transition let us know. Our 9

year old son has done very well on the diet. After multiple meds that actually

made him worse, the diet is a God send to us. He is not seizure free, but my

husband and I would put him in the greater than 90% reduction. It is a

transition though, he was only 50% or so until we reduced his water intake, and

my guess would be even greater than 90% if we reduced his calories a bit more,

but he is very thin now and I am happy we are where we are now. Dixie